Does CI affect some nerves? - Page 2

rick48 · 02-05-2012, 03:50 PM

If a child is experiencing twitching, etc. I would not rule out possible vision issues but would definitely have the map checked as soon as possible. There are some electrodes for my daughter that her audiologist carefully monitors her comfort and thresh hold levels.
Rick

Frisky Feline · 02-05-2012, 03:53 PM

or could it causes some nerves all over in head, and neck that twitching very slightly.

rick48 · 02-05-2012, 04:33 PM

Quote:

Originally Posted by Frisky Feline

or could it causes some nerves all over in head, and neck that twitching very slightly.

Never heard or read of that or know of anyone who had those symptoms. Usually it is an eye twitch but it is usually corrected through a map adjustment.
Rick

Frisky Feline · 02-05-2012, 04:44 PM

Quote:

Originally Posted by rick48

Never heard or read of that or know of anyone who had those symptoms. Usually it is an eye twitch but it is usually corrected through a map adjustment.
Rick

I was talking about the body language that shows some stange movement that my friends who are working with kids and notice how strange that they never saw before , not only one, about three or four of them that she wonders. So she asked me aboout it because she knows that my hub has a CI. I replied to her that my hub told me that there are full of numb all over his head and felt so strange like tickles in his head. That's how we start to discuss wondering what children behaves that reflects how or so. I can see that my hub is more careful than before when he got a CI which i am not comfortable with the idea but its his choice, not mine. She asked another two or three friends of ours who have CI since they were 10 yrs old. They tried to remember how did they feel when they were young and told her but one of them got screwed up with CI and was in really painful for the whole three years then she had another surgery and its better but cause more numb in her head and close to her neck.

but wonder about small kids once they get ci and then they become older i wonder how thier nerves are . Indeed, I am concerned about small kids head especially.

**Banjo** · 02-05-2012, 04:56 PM

Quote:

Originally Posted by Cloggy

It sounds as if they hit a nerve of the arm while implanting a CI.. What happened...?

Yes, a lawsuit was filed against the hospital. I don't have much details on what happened, from what I know, it was a result of the surgery itself. They severed a nerve that was linked to his right arm.

It happens.

**Cheetah** · 02-05-2012, 09:03 PM

I experience the face twitching and the eye twitching. It started immediately after surgery then after a month it went away and then started returning a year or so later. It doesn't happen often now, it seemed to be related to the volume. The funny thing is it has happened even at low volume but is resolved by reducing the volume. Usually I can crank it up and have no issues. Then suddenly I will have an issue with it again. Strange and not easily explained. I will have to bring this up with my CI dr next week.

Clearly if I am having migraines the volume needs to go down. I don't think my CI causes any of my migraines.

Cloggy · 02-05-2012, 09:21 PM

Quote:

Originally Posted by Banjo

Yes, a lawsuit was filed against the hospital. I don't have much details on what happened, from what I know, it was a result of the surgery itself. They severed a nerve that was linked to his right arm.

It happens.

Any doctor that severs a nerve in an arm while performing a CI operation should be sued...
And please make his/her name public so that no-one goes near that man/woman.... for any surgery..

Very interesting case.

and.. "it happens"..??
there's a first for everything I guess.... Youngest grandmother is 23 years old I read somewhere....

it happens..

**Banjo** · 02-05-2012, 09:22 PM

Quote:

Originally Posted by Cloggy

Any doctor that severs a nerve in an arm while performing a CI operation should be sued...
And please make his/her name public so that no-one goes near that man/woman.... for any surgery..

Very interesting case.

Unfortunately, I don't have the name of the doctor. I think it may had been settled out of court.

green427 · 02-05-2012, 09:33 PM

Banjo is right....there is always a risk during surgery.

Twitching....well, from my own experience, during a routine tune-up, the audi had the volume on too high on my 3rd electrode, and it was so painful that my whole face cringed, but, that was a voluntary response, not an involuntary one. If there is a high-pitched sound present, and someone's eyes squint, then you know the map needs to be adjusted. I only know of one person that had abnormal optical activity...this person began having seizures and eyes rolling independently after having a CI...and all the problems went away after the CI was removed. The cause was never found.

My first CI surgery caused a nerve on my tongue to be associated with a nerve on my head. If I scratched my head, I also felt the scratching on my tongue. Weird. It finally went away after 3-4 years. I had no effects after the second CI surgery.

Bottom line is...everyone will have a different outcome with a CI.

Cloggy · 02-05-2012, 09:35 PM

Quote:

Originally Posted by Banjo

Unfortunately, I don't have the name of the doctor. I think it may had been settled out of court.

That's a pitty.. That could mean this doctor is still in operation... (in both ways)

Well, there are plenty of nerves to hit in the arm...

Or on the way to the arm...
Nerves to the arm come out from the (Thoracic Spine/Mid Back/T1-T12) and go to the Arms, hands, heart, coronary arteries, esophagus, trachea, lungs, bronchial tubes, gallbladder, liver, stomach, pancreas, spleen, kidneys, ureters, adrenal glands, small intestines, and more.
Nerves to the middle ear etc come from (Upper Cervical Spine/Upper Neck/C1-C2) and go to Head, face, upper neck, inner & middle ear, sympathetic nerve system, sinuses, eyes, auditory nerves and more.

I guess... it happens..

He/she really didn't know what he/she was doing.. Most have been a good settlement...

waterdreamer · 02-05-2012, 09:56 PM

Quote:

Originally Posted by DeafCaroline

Squinting/twitching, looking very uncomfortable, all related to vision issues?

It can...or fact the child might have headache. I know that I tend to squint or look uncomfortable with I am having headache (allergy or eye strain/vision issue).

waterdreamer · 02-05-2012, 10:01 PM

Quote:

Originally Posted by naisho

Perhaps it depends mainly on the surgeon, just thinking aloud. You have good surgeons and even ones who make mistakes.

One minor mistake and you get paralysis for life, it's a risk I think anyone has to sign the waiver when they agree to the surgery. It's probably controversial for operating on children because the size of their nerves are smaller than adults whom have it developed already, which may be why you see less complications in people who got it later in life. Don't know if this is the answer, just thinking aloud here.

Surgery is alway is risk on either adult or children. CI is near the head so natually there is alot concern about CI on children for the reason you mentioned. This is reason why I want hearing parents to understand CI is just like hearing aids...another tool to assist your child in the real world, but it does not "cure" them. Not against it, nor for it since I have mixed feeling about CI with children.

Cloggy · 02-05-2012, 10:03 PM

Quote:

Originally Posted by green427

Banjo is right....there is always a risk during surgery.

Twitching....well, from my own experience, during a routine tune-up, the audi had the volume on too high on my 3rd electrode, and it was so painful that my whole face cringed, but, that was a voluntary response, not an involuntary one. If there is a high-pitched sound present, and someone's eyes squint, then you know the map needs to be adjusted. I only know of one person that had abnormal optical activity...this person began having seizures and eyes rolling independently after having a CI...and all the problems went away after the CI was removed. The cause was never found.

My first CI surgery caused a nerve on my tongue to be associated with a nerve on my head. If I scratched my head, I also felt the scratching on my tongue. Weird. It finally went away after 3-4 years. I had no effects after the second CI surgery.

Bottom line is...everyone will have a different outcome with a CI.

Banjo is right....there is always a risk during surgery.
There are many accounts of strange tasts and other feelings like not able to taste, that can be related to nerves in the head being over-stimulated due to CI surgery.
And as you said & experienced, this goes away after some time.

Hitting a nerve connected to the arm while doing CI surgery is really impressive..
Were you afraid of losing your arm?

waterdreamer · 02-05-2012, 10:06 PM

Quote:

Originally Posted by green427

Banjo is right....there is always a risk during surgery.

Twitching....well, from my own experience, during a routine tune-up, the audi had the volume on too high on my 3rd electrode, and it was so painful that my whole face cringed, but, that was a voluntary response, not an involuntary one. If there is a high-pitched sound present, and someone's eyes squint, then you know the map needs to be adjusted. I only know of one person that had abnormal optical activity...this person began having seizures and eyes rolling independently after having a CI...and all the problems went away after the CI was removed. The cause was never found.

My first CI surgery caused a nerve on my tongue to be associated with a nerve on my head. If I scratched my head, I also felt the scratching on my tongue. Weird. It finally went away after 3-4 years. I had no effects after the second CI surgery.

Bottom line is...everyone will have a different outcome with a CI.

How true that is. I know quite a few people with CI. All seems have different experience with CI. From your posting and a very, very good friend's experience, one can experience same kind surgery differently.

**Bottesini** · 02-05-2012, 10:13 PM

Quote:

Originally Posted by Cloggy

Banjo is right....there is always a risk during surgery.
There are many accounts of strange tasts and other feelings like not able to taste, that can be related to nerves in the head being over-stimulated due to CI surgery.
And as you said & experienced, this goes away after some time.

Hitting a nerve connected to the arm while doing CI surgery is really impressive..
Were you afraid of losing your arm?

Maybe they could have had a small stroke related to the surgery.

Cloggy · 02-05-2012, 11:58 PM

Quote:

Originally Posted by Bottesini

Maybe they could have had a small stroke related to the surgery.

Sure... sure... Nerve damage, strokes..... operating on the wrong foot...
Banjo is right....there is always a risk during surgery.

**sallylou** · 02-06-2012, 12:08 AM

If a child has a syndrome that affects the nerves, facial nerve issues can occur at any time. One of the nerves in my face has become paralyzed. The same with eyes.

drphil · 02-06-2012, 07:22 PM

Gee: Glad Dr Joseph Chen, Sunnybrook who did the

Implant operation on me-July 12, 2007 didn't cause any Medical "problems" at all. I understood he is also a professor of surgery- University of Toronto. He has been doing this operation for years.

My only complaint-made me wait

a long time to resume swimming after the operation-2 weeks!
I was activated in 4 weeks.

**deafskeptic** · 02-06-2012, 09:44 PM

hey, botts. I love your masked pig bead.

MomToDeafChild · 02-08-2012, 09:42 AM

The current emits in a field effect (think dropping a rock in a puddle), so depending on the path of the facial nerve, it can also be affected, in the form of facial stimulation (eye twitch or corner of the mouth twitch). My daughter has a malformed cochlea and malformed facial nerves (they aren't on the 'normal' path), so she's dealt with facial stimulation ever since she was first implanted in 2001.

Her maps shift over time, so once twitching starts up, we go for a new map. For her, it's always the lower frequencies that cause the twitching. The audi goes through each electrode one by one and when he finds one that elicits a twitch, he lowers it to just below where it is causing the twitch and 'clips' it. That keeps the volume from going any higher than where it is clipped. That keeps her twitch free until her map decides to shift again.

**Cheetah** · 02-08-2012, 09:51 AM

Quote:

Originally Posted by MomToDeafChild

The current emits in a field effect (think dropping a rock in a puddle), so depending on the path of the facial nerve, it can also be affected, in the form of facial stimulation (eye twitch or corner of the mouth twitch). My daughter has a malformed cochlea and malformed facial nerves (they aren't on the 'normal' path), so she's dealt with facial stimulation ever since she was first implanted in 2001.

Her maps shift over time, so once twitching starts up, we go for a new map. For her, it's always the lower frequencies that cause the twitching. The audi goes through each electrode one by one and when he finds one that elicits a twitch, he lowers it to just below where it is causing the twitch and 'clips' it. That keeps the volume from going any higher than where it is clipped. That keeps her twitch free until her map decides to shift again.

That makes sense... I may need to do that myself as I get that from time to time.

Cloggy · 02-09-2012, 02:31 AM

Quote:

Originally Posted by Banjo

Yes, a lawsuit was filed against the hospital. I don't have much details on what happened, from what I know, it was a result of the surgery itself. They severed a nerve that was linked to his right arm.

It happens.

No it doesn't..
Not while implanting a CI....

**Banjo** · 02-09-2012, 06:47 AM

Quote:

Originally Posted by Cloggy

No it doesn't..
Not while implanting a CI....

Um, it did. Are you calling me a liar?

Cloggy · 02-09-2012, 07:47 AM

Quote:

Originally Posted by Banjo

Um, it did. Are you calling me a liar?

Would you ever lie???
(Actually... I have seen you turn audist some time ago... so anything is possible nowadays.)

I think you have taken information from people for granted and combined a CI surgery with arm surgery, coming to the conclusion that one of the risks for CI operation is hitting a nerve of the arm..

I think you absolutely believe what you are telling....

Frisky Feline · 02-09-2012, 07:53 AM

Quote:

Originally Posted by Cloggy

No it doesn't..
Not while implanting a CI....

are you doing it to banjo or in a general you dont believe because you have not heard anything?

**Banjo** · 02-09-2012, 08:08 AM

Quote:

Originally Posted by Cloggy

I think you have taken information from people for granted and combined a CI surgery with arm surgery, coming to the conclusion that one of the risks for CI operation is hitting a nerve of the arm..

I think you absolutely believe what you are telling....

Okay, so you are calling me a liar. You just don't want to get banned for saying it. Gotcha. It's funny that you would call me that though. The fact is, we happen to know the victim and the parents. It's a real shame about what the child had to go through with, very little use of the damaged arm.

It's not just something I heard through the grapevine.

Besides, it's common knowledge that one of the risks is facial paralysis. How is that made possible? By severing the nerves connected to your face. There you go. Anything's possible.

Cloggy · 02-09-2012, 11:40 AM

Quote:

Originally Posted by Banjo

Okay, so you are calling me a liar. You just don't want to get banned for saying it. Gotcha. It's funny that you would call me that though. The fact is, we happen to know the victim and the parents. It's a real shame about what the child had to go through with, very little use of the damaged arm.

It's not just something I heard through the grapevine.

Besides, it's common knowledge that one of the risks is facial paralysis. How is that made possible? By severing the nerves connected to your face. There you go. Anything's possible.

You wouldn't lie.. At least, your audist-stunt was not a lie.. Just cynism... The arm must be something like that..
So you even know the people.. Excellent...
Well, the I hope you will find out what really happened,because you shouldnt go around telling people that a nerve to the arm was damaged when they implanted a CI.
Nerves to the arm are located below the neck.. The CI is implanted above the neck..

So.. I hope the patient and the parents can explain it to you what happened.. And that you can explain it to all of us..

**Banjo** · 02-09-2012, 11:45 AM

Quote:

Originally Posted by Cloggy

You wouldn't lie.. At least, your audist-stunt was not a lie.. Just cynism... The arm must be something like that.

So you even know the people.. Excellent.

Well, the I hope you will find out what really happened,because you shouldnt go around telling people that a nerve to the arm was damaged when they implanted a CI. Nerves to the arm are located below the neck.. The CI is implanted above the neck.

So.. I hope the patient and the parents can explain it to you what happened.. And that you can explain it to all of us..

The fact is, it happened during the cochlear implant surgery. Clearly, something went wrong there. You just don't want to believe it, however, it still doesn't change the fact that it did happen.

A tiny mistake can cost you quite a lot.

**Banjo** · 02-09-2012, 11:45 AM

Quote:

Originally Posted by Cloggy

You wouldn't lie.. At least, your audist-stunt was not a lie.. Just cynicism... The arm must be something like that..

No, it's known as satire. Look it up.

PowerON · 02-09-2012, 11:46 AM

Will Ci-user miss the 100% experience in sexual?

02-05-2012, 09:03 PM	#36 (permalink)
Cheetah Cheetah Consulting-Closed Join Date: Jul 2011 Posts: 2,694	I experience the face twitching and the eye twitching. It started immediately after surgery then after a month it went away and then started returning a year or so later. It doesn't happen often now, it seemed to be related to the volume. The funny thing is it has happened even at low volume but is resolved by reducing the volume. Usually I can crank it up and have no issues. Then suddenly I will have an issue with it again. Strange and not easily explained. I will have to bring this up with my CI dr next week. Clearly if I am having migraines the volume needs to go down. I don't think my CI causes any of my migraines. __________________ The Cheetah Consulting services No request too small, no fee too large! Serving the deaf world wide since yesterday. Open daily 9 ~ 5

02-06-2012, 12:08 AM	#47 (permalink)
sallylou Potterhead and Janeite Join Date: Jun 2009 Location: My own private Idaho Posts: 6,653	If a child has a syndrome that affects the nerves, facial nerve issues can occur at any time. One of the nerves in my face has become paralyzed. The same with eyes. __________________

02-06-2012, 07:22 PM	#48 (permalink)
drphil Registered User Join Date: Jul 2010 Location: Toronto Ontario Posts: 4,111	Gee: Glad Dr Joseph Chen, Sunnybrook who did the Implant operation on me-July 12, 2007 didn't cause any Medical "problems" at all. I understood he is also a professor of surgery- University of Toronto. He has been doing this operation for years. My only complaint-made me wait a long time to resume swimming after the operation-2 weeks! I was activated in 4 weeks. __________________ Get Real:Implanted Sunnybrook/Toronto -Advanced Bionics-Harmony activated Aug/07 Last edited by drphil; 02-06-2012 at 11:41 PM. Reason: correction

02-06-2012, 09:44 PM	#49 (permalink)
deafskeptic Premium Member Join Date: Sep 2006 Posts: 14,512	hey, botts. I love your masked pig bead. Frisky Feline, AlleyCat and Bottesini like this. __________________ Left ear implanted with Med-El on April 24 2007. Activated on May 9th. Upgraded to Opus 2 9/10/2010 Think Pink. FREE JILLIO!

02-08-2012, 09:42 AM	#50 (permalink)
MomToDeafChild Registered User Join Date: Mar 2007 Location: PA Posts: 92	The current emits in a field effect (think dropping a rock in a puddle), so depending on the path of the facial nerve, it can also be affected, in the form of facial stimulation (eye twitch or corner of the mouth twitch). My daughter has a malformed cochlea and malformed facial nerves (they aren't on the 'normal' path), so she's dealt with facial stimulation ever since she was first implanted in 2001. Her maps shift over time, so once twitching starts up, we go for a new map. For her, it's always the lower frequencies that cause the twitching. The audi goes through each electrode one by one and when he finds one that elicits a twitch, he lowers it to just below where it is causing the twitch and 'clips' it. That keeps the volume from going any higher than where it is clipped. That keeps her twitch free until her map decides to shift again. Oceanbreeze likes this.

02-05-2012, 03:50 PM	#31 (permalink)
rick48 Banned Join Date: Oct 2006 Location: "Those four" and more still here. Posts: 1,944	If a child is experiencing twitching, etc. I would not rule out possible vision issues but would definitely have the map checked as soon as possible. There are some electrodes for my daughter that her audiologist carefully monitors her comfort and thresh hold levels. Rick

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02-05-2012, 03:53 PM	#32 (permalink)
Frisky Feline Registered User Join Date: Jun 2003 Posts: 20,225	or could it causes some nerves all over in head, and neck that twitching very slightly.

02-05-2012, 09:33 PM	#39 (permalink)
green427 Registered User Join Date: Oct 2010 Location: Cooch's Bridge Battlefield Posts: 1,628	Banjo is right....there is always a risk during surgery. Twitching....well, from my own experience, during a routine tune-up, the audi had the volume on too high on my 3rd electrode, and it was so painful that my whole face cringed, but, that was a voluntary response, not an involuntary one. If there is a high-pitched sound present, and someone's eyes squint, then you know the map needs to be adjusted. I only know of one person that had abnormal optical activity...this person began having seizures and eyes rolling independently after having a CI...and all the problems went away after the CI was removed. The cause was never found. My first CI surgery caused a nerve on my tongue to be associated with a nerve on my head. If I scratched my head, I also felt the scratching on my tongue. Weird. It finally went away after 3-4 years. I had no effects after the second CI surgery. Bottom line is...everyone will have a different outcome with a CI.

02-09-2012, 11:46 AM	#60 (permalink)
PowerON Registered User Join Date: Mar 2007 Location: 37.5, 126.9 Posts: 10,321 Blog Entries: 5	Will Ci-user miss the 100% experience in sexual? __________________ • [Illustrator.Blog-alloon.com] • Don't shoot me! I'm only blogger!

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