Ci removal - Page 3

**Smithtr** · 08-11-2011, 06:23 PM

Quote:

Originally Posted by Shoshana

THANK YOU!! Did you have more symptoms than headache? I think its more common to have it taken out than people think, no?

yes I have pain headache worst to terrible wow bad risk my cochlear implant is very easy I have screw up because health because doctor think so force convicd to my parents I said yes but I mistake learn it

I experience confused and communication tough

I remove my implant I research search find link, alldeaf member help me really wonderful I was lucky remove implant 2 hours! not serious! I was live safe feeling better! I quit on my cochlear implant affect to my headache often terrible
dangerous on risk headache and often illness!

**sallylou** · 08-11-2011, 06:23 PM

Wirelessly posted (droid)

The people that can tell you the truth are the nurses.

**Jiro** · 08-11-2011, 06:32 PM

Quote:

Originally Posted by Shoshana

True, but I have NEVER heard or read one bad or negative thing about him...

that's because whoever (especially other doctors) said anything bad about him can be sued for defamation. and also it will not have a good impact for their careers so it's just best for them to keep their mouths shut and earn $$$$$.

**Jiro** · 08-11-2011, 06:34 PM

Quote:

Originally Posted by Shoshana

yea, it might be hard because my surgeon is/was "world renowned" and "
Dr. ******* is considered by fellow physicians to be one of the most skilled in his field and most qualified for reviewing complex medical conditions." (I pulled that from his information faculty profile). Maybe it would be best not to tell another dr. who implanted me...but is there any reason they MUST know?

it's just out of courtesy. you are free to NOT answer that question.

"world renowned" doesn't mean jack squat to me but what I do know is that a very good surgeon is always sensitive to your needs and very humble. what I'm hearing here sounds like your surgeon is a very cocky one and not a very nice person. Sounds like he will make a very costly mistake one day that will end his career and nobody is going to help him.

**GrendelQ** · 08-11-2011, 06:37 PM

Quote:

Originally Posted by Shoshana

yea, it might be hard because my surgeon is/was "world renowned" and "
Dr. ******* is considered by fellow physicians to be one of the most skilled in his field and most qualified for reviewing complex medical conditions." (I pulled that from his information faculty profile). Maybe it would be best not to tell another dr. who implanted me...but is there any reason they MUST know?

Medical colleagues are not often "starstruck" by each other, a good surgeon isn't going to let you suffer under his or her care to protect the rep. of some other doctor.

Shoshana · 08-11-2011, 06:40 PM

Quote:

Originally Posted by smithtr

yes I have pain headache worst to terrible wow bad risk my cochlear implant is very easy I have screw up because health because doctor think so force convicd to my parents I said yes but I mistake learn it

I experience confused and communication tough

I remove my implant I research search find link, alldeaf member help me really wonderful I was lucky remove implant 2 hours! not serious! I was live safe feeling better! I quit on my cochlear implant affect to my headache often terrible
dangerous on risk headache and often illness!

WOW me too! I get so confused I forget where I am, and Its so scary! I forget what I was doing, who I was with, everything

also have hard time communicating during an attack--cant sign because Its hard to use hands and Its hard to speak or open my mouth so I make a grunt but people dont understand. Its good to hear its a short operation!

Shoshana · 08-11-2011, 06:46 PM

Quote:

Originally Posted by Jiro

it's just out of courtesy. you are free to NOT answer that question.

"world renowned" doesn't mean jack squat to me but what I do know is that a very good surgeon is always sensitive to your needs and very humble. what I'm hearing here sounds like your surgeon is a very cocky one and not a very nice person. Sounds like he will make a very costly mistake one day that will end his career and nobody is going to help him.

at first I thought that, But then I joked with him (he has HUGE hands) and he seemed to come more personal.

I dont know if it could of been prevented or not, if it was my body react to it it could of been any Doctor in the world with same results.

**Smithtr** · 08-11-2011, 07:56 PM

Quote:

Originally Posted by Shoshana

WOW me too! I get so confused I forget where I am, and Its so scary! I forget what I was doing, who I was with, everything

also have hard time communicating during an attack--cant sign because Its hard to use hands and Its hard to speak or open my mouth so I make a grunt but people dont understand. Its good to hear its a short operation!

I know tough not easy I fought to doctor because I am very serious I told my parents force me I said no my father said good cochlear implant

I feeling hurting because reason believe it because terrible SPRACA force me oral because I against to doctor refused surgical because I search another good doctor observed I figure out! I am tried told many because doctor waste money $$$ Money cost because waste of expesnive, I told my insurance health because government pay for my health i am lucky I want to remove my implant because beep noise and mess on my brain I am not attention because I was anxiety suffer I am very pain reason life!I want to remove my implant

Dr.Brain from Bc is very nice good help implant evaluation, I complaint to because SPRCA, I can't tell doctor back up I want to please confidental family doctor respect to my right I am truth I am feeling because frustrated and pain my cochlear implant

He said okay feeling me, I am said pissed off because doctor is not nice on edmonton is lie play games, I am truth I told doctor understand no problem

he is lie and shame because take an advantage money waste of time money
I am not trust to them! It is very expensive on serious!

drphil · 08-11-2011, 11:01 PM

Travis: how old were you when the Cochlear Implant operation happened?

Implanted Sunnybrook/Toronto Advanced Bionics-Harmony activated Aug/07

**Smithtr** · 08-12-2011, 08:58 PM

Quote:

Originally Posted by drphil

Travis: how old were you when the Cochlear Implant operation happened?

Implanted Sunnybrook/Toronto Advanced Bionics-Harmony activated Aug/07

lol ask me I was start surgericy I think so 21yrs almost 3 yrs ago!

**KarissaMann05** · 08-13-2011, 12:35 AM

Shoshana, I hope you get a solution as soon as possible. Keep us being updated.

jillio · 08-13-2011, 12:52 PM

Quote:

Originally Posted by sallylou

Wirelessly posted (droid)

The people that can tell you the truth are the nurses.

Absolutely. And nurses are far more patient centered than many doctors.

jillio · 08-13-2011, 12:55 PM

Quote:

Originally Posted by smithtr

lol ask me I was start surgericy I think so 21yrs almost 3 yrs ago!

And you seem to feel so much better since being explanted. I remember even some people on AD tried to tell you that the CI was not causing your problems. I am glad that you stood up for yourself and did what you felt was the best for you and your health.

**Smithtr** · 08-13-2011, 03:33 PM

Quote:

Originally Posted by jillio

And you seem to feel so much better since being explanted. I remember even some people on AD tried to tell you that the CI was not causing your problems. I am glad that you stood up for yourself and did what you felt was the best for you and your health.

amen of course I know I am best

should be support to tell help people!

would be help important! we are supportive tell you!

Shoshana · 08-13-2011, 08:04 PM

also, did anyone with a CI notice a change in their pupils? While in high school I had a bad attack that landed me in the ER who sent me to and eye specialtist because of something un-normal--they realized my pupils were diffrent sizes and the side that was implanted reacted to light slower (normal eyes react the same--even if you shine a light in only one eye!). They asked if I was hit on the head or had any trama which I havent but thats what they said cause this, I never had this before my implant!

**Oddball** · 08-13-2011, 08:22 PM

Quote:

Originally Posted by Frisky Feline

I think someone posted about a deaf guy who had constantly dizzy then decided to remove it. FOund out the the CI itself have mold.

He was shocked to see the molded CI due to the infection causing him to feel dizzy or anything.

I know a member AD will correct me for this. It's the Oddball the dog lover.

Yes. Also, Mathew Fowler finally had his CI removal in Wisconsin after years of getting severe migraines and too many medication to reduce pain, but that medication did not help him at all. Once his CI removal, Mathew finally felt much better and did not need any medication at all.

**Smithtr** · 08-13-2011, 08:59 PM

Quote:

Originally Posted by Shoshana

also, did anyone with a CI notice a change in their pupils? While in high school I had a bad attack that landed me in the ER who sent me to and eye specialtist because of something un-normal--they realized my pupils were diffrent sizes and the side that was implanted reacted to light slower (normal eyes react the same--even if you shine a light in only one eye!). They asked if I was hit on the head or had any trama which I havent but thats what they said cause this, I never had this before my implant!

I have different my taste half I think so cause on symptom I don't remember said on facial, I forget name! my family doctor knew

jillio · 08-13-2011, 10:03 PM

Quote:

Originally Posted by Shoshana

also, did anyone with a CI notice a change in their pupils? While in high school I had a bad attack that landed me in the ER who sent me to and eye specialtist because of something un-normal--they realized my pupils were diffrent sizes and the side that was implanted reacted to light slower (normal eyes react the same--even if you shine a light in only one eye!). They asked if I was hit on the head or had any trama which I havent but thats what they said cause this, I never had this before my implant!

Sounds like they believed you had post concussion syndrome.

**deafskeptic** · 08-13-2011, 10:25 PM

Quote:

Originally Posted by Frisky Feline

I think someone posted about a deaf guy who had constantly dizzy then decided to remove it. FOund out the the CI itself have mold.

He was shocked to see the molded CI due to the infection causing him to feel dizzy or anything.

I know a member AD will correct me for this. It's the Oddball the dog lover.

There's something horrifying about mold in the CI.

I'm glad he's better.

drphil · 08-14-2011, 08:16 AM

I understand that any surgical procedure there is some "difficulty". To some of the above what about all persons who had/have a Cochlear Implant -now WITHOUT THE ABOVE STATED PROBLEMS- Luck? The "right surgeon"?

I acknowledge that I have had my Implant just 4 years- so far no "pupil problem" (I have been checked by the eye doctor -last 5 years-so far okay!)

Not exactly wondering what might happen- "implant wise"- over the next 25 years when I reached "old age of 100".

Implanted A B Harmony activated Aug/07

**Smithtr** · 08-14-2011, 08:23 AM

Quote:

Originally Posted by drphil

I understand that any surgical procedure there is some "difficulty". To some of the above what about all persons who had/have a Cochlear Implant -now WITHOUT THE ABOVE STATED PROBLEMS- Luck? The "right surgeon"?

I acknowledge that I have had my Implant just 4 years- so far no "pupil problem" (I have been checked by the eye doctor -last 5 years-so far okay!)

Not exactly wondering what might happen- "implant wise"- over the next 25 years when I reached "old age of 100".

Implanted A B Harmony activated Aug/07

no idea what are talk to you? I guess I don't understand no sense!
you means on 100 yrs? huh no way!

seems on confused!

drphil · 08-14-2011, 08:29 AM

Travis-no comment,

Implanted A B Harmony activated Aug/07

**Smithtr** · 08-14-2011, 08:33 AM

Quote:

Originally Posted by jillio

Travis, aka smithtr has had an explant I believe. You might try PMing him.

I will pm to him!

**Smithtr** · 08-14-2011, 08:39 AM

Quote:

Originally Posted by drphil

Travis-no comment,

Implanted A B Harmony activated Aug/07

forget it no more talk! please I tried !

Secretblend · 08-14-2011, 09:43 AM

Quote:

Originally Posted by smithtr

no idea what are talk to you? I guess I don't understand no sense!
you means on 100 yrs? huh no way!

seems on confused!

Basically what he is saying that he hasn't had any problems with his implant and hopes to not have problems in the future.

**Smithtr** · 08-14-2011, 09:47 AM

Quote:

Originally Posted by Secretblend

Basically what he is saying that he hasn't had any problems with his implant and hopes to not have problems in the future.

I give up because reason! Important because appropriate because trust me! It is very seems too much! I am serious! I Notice review your personal!

Shoshana · 08-14-2011, 10:23 AM

yea, and works well for a lot of people. But obviously here a lot of people that have issues with it too. It shouldnt be a "one size fits all" because Its not, Doctors really should do more testing than just a hearing test before implant to try to lessen the chances of bad experiance with implant. I dont know exactly what to do, but do something to weed out people who body might react like mine and travis and not implant. Seriously, I had for 4 years now! I live with this for 4 years! Waste 4 years of my life and my safty and the money!

**Beowulf** · 08-14-2011, 10:30 AM

I know several CI users who had problems with it and either got explanted or plan on it. Of course I know those who are somewhat satisfied. I say "somewhat" because none of them struck me as being thrilled with it. But hey, that is from just my observations. I have nothing against CI's unless they implant a toddler or baby. I have a good friend whose son attends a Deaf school, and she tells me she will leave the decision of implanting up to him at a later date.

Shoshana · 08-14-2011, 10:35 AM

Quote:

Originally Posted by Beowulf

I know several CI users who had problems with it and either got explanted or plan on it. Of course I know those who are somewhat satisfied. I say "somewhat" because none of them struck me as being thrilled with it. But hey, that is from just my observations. I have nothing against CI's unless they implant a toddler or baby. I have a good friend whose son attends a Deaf school, and she tells me she will leave the decision of implanting up to him at a later date.

yes and another thing is the people down play the risk of any complications or ill effects. I remember this part clearly because the two things that scared me the most at the time were losing control of that side of my face (not be able to smile) and losing my taste. They tell you risk of stuff happen but they down play it, like its such small chance. I do not think its right.

**Smithtr** · 08-14-2011, 10:40 AM

Quote:

Originally Posted by Shoshana

yea, and works well for a lot of people. But obviously here a lot of people that have issues with it too. It shouldnt be a "one size fits all" because Its not, Doctors really should do more testing than just a hearing test before implant to try to lessen the chances of bad experiance with implant. I dont know exactly what to do, but do something to weed out people who body might react like mine and travis and not implant. Seriously, I had for 4 years now! I live with this for 4 years! Waste 4 years of my life and my safty and the money!

I support to you

I coceern you personal I understand solve tough! I confidently her because experience I can help you! I understand you feeling!

I am very experience help her!
tragic on feeling sad because I am really support to her! we are supportive I am lots of help her issues problem suffer

I experience struggle I was 12 till almost depend 14yrs fight to then tough terrible on long frustrated CI!

I can help her I tell reason support to communication to her! issues problem symptomatic tough!

I am cocern her is very suffer pain!

AD supportive help hugs important to fix on resolve improve feedback

OP communication

I am experience lots of frustrated my bi9 cochlear implant! I am tried on doctor because parents control me! parents force me reason!

I aware it tough on!

08-11-2011, 06:23 PM	#62 (permalink)
sallylou Potterhead and Janeite Join Date: Jun 2009 Location: My own private Idaho Posts: 6,653	Wirelessly posted (droid) The people that can tell you the truth are the nurses. jillio, coolgirlspyer90 and Beach girl like this. __________________

08-11-2011, 11:01 PM	#69 (permalink)
drphil Registered User Join Date: Jul 2010 Location: Toronto Ontario Posts: 4,107	Travis: how old were you when the Cochlear Implant operation happened? Implanted Sunnybrook/Toronto Advanced Bionics-Harmony activated Aug/07 __________________ Get Real:Implanted Sunnybrook/Toronto -Advanced Bionics-Harmony activated Aug/07

08-13-2011, 12:35 AM	#71 (permalink)
KarissaMann05 Premium Member Join Date: May 2007 Location: Salem, Oregon Posts: 6,378	Shoshana, I hope you get a solution as soon as possible. Keep us being updated. Smithtr, jillio, KristinaB and 1 others like this. __________________ "Pragmatic language is a vital social skill that enables the school-aged child to navigate their way through demanding social situations." -- R. Owens

08-13-2011, 08:04 PM	#75 (permalink)
Shoshana Registered User Join Date: Jun 2011 Location: West Palm Beach, FLORIDA Posts: 397	also, did anyone with a CI notice a change in their pupils? While in high school I had a bad attack that landed me in the ER who sent me to and eye specialtist because of something un-normal--they realized my pupils were diffrent sizes and the side that was implanted reacted to light slower (normal eyes react the same--even if you shine a light in only one eye!). They asked if I was hit on the head or had any trama which I havent but thats what they said cause this, I never had this before my implant! __________________ SHOSHANA

08-14-2011, 08:16 AM	#80 (permalink)
drphil Registered User Join Date: Jul 2010 Location: Toronto Ontario Posts: 4,107	I understand that any surgical procedure there is some "difficulty". To some of the above what about all persons who had/have a Cochlear Implant -now WITHOUT THE ABOVE STATED PROBLEMS- Luck? The "right surgeon"? I acknowledge that I have had my Implant just 4 years- so far no "pupil problem" (I have been checked by the eye doctor -last 5 years-so far okay!) Not exactly wondering what might happen- "implant wise"- over the next 25 years when I reached "old age of 100". Implanted A B Harmony activated Aug/07 __________________ Get Real:Implanted Sunnybrook/Toronto -Advanced Bionics-Harmony activated Aug/07

Today
Deafness	Sponsored Links __________________ This advertising will not be shown in this way to registered members. Register your free account today and become a member on AllDeaf.com

08-14-2011, 08:29 AM	#82 (permalink)
drphil Registered User Join Date: Jul 2010 Location: Toronto Ontario Posts: 4,107	Travis-no comment, Implanted A B Harmony activated Aug/07 __________________ Get Real:Implanted Sunnybrook/Toronto -Advanced Bionics-Harmony activated Aug/07

08-14-2011, 10:23 AM	#87 (permalink)
Shoshana Registered User Join Date: Jun 2011 Location: West Palm Beach, FLORIDA Posts: 397	yea, and works well for a lot of people. But obviously here a lot of people that have issues with it too. It shouldnt be a "one size fits all" because Its not, Doctors really should do more testing than just a hearing test before implant to try to lessen the chances of bad experiance with implant. I dont know exactly what to do, but do something to weed out people who body might react like mine and travis and not implant. Seriously, I had for 4 years now! I live with this for 4 years! Waste 4 years of my life and my safty and the money! Smithtr likes this. __________________ SHOSHANA

08-14-2011, 10:30 AM	#88 (permalink)
Beowulf Premium Member Join Date: May 2004 Posts: 10,514	I know several CI users who had problems with it and either got explanted or plan on it. Of course I know those who are somewhat satisfied. I say "somewhat" because none of them struck me as being thrilled with it. But hey, that is from just my observations. I have nothing against CI's unless they implant a toddler or baby. I have a good friend whose son attends a Deaf school, and she tells me she will leave the decision of implanting up to him at a later date. Smithtr and Shoshana like this.

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