jillio

Agreed. Adjustment to disability issues account for about 22% of counseling clients.

Deafness

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zebadee2010

Lifestyle is how you live your life.
For me 85% of my life was music. And to not be able to do that anymore, I'm missing quite a lot.

Deaf people, can see signed music and perhaps feel it but they can't get the same emotion out of it as you do when you hear an artist suddenly drop the music or change keys to emphasize a certain part.

And not meaning any offense as i'm now just giving a realistic view not a judgmental one.

Bottesini

Lots of us don't care at all. Wait until you see what you hear with CI>

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Beowulf

Awwwww, does that mean being a piano tuner is out? Boo hoo.

deafgal001

right, but how that's going to accomplish if we never be able to reach that goal except pitying ourselves for the rest of our life? There are deaf who are not even qualify to have CI.

jillio

There are many ways to enjoy music. My son enjoys music a great deal and he is profoundly deaf. There are deaf professional musicians. Loosing your hearing doesn't mean that you can't still enjoy music. You may have to learn to enjoy it another way, but you can still enjoy it.

Do you realize how many professional musicians actually suffer hearing loss and tinnitus as the result of their career. They certainly don't stop playing. They just learn different techniques for perception.

The anger and frustration you are feeling is just getting in the way of you seeing how many possibilities are still open to you. Work through that anger, and you will be able to see many things that are not clear to you now.

jillio

Nope. A piano tuner can use tactile sense to tune through the vibrations of the strings. Just takes learning a different way to accomplish the same goal.

deafgal001

As a CI user, it is out of my option as well. Tactile is better

faire_jour

I think you should contact someone at Cochlear America and ask them for the contact information for the individual who created "HOPE Notes". I just went to a conference about CIs and music. The presenter (the guy I want you to contact) was a professional musician when her lost his hearing and now has a CI. "HOPE Notes" is a rehab program that helps CI users get more musical benefit.

Sorry that I don't remember his name! But I know that all three companies have people who were musicians and lost their hearing. (The AB guy is John Reddin) Maybe they can help you.

jillio

Why is that? I'm not sure I understand. Never mind. I see where you added the explanation.

deafgal001

I edited it.

Beowulf

Wow. I never knew that!

jillio

Yep. When it comes down to it, a piano is really a percussion instrument. Even as a hearing person, I perceive music kinesthetically. My whole family does. We describe notes as being felt in various parts of our bodies. Gotta an eccentric family.

zebadee2010

I don't see why I would need a therapist. That just sounds to absurd. I know what the average person gets from a CI. but i'm also the kind of person who has hopes but isn't disappointed easily when they aren't reached. I just wanna get my hearing back so i can listen to music.

It may be, but its still hard when you can't understand the different parts. And part of my anger comes from the fact that i was one of the few that had the ear. As mentioned earlier i had above average hearing. 60-17,000 hertz.
And while I may not be able to run front of house I can help with setup/teardown and maybe run stage monitors.


Thanks i might check that out. Find someone who knows what i'm going through instead of generalized assumptions.

Thats why you can't possibly understand what i'm talking about since you don't care.. I care way to much!


I'm not pitying myself. Its called disappointment. I have a goal. And a commitment to work this January. I'm trying to be there at all costs. I'm giving it everything i've got. It will be a miracle if I make it there. I'm not saying that i will make it there but i'm trying to give it the best chance.

jillio

You need a therapist to deal with the obvious adjustment to disabilty issues that you have. I'm a professional and I see them clearly. As do other members of this forum. We are not judging you. We are simply making suggestions that will make your life much easier. But we also believe in autonomy. You are free to accept those suggestions or not. Your choice.

Banjo

It's pretty common for a person to see a psychologist or therapist prior to getting a cochlear implant.

zebadee2010

I wish i knew how to achieve this. But I can't hear or feel anything but really, really low bass notes.

Studies have shown that if you stay in environments that are really loud. Your hearing becomes lesser quicker. I know musicians have succeeded while being hard of hearing or even deaf. But again that doesn't really help me or my situation.

I might do that. all of this is coming and going so fast that i havent been able to to much in the way of finding people with them. ( I thought thats what i might accomplish here) From the time i found out i would need a CI to the surgery date of Dec 14th. has been about a month and a week.

zebadee2010

Again I don't see why i would need one. I know the risks the concerns. I've even watched the surgery performed on youtube.com. I know what they say i can expect which is more than ya'll are saying. I also know what i expect. right now its not really how well i communicate it all comes down to music and the job i have in january.

I'm not depressed because of this, i'm just frustrated that i might miss my job in january. that is all. if that happens then i'll be angry for maybe a week, if i get to work there and do fine then ill have the ability to say told ya so..

deafgal001

We are not interested in "I told ya so!" even if we have the ability to say it.

Banjo

It doesn't matter what you think, they usually make you see one anyway. They have their reasons.

jillio

That isn't what psychological assessment is all about. You may know what to expect, but you do not have the coping skills currently that you need to be successful with or without an implant. There is a very good chance that you won't receive the benefit you expect. And even if you do, you will still have to adjust to the hearing you receive through the implant, which is drastically different from natural hearing that you had.

But like I said, you are free to accept suggestions or not. It really doesn't sound as if you are quite ready to move forward.

zebadee2010

I know you may think that just because i'm 18 that i may be immature, un-capable, unexperienced, or what have you. but i'm above my ages generalization. I've never smoked drank or tried any of these or any other drug. Although Advil can help with headaches.
Personally i hate therapists and psychiatrists. all they seem to want to do is prescribe anti-depresants which can lead to suicide or other adverse behavior.


They haven't mentioned not one thing about a therapist. And as I am 18 I have the right to refuse. If after surgery i continue to have problems after say 6 months i might consider one. But i don't see it very likely.

deafgal001

She didn't talk about your age. Your age have nothing to do with this.

Banjo

If one was offered and you refused, they can refuse to perform the surgery.

deafgal001

I think it is pretty too late for that. They already set the surgery date for her.. but then again, they may when she tell them which CI brand she like.

zebadee2010

The surgery date is set. We are taking all precautions and following everything they have told us to do.
I have been in and out of the hospital all my life, I know how to cope with disability.

Try have 76% lung function all your life due to Cystic fibrosis. Try not being able to play hardly any sport for lack of breath. Even when i could swim, i could barely do it underwater because the pressure on your lungs is to intense.
Its really fun to have people stay away from you because you cough to much thinking you might be sick.

I know how much it sucks not being able to do something. I'm not concerned with not being able to hear as well as i did. I just want to be able to do my job and listen to music.

Banjo

Yeah, I got that. Although I do recall that some would require one to see a psychologist prior to the surgery. I guess they don't do that in some places.

zebadee2010

For the record I am a he.. just saying.

And we picked the nucleus 5 a week and a half ago. I wanted the Med-el brand but the doc said that It was safer to go with the N5 because it had a shorter electrode.

deafgal001

N5 is a good brand. You can't go wrong.

zebadee2010

Iv'e heard they all sound about the same but i wanted the longer electrode so that when future sound processors come out i would have more options for hearing.