Lies about CI's - Page 23

deafgal001 · 11-20-2010, 04:56 PM

Quote:

Originally Posted by faire_jour

For my daughter it was the CI. She went from understand zero in the booth to testing at 96%, in less than a year. How can that be anything other than the device?

Are you talking about speech or just hearing? Hearing, well just like seeing, you just do.

faire_jour · 11-20-2010, 04:56 PM

Quote:

Originally Posted by deafbajagal

Please clarify for me...are you saying, once your daughter was implanted, there was no therapy or intervention whatsoever between the time she was implanted to the time she was tested?

96% in what? speech recognition? auditory recognition?

No, it was the exact same therapy and therapist she had been using since she was 2. The same school, the same home enviroment, everything was the same, except what she used to hear.

It was speech discrimination testing using very similar words (gum vs gun).

faire_jour · 11-20-2010, 04:57 PM

Quote:

Originally Posted by deafgal001

Are you talking about speech or just hearing? Hearing, well just like seeing, you just do.

I'm talking about understanding, not just hearing.

deafgal001 · 11-20-2010, 04:59 PM

I think she heard before. Like me. I was aided before I had my CI.

kokonut · 11-20-2010, 04:59 PM

Quote:

Originally Posted by faire_jour

Not true. My daughter has picked up words and phrases from over hearing when I am on the phone, from other kids and even from the TV.

It's true. There's a deaf guy and his deaf wife whose son was implanted at 2 years old (now 7 or 8 years old) were able to pick up phrases from other people and have no problem speaking on the phone. The father is getting ready to have his CI this year while his wife already got one. Their daughter's hearing doesn't qualify for CI so she wears a hearing aid. They are all fluent in ASL. And the boy attends school without the need for interpreter, too.

faire_jour · 11-20-2010, 05:00 PM

Quote:

Originally Posted by deafgal001

I think she heard before.

As I said, she had zero speech understanding before her CI. She got hearing aids at 18 months and never gained any spoken language, inspite of years of therapy.

deafgal001 · 11-20-2010, 05:02 PM

Quote:

Originally Posted by faire_jour

As I said, she had zero speech understanding before her CI. She got hearing aids at 18 months and never gained any spoken language, inspite of years of therapy.

So she was totally deaf when aided?

faire_jour · 11-20-2010, 05:03 PM

Quote:

Originally Posted by deafgal001

So she was totally deaf when aided?

Are you asking if she could hear beeps in the booth or if she could understand spoken language?

She could hear beeps, she could not understand spoken language.

deafbajagal · 11-20-2010, 05:04 PM

The CI is like a fancy car. But it cannot run by itself. You need gas and a driver who is ready. Gas is the therapy...sometimes you need to keep filling it up before the car is ready to go. In the meantime the driver has to be ready, too.

I've seen cars with fuel, ready to go. But the driver isn't ready. I've seen cars with drivers, but no fuel.

Not all of us are meant to be car drivers. Some deaf children has to take a different route.

Your daughter is a natural driver...and she's ready to go! ZOOM. Many children with CIs need more fuel, or they are simply not ready. And some, no matter how hard they try, they will never be able to drive the car. I don't know if my analogy makes sense or not.

deafgal001 · 11-20-2010, 05:04 PM

yes... because it's impossible to ignore sounds if you were aided. So she heard before, but it probably wasn't clear to her. But with CI, all those sounds she heard made sense to her which is why she probably learned very fast.

**shel90** · 11-20-2010, 05:06 PM

Quote:

Originally Posted by deafbajagal

The CI is like a fancy car. But it cannot run by itself. You need gas and a driver who is ready. Gas is the therapy...sometimes you need to keep filling it up before the car is ready to go. In the meantime the driver has to be ready, too.

I've seen cars with fuel, ready to go. But the driver isn't ready. I've seen cars with drivers, but no fuel.

Not all of us are meant to be car drivers. Some deaf children has to take a different route.

Your daughter is a natural driver...and she's ready to go! ZOOM. Many children with CIs need more fuel, or they are simply not ready. And some, no matter how hard they try, they will never be able to drive the car. I don't know if my analogy makes sense or not.

It makes sense.

faire_jour · 11-20-2010, 05:07 PM

Quote:

Originally Posted by deafgal001

yes... because it's impossible to ignore sounds if you were aided. So she heard before, but it probably wasn't clear to her. But with CI, all those sounds she heard made sense to her.

She did not understand and then she did. She could not tell the difference between "Those boots are dirty" and "sit down". She could not understand anything that we said without signing (except her name). Then she got the implant and she started to understand. She didn't change. Her access to sound changed. It was a difference of night and day.

deafbajagal · 11-20-2010, 05:07 PM

I have a good friend who is oral deaf. He can speak almost like a hearing person, almost perfect. All his life he wore hearing aids. Two years ago he got a CI. He went to therapy, etc. to get used to it.

He tells me that it doesn't work for him. His brain simply cannot interpret sounds the way he wanted it to. The CI specialist just shrugged his shoulders and said, "It wasn't meant to be."

Another friend of mine is very easily his twin. They are alike in many ways, and she also wanted a CI. She got one and almost immediately loved it. She now is getting another one.

It puzzles me how some people benefits from it, and others don't. They keep telling me, some people are wired for it...some are not.

I think this is what some of the posters are talking about when they say they want a "guarantee" that this will work before they choose it for themselves or for their child.

faire_jour · 11-20-2010, 05:08 PM

Quote:

Originally Posted by deafbajagal

The CI is like a fancy car. But it cannot run by itself. You need gas and a driver who is ready. Gas is the therapy...sometimes you need to keep filling it up before the car is ready to go. In the meantime the driver has to be ready, too.

I've seen cars with fuel, ready to go. But the driver isn't ready. I've seen cars with drivers, but no fuel.

Not all of us are meant to be car drivers. Some deaf children has to take a different route.

Your daughter is a natural driver...and she's ready to go! ZOOM. Many children with CIs need more fuel, or they are simply not ready. And some, no matter how hard they try, they will never be able to drive the car. I don't know if my analogy makes sense or not.

But what happens if you never let the child in the car?

deafgal001 · 11-20-2010, 05:08 PM

Quote:

Originally Posted by faire_jour

She did not understand and then she did. She could not tell the difference between "Those boots are dirty" and "sit down". She could not understand anything that we said without signing (except her name). Then she got the implant and she started to understand. She didn't change. Her access to sound changed. It was a difference of night and day.

so what did she do with all those sounds she heard with her hearing aids? Ignore it?

kokonut · 11-20-2010, 05:08 PM

The key here is early intervention. Li got her CI at 2 years old and not at 5 or 6 years old then it'd be a whole different story. This is true for all babies born with a hearing loss, the key is to get the sound to them early as possible. We are born wired with our auditory cortex ready to go after birth on receiving sound and for our brain to make sense of it.

faire_jour · 11-20-2010, 05:09 PM

Quote:

Originally Posted by deafbajagal

I have a good friend who is oral deaf. He can speak almost like a hearing person, almost perfect. All his life he wore hearing aids. Two years ago he got a CI. He went to therapy, etc. to get used to it.

He tells me that it doesn't work for him. His brain simply cannot interpret sounds the way he wanted it to. The CI specialist just shrugged his shoulders and said, "It wasn't meant to be."

Another friend of mine is very easily his twin. They are alike in many ways, and she also wanted a CI. She got one and almost immediately loved it. She now is getting another one.

It puzzles me.

They are adults. Adults have very different outcomes depending on the cause of deafness, what they heard before, how they communicate and so on.

faire_jour · 11-20-2010, 05:10 PM

Quote:

Originally Posted by deafgal001

so what did she do with all those sounds she heard with her hearing aids? Ignore it?

It was a complete mess to her, she couldn't understand any of it.

deafgal001 · 11-20-2010, 05:10 PM

do you know any that was implanted at 5 or 6 years old that did terrible?

faire_jour · 11-20-2010, 05:11 PM

Quote:

Originally Posted by deafbajagal

I have a good friend who is oral deaf. He can speak almost like a hearing person, almost perfect. All his life he wore hearing aids. Two years ago he got a CI. He went to therapy, etc. to get used to it.

He tells me that it doesn't work for him. His brain simply cannot interpret sounds the way he wanted it to. The CI specialist just shrugged his shoulders and said, "It wasn't meant to be."

Another friend of mine is very easily his twin. They are alike in many ways, and she also wanted a CI. She got one and almost immediately loved it. She now is getting another one.

It puzzles me how some people benefits from it, and others don't. They keep telling me, some people are wired for it...some are not.

I think this is what some of the posters are talking about when they say they want a "guarantee" that this will work before they choose it for themselves or for their child.

They have a guarantee that if they don't do it, it won't work!

**shel90** · 11-20-2010, 05:11 PM

Quote:

Originally Posted by deafbajagal

I have a good friend who is oral deaf. He can speak almost like a hearing person, almost perfect. All his life he wore hearing aids. Two years ago he got a CI. He went to therapy, etc. to get used to it.

He tells me that it doesn't work for him. His brain simply cannot interpret sounds the way he wanted it to. The CI specialist just shrugged his shoulders and said, "It wasn't meant to be."

Another friend of mine is very easily his twin. They are alike in many ways, and she also wanted a CI. She got one and almost immediately loved it. She now is getting another one.

It puzzles me how some people benefits from it, and others don't. They keep telling me, some people are wired for it...some are not.

I think this is what some of the posters are talking about when they say they want a "guarantee" that this will work before they choose it for themselves or for their child.

I know some kids who were implanted later who did better than some kids who got implanted in their toddler years.

Vice versa as well.

Like you said, where do we draw the line?

**shel90** · 11-20-2010, 05:12 PM

Quote:

Originally Posted by deafgal001

do you know any that was implanted at 5 or 6 years old that did terrible?

Many

deafgal001 · 11-20-2010, 05:13 PM

Quote:

Originally Posted by shel90

Many

So is it true that earlier the better?

faire_jour · 11-20-2010, 05:13 PM

Quote:

Originally Posted by deafgal001

do you know any that was implanted at 5 or 6 years old that did terrible?

Depends on your definition. The rates of non-use go up after around age 5, and the language outcomes decline.

AlleyCat · 11-20-2010, 05:14 PM

Quote:

Originally Posted by deafbajagal

I have a good friend who is oral deaf. He can speak almost like a hearing person, almost perfect. All his life he wore hearing aids. Two years ago he got a CI. He went to therapy, etc. to get used to it.

He tells me that it doesn't work for him. His brain simply cannot interpret sounds the way he wanted it to. The CI specialist just shrugged his shoulders and said, "It wasn't meant to be."

Another friend of mine is very easily his twin. They are alike in many ways, and she also wanted a CI. She got one and almost immediately loved it. She now is getting another one.

It puzzles me how some people benefits from it, and others don't. They keep telling me, some people are wired for it...some are not.

I think this is what some of the posters are talking about when they say they want a "guarantee" that this will work before they choose it for themselves or for their child.

I can't agree with that more !!!

I'm in the situation as #1 where there just wouldn't have been much improvement. That's why I didn't get one, but I had planned to. I had big hopes on it. Took my whole family and SO with me to the CI audi.

faire_jour · 11-20-2010, 05:16 PM

Quote:

Originally Posted by deafgal001

So is it true that earlier the better?

Yes. It has been shown again and again. They have done studies that show that kids implanted before age 18 months have auditory cortexes that process spoken language like hearing kids, not deaf kids. (they aren't hearing, they just process spoken language in the same way, at the same speeds as hearing kids.)

**shel90** · 11-20-2010, 05:18 PM

Quote:

Originally Posted by deafgal001

So is it true that earlier the better?

see post #681

deafbajagal · 11-20-2010, 05:19 PM

Quote:

Originally Posted by faire_jour

Yes. It has been shown again and again. They have done studies that show that kids implanted before age 18 months have auditory cortexes that process spoken language like hearing kids, not deaf kids. (they aren't hearing, they just process spoken language in the same way, at the same speeds as hearing kids.)

Exactly right.

Problem is, auditory processing and auditory comprehension isn't the same thing. That's where intervention with therapy and training is very crucial to increase the success of the CI as a device.

And there's no guarantee it will work for everyone.

faire_jour · 11-20-2010, 05:24 PM

Quote:

Originally Posted by deafbajagal

Exactly right.

Problem is, auditory processing and auditory comprehension isn't the same thing. That's where intervention with therapy and training is very crucial to increase the success of the CI as a device.

And there's no guarantee it will work for everyone.

Yes, but if we continue to spread the myth that "some kids just can't", kids will continue to fall behind and not get the benefits they could, if they had just been given the right tools.

deafgal001 · 11-20-2010, 05:30 PM

"some kids CAN" that make them fall behind too. Of course they can with the right accomdation. accomdation rarely ever make kids fall through cracks.

11-20-2010, 05:08 PM	#676 (permalink)
kokonut Registered User Join Date: Jul 2006 Posts: 15,348	The key here is early intervention. Li got her CI at 2 years old and not at 5 or 6 years old then it'd be a whole different story. This is true for all babies born with a hearing loss, the key is to get the sound to them early as possible. We are born wired with our auditory cortex ready to go after birth on receiving sound and for our brain to make sense of it. __________________ Before AD. After AD. "Restriction on free thought and free speech is the most dangerous of all subversions. It is the one un-American act that could most easily defeat us." -Thurgood Marshall, former Supreme Court Justice "... turns out they are telling the truth."

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11-20-2010, 04:59 PM	#664 (permalink)
deafgal001 Banned Join Date: Aug 2010 Posts: 2,542	I think she heard before. Like me. I was aided before I had my CI.

11-20-2010, 05:04 PM	#669 (permalink)
deafbajagal Registered User Join Date: Nov 2007 Location: USA Posts: 5,171	The CI is like a fancy car. But it cannot run by itself. You need gas and a driver who is ready. Gas is the therapy...sometimes you need to keep filling it up before the car is ready to go. In the meantime the driver has to be ready, too. I've seen cars with fuel, ready to go. But the driver isn't ready. I've seen cars with drivers, but no fuel. Not all of us are meant to be car drivers. Some deaf children has to take a different route. Your daughter is a natural driver...and she's ready to go! ZOOM. Many children with CIs need more fuel, or they are simply not ready. And some, no matter how hard they try, they will never be able to drive the car. I don't know if my analogy makes sense or not.

11-20-2010, 05:04 PM	#670 (permalink)
deafgal001 Banned Join Date: Aug 2010 Posts: 2,542	yes... because it's impossible to ignore sounds if you were aided. So she heard before, but it probably wasn't clear to her. But with CI, all those sounds she heard made sense to her which is why she probably learned very fast.

11-20-2010, 05:07 PM	#673 (permalink)
deafbajagal Registered User Join Date: Nov 2007 Location: USA Posts: 5,171	I have a good friend who is oral deaf. He can speak almost like a hearing person, almost perfect. All his life he wore hearing aids. Two years ago he got a CI. He went to therapy, etc. to get used to it. He tells me that it doesn't work for him. His brain simply cannot interpret sounds the way he wanted it to. The CI specialist just shrugged his shoulders and said, "It wasn't meant to be." Another friend of mine is very easily his twin. They are alike in many ways, and she also wanted a CI. She got one and almost immediately loved it. She now is getting another one. It puzzles me how some people benefits from it, and others don't. They keep telling me, some people are wired for it...some are not. I think this is what some of the posters are talking about when they say they want a "guarantee" that this will work before they choose it for themselves or for their child.

11-20-2010, 05:10 PM	#679 (permalink)
deafgal001 Banned Join Date: Aug 2010 Posts: 2,542	do you know any that was implanted at 5 or 6 years old that did terrible?

11-20-2010, 05:30 PM	#690 (permalink)
deafgal001 Banned Join Date: Aug 2010 Posts: 2,542	"some kids CAN" that make them fall behind too. Of course they can with the right accomdation. accomdation rarely ever make kids fall through cracks.