C-NICE

Raising Deaf Kids

Deafness

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Lighthouse77

in my family, it seem only the girls are deaf. what type of gene is that?

My grandma's three sisters are deaf.. one of her deaf sister have hearing children and grandchildren. My grandma have other siblings as well (I think she come from a family of 8 or 9) and none of them have deaf children or grandchildren.


my grandma is hearing, she have 6 girls and one boy and they all are hearing, including my mother.
all my grandma's kids have hearing children (I have about 15 cousins mixed with boys and girls)

But my mother is the only one who have 2 deaf girls. And she have 5 kids: 3 girls and 2 boys.

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Good thing about standards is that there are so many of them to choose from.

shel90

Both of my parents are hearing and borned two deaf children...my brother and I (female and male). Doesnt fit in with this scenario..

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Shel~

"A child educated only at school is an uneducated child." -George Santayana

Frisky Feline

I was born profoundly deaf as the fifth baby. The rest of my family and relatives are hearing. I don't know if i am the first person as a Deaf person in my relatives.

Edit: I was born deaf with unknown cause.

LDNanna

Though I am late deaf, and due to a cholesteatoma, I have two female relatives with the same thing. A mother/daughter. Docs say this is not hereditary. Many relatives have various degrees of hearing loss, but no one ever found a reason.

Bottesini

For people who are interested, here is an article from Gallaudet that is much more extensive.

FAQ: Etiologies and Causes of Deafness

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It's a joke Nathan!

Loghead

I have no idea how my hearing loss was caused. I was born with it. No one in my family has ever been deaf or hard of hearing. Even a late onset hearing loss is not common in the family. I would like to know for sure if it is genetic or not, but I'm pretty sure that it was just a birth defect. I have no idea what caused it.

LDNanna

Pah!
Botts, thanks so much for that article. Not only interesting, but proves what the family told the Dr. (Wish I could make a face at that Dr. now) lol
I am going to contact my relatives this evening and pass on this news. May not make a difference at all, but at least it is good to know.

deafdude1

same here. Reason is unknown.

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Lissa

Mine was caused by premature birth which led to me having medication that destroyed my hearing. My sister has normal hearing as well as the rest of the family

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Proud to be deaf and a CI user!!

sallylou

I have postlingual autosomal dominate progressive sensorineural hearing loss. Genetic research in this area makes me nervous because I think that they're trying to get rid of people like me. My kids have a 50% chance of inheriting it. That was not a consideration when I had my kids.

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Happy holidays!

deafdyke

Oh are your kids still young? How old were you when you realized you were hoh?

KristinaB

My father was hoh, but that was caused by scarlet fever during the Korean War. I was born with a calcium deposit that was wrapped around eardrum in right ear. Over the years, the ear drum became deformed as a result. Nothing left of it now. I gave myself nerve damage in my left ear at age 10, but over the years it got worse. the doctors found that the problem with my right ear repeated itself in the left ear.

Now, son (14) is having hearing problems, but his is due to numerous middle and inner ear infections. 17 in left ear and 23 in right ear. Daughter (15) was oversized at birth and her left ear did not form properly. She can hear even the slightest sound, but it is "fuzzy". Her word. She has speech problems due to birth related issues and "lax" muscles in her face and neck.

Nothing was hereditary and still is not considered to be. Kids don't plan on ever having kids, but we will see.

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KRISTINAB

webexplorer

Maybe, who knows, but never know that your mother or grandmother or a nurse might have dropped you on the floor by accident. She would never tell anyone about it in her life.

sallylou

Deaf dyke, my kids are still young. They had horrible ear problems and had tubes in their ears for the toddler and preschool years. I don't think that's related to the hearing loss at all. They've outgrown that now.

I started losing my hearing in my 30's. I compensated with lip reading and relying on other people for help. Of course, I was in denial about it. Finally, I got HAs in my early 40's.

Knowing that I had a 50% chance of hearing loss made it easier to adjust. It wasn't unexpected.

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Happy holidays!