Finally for the date for my CI surgery

RonJaxon · 10-30-2009, 01:03 PM

It's been a long wait but I went to my final consultation appointment with both my Audi and my surgeon a few days ago and finally have my surgery scheduled. It'll be on November 11.

The only thing I have to do is a physical on Nov. 2. I'm not in the best health of my life but I don't think that'll be a problem. My biggest worry is that flu that's going around. Someone close to me has it now and I'm wearing a mask when ever I'm around them in hopes I'll be able to avoid it. It would suck to get the flu right before the surgery which is only 2 weeks away.

I went with the Nucleus 5. I tried them all on and I do like the smaller size of this new model. I have small ears.

I posted my background elseware here on AD but just to recap. I've been HOH all my life but my hearing was pretty much "normal" with hearing aids until my late teens. I went to normal public schools and class rooms and so forth. Between 15 and 20 years ago my hearing dropped from profoundly HOH to deaf. Right now I can only hear very loud low pitched sounds in my left ear. I haven't heard speech in about 17 years or so. I'm now 38 years old.

Just thought I'd share this with you all. I'm getting one in my left ear. If any of you have any advice or want to share anything about what I'm about to go through I'd love to read it.

Ron

Jiro · 10-30-2009, 01:09 PM

sorry no advice for you since I do not have CI but good luck, Ron!

Frisky Feline · 10-30-2009, 01:33 PM

Sorry I dont have advice for you. I want to say Good Luck. I saw the Nucelus 5 yesterday. They look neat. Have you thought of picking what color for your processor?

RonJaxon · 10-30-2009, 02:01 PM

Yes, I picked brown because it matches my hair color. The Flesh color ones should be called Albino flash. It's very bright.

john57 · 10-30-2009, 02:23 PM

I may pick charcoal as my color when the trade up program starts in December. If I wanted to show off there is skins already available for the new model. The flesh color is now called sand for the new model. You also can have different colors for the coil and the cable as well.

Frisky Feline · 10-30-2009, 02:33 PM

i would pick charcoal because i like the color, dark grey aka charcoal. i will pick it soon. I would love to pick the color processor cover either hot pink or Zebra aka black and white. but i haven't ask more quesitons yet. i will find out more about it from my audiologist.

RonJaxon · 10-30-2009, 02:46 PM

Quote:

Originally Posted by Frisky Feline

i would pick charcoal because i like the color, dark grey aka charcoal. i will pick it soon. I would love to pick the color processor cover either hot pink or Zebra aka black and white. but i haven't ask more quesitons yet. i will find out more about it from my audiologist.

I actually have an idea for the covers. A friend of mine is a make up artist (Special effects) and makes masks. He's one of those guys who could make you look like someone else with make up, latex, fake beards and so forth. So my idea is to put hair on one of those covers that match my real hair. So basically the CI will be invisible because it'll blend it with my real hair (I have long hair).

It's don't think it's necessary but I'm an entertainer/magician and on stage costume is important. No big deal, just something I'm going to experiment with. I have no desire to hide my CI, in fact I'll probably flaunt it. LOL

Ron

Frisky Feline · 10-30-2009, 02:59 PM

Ron,

when your friend make the cover. please take a picture of it. I want to see how does it turns out look like. I bet it looks nice, and blend with your hair very well. I am still new to the CI thingy. cool

sallylou · 10-30-2009, 03:51 PM

Ron, best of luck on your surgery! I'll be anxious to hear how your CI works for you. I hope that the CI is all that you'd hoped for and more!

<-- crossing my fingers for good luck

Lissa · 10-30-2009, 06:29 PM

Good luck with surgery!!

Phi4Sius · 10-30-2009, 08:26 PM

Congratulations Ron! I hope you'll keep us updated after surgery, activation and beyond!!!

set2 · 10-30-2009, 09:14 PM

Ron,

Good Luck on your Surgery keep us posted.

For after the surgery my advice is:

1. Throat Lozenges

2. Sleep with extra pillow to keep head elevated or sleep in a recliner

3. Make sure you have pain meds ready. You may not need them but make sure you have them. Don't wait too long to take something if you need it.

Finally, just remember that at first things will sound strange but it gets better over time. Patience is a virtue for the CI Journey.

rockin'robin · 10-30-2009, 10:52 PM

Best of health and luck, Ron!......

deafdude1 · 10-30-2009, 11:39 PM

Quote:

Originally Posted by RonJaxon

Right now I can only hear very loud low pitched sounds in my left ear. I haven't heard speech in about 17 years or so. I'm now 38 years old.

I thought you had no residual hearing and is why you stopped wearing HAs 17 years ago? If you can still hear something in the left ear, id try the latest HA in that ear and get a CI in the right ear. Youll be able to go bimodel and hear with both HA and CI. Hope this helps.

LDNanna · 10-31-2009, 01:31 AM

Good luck Ron, and do keep us posted. I have always liked your posts and even gave a copy of your what its like to be hoh to my VR counselor. Hope you have success and a speedy recovery. (So we can see more of your posts) lol

RonJaxon · 10-31-2009, 11:08 AM

Thank you everyone.

Well, one of my fears might have become a reality. I woke up this morning with sore throat and cough. So I might have that flu. After my doctor appointment I'll contact my audi and surgeon to see what I should do. I hope it won't post pone it too long. I have a physical on Monday and I don't think they'll want to give it to me if I do that the flu. I'll find out later today.

Quote:

Originally Posted by deafdude1

I thought you had no residual hearing and is why you stopped wearing HAs 17 years ago? If you can still hear something in the left ear, id try the latest HA in that ear and get a CI in the right ear. Youll be able to go bimodel and hear with both HA and CI. Hope this helps.

When I say I have little hearing in my left ear it's very, very little. For example if there was a live rock band I might hear the drums sometimes. If I'm standing next to a lour motor cycle I might pick up a faint hum. But it's so faint I might even be more feeling it rather then hearing it. I scored zero on speech in my hearing test.

Thanks again.

Ron

RonJaxon · 11-11-2009, 12:52 PM

Well, because I had that flu last week I'll have to wait a little longer. My pre-surgery physical was suppose to be last Monday but I had the flu to the physical is today in a couple of hours from now. My surgery is now next Wednesday (Nov. 18).

So all is still good, just have to wait another week.

Just keeping you up to speed. Thanks for all the support.

Ron

Oceanbreeze · 11-11-2009, 02:27 PM

Quote:

Originally Posted by RonJaxon

Well, because I had that flu last week I'll have to wait a little longer. My pre-surgery physical was suppose to be last Monday but I had the flu to the physical is today in a couple of hours from now. My surgery is now next Wednesday (Nov. 18).

So all is still good, just have to wait another week.

Just keeping you up to speed. Thanks for all the support.

Ron

Good luck Ron!

deafdude1 · 11-11-2009, 02:28 PM

Good luck and keep us to date!

john57 · 11-11-2009, 03:20 PM

Ron,

Good luck also!

Pinky · 11-11-2009, 08:11 PM

Ron, Good luck on your surgery! :-)

deafdyke · 11-11-2009, 08:44 PM

Quote:

When I say I have little hearing in my left ear it's very, very little. For example if there was a live rock band I might hear the drums sometimes. If I'm standing next to a lour motor cycle I might pick up a faint hum. But it's so faint I might even be more feeling it rather then hearing it. I scored zero on speech in my hearing test.

So pretty much almost totally deep profound?
Sounds like you're an almost "totally definite" canidate for CI.....which is good.
I would however maybe see an audi who is affilated with a school for the deaf or a Eye and Ear Hoispital.....Ask your audi if it might be worth it to go through trying a hearing aid in that ear. If you haven't been aided in that ear for awhile, there are some new hearing aids that are really responsive to losses previously thought unaidable. I know a girl who had a deep profound loss (wore a body worn aid as a little girl in the 80's) and didn't get any input. Then a couple of years ago she tried a BTE (digital) and was actually getting some speech words!

kretsh · 11-11-2009, 09:02 PM

Ron, Good Luck with your surgery and activation!

My daughter has a Nucleus 5 and is doing fantastic with it.

Lissa · 11-12-2009, 06:12 AM

Sorry to hear that surgery was postponed!! You'll soon have the op and be hearing in no time

Frisky Feline · 11-12-2009, 06:17 AM

Oh good luck, beside, glad you feel better already.

krazykatkitty · 11-14-2009, 02:43 AM

Hello Ron, Good luck on your surgery!

souggy · 11-14-2009, 06:03 AM

Sorry for the delay, Ron; I really do wish the surgery will go well for you!

Watermelon · 11-17-2009, 01:55 PM

Good luck, Ron!

deafskeptic · 11-18-2009, 05:13 PM

Here's a very belated I wish you luck on your surgery!

Bottesini · 11-18-2009, 07:51 PM

Surgery should have been today. I hope all went well for you.

10-30-2009, 01:03 PM	#1 (permalink)
RonJaxon Registered User Join Date: Apr 2007 Posts: 213	Finally for the date for my CI surgery It's been a long wait but I went to my final consultation appointment with both my Audi and my surgeon a few days ago and finally have my surgery scheduled. It'll be on November 11. The only thing I have to do is a physical on Nov. 2. I'm not in the best health of my life but I don't think that'll be a problem. My biggest worry is that flu that's going around. Someone close to me has it now and I'm wearing a mask when ever I'm around them in hopes I'll be able to avoid it. It would suck to get the flu right before the surgery which is only 2 weeks away. I went with the Nucleus 5. I tried them all on and I do like the smaller size of this new model. I have small ears. I posted my background elseware here on AD but just to recap. I've been HOH all my life but my hearing was pretty much "normal" with hearing aids until my late teens. I went to normal public schools and class rooms and so forth. Between 15 and 20 years ago my hearing dropped from profoundly HOH to deaf. Right now I can only hear very loud low pitched sounds in my left ear. I haven't heard speech in about 17 years or so. I'm now 38 years old. Just thought I'd share this with you all. I'm getting one in my left ear. If any of you have any advice or want to share anything about what I'm about to go through I'd love to read it. Ron

10-30-2009, 01:09 PM	#2 (permalink)
Jiro YOU DOMESTIC DISSENT! Join Date: Apr 2007 Location: The Sopranos State Posts: 22,947	sorry no advice for you since I do not have CI but good luck, Ron! __________________ - Don't forget to buy Jiro's Special Edition Sunglasses for $19.95

10-30-2009, 03:51 PM	#9 (permalink)
sallylou Registered User Join Date: Jun 2009 Location: My own private Idaho Posts: 2,090	Ron, best of luck on your surgery! I'll be anxious to hear how your CI works for you. I hope that the CI is all that you'd hoped for and more! <-- crossing my fingers for good luck __________________ Happy holidays!

10-30-2009, 06:29 PM	#10 (permalink)
Lissa Just me....Lissa Join Date: Dec 2007 Posts: 3,093 Blog Entries: 3	Good luck with surgery!! __________________ Left Ear Nucleus Freedom Implanted-October 25th 2000 Activation-November 28th 2000

10-30-2009, 08:26 PM	#11 (permalink)
Phi4Sius Registered User Join Date: Jan 2009 Posts: 304	Congratulations Ron! I hope you'll keep us updated after surgery, activation and beyond!!! __________________ --------------------- Check out my blog!! http://phi4sius.blogspot.com/

Today
Deafness	Sponsored Links __________________ This advertising will not be shown in this way to registered members. Register your free account today and become a member on AllDeaf.com

10-30-2009, 01:33 PM	#3 (permalink)
Frisky Feline Provoke, Pounce, Purr Join Date: Jun 2003 Posts: 5,693	Sorry I dont have advice for you. I want to say Good Luck. I saw the Nucelus 5 yesterday. They look neat. Have you thought of picking what color for your processor?

10-30-2009, 02:01 PM	#4 (permalink)
RonJaxon Registered User Join Date: Apr 2007 Posts: 213	Yes, I picked brown because it matches my hair color. The Flesh color ones should be called Albino flash. It's very bright.

10-30-2009, 02:23 PM	#5 (permalink)
john57 Registered User Join Date: Jul 2007 Location: Colorado Posts: 300	I may pick charcoal as my color when the trade up program starts in December. If I wanted to show off there is skins already available for the new model. The flesh color is now called sand for the new model. You also can have different colors for the coil and the cable as well.

10-30-2009, 02:33 PM	#6 (permalink)
Frisky Feline Provoke, Pounce, Purr Join Date: Jun 2003 Posts: 5,693	i would pick charcoal because i like the color, dark grey aka charcoal. i will pick it soon. I would love to pick the color processor cover either hot pink or Zebra aka black and white. but i haven't ask more quesitons yet. i will find out more about it from my audiologist.

10-30-2009, 02:59 PM	#8 (permalink)
Frisky Feline Provoke, Pounce, Purr Join Date: Jun 2003 Posts: 5,693	Ron, when your friend make the cover. please take a picture of it. I want to see how does it turns out look like. I bet it looks nice, and blend with your hair very well. I am still new to the CI thingy. cool

10-30-2009, 09:14 PM	#12 (permalink)
set2 Registered User Join Date: Oct 2006 Posts: 198	Ron, Good Luck on your Surgery keep us posted. For after the surgery my advice is: 1. Throat Lozenges 2. Sleep with extra pillow to keep head elevated or sleep in a recliner 3. Make sure you have pain meds ready. You may not need them but make sure you have them. Don't wait too long to take something if you need it. Finally, just remember that at first things will sound strange but it gets better over time. Patience is a virtue for the CI Journey.

10-30-2009, 10:52 PM	#13 (permalink)
rockin'robin Registered User Join Date: Apr 2007 Location: Jacksonville, Florida Posts: 2,782	Best of health and luck, Ron!......

10-31-2009, 01:31 AM	#15 (permalink)
LDNanna Everything purple is mine Join Date: Feb 2009 Posts: 887	Good luck Ron, and do keep us posted. I have always liked your posts and even gave a copy of your what its like to be hoh to my VR counselor. Hope you have success and a speedy recovery. (So we can see more of your posts) lol

11-11-2009, 12:52 PM	#17 (permalink)
RonJaxon Registered User Join Date: Apr 2007 Posts: 213	Well, because I had that flu last week I'll have to wait a little longer. My pre-surgery physical was suppose to be last Monday but I had the flu to the physical is today in a couple of hours from now. My surgery is now next Wednesday (Nov. 18). So all is still good, just have to wait another week. Just keeping you up to speed. Thanks for all the support. Ron

11-11-2009, 02:28 PM	#19 (permalink)
deafdude1 Getting stem cells ~2011! Join Date: Feb 2009 Posts: 1,051 Blog Entries: 1	Good luck and keep us to date! __________________

11-11-2009, 03:20 PM	#20 (permalink)
john57 Registered User Join Date: Jul 2007 Location: Colorado Posts: 300	Ron, Good luck also!

11-11-2009, 08:11 PM	#21 (permalink)
Pinky I'm proud to have CI!!!! Join Date: Apr 2008 Posts: 5,441	Ron, Good luck on your surgery! :-) __________________ I'm expecting! It's a BOY!!!!! LEFT: Implanted: 6/12/09 Activated: 7/7/09 Freedom

11-11-2009, 09:02 PM	#23 (permalink)
kretsh Registered User Join Date: Oct 2009 Location: CT Posts: 1	Ron, Good Luck with your surgery and activation! My daughter has a Nucleus 5 and is doing fantastic with it.

11-12-2009, 06:12 AM	#24 (permalink)
Lissa Just me....Lissa Join Date: Dec 2007 Posts: 3,093 Blog Entries: 3	Sorry to hear that surgery was postponed!! You'll soon have the op and be hearing in no time __________________ Left Ear Nucleus Freedom Implanted-October 25th 2000 Activation-November 28th 2000

11-12-2009, 06:17 AM	#25 (permalink)
Frisky Feline Provoke, Pounce, Purr Join Date: Jun 2003 Posts: 5,693	Oh good luck, beside, glad you feel better already.

11-14-2009, 02:43 AM	#26 (permalink)
krazykatkitty Registered User Join Date: May 2009 Location: New Zealand Posts: 99	Hello Ron, Good luck on your surgery!

11-14-2009, 06:03 AM	#27 (permalink)
souggy Ace Attorney Join Date: Jul 2009 Location: Victoria, BC Posts: 2,370	Sorry for the delay, Ron; I really do wish the surgery will go well for you! __________________ Souggy's Blog Warning! Contains skewed comments & inane ramblings. May cause spontaneous human combustion

11-17-2009, 01:55 PM	#28 (permalink)
Watermelon Registered User Join Date: Jul 2009 Location: Texas Posts: 83	Good luck, Ron!

11-18-2009, 05:13 PM	#29 (permalink)
deafskeptic Empress Skeptia Join Date: Sep 2006 Posts: 4,528	Here's a very belated I wish you luck on your surgery! __________________ Left ear implanted with Med-El on April 24 2007. Activated on May 9th.

11-18-2009, 07:51 PM	#30 (permalink)
Bottesini Bodhar agus leath dall Join Date: Mar 2008 Location: Middle of dog pack Posts: 16,083	Surgery should have been today. I hope all went well for you. __________________ It's a joke Nathan!

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