A cochlear implant did not work for this person.

deafdude1 · 10-28-2009, 12:39 AM

cochlear implants (Page 1) - Cochlear Implants - Hearing Loss Web Discussion Board

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I have an implant but sadly mine did not work out.

This is to the people who insist that anyone who is a CI candidate is guaranteed to get an improvement. This is not true!

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I am a great believer of freedom of choice, if a deaf or deafened person decides to have an implant then good luck to them.

I agree 100%

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I know there has been a lot of success to give "hearing" when used but wish hearing people would understand that the person is still deaf.

Most people who get CI find they "hear" better, but they need to realise their "hearing" can't be compared or come close to a hearing person.

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I do not beleive in child implantation you have a deaf child, i realise you want the best for them but it is not an illness or life threatening and deaf community and identity is important for that child.

I would implant my child if he had a HL worse than 100db, otherwise ill give him the best HAs programmed with maximum amplification and let him make the choice when he's older.

Lissa · 10-28-2009, 07:06 AM

It maybe true for the majority of CI users. All CI users should know before getting implanted that there is a chance it may not work. I read the link and it seems they just got it and may be a programme/map issue?

shel90 · 10-28-2009, 07:17 AM

Nothing new..I see numerous of children whose CIs do not work year after year. However, I do see some children with working CIs too.

Lissa · 10-28-2009, 07:20 AM

Quote:

Originally Posted by shel90

Nothing new..I see numerous of children whose CIs do not work year after year. However, I do see some children with working CIs too.

Yes, it varies on the individual. It works for some, it doesnt work for some

Frisky Feline · 10-28-2009, 10:01 AM

Keep posting it here to let hearing parents to be aware about the CIs, that may not work or work.

I like what it says:

Quote:

I do not believe in child implantation you have a deaf child, i realise you want the best for them but it is not an illness or life threatening and deaf community and identity is important for that child.

overthepond · 10-28-2009, 10:14 AM

Low expectations is the answer. I was told not to expect much post implant.

Not everyone succeed with implants.

Most of us know that

SkullChick · 10-28-2009, 12:36 PM

Pinky · 10-28-2009, 03:42 PM

I agree with Lissa's post.

@ thread!

faire_jour · 10-28-2009, 03:47 PM

What defines success? For one person it is understanding spoken language without lipreading, for another, hearing very loud enviromental sounds is a great improvement. I think the key is reasonable expectations coupled with great follow up in therapy and audiologically. I think with those two things nearly every CI will be a "success”

Pinky · 10-28-2009, 03:52 PM

Quote:

Originally Posted by faire_jour

What defines success? For one person it is understanding spoken language without lipreading, for another, hearing very loud enviromental sounds is a great improvement. I think the key is reasonable expectations coupled with great follow up in therapy and audiologically. I think with those two things nearly every CI will be a "success”

Ignore this thread. You can read my blog website however is adult and children work on CI success rate. If you don't have my blog website. Please PM me. The thread is not source about children and adult with CI are not work.

set2 · 10-29-2009, 12:38 AM

Good Post Faire_Jour.

Deafdude, success and failure also apply to hearing aids.

DURAY · 10-29-2009, 12:46 AM

can vertigo caused this?

deafdude1 · 10-29-2009, 02:42 AM

Quote:

Originally Posted by DeafLissa90

It maybe true for the majority of CI users. All CI users should know before getting implanted that there is a chance it may not work. I read the link and it seems they just got it and may be a programme/map issue?

Im sure those CIborgs had their CI programmed many times. I had my HAs programmed many times and what I hear is probably the best I am gonna hear and I will make do with what I have. I hope that person did his research before getting CI and had realistic expectations.

Quote:

Originally Posted by shel90

Nothing new..I see numerous of children whose CIs do not work year after year. However, I do see some children with working CIs too.

You mentioned that CIs have a 75% success rate on children, isn't this still higher than if they never got CI? Id implant my child if HAs weren't helping and he had at least 100db HL, if CI helps then good, otherwise at least we tried. Id try all the best HAs before trying CI. Sometimes nothing works.

Quote:

Originally Posted by overthepond

Low expectations is the answer. I was told not to expect much post implant.
Not everyone succeed with implants.
Most of us know that

Id think about CI if I had a dead ear or if I lost all my hearing in both ears. Glad to hear CIs work for you, you do have worse hearing than me.

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Originally Posted by Pinky

I agree with Lissa's post.

@ thread!

Im sorry to say you can't accept the fact not everyone benefits from CI. You have to realise everyone is different! I am happy for you that your CI works great.

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Originally Posted by faire_jour

What defines success? For one person it is understanding spoken language without lipreading, for another, hearing very loud enviromental sounds is a great improvement. I think the key is reasonable expectations coupled with great follow up in therapy and audiologically. I think with those two things nearly every CI will be a "success”

In my case, if I lost all my residual hearing, id consider CI a success if it can get me similar hearing to what I currently hear with HAs before I lost my remaining residual hearing. There's a good chance id hear better but realistically hearing something is better than nothing. It's possible the person who said CI didn't work may have had too much hearing and gotten plenty of benefits from HAs already so there was a good chance CI wouldn't be any better or it would be worse. You said in the past it was impossible to hear worse with CI than HA, I kindly wanted to point out that this is not true at all. I am not bashing CI here, I give CI credit for it improving the hearing of at least 75% of those who get CI vs. the best HAs properly fit.

Those who are "shoo-in" candidates for CI enjoy over 90% success of a significent improvement with CI. The borderline candidates with 40-60% speech have over 50% chance of at least a small improvement with CI. I read one study that showed those with CI were scoring anywhere from 20% to 75% speech in quiet on a fairly difficult speech test and that average was 55%. Of course on an easy test such as the HINT-Q all the CI scores would be higher. CI candidacy should be tightened up so that only candidates who score on speech similar to the worst CI results would be candidates. That way, almost no one would hear worse with CI when they are already starting at near 0% with HAs to begin with.

It makes no sense to risk someone whos already hearing at around 50% with HAs because there's still plenty with CI who score at 50% or less. I know the average CI score is quite a bit above 50% but it's still a big risk that youll get a below average CI result like this person I posted about. I wish audiologists wouldn't be so quick to push CI on those already getting significent benefit from HAs. I wish CI wasn't so overhyped so people would have realistic expectations. I respect those that choose CI as long as they do their research and inform themselves. That's all I ask.

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Originally Posted by set2

Good Post Faire_Jour.

Deafdude, success and failure also apply to hearing aids.

I know this. One should try different HAs if one brand of HAs isn't a success. If no HA is successful(which is common for the profoundly deaf) then they can decide to make do with whatever they still hear with HAs or take a chance with CI, it's their choice. I will wish them the best of luck with whatever choice they make.

Cheri · 10-29-2009, 10:03 AM

I understand your point deafdude1, you're basically saying that cochlear implant should be the last resort. However with that being said, I agree, especially when it comes down to toddlers and children. 90% deaf babies being born to hearing parents. Of course most hearing parents normally want their children to grow up in the hearing culture, instead of both. (deaf/hearing)

Don't get me wrong, I don't opposed cochlear implant itself, I'm opposed how most parents want their children to be like them, on an equal ground as being "perfect" when they are not like them, they're different, they have their own needs. I've heard some hearing parents would say that if their child wants to know about the deaf culture, then their child is free to choose when the child grows up.

Now if hearing parents came up to me and say that they're giving their deaf child an opportunity to hear, give them a better life, willing to continue with sign language and exposed them to Deaf culture then I wouldn't opposed.

deafdude1 · 11-03-2009, 04:06 AM

I posted replies to several posters. This thread is to show that CI does not work for everyone and for "borderline" candidates, they could hear better or they could hear worse with CI, it's their choice to stick with HAs or take a chance with CI.

Pinky · 11-03-2009, 11:24 AM

I disagree with you. I am not impress with your thread.

faire_jour · 11-03-2009, 12:13 PM

Quote:

Originally Posted by deafdude1

I posted replies to several posters. This thread is to show that CI does not work for everyone and for "borderline" candidates, they could hear better or they could hear worse with CI, it's their choice to stick with HAs or take a chance with CI.

What is borderline, and what YOU call borderline are two very different things.

What is your aided speech score? Less than 20%? Than you aren't even close to borderline. With the CI you could end up with greater than 90%. Why would you not want that? Your ability to read lips won't change, and you admit that is how you communicate.

Show me a single CI user (with follow up) that ends up hearing less speech than they did with aids. Maybe they have one frequency, pure tone, in a booth, in which they score slighty lower, but that is not hearing less. Overall, they gain so much more.

sallylou · 11-03-2009, 12:34 PM

Sometimes medical devices fail. A person could get another implant if this happens. It's all about informed consent. There are always risks. I agree that realistic expectations are important (in all parts of our lives, not just hearing).

Pinky · 11-03-2009, 07:46 PM

Quote:

Originally Posted by faire_jour

What is borderline, and what YOU call borderline are two very different things.

What is your aided speech score? Less than 20%? Than you aren't even close to borderline. With the CI you could end up with greater than 90%. Why would you not want that? Your ability to read lips won't change, and you admit that is how you communicate.

Show me a single CI user (with follow up) that ends up hearing less speech than they did with aids. Maybe they have one frequency, pure tone, in a booth, in which they score slighty lower, but that is not hearing less. Overall, they gain so much more.

He think he know it all about CI. He is kind of EGO. I am not buying his stories because he is against CI! He know nothing about CI.

shel90 · 11-03-2009, 07:53 PM

Quote:

Originally Posted by sallylou

Sometimes medical devices fail. A person could get another implant if this happens. It's all about informed consent. There are always risks. I agree that realistic expectations are important (in all parts of our lives, not just hearing).

Yea, there are failures of the devices.

deafdyke · 11-03-2009, 08:25 PM

Quote:

Nothing new..I see numerous of children whose CIs do not work year after year. However, I do see some children with working CIs too.

Define "work" or "sucess"
One of the things that really makes me uncomfortable about CI is the way it's implied that every user will reach hoh functioning levels with it.
Yes, its VERY rare that there's absolutly positively no benifit whatsoever.
But how often do implanted kids and dhh as kids adults reach hoh listening levels with CI?
Yes, I know that many kids experiance improvement compared to HAs.......but that still doesn't mean that they still don't need intensive special educational interventions and support. It also doesn't mean that they aren't still behind compared to hearing kids.

shel90 · 11-03-2009, 08:27 PM

Quote:

Originally Posted by deafdyke

Define "work" or "sucess"
One of the things that really makes me uncomfortable about CI is the way it's implied that every user will reach hoh functioning levels with it.
Yes, its VERY rare that there's absolutly positively no benifit whatsoever.
But how often do implanted kids and dhh as kids adults reach hoh listening levels with CI?
Yes, I know that many kids experiance improvement compared to HAs.......but that still doesn't mean that they still don't need intensive special educational interventions and support. It also doesn't mean that they aren't still behind compared to hearing kids.

Same definition as how HAs work for some and dont work for others.

Pinky · 11-03-2009, 08:30 PM

Quote:

Originally Posted by shel90

Yea, there are failures of the devices.

That is simple to replacement new device. (grins) If my CI device is not work then will go to audiologist to check it out what is matter with my ci device. She will answer the question. I won't give it up on my CI device. If it's not work and get a new device.

The hearing aids are not work for me very well. CI is working for me as well.

shel90 · 11-03-2009, 08:33 PM

Quote:

Originally Posted by Pinky

That is simple to replacement new device. (grins) If my CI device is not work then will go to audiologist to check it out what is matter with my ci device. She will answer the question. I won't give it up on my CI device. If it's not work and get a new device.

I have worked with children whose devices have failed. Most of the time, the parents dont want to put their children through surgery again. I dont know how often that happens else where.

My point is that these devices can and do fail so it is important that people keep that in mind.

Pinky · 11-03-2009, 08:41 PM

Quote:

Originally Posted by shel90

I have worked with children whose devices have failed. Most of the time, the parents dont want to put their children through surgery again. I dont know how often that happens else where.

My point is that these devices can and do fail so it is important that people keep that in mind.

My cousin got re-implant surgery because the device wasn't work. He got new device for free. Maybe your students' device didn't aware about warning of statics when they are play at recess with plastic slide.

faire_jour · 11-03-2009, 08:41 PM

Quote:

Originally Posted by shel90

I have worked with children whose devices have failed. Most of the time, the parents dont want to put their children through surgery again. I dont know how often that happens else where.

My point is that these devices can and do fail so it is important that people keep that in mind.

You know a lot of children whose devices have failed who do not get reimplanted?

How?

The failure rate is very low, and most kids get reimplanted, so how many could you have possibly seen?

shel90 · 11-03-2009, 08:44 PM

Quote:

Originally Posted by faire_jour

You know a lot of children whose devices have failed who do not get reimplanted?

How?

The failure rate is very low, and most kids get reimplanted, so how many could you have possibly seen?

How do I know them? I met them for starters.

souggy · 11-03-2009, 08:47 PM

Quote:

Originally Posted by faire_jour

You know a lot of children whose devices have failed who do not get reimplanted?

How?

The failure rate is very low, and most kids get reimplanted, so how many could you have possibly seen?

You're asking a Teacher of the Deaf?

shel90 · 11-03-2009, 08:48 PM

Quote:

Originally Posted by souggy

You're asking a Teacher of the Deaf?

faire_jour · 11-03-2009, 08:49 PM

Quote:

Originally Posted by deafdyke

Define "work" or "sucess"
One of the things that really makes me uncomfortable about CI is the way it's implied that every user will reach hoh functioning levels with it.
Yes, its VERY rare that there's absolutly positively no benifit whatsoever.
But how often do implanted kids and dhh as kids adults reach hoh listening levels with CI?
Yes, I know that many kids experiance improvement compared to HAs.......but that still doesn't mean that they still don't need intensive special educational interventions and support. It also doesn't mean that they aren't still behind compared to hearing kids.

I agree with this. I think the VAST majority of people with Ci`s get benefit. Not all can understand speech, but that doesn`t mean they "don`t work". They work fine, but different people get different levels.

I find it hard to believe that there are thosands of people to whom a CI has been useless. If it "doesn`t work" they would be equally profoundly deaf with it on as they are with it off.

10-28-2009, 07:06 AM	#2 (permalink)
Lissa Just me....Lissa Join Date: Dec 2007 Posts: 3,092 Blog Entries: 3	It maybe true for the majority of CI users. All CI users should know before getting implanted that there is a chance it may not work. I read the link and it seems they just got it and may be a programme/map issue? __________________ Left Ear Nucleus Freedom Implanted-October 25th 2000 Activation-November 28th 2000

10-28-2009, 07:17 AM	#3 (permalink)
shel90 In a pink and black world Join Date: Sep 2006 Location: In the land of the free Posts: 23,974 Blog Entries: 3	Nothing new..I see numerous of children whose CIs do not work year after year. However, I do see some children with working CIs too. __________________ Shel~ "A child educated only at school is an uneducated child." -George Santayana

10-28-2009, 12:36 PM	#7 (permalink)
SkullChick Lil Ci-Borg Chick Join Date: Jul 2007 Location: Middle Of Nowhere, Delaware Posts: 792	__________________ [Left Ear] Implanted 1/15/08 with Nucleus Freedom! Activated 2/12/08 with Freedom BTE Link for my Cochlear Implant http://skullchick.blogspot.com Link for my Blog unrelated to cochlear Implant http://skullchickworld.blogspot.com

10-28-2009, 03:42 PM	#8 (permalink)
Pinky I'm proud to have CI!!!! Join Date: Apr 2008 Posts: 5,438	I agree with Lissa's post. @ thread! __________________ I'm expecting! It's a BOY!!!!! LEFT: Implanted: 6/12/09 Activated: 7/7/09 Freedom

10-29-2009, 10:03 AM	#14 (permalink)
Cheri Prayers for my dad. Join Date: Nov 2003 Location: Ohio Posts: 22,613	I understand your point deafdude1, you're basically saying that cochlear implant should be the last resort. However with that being said, I agree, especially when it comes down to toddlers and children. 90% deaf babies being born to hearing parents. Of course most hearing parents normally want their children to grow up in the hearing culture, instead of both. (deaf/hearing) Don't get me wrong, I don't opposed cochlear implant itself, I'm opposed how most parents want their children to be like them, on an equal ground as being "perfect" when they are not like them, they're different, they have their own needs. I've heard some hearing parents would say that if their child wants to know about the deaf culture, then their child is free to choose when the child grows up. Now if hearing parents came up to me and say that they're giving their deaf child an opportunity to hear, give them a better life, willing to continue with sign language and exposed them to Deaf culture then I wouldn't opposed. __________________ God didn't promise days without pain, laughter without sorrow and sun without rain, But God did promise strength for the day, comfort for the tears and light for the way.

Today
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10-28-2009, 10:14 AM	#6 (permalink)
overthepond Registered User Join Date: Jun 2008 Location: Great Britain Posts: 1,276	Low expectations is the answer. I was told not to expect much post implant. Not everyone succeed with implants. Most of us know that

10-28-2009, 03:47 PM	#9 (permalink)
faire_jour Registered User Join Date: Apr 2008 Posts: 2,694	What defines success? For one person it is understanding spoken language without lipreading, for another, hearing very loud enviromental sounds is a great improvement. I think the key is reasonable expectations coupled with great follow up in therapy and audiologically. I think with those two things nearly every CI will be a "success”

10-29-2009, 12:38 AM	#11 (permalink)
set2 Registered User Join Date: Oct 2006 Posts: 198	Good Post Faire_Jour. Deafdude, success and failure also apply to hearing aids.

10-29-2009, 12:46 AM	#12 (permalink)
DURAY Registered User Join Date: Oct 2007 Posts: 398	can vertigo caused this?

11-03-2009, 04:06 AM	#15 (permalink)
deafdude1 Getting stem cells ~2011! Join Date: Feb 2009 Posts: 1,051 Blog Entries: 1	I posted replies to several posters. This thread is to show that CI does not work for everyone and for "borderline" candidates, they could hear better or they could hear worse with CI, it's their choice to stick with HAs or take a chance with CI. __________________

11-03-2009, 11:24 AM	#16 (permalink)
Pinky I'm proud to have CI!!!! Join Date: Apr 2008 Posts: 5,438	I disagree with you. I am not impress with your thread. __________________ I'm expecting! It's a BOY!!!!! LEFT: Implanted: 6/12/09 Activated: 7/7/09 Freedom

11-03-2009, 12:34 PM	#18 (permalink)
sallylou Registered User Join Date: Jun 2009 Location: My own private Idaho Posts: 2,061	Sometimes medical devices fail. A person could get another implant if this happens. It's all about informed consent. There are always risks. I agree that realistic expectations are important (in all parts of our lives, not just hearing). __________________ Happy holidays!

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