So, its started.

***candybrowneyes*** · 10-12-2009, 11:42 AM

I have been having a lot of issues with my Menieres lately especially with the tinnitus and vertigo. I have decided to get a CI for my right ear since its the worst one.
I was really against it since I still have hearing in my right ear but the tinnitus and vertigo at times is so terrible I feel like banging my head into a wall to knock myself out.
Testing begins next week, Im anxious, nervous but I feel this is the best decision right now for me. My audi said it should help a lot with the tinnitus and maybe some of the other symptoms. If it does help a lot then I will discuss maybe getting another CI for the left ear.

I hope this works and gives me some relief.

overthepond · 10-12-2009, 11:52 AM

All the Best of Luck.
I know of a person with Menieres are currently doing well with her CI and her menieres.

melissa · 10-12-2009, 11:56 AM

I hope it goes well for you :-) I have fairly low blood pressure and get dizzy/can't see when I get up too fast, I can't even imagine what vertigo must be like- I really hope the CI will help to stop this.

Bottesini · 10-12-2009, 12:01 PM

Good luck. I hope it helps you a lot.

Hear Again · 10-12-2009, 12:23 PM

Wishing you all the best CBE! I know what tinnitus is like, so I know exactly what you are going through. Please keep us all updated as to how your evaluation goes.

***candybrowneyes*** · 10-12-2009, 12:37 PM

Thanks everyone. Its the reason I havent been around a lot. I go and do things with friends and family only to pay for it horribly the next few days after. Something has got to give. Even looking at the computer screen for any length of time makes it bad. Lets hope this does something and I will definitely keep everyone posted.

shel90 · 10-12-2009, 12:37 PM

Wow! I am sorry you are going thru all this. Hope the CI will help. Hang in there!

sallylou · 10-12-2009, 01:39 PM

CBE, I hope that all goes well. I'm sorry that these problems are affecting your quality of life. I hope that you're out celebrating success soon.

Hear Again · 10-12-2009, 03:18 PM

Quote:

Originally Posted by candybrowneyes

Thanks everyone. Its the reason I havent been around a lot. I go and do things with friends and family only to pay for it horribly the next few days after. Something has got to give. Even looking at the computer screen for any length of time makes it bad. Lets hope this does something and I will definitely keep everyone posted.

deafskeptic · 10-12-2009, 03:46 PM

I wish you luck for next week and I hope the CI (if you qualify) will resolve the problems you've been having. I had severe recruitment before I got my CI and I can relate to the problems with tinnitus.

Lissa · 10-12-2009, 03:53 PM

Good luck CBE on your journey to hearing again! I havent got any experiences with Meniere's but I have heard about it. Must be difficult with the vertigo!!

set2 · 10-12-2009, 11:13 PM

CBE,

Good Luck with the CI evaluation. I don't have memieres but I have tinnitus. When my hearing reached the severe to profound range my tinnitus became worse and took the form of "musical hallucinations " during the day and at night the tinnitus was a variety of noises that kept me up several nights a week. My CI has helped with the tinnitus. I hope things work out well for you, what every you decide!

LDNanna · 10-12-2009, 11:22 PM

Good luck and take care, hope to see you soon and read good posts about your success... hugs!

rockin'robin · 10-12-2009, 11:29 PM

Best of luck, Candy! Hang in there, it's always darkest before dawn. You can make it.

Phi4Sius · 10-13-2009, 12:59 AM

Just wanted to say good luck Candy.

Wishing you the best! I'm actually interested in seeing the results of this myself, especially considering your right ear is the worst ear.

I have the opposite as my left ear is the worst ear and I'm always interested in staying up to date on how CI has improved.

Jiro · 10-13-2009, 01:01 AM

good luck and hang in there!

deafdyke · 10-13-2009, 01:58 AM

I do remember hearing that one of the conditions that they were using CI offlabel for, was Menirere's. I remember hearing that it was very sucessful in a lot of cases.

Hear Again · 10-13-2009, 05:42 AM

DD,

That's what I've heard as well. In fact, I know several CI recipients who have Meniere's and are doing very well with their implants.

Mrs Bucket · 10-13-2009, 06:52 AM

Hang in there honey! Wish you all the best and quick healing too as well.

***candybrowneyes*** · 10-13-2009, 03:19 PM

Thanks again everyone. I don't know what I would do without this site sometimes. I mention CI or Menieres to my friends and family and not one of them understand a thing about either. Its nice I can come here and most of you all know what each is. I am crossing my fingers this works. the menieres is terrible I wouldnt wish it upon my worst enemy. Im not worried about being eligible as I see my ent quite a bit for the menieres, also a tinnitus team at the university.
Ill keep you all updated. the last 2 days ive been up and down out of bed dealing with this crap...

melissa · 10-13-2009, 04:11 PM

Aww sweetheart, lots of hugs. I hope your CI testing goes well.

cdmeggers · 10-13-2009, 06:09 PM

good luck with the process!

dogmom · 10-13-2009, 06:15 PM

CBE

Giulia · 10-16-2009, 02:23 AM

Wish you a lot of luck !
I can't be into your shoes, but it seems terrible to have to decide such a surgery ! I took 3 months to decide for my BAHA, and BAHA needs only an hour surgery :-O

Phi4Sius · 10-16-2009, 03:17 AM

Giulia- It's not THAT terrible. As a person with a completely dead left ear since I was four years old, being able to have the option to hear again is actually a wonderful thing. The surgery and initial recovery period, IMO, is worth it considering it's an FDA approved device that has helped thousands.

I'm considering my decision carefully, weighing all sorts of pros and cons including upcoming technology. I'm 99.9% certain I'll be going for a CI for my left ear within the next 6 months.

I'm lucky that I didn't have Meniere's disease on the level that candy does. I can't imagine how much of a pain that is to endure. I have, however, had the SEVERE debilitating vertigo that I have grown out of (thank goodness). I'd be bedridden for 2 weeks at a time multiple times per year during elementary school because my vertigo was so horrible.

overthepond · 10-16-2009, 03:41 AM

Phi4ius is right about surgery. Having the sounds in my life over comes the concerns of having surgery.
The surgery isn't that bad at all, think of it as equilivent to drinking 3 bottles of wine!!! (my surgeon's words!!)

10-12-2009, 11:42 AM	#1 (permalink)
*candybrowneyes* Tangled in the InterWebz Join Date: Oct 2008 Location: Iowa Posts: 583 Blog Entries: 1	So, its started. I have been having a lot of issues with my Menieres lately especially with the tinnitus and vertigo. I have decided to get a CI for my right ear since its the worst one. I was really against it since I still have hearing in my right ear but the tinnitus and vertigo at times is so terrible I feel like banging my head into a wall to knock myself out. Testing begins next week, Im anxious, nervous but I feel this is the best decision right now for me. My audi said it should help a lot with the tinnitus and maybe some of the other symptoms. If it does help a lot then I will discuss maybe getting another CI for the left ear. I hope this works and gives me some relief. __________________ Love is the force that transforms and improves the soul of the world...

10-12-2009, 12:01 PM	#4 (permalink)
Bottesini Bodhar agus leath dall Join Date: Mar 2008 Location: Middle of dog pack Posts: 16,055	Good luck. I hope it helps you a lot. __________________ It's a joke Nathan!

10-12-2009, 12:23 PM	#5 (permalink)
Hear Again Each day is a gift. Join Date: Jan 2005 Location: Wisconsin Posts: 20,073 Blog Entries: 6	Wishing you all the best CBE! I know what tinnitus is like, so I know exactly what you are going through. Please keep us all updated as to how your evaluation goes. __________________ Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 \| Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 \| Activated: 3/1/06) Deafblind/Postlingual

10-12-2009, 12:37 PM	#6 (permalink)
*candybrowneyes* Tangled in the InterWebz Join Date: Oct 2008 Location: Iowa Posts: 583 Blog Entries: 1	Thanks everyone. Its the reason I havent been around a lot. I go and do things with friends and family only to pay for it horribly the next few days after. Something has got to give. Even looking at the computer screen for any length of time makes it bad. Lets hope this does something and I will definitely keep everyone posted. __________________ Love is the force that transforms and improves the soul of the world...

10-12-2009, 12:37 PM	#7 (permalink)
shel90 In a pink and black world Join Date: Sep 2006 Location: In the land of the free Posts: 23,991 Blog Entries: 3	Wow! I am sorry you are going thru all this. Hope the CI will help. Hang in there! __________________ Shel~ "A child educated only at school is an uneducated child." -George Santayana

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10-12-2009, 11:52 AM	#2 (permalink)
overthepond Registered User Join Date: Jun 2008 Location: Great Britain Posts: 1,276	All the Best of Luck. I know of a person with Menieres are currently doing well with her CI and her menieres.

10-12-2009, 11:56 AM	#3 (permalink)
melissa Registered User Join Date: Sep 2006 Location: Cheshire, UK. Posts: 188	I hope it goes well for you :-) I have fairly low blood pressure and get dizzy/can't see when I get up too fast, I can't even imagine what vertigo must be like- I really hope the CI will help to stop this.

10-12-2009, 01:39 PM	#8 (permalink)
sallylou Registered User Join Date: Jun 2009 Location: My own private Idaho Posts: 2,061	CBE, I hope that all goes well. I'm sorry that these problems are affecting your quality of life. I hope that you're out celebrating success soon. __________________ Happy holidays!

10-12-2009, 03:46 PM	#10 (permalink)
deafskeptic Empress Skeptia Join Date: Sep 2006 Posts: 4,528	I wish you luck for next week and I hope the CI (if you qualify) will resolve the problems you've been having. I had severe recruitment before I got my CI and I can relate to the problems with tinnitus. __________________ Left ear implanted with Med-El on April 24 2007. Activated on May 9th.

10-12-2009, 03:53 PM	#11 (permalink)
Lissa Just me....Lissa Join Date: Dec 2007 Posts: 3,093 Blog Entries: 3	Good luck CBE on your journey to hearing again! I havent got any experiences with Meniere's but I have heard about it. Must be difficult with the vertigo!! __________________ Left Ear Nucleus Freedom Implanted-October 25th 2000 Activation-November 28th 2000

10-12-2009, 11:13 PM	#12 (permalink)
set2 Registered User Join Date: Oct 2006 Posts: 198	CBE, Good Luck with the CI evaluation. I don't have memieres but I have tinnitus. When my hearing reached the severe to profound range my tinnitus became worse and took the form of "musical hallucinations " during the day and at night the tinnitus was a variety of noises that kept me up several nights a week. My CI has helped with the tinnitus. I hope things work out well for you, what every you decide!

10-12-2009, 11:22 PM	#13 (permalink)
LDNanna Everything purple is mine Join Date: Feb 2009 Posts: 887	Good luck and take care, hope to see you soon and read good posts about your success... hugs!

10-12-2009, 11:29 PM	#14 (permalink)
rockin'robin Registered User Join Date: Apr 2007 Location: Jacksonville, Florida Posts: 2,774	Best of luck, Candy! Hang in there, it's always darkest before dawn. You can make it.

10-13-2009, 12:59 AM	#15 (permalink)
Phi4Sius Registered User Join Date: Jan 2009 Posts: 304	Just wanted to say good luck Candy. Wishing you the best! I'm actually interested in seeing the results of this myself, especially considering your right ear is the worst ear. I have the opposite as my left ear is the worst ear and I'm always interested in staying up to date on how CI has improved. __________________ --------------------- Check out my blog!! http://phi4sius.blogspot.com/

10-13-2009, 01:01 AM	#16 (permalink)
Jiro YOU DOMESTIC DISSENT! Join Date: Apr 2007 Location: The Sopranos State Posts: 22,918	good luck and hang in there! __________________ - Don't forget to buy Jiro's Special Edition Sunglasses for $19.95

10-13-2009, 01:58 AM	#17 (permalink)
deafdyke So NOT a Princess! Join Date: Mar 2003 Location: Trebekistan Posts: 7,491	I do remember hearing that one of the conditions that they were using CI offlabel for, was Menirere's. I remember hearing that it was very sucessful in a lot of cases.

10-13-2009, 05:42 AM	#18 (permalink)
Hear Again Each day is a gift. Join Date: Jan 2005 Location: Wisconsin Posts: 20,073 Blog Entries: 6	DD, That's what I've heard as well. In fact, I know several CI recipients who have Meniere's and are doing very well with their implants. __________________ Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 \| Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 \| Activated: 3/1/06) Deafblind/Postlingual

10-13-2009, 06:52 AM	#19 (permalink)
Mrs Bucket has retired from AllDeaf. Join Date: Oct 2008 Posts: 2,348	Hang in there honey! Wish you all the best and quick healing too as well. __________________ My new nieces/nephews are arriving soon!

10-13-2009, 03:19 PM	#20 (permalink)
*candybrowneyes* Tangled in the InterWebz Join Date: Oct 2008 Location: Iowa Posts: 583 Blog Entries: 1	Thanks again everyone. I don't know what I would do without this site sometimes. I mention CI or Menieres to my friends and family and not one of them understand a thing about either. Its nice I can come here and most of you all know what each is. I am crossing my fingers this works. the menieres is terrible I wouldnt wish it upon my worst enemy. Im not worried about being eligible as I see my ent quite a bit for the menieres, also a tinnitus team at the university. Ill keep you all updated. the last 2 days ive been up and down out of bed dealing with this crap... __________________ Love is the force that transforms and improves the soul of the world...

10-13-2009, 04:11 PM	#21 (permalink)
melissa Registered User Join Date: Sep 2006 Location: Cheshire, UK. Posts: 188	Aww sweetheart, lots of hugs. I hope your CI testing goes well.

10-13-2009, 06:09 PM	#22 (permalink)
cdmeggers CD Meggers Join Date: May 2005 Location: Wyoming Posts: 814	good luck with the process! __________________ My Ear Blog

10-13-2009, 06:15 PM	#23 (permalink)
dogmom Registered User Join Date: Feb 2009 Posts: 1,467	CBE

10-16-2009, 02:23 AM	#24 (permalink)
Giulia Registered User Join Date: Mar 2008 Location: Paris, France Posts: 255	Wish you a lot of luck ! I can't be into your shoes, but it seems terrible to have to decide such a surgery ! I took 3 months to decide for my BAHA, and BAHA needs only an hour surgery :-O __________________ Giulia, Single Sided Deaf pre-lingual, BAHA hearing aid. French young girl speaking Italian, English and Modern Greek. Trying to learn Modern Hebrew.

10-16-2009, 03:17 AM	#25 (permalink)
Phi4Sius Registered User Join Date: Jan 2009 Posts: 304	Giulia- It's not THAT terrible. As a person with a completely dead left ear since I was four years old, being able to have the option to hear again is actually a wonderful thing. The surgery and initial recovery period, IMO, is worth it considering it's an FDA approved device that has helped thousands. I'm considering my decision carefully, weighing all sorts of pros and cons including upcoming technology. I'm 99.9% certain I'll be going for a CI for my left ear within the next 6 months. I'm lucky that I didn't have Meniere's disease on the level that candy does. I can't imagine how much of a pain that is to endure. I have, however, had the SEVERE debilitating vertigo that I have grown out of (thank goodness). I'd be bedridden for 2 weeks at a time multiple times per year during elementary school because my vertigo was so horrible. __________________ --------------------- Check out my blog!! http://phi4sius.blogspot.com/

10-16-2009, 03:41 AM	#26 (permalink)
overthepond Registered User Join Date: Jun 2008 Location: Great Britain Posts: 1,276	Phi4ius is right about surgery. Having the sounds in my life over comes the concerns of having surgery. The surgery isn't that bad at all, think of it as equilivent to drinking 3 bottles of wine!!! (my surgeon's words!!)

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