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Old 09-18-2009, 05:43 PM   #211 (permalink)
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Rush Limbaugh Donates Half Million Dollars to HEI to help Speed up Cure for Hearing L

Rush Limbaugh Donates Half Million Dollars to HEI to help Speed up Cure for Hearing Loss
Kokonut Pundit: Rush Limbaugh Donates Half Million Dollars to HEI to help Speed up Cure for Hearing Loss
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Old 09-18-2009, 05:53 PM   #212 (permalink)
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I don't even know why Kokonut tagged it as "ASL," "Gallaudet" or "NTID." The donation to the HEI got nothing to do with Deaf culture.

Either way, Rush is a free-man. A late-deafened individual. He can do whatever he wants with his money since he will only see it from a post-lingual point of view.
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Old 09-18-2009, 09:05 PM   #213 (permalink)
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Well, he was examined by ABR and the diagnosis is 95db or worse. He gave no wave V response. Basically he is profoundly deaf in the frequency range covered by ABR (500-2500, more or less).
How high did the ABR test to? 90db HL maximum? He may have only 70db or even 50db loss at 250Hz. That would make a very big difference. I know a woman who has no hearing around 750Hz and above but her low frequency hearing is extremely good(10db at 250Hz and below, 50db at 500Hz) and she understands too much speech to qualify for CI. 60% of the speech information takes place at 500Hz and below. This is why I understand some speech with my audiogram.


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Do not ask me how much gained was programmed in the HAs initially. Their idea is a number of programming session to gradually go up with amplification, to avoid bad reactions from him and the refusal of HAs (pretty common in small children). At the time of that audiogram, besides the amplification set, he reacted at that levels of stimulation. From that time the amplification has been increased significantly and we are going to have another audiogram in two weeks. I'll let you know!
Taking it slow is fine as long as you reach the goal of as much amplification as he can tolerate up to the maximum. Id watch the SPL/MPO rather than too much gain. Will his new audiogram be both unaided and aided?

Quote:
The left ear is already more amplified than the right one. It is almost to the limit of the HA.
And does he still hear better in the right ear? His left ear may be dead or nearly dead. If you ever decide on CI, the left ear is the one to be implanted, not much residual hearing left to lose.

Quote:
I will share the new audiogram, which will represent closely his actual situation.
He actually is fitted with that specific model! He has Phonak Naida V UP jr.
They will try transposition once we will identify with certainty any cochlear dead zone... It is very difficult with so young children, they cannot explain how they hear...
Doesn't the psychoacoustic tuning curve(PTC) test give an objective measure? I know the TEN test is subjective but works on adults and older children.

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No, he does not speak yet, besides some very simple words, mostly onomatopeic. He is (we are) doing speech therapy three times per week and slowly showing some improvements in the sound perception at the moment...
And you have no idea of the time we devote to him at home..
If he can learn to speak clearly and understand 80% with reading lips and has no problem communicating with others, would he still need a CI?


Quote:
I know that. This is what push me towards considering CI. But I also know there are some people doing great with HAs and this cause my concerns...
Anyway, my impression (pure impression, no data) is that an average CI user can be comparable or better of the most of good-optimal HA users... You are a great performer, but you base your speech understanding on lipreading mostly.
Does it matter if one obtains speech by using their ears(listening) or using their eyes(lipreading) the information processed by the brain is the same. Both are vechles to input speech data to the brain. Both allow easy access to communication. Lipreading does have some limitations but we, the deaf are perfectly capable anyway! What are you expecting as an improvement over CI that the deaf aren't capable of? We are no worse than hearing people! Stem cells won't make me better, itll simply improve my hearing and allow my HAs to give me more access to sounds, consider it a convinence.


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I know a woman, completely deaf, she does not use HAs at all, she relies completely on lipreading and she speaks perfectly. You cannot tell she is deaf until you try to call her when she is not looking at you.
That's because the deaf are just as capable as hearing people. The only difference is we lack the ability to hear which we easily make up elsewhere.

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I mean, I know he can be perfectly happy with HAs, without, just signing, etc... I will love him anyway, he is my child and I think he is the most wonderful child in the world. I simply want to do my best for him. I am trying to have crystal clear idea before making any decision.
So why not wait for him to decide if he wants CI, stem cells, HAs or nothing? If you teach him how to speak clearly and read lips, it won't be "too late" to understand speech and speak. There are people born deaf who didn't hear much with HAs who got CI at 40 and understand speech as good as postlinguals with CI.

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It is probable that he will really have the possibility to get stem cells in the future. Maybe he will be adult, but after all in 20 year he will be 22, still very young and that technology will be out at thet time probably... Fortunately it will be his own decision at that time. I will support him anyway. I am ready to do everything for him, also switch completely myself to sign language, no problem.
Do you plan to raise him orally or sign only? My parents raised my orally only and I even chose not to learn sign language as I wanted to focus on speech as much as possible while I was young. None of my hearing friends know sign and most deaf people can read lips just fine. I won't wait 20 years for stem cells, try 5 years maximum then ill get stem cells at whatever stage of development they happen to be at. He may be old enough as a teen to decide not to wait anymore and get stem cells.
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Old 09-19-2009, 07:14 AM   #214 (permalink)
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Beike is trying to export to medical business a model which is typical of all the other productive industries: keeping the industrial secret, rather than publishing results and/or patents, and relying on heavy marketing campaign.
This is because they cannot attract patients with the fame of their medical tradition, experience of their MDs, etc., simply because they do not have a medical tradition and the best MDs are not working there.
Their real power is that they are a cheap country, for now...

I think this is a terribly wrong model, hope they do not export it...
"BeikeCell TM by the Chinese Research Institute of the North Branch development of neural stem cells, stem cell technology. 北科干细胞研究院同国内外重点高校科研机构如斯坦福大学、清华大学等联合长期从事干细胞研究开发,共建干细 胞实验中心。 Stem Cell Research Institute of the North Division with key university research institutes at home and abroad such as Stanford University, and Tsinghua University joint long been engaged in stem cell research and development, build a stem cell experiment center. BeikeCell TM为众多罹患传统疗法治疗无效的神经系统疑难疾病患者,提供有效和安全的干细胞治疗。 BeikeCell TM for many suffering from the traditional therapy but not cured diseases of the nervous system difficult to provide an effective and safe stem cell therapy.

BeikeCell TM是通过神经干细胞的移植,替换损伤和变性的神经细胞,从而改善患者感觉功能、运动功能、语言功能、肌张 力及高级智能活动等,其真正价值在于挽救患者的生命并改善生存质量。 BeikeCell TM through the transplantation of neural stem cells to replace injury and degeneration of nerve cells, thereby improving patient sensory function, motor function, language function, muscle tension and high intelligence activities, its real value lies in saving the lives of patients and improve the quality of life.

 现在,我们已经成为中国干细胞治疗小脑萎缩和视神经萎缩临床病例最多的医院之一。 Now, we have become the stem cells to treat cerebellar atrophy and optic nerve atrophy clinical cases, one of the largest hospitals. 美国国家有线电视台CNN、英国BBC电视台、中国知音杂志等知名媒体多次对中心进行专访报道。 National cable television station CNN, the British BBC television, magazines, and other famous Chinese Salon Media Center interview reported on many occasions".

source: Google Traductor
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Old 09-19-2009, 09:52 AM   #215 (permalink)
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$415,000,000 Considered for Research Work on Deafness - including

$415,000,000 Considered for Research Work on Deafness - including

Kokonut Pundit: $415,000,000 Considered for Research Work on Deafness - including
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Old 09-19-2009, 12:50 PM   #216 (permalink)
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$415,000,000 Considered for Research Work on Deafness - including

Kokonut Pundit: $415,000,000 Considered for Research Work on Deafness - including
His blog isn't any more credible than his posts on AD.
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Old 09-19-2009, 07:12 PM   #217 (permalink)
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for deafdude or whoever can answer:
in cases of deafness treated in the Chinese forum we've seen, I am not sure if the improvement is that regenerates the auditory nerve or the cochlea. It is the same as the cochlea to the auditory nerve. And always refer to the auditory nerve. I explain no. The nerve deafness ... Is the nerve? Then ... What if you have damaged the cochlea would not be treated?
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Old 09-19-2009, 08:34 PM   #218 (permalink)
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for deafdude or whoever can answer:
in cases of deafness treated in the Chinese forum we've seen, I am not sure if the improvement is that regenerates the auditory nerve or the cochlea. It is the same as the cochlea to the auditory nerve. And always refer to the auditory nerve. I explain no. The nerve deafness ... Is the nerve? Then ... What if you have damaged the cochlea would not be treated?
Stem cells can repair/replace/regenerate any cell in the body. This is why I am waiting for stem cells. Not only will it replace my missing hair cells in my ears, itll repair my auditory nerve. I suspect my auditory nerve isn't in great shape for the higher frequencies since it's been so long since I heard the highs. But im not worried if stem cells doesn't give me usable high frequency hearing. HearAgain hears better with 6 high frequency electrodes disabled. I can always try out transpositional HAs. Only 10% of speech information takes place above 2000Hz. Stem cells would also repair any other defects in my body besides improving my hearing. I could consider it a general health tuneup
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Old 09-19-2009, 11:01 PM   #219 (permalink)
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Stem cells can repair/replace/regenerate any cell in the body. This is why I am waiting for stem cells. Not only will it replace my missing hair cells in my ears, itll repair my auditory nerve. I suspect my auditory nerve isn't in great shape for the higher frequencies since it's been so long since I heard the highs. But im not worried if stem cells doesn't give me usable high frequency hearing. HearAgain hears better with 6 high frequency electrodes disabled. I can always try out transpositional HAs. Only 10% of speech information takes place above 2000Hz. Stem cells would also repair any other defects in my body besides improving my hearing. I could consider it a general health tuneup
The bolded is a scientifically innacurrate statement.
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Old 09-19-2009, 11:05 PM   #220 (permalink)
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The bolded is a scientifically innacurrate statement.
WHich ones can't they do?
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Old 09-19-2009, 11:16 PM   #221 (permalink)
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WHich ones can't they do?
Many. It is also dependent upon the source of the stem cell. Likewise, they have not been tested for replication and function in all areas, so it is completely unknown at this point what can be replicated, and to what degree it can be replicated.
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Old 09-19-2009, 11:19 PM   #222 (permalink)
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Many. It is also dependent upon the source of the stem cell. Likewise, they have not been tested for replication and function in all areas, so it is completely unknown at this point what can be replicated, and to what degree it can be replicated.
Bummer, I was specifically hoping for information on the auditory nerve, and the retina.
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Old 09-19-2009, 11:24 PM   #223 (permalink)
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Bummer, I was specifically hoping for information on the auditory nerve, and the retina.
The retina, at this point in the research, would be much easier to advance with stem cell research than the auditory nerve. The reason being that nerve damage is an extremely complicated condition...any nerve damage. Replication of tissues is not nearly as involved.

Didn't mean to bring you down, Bott!
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Old 09-19-2009, 11:35 PM   #224 (permalink)
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The retina, at this point in the research, would be much easier to advance with stem cell research than the auditory nerve. The reason being that nerve damage is an extremely complicated condition...any nerve damage. Replication of tissues is not nearly as involved.

Didn't mean to bring you down, Bott!
It's ok. I am at least following a special good for the retina diet that Pinky sent me.
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Old 09-19-2009, 11:41 PM   #225 (permalink)
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It's ok. I am at least following a special good for the retina diet that Pinky sent me.
That's great? Mind if I ask about the diet? Lots of beta-carotine?
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Old 09-20-2009, 03:41 AM   #226 (permalink)
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Stem cells can repair/replace/regenerate any cell in the body. This is why I am waiting for stem cells. Not only will it replace my missing hair cells in my ears, itll repair my auditory nerve. I suspect my auditory nerve isn't in great shape for the higher frequencies since it's been so long since I heard the highs. But im not worried if stem cells doesn't give me usable high frequency hearing. HearAgain hears better with 6 high frequency electrodes disabled. I can always try out transpositional HAs. Only 10% of speech information takes place above 2000Hz. Stem cells would also repair any other defects in my body besides improving my hearing. I could consider it a general health tuneup
Anyway should be clarified.
Usually sensorineural hearing loss in most cases is because they have damaged or absent hair cells, ie inside the cochlea. Hearing loss is the cochlear nerve, and rarely is the auditory nerve that runs from the cochlea to the brain. If the auditory nerve is retrocochlear hearing loss is very rare. So I tend to think that the majority, a vast majority of cases of sensorineural hearing loss is damage to the hair cells in the cochlea. For example, I have sensorineural hearing loss, I did not have the nerve auditory evoked potential, what I did last week and showed that the nerve is well, that is the nerve that runs from the cochlea to the brain, the problem is in the cochlea in the hair cells. Then should be able to distinguish well what about when it comes to loss or nerve deafness sensorineural ...
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Old 09-20-2009, 03:48 AM   #227 (permalink)
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“Nerve Deafness"

"About “Nerve Deafness"

Sensorineural hearing loss, also known as 'nerve deafness', typically occurs when part of the inner ear, the hair cells, are damaged or destroyed. Sensorineural hearing loss may have a variety of causes, such as heredity, aging, disease, infection, or loud noise.

Despite the term “nerve deafness,” the hearing nerve trunk is rarely damaged. Instead, damage most often occurs in the hair cells located in the cochlea, which serve to send information, in the form of electrical signals, to the hearing nerve. When hair cells are damaged, they are unable to send information to the hearing nerve and the person experiences hearing loss.

The degree of hearing loss depends on the number of hair cells that are damaged. If a significant number of hair cells are damaged, a person will experience severe or profound hearing loss, and hearing aids will not be able to help. In cases of severe-to-profound sensorineural hearing loss a cochlear implant may be medically indicated".
source: http://cochlearimplants.med.miami.ed...20Deafness.asp
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Old 09-20-2009, 08:24 AM   #228 (permalink)
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Anyway should be clarified.
Usually sensorineural hearing loss in most cases is because they have damaged or absent hair cells, ie inside the cochlea. Hearing loss is the cochlear nerve, and rarely is the auditory nerve that runs from the cochlea to the brain. If the auditory nerve is retrocochlear hearing loss is very rare. So I tend to think that the majority, a vast majority of cases of sensorineural hearing loss is damage to the hair cells in the cochlea. For example, I have sensorineural hearing loss, I did not have the nerve auditory evoked potential, what I did last week and showed that the nerve is well, that is the nerve that runs from the cochlea to the brain, the problem is in the cochlea in the hair cells. Then should be able to distinguish well what about when it comes to loss or nerve deafness sensorineural ...
Deafness resulting from damage to the 8th cranial nerve (the auditory nerve) is not rare at all. Sensorineural loss by virtue of it's very name, involves the auditory nerve. Sensor=sensory=nerve and neural=brain.
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Old 09-20-2009, 09:00 AM   #229 (permalink)
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Deafness resulting from damage to the 8th cranial nerve (the auditory nerve) is not rare at all. Sensorineural loss by virtue of it's very name, involves the auditory nerve. Sensor=sensory=nerve and neural=brain.
This is not entirely correct. Sensorineural hearing losses are an ensemble of mulfunctions, involving the sensory structure (hairy cells for the most part, all the structure of the cochlea more generally) and/or the neural transmission of the signal to the brain. Actually the acoustic nerve transports the acoustic stimulation kept by the cochlear structures to the brain, it is not an actual part of the brain.
For the rest I agree, damage of the nerve is not so rare.
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Old 09-20-2009, 09:42 AM   #230 (permalink)
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thanks for the information.
I still have doubt, there are pathologies of the inner ear. It is true that sensorineural hearing loss can affect the hair cells and could also be the auditory nerve, but there are a variety of information. For example, if affected the auditory nerve is retrocochlear hearing loss, depending on the internet that is usually less frequent, the most common is loss of hair cells in the cochlea. If for example you see that were affected by the rather limited retrocochlear hearing loss of cochlear implant operation, because what the cochlear implant is jumping and connect directly to the nerve. If you have affected the auditory nerve may well limit the functioning of the cochlear implant, which makes me think that the majority of auditory nerve implants should be able. That is, an exclusion criterion, I have read on the Internet, among other criteria, is the auditory nerve injury. Are doubts I have ...
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Old 09-20-2009, 10:59 AM   #231 (permalink)
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"Hair cells from embryonic stem cells to cure deafness
文章来源:中国干细胞信息网点击数: Source: China Stem Cell Information Network hit number: 55 更新时间:2009-5-24 21:56:46 Update Time :2009-5-24 21:56:46
毛细胞损伤是造成耳聋的原因之一。 Deafness caused by hair cell injury is one of the reasons. 一般来说,医生会建议患者采用植入人造耳蜗的方法来治疗。 In general, doctors will recommend patients have cochlear implant artificial methods to treat. 日前,美国的科学家们为这些患者找到了另外的治疗选择方案——通过胚胎干细胞来培育毛细胞。 Recently, U.S. scientists have found for these patients additional treatment options - through the cultivation of embryonic stem cells to hair cells. 这一新的科学进展为某些种类的耳聋患者进入有声世界带来了希望。 This new scientific advances for patients with certain types of deafness into the sound of the world hope.
毛细胞是听觉的感受器,与内耳中如漩涡般盘曲的管状器官—— 耳蜗中的神经相连。 Hair cells are auditory receptors, and the inner ear, such as spiral-like twisting of the tube-shaped organ - the nerves connected to the cochlea. 声音从位于外耳道最里端的鼓膜传到耳蜗,引起充斥于其中的淋巴液的振动,毛细胞再把这种振动转化为电信号, 通过听觉神经传达给大脑。 Voice from the inside in the ear canal side of the tympanic membrane reached the cochlea, causing flooding of the lymph in which the vibration of hair cells then the vibration into an electrical signal transmitted to the brain through the auditory nerve. 若毛细胞受损,便无法将冲动传至中枢,就会出现听力障碍。 If the hair cell damage, it can not be transmitted to the central impulse, there will be hearing loss. 经过筛选,可用于耳蜗修复的干细胞主要有以下几种:胚胎干细胞(embryo stem cells),造血干细胞(haematopoietic stem cells,HSCs),神经干细胞(neural stem cells,NSCs),骨髓间充质干细胞(mesenchymal stem cells,MSCs),多能成年祖细胞(multipotent adult progenitor cells,MAPCs)和内耳干细胞(inner ear stem cells)。 After screening, can be used for cochlear repair stem cells mainly in the following categories: embryonic stem cells (embryo stem cells), hematopoietic stem cells (haematopoietic stem cells, HSCs), neural stem cells (neural stem cells, NSCs), bone marrow-derived mesenchymal stem cells (mesenchymal stem cells, MSCs), multipotent adult progenitor cells (multipotent adult progenitor cells, MAPCs) and inner ear stem cells (inner ear stem cells).
文章录入:胡医生 责任编辑:daifumd.hu Article entry: Dr. Hu Editor: daifumd.hu"
source: Google Traductor
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Old 09-20-2009, 11:21 AM   #232 (permalink)
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Is there a reason you are posting in Chinese? It renders the information useless.
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Old 09-20-2009, 12:20 PM   #233 (permalink)
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Is there a reason you are posting in Chinese? It renders the information useless.
appears in Chinese characters with the google translator, I do not know what goes well, I guess, to contrast with the translation. The translated message is understood, a miracle of google.
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Old 09-20-2009, 12:44 PM   #234 (permalink)
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Google Translator doesn't translate grammar.

Without proper grammar, information is useless.
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Old 09-20-2009, 01:35 PM   #235 (permalink)
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That's great? Mind if I ask about the diet? Lots of beta-carotine?
SOrry I missed this last night. It is simple to follow as separated basically into good and bad.This is not all you eat. It is just things you should try to eat lot and things you should avoid.

Good: Walnuts, Flaxseed, Olive oil, Canola oil, (these have Omega 3) Leafy green vegetables, Fish (especiallly oily fish).

Bad: Many eggs, Mayonaisse, Cheese, Beef, Pork,Lamb, Safflower oil, Sunflower oil, Corn oil , Soy oil. ( Those oils have more Omega 6.)
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Old 09-20-2009, 03:58 PM   #236 (permalink)
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I don't know why you all have to be sooo obsessed in getting the stem cells because there is a risk to have stem cells to put into the nerves. It might be okay for late deafend but not for the deaf who was born that way. Why can we just have our body the way we have always been natural as we are born this way? If the late deafend want to hear again and take the risk to have stem cells, then that is their decision. I have already read all of the post but not some of the posts as I don't care for chinese google. Remember Michael Fox want to have stem cells to remove his nervous systems so that he can be normal again. He was not born that way. He just happen to have the disease just like Katherine Hepburn. He was turn down and not get stem cells. The society does not like the idea of using the babies for a stem cells. Anyway, anyone who want to have stem cells to cure deafness can dream on and will not happen for a very long time or will never have stem cells. Just get use to being deaf for the rest of your life. There is nothing wrong with being deaf. Okay?
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Old 09-20-2009, 04:07 PM   #237 (permalink)
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SOrry I missed this last night. It is simple to follow as separated basically into good and bad.This is not all you eat. It is just things you should try to eat lot and things you should avoid.

Good: Walnuts, Flaxseed, Olive oil, Canola oil, (these have Omega 3) Leafy green vegetables, Fish (especiallly oily fish).

Bad: Many eggs, Mayonaisse, Cheese, Beef, Pork,Lamb, Safflower oil, Sunflower oil, Corn oil , Soy oil. ( Those oils have more Omega 6.)
Ahhh....thanks! I think I will try to incorporate this into my diet. I have had severe astigmatism since I was in 2nd grade, then also developed some near sightedness as a teen. Now, with age, some far sightedness, as well. Given that, I am concerned with keeping my eyes as healthy as possible as I age. My lenses already have 3 progressive corrections...I don't think they can fit many more in there, lol!

Giving up the cheese will be the hardest for me, but on the good list, I already consume a lot of those. I only eat red meat once a month or less, pork maybe twice a month. Canola and olive oil are all I use for cooking and salad dressings.
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Old 09-20-2009, 06:17 PM   #238 (permalink)
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Ahhh....thanks! I think I will try to incorporate this into my diet. I have had severe astigmatism since I was in 2nd grade, then also developed some near sightedness as a teen. Now, with age, some far sightedness, as well. Given that, I am concerned with keeping my eyes as healthy as possible as I age. My lenses already have 3 progressive corrections...I don't think they can fit many more in there, lol!

Giving up the cheese will be the hardest for me, but on the good list, I already consume a lot of those. I only eat red meat once a month or less, pork maybe twice a month. Canola and olive oil are all I use for cooking and salad dressings.
Mmm. I'll have to keep this info in mind, Botts. I'm very near sighted though I don't have any eye disease atm. I'm trying to cut down on red meat. I tend to go overboard on walnuts. Feta and Parmesean cheese are the only cheese that I have. I have feta nearly everyday. Salmon is my favorite fish. I'm thinking I'll have fresh tuna Tuesday. I can't stand the canned kind; I feel like I'm eating cat food if I eat the canned kind.
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Old 09-21-2009, 10:40 AM   #239 (permalink)
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When stem cells can cure deafness, ah?

When stem cells can cure deafness, ah?

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Old 09-21-2009, 11:41 AM   #240 (permalink)
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I don't know why you all have to be sooo obsessed in getting the stem cells because there is a risk to have stem cells to put into the nerves. It might be okay for late deafend but not for the deaf who was born that way. Why can we just have our body the way we have always been natural as we are born this way? If the late deafend want to hear again and take the risk to have stem cells, then that is their decision. I have already read all of the post but not some of the posts as I don't care for chinese google. Remember Michael Fox want to have stem cells to remove his nervous systems so that he can be normal again. He was not born that way. He just happen to have the disease just like Katherine Hepburn. He was turn down and not get stem cells. The society does not like the idea of using the babies for a stem cells. Anyway, anyone who want to have stem cells to cure deafness can dream on and will not happen for a very long time or will never have stem cells. Just get use to being deaf for the rest of your life. There is nothing wrong with being deaf. Okay?
Nobody is saying that anything is wrong with being deaf. However, some of us have a desire to change things for ourselves. Each of us are entitled to feel the way we do. Same as for all the people who get CI's - they wanted to improve things for themselves and I'm glad for them. Why should we have to "just get used to being deaf for the rest of your life" if we choose not to?

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