ref74

Oh, I see...
Thanks for your reply.
The point is that it is pretty common to get opposite answers to the samequestion. This is upsetting and make vary difficult to go for a rational choice...

Deafness

__________________
This advertising will not be shown in this way to registered members.
Register your free account today and become a member on AllDeaf.com

ref74

Well, he was examined by ABR and the diagnosis is 95db or worse. He gave no wave V response. Basically he is profoundly deaf in the frequency range covered by ABR (500-2500, more or less).



Do not ask me how much gained was programmed in the HAs initially. Their idea is a number of programming session to gradually go up withamplification, to avoid bad reactions from him and the refusal of HAs (pretty common in small children). At the time of that audiogram, besides the amplification set, he reacted at that levels of stimulation. From that time the amplification has been increased significantly and we are going to have another audiogram in two weeks. I'll let you know!


The left ear is already more amplified than the right one. It is almost to the limit of the HA.



I will share the new audiogram, which will represent closely his actual situation.
He actually is fitted with that specific model! He has Phonak Naida V UP jr.
They will try transposition once we will identify with certainty any cochlear dead zone... It is very difficult with so young children, they cannot explain how they hear...


No, he does not speak yet, besides some very simple words, mostly onomatopeic. He is (we are) doing speech therapy three times per week and slowly showing some improvements in the sound perception at the moment...
And you have no idea of the time we devote to him at home..


I know that. This is what push me towards considering CI. But I also know there are some people doing great with HAs and this cause my concerns...
Anyway, my impression (pure impression, no data) is that an average CI user can be comparable or better of the most of good-optimal HA users... You are a great performer, but you base your speech understanding on lipreading mostly.


I know a woman, completely deaf, she does not use HAs at all, she relies completely on lipreading and she speaks perfectly. You cannot tell she is deaf until you try to call her when she is not looking at you.
I mean, I know he can be perfectly happy with HAs, without, just signing, etc... I will love hime anyway, he is my child and I think he is the most wonderful child in the world. I simply want to do my best for him. I am trying to have crystal clear idea before making any decision.



It is probable that he will really have the possibility to get stem cells in the future. Maybe he will be adult, but after all in 20 year he will be 22, still very young and that technology will be out at thet time probably... Fortunately it will be his own decision at that time. I will support him anyway. I am ready to do everything for him, also switch completely myself to sign language, no problem.

neuro

The Creighton researchers will use the grant money for research on stem cells from mice. The research is aimed at developing strategies to treat deafness.
source: http://www.omaha.com/article/20090728/NEWS01/707289950

faire_jour

Why are they still testing on mice if stem cells have proved safe and effective in people worldwide???

neuro

perhaps that the scientific or technological advances are not the same as what countries. I think that China is moving more, I have read that in China is an Asian giant forward ... For example today is a world leader Beike that even scientists captured the Western world, as we recently read, scientists trained in American universities even. In any case the information is daily, we must caution that although it is actually implemented in human beings we must be cautious. It's a daily effort.

faire_jour

OR people who believe that it is being done on human everyday are WRONG!

jillio

Returned? Then it must have been normal at some point. Limits the possibility of candidates, doesn't it?

neuro

It is, as the case of nerve deafness. We know that many deaf poslocutivos ie many deaf people have been normal at some point in their lives. For example, deafness from ototoxic drugs, such as lost hearing after two years, but before two years have been normal. As to limitation, it Beike many cases of deafness seems to me as the forums in Chinese ... Have to see.

jillio

It excludes an entire population of deaf.

neuro

I guess the delay is also influenced by the blocking of Bush stem cell research. Thus China, for example Beike is a world leader in stem cells. According to economic data.

neuro

no, I do not think that I read on a web forum Beike it has also tried to deaf from birth ... failing to confirm. I believe that stem cells covering the whole deaf population, if not mistaken.

souggy

No. That is not what she meant at all.

And you guys really need to separate theoretical and practical in your heads. Also medical field from business field.

__________________
Warning! Contains skewed comments & inane ramblings. May cause spontaneous human combustion

jillio

Contractictory. Your link specifies, "returned to normal". That implies that the hearing must have been "normal" at some point in time. That restricts to the adventitiously deafened.

jillio

I suppose it is difficult to do as there is no practical side as of yet. It is all theoretical. But there doesn't seem to be an understanding of the concept that just because it looks good on paper.....

neuro

to see, this case is a case of deafness, there are many kinds of deafness, and this is one of the cases, and each world is deaf and as noted Beike stem cells act according to what people. Not all deaf people are equal, depends on many factors, determinants, etc ...

jillio

Which is exactly why you need to stop promoting stem cells as a wide spread treatment for all deafness, and resrtict yourself to proven results on specific types of deafness and the many extraneous variables that must be considered.

souggy

Well... even loyal followers of any political ideologies have a hard time separating practical from theoretical. So not surprising.

But they really need to separate the medical aspect from the business aspect, because everything is basically anecdotes of what some biotech company says.

__________________
Warning! Contains skewed comments & inane ramblings. May cause spontaneous human combustion

jillio

Agreed. What we are seeing submitted as "evidence" isn't even theoretical, if we are to be exact. It actually is a hard driven advertising campaign.

neuro

"Are the research standards in China at the same levels as in the west?

The fact is under everybody’s eyes: the “asian giant” is running at an impressive rhythm, in all fields. Shenzhen Beike Biotechnologies, its hospitals and its laboratories are a bright example of such a technologic renaissance. Not many are aware that China has the most researchers with PhDs in the world. It’s because of the affordability of hiring educated researchers in China, that many of the leading five hundred companies -including Microsoft- have set up large research facilities in China.

But stick to medical matters, and let’s speak about those who have been studying stem cells since a long time: they have a lot of experience in bringing lab research into hospitals. What abroad still is “mere theory”, in China it’s something absolutely “practical”, i.e. clinical applications that are already helping thousands of people. We daresay that as far as stem cells are concerned, China has long time reached a level that West -for several reasons- is still far from achieving".

source: Beike Europe - FAQ

jillio

The answer to your first question is decidedly, "No." The standards are not the same, nor are the ethics guiding those standards the same. Therefore, reporting of any results must be viewed in light of that.

souggy

I never thought I will say this... but neuro...

I think you might be one of those folks that need to read:

And I wouldn't recommend this to anyone else... However given how you get easily hyped up, and write the way you do-- I think you might be one of those people that would enjoy that book.

__________________
Warning! Contains skewed comments & inane ramblings. May cause spontaneous human combustion

neuro

Do you know what results? Do you know of cases of deafness treated, informed ...? You're talking about a case but not the others do not know if you know and you care

neuro

then ... "Obama is giving a green light unethical stem cell research? "Obama is unethical?

jillio

jillio

I don't know what results are valid coming out of China, and neither do you. You don't have the published research papers to evaluate such. Neither do I. They are keeping them under wraps, and only reporting that which is biased toward the affirmative.

jillio

You, quite obviously, are again quoting a biased, non-scientific scource. But I would expect nothing less. You might want to educate yourself on research guidelines and medical ethics prior to making unsubstantiated claims.

deafdyke

Exactly!!!! I gotta say.....I think that hair cell regeneneration is going to be benificial for people who fit a specific canidacy profile.....meaning late deafened people....It may benifit some people who were dhh as kids (eg postlingal or kids who lost their hearing around one or two)

neuro

deafdude or whoever wants to answer:

I have read ways to treat hearing loss with stem cells, I read in the forum beikecell that the method for the specific case that relates cell transplant is done, my question is, how it has nothing to do with injections? I mean, I understand that cell transplantation is to achieve in one place and move to another site. That is, move it to the cochlea or auditory nerve.
In the forum said: "we have stem cell transplantation autograft and allograft, according to the specific circumstances of the patient to develop a personalized transplantation program".
source: Google Traductor

ref74

Beike is trying to export to medical business a model which is typical of all the other productive industries: keeping the industrial secret, rather than publishing results and/or patents, and relying on heavy marketing campaign.
This is because they cannot attract patients with the fame of their medical tradition, experience of their MDs, etc., simply because they do not have a medical tradition and the best MDs are not working there.
Their real power is that they are a cheap country, for now...

I think this is a terribly wrong model, hope they do not export it...

jillio

Agreed. It is a model which creates increased risk for patients.