deafdude1

Does anyone know why Neuro got banned?
I am going to miss his news about stem cells. If you are reading this, please keep posting the news in my blog, it's welcome anyday!
I will keep most of the stem cell discussion to this thread so other threads can talk about HAs and CI.

To answer dannysydney from another thread about his stem cell questions:

Looking at objective tests that measure CI performance, those with CI hear comparable to those with HAs and a severe hearing loss. CI is not a cure and it will not give you anywhere near normal hearing as I keep reminding people. You need to have realistic expectations regarding CI.

You aren't a CI candidate with your level of hearing loss. It's your choice if stem cells is worth the cost. If my hearing was as good as your left ear, I probably won't pay the tens of thousands for stem cells as ill be getting great benefits from HAs already. Right now I get only partial benefit from HAs and I don't think im hearing loud/clear enough. I expect a very huge improvement from stem cells. I probably won't get stem cells a 2nd time as additional improvements will be small after the first time as my hearing won't be bad after the first time I get stem cells. I simply can't afford the luxury of repeat stem cell treatments.

From animal studies and stem cells, it was shown that stem cells does not cure deafness but does offer a partial improvement. The more deaf researchers made the animals, the less they improved/hear after stem cells. So this is why id like to keep my residual hearing. If I got a CI, I won't have high hopes of stem cells being able to restore enough hearing to outperform CI in the implanted ear for a very long time. Id be starting from 0 with no residual hearing.

Even those with no residual hearing, there's a debate whether a "virgin" ear will get more improvement than an ear that's already been implanted. I would seriously consider a CI if I suddenly lost all my hearing in both ears and I couldn't get stem cells for a few years. If only one of my ear died, id live with 1 HA for a few years till I can get stem cells. It's very important that I give the best chance of the most improvement with stem cells as that will be my new level of hearing for the rest of my life. I am happy to wait a few years for stem cells in exchange for better hearing for life above and beyond what a CI can offer. I will say that those who want a CI now(including Phi4sius), that's your choice. I have made my choice and speak only for myself.

On another note,

Why are so many people against stem cells for deafness? Will stem cells become accepted in due time like CI is today? I would like to understand why I am one of the few who is so excited for stem cells. I see it as a cheaper, safer, nonsurgical alternative to CI that is likley to give better hearing with HAs than what CI can offer. I know that CI average is 30db. With stem cells, I can get my HL from 110db PTA down to 80db PTA and with my HAs offering 70db gain, I could be aided to 10db!

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stemcellsdeaf

"6) Are you or can you treat sensory neural hearing loss with adult autologous stem cells? If not, do you expect to in the next year? Do you know of any doctors treating hearing loss at this point, if Nepsis does not?

Actually, we have two patients with sensory neural hearing loss who will be undergoing stem cell treatment in the next two months. The approach is unique and proprietary, so I can’t get into specifics at this time."

Ask The Doctor with Dr Ramirez and Dr Payne
source: Installment 23 - Ask The Doctor with Dr Ramirez and Dr Payne - Stem Cell Pioneers

deafdude1

Thanks for the news and welcome to alldeaf!

Stem cell Treatment

Studies are also underway to learn about stem cell treatments to address blindness by introducing retinal and corneal stem cells and deafness by re-growing the cochlear hair cells which allow us to process sound.

From what I read, umbilical cord blood stem cells can treat deafness. Ive also read that several other types of stem cells are being researched on treating deafness. This is great because it presents more options and better chance of success!

I hope the news eventually comes out regarding those two patients getting stem cell treatment in the next two months. Before, after audiograms, speech scores and all other information will encourage me and others to seek treatment next in line after those pioneers. The wait might not be long at all depending how much progress is made and how much information is disclosed of the pioneer's stem cell results. A trip to Mexico across the border from San Diego, CA would be far easier, faster, cheaper than a trip overseas.

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stemcellsdeaf

RNL BIO Rescues a College Student from Autoimmune Hearing Loss
- RNL BIO's success of stem cell treatment
RNL BIO Rescues a College Student from Autoimmune Hearing Loss | SYS-CON MEDIA

or
RNL BIO Rescues a College Student from Autoimmune Hearing Loss

webexplorer

About the RNL BIO story, I am thinking that there is a missing in the article. It does not mention that whether the hair-cells have stopped growing or not because it said that the implant injection was in October 2009. That's last month. It's not that we don't care, but we need to make sure that the hair-cells remain the same as long as it is a good sign.

john57

The article states:

Chloe's hearing was tested two months after the procedure was completed on October 16, 2009. The results were spectacular

This timeline does not make any sense to me.

deafdude1

2 months after the procedure first begun, she experienced a huge improvement. October 16, 2009 is the day Chloe's hearing was tested. Id like to see "before" and "after" audiograms. Im guessing the improvement was on the order of 40db which is very significent. This would improve a 90db loss to 50db which would be aided great with HAs.

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faire_jour

I find it odd that Deafdude is the only one obsessed with stem cells, but magically there are now 2 more, new posters posting about it. It think it needs investigated.

Jiro

why don't you help find more info for him then? I think most of us are contented with our deafness & ASL so....

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faire_jour

I mean investigation in to WHO the other people are. I think someone is making extra accounts.....

Jiro

my bad! where's the damn "sorry" ASL smiley?

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faire_jour

How do you know that these new hair cells will function as "normal" hearing cells do? What if they are as damaged or broken as the ones you were born with? What if they work for awhile and then die off? We don`t know what will happen, because there has been no testing and no follow up.

Plus, Deafdude, why do you think your brain will be able to handle this, new, sudden hearing? You have been profoundly deaf since birth, your brain has never heard these things. I think that would make you a very bad candidate!

Pinky

He have obsessive compulsive disorder. I agree with you. It's odd.

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souggy

He doesn't have OCD... I can tell you that much.

Mind you there are people out there that want stem cells and do blog about it, but they tend to be post-lingual deaf.

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Pinky

Then why he always obsessed with Stem Cell???? Nobody are interest to get stem cell to cure for deafness.

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webexplorer

Oh sure, I am interested to know about the stem cells. I'm sure that many deafies want one, too. It is really impossible for me to read or even understand everything because some labs ban one research and start another idea to research with different ways. That would make me feel suck that I read it for nothing. I prefer to wait for the real ones which is really working. So far I know of one research that works successful. However, a drug was not able to stop overgrown hair-cells in the cochlear. That drug killed all of the new hair-cells, and the scientists can't figure it out why. That's about it.

Suppose, a lab company announced an official news that they found a final cure. It will not be ready that fast because they will have to wait for FDA's approval with a huge fee for the FDA's process. I would say that the fee would cost one million dollars or maybe one billion dollars. (I don't know the exact but in a general for the fee.)

Then, they send the paperwork to a patent company in D.C. to be patented that would take another couple of years. That would be probably another 50 millions dollars (?). Actually, FDA really does not know how to make it work so the FDA rather to get money first and leave the paperwork on the desk for several months or even a few years.

For the patent issue, many drug corporations go after the DNAs for their own patents. For example, one DNA's G that goes to A corporation, then another DNA's G that goes to B corporation. i.e. A corporation, B corporation, C corporation, D, E, F...

Many pieces of DNA have to be divided in each corporation which they think that they own it for the drug business. It's terrible because it takes so long time to make the final work for their patent. That's what they want. The Patent Company is happy about that so it makes more money for each corporation. I think that it is so strange and, of course, greedy!

webexplorer

Some people, movie stars, some government people go oversea to get any kind of cure because the foreign countries are already caught up their own work, and they do not involve with the U.S. FDA and U.S. Patent Company.

U.S. Government aware that some countries' labs are so successful, and it allows some labs to do the work in the U.S.

A well-known famous basketball player had AIDS a couple of years ago. He secretly went to another country to get the stem-cell cure. Now, his health came out perfect because it's so simple that he is wealthy.

faire_jour

shel90

The same question can be asked...why are some people obessed with CIs? Some people are just interested in Stem Cells, some are interested in CIs and some arent interested in hearing at all.

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souggy

There are plenty of people that are looking to stem cells to restore their hearing. Like I said, most of them tend to be post-lingual deaf or hard-of-hearing.

Just because he is hyper-focused on one topic, it doesn't means he has OCD. You will know OCD when you see it. Just because someone appear to be obsessive, it doesn't means it is OCD.

Don't like stem cells? Don't post on this thread. Only reason why I bother replying is because it's one-sided with no counterpoint or conceding information.-- good research usually acknowledge the other side of the coin.

I have nothing against the people that are looking forward to stem cell advancements, however I am sceptical of the sources.

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Bottesini

This is almost a good comedy routine

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It's a joke Nathan!

Bottesini

Oh yes he does. Diagnosed. And I believe he will tell you all about it if you ask him.

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It's a joke Nathan!

webexplorer

It seems a bs. But, that's what they're doing.

Fortunately, there are a few hospitals in our country that offer stem-cells implants for their heart which is really a good news.

Bottesini

Why say BS? Lots of celebrity do go to other countries for procedures not available here.

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It's a joke Nathan!

Bottesini

I believe they have already used stem cells here for leukemia also.

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It's a joke Nathan!

Jiro

and medications too. Look at Michael Jackson. He got some medications that were not FDA-approved. Angelina Jolie went oversea to adopt kids.

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kokonut

It's a topic that some people like to read up on and discuss since the stem cells field is a rapidly growing field that will have many applications. This one here happens to be on nerve deafness. And certainly there are caveats here and things are to be taken with a grain of salt until we see more firmer results that can be verified and repeated.

omegaman

I find stem cell stuff interesting, and I have been quietly following this thread, too. I don't have high hopes that a break through is around the corner, but I think it is great to know that stem cell research is progressing.

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deafdude1

The new hair cells actually aren't as good as "normal" but they are certainly better than no hair cells. I am missing all my OHC and some of my IHC in the lows and nearly all my IHC in the mids and highs. The pioneers are going ahead today with stem cells. We will have plenty of follow up news on their progress of stem cells.

I find it ironic you think ill do better with CI, yet you think stem cells won't work for me. CI has worked for many who were born deaf, stem cells won't be any different as far as the brain getting used to the new sounds. Besides I heard most sounds and some speech as I was fitted at 4 months old with the best analog HAs with the gains maxed out. I still had some high frequency hearing as well. I have prior auditory memory of most sounds and some speech. I give it a few months before I adjust to the new sounds.

My family and friends(all hearing) fully support stem cells for me and if they lost their hearing, they would get stem cells themselves asap to give at least some of the hearing back that they lost. Right now, most culturally Deaf are against stem cells. Itll take time for them to accept stem cells just like it did for CI. Many of the Deaf who were against CI are no longer against CI or they are even pro CI. Some of them have gotten CI themselves.

It's true that it's unusual for a prelingually deaf to be interested in stem cells. But then, most prelingually deaf are involved in deaf culture, relay on sign language, don't consider sound/speech to be important and are proud to be Deaf. They don't need/want a fix, not even CI. I respect their choice and they should respect our choice.

Stem cells will be very popular for deaf babies born to hearing parents, late deafened postlinguals and prelingual deaf who have never been involved in deaf culture, don't know any ASL and are 100% oral. We live in the hearing world and improving our hearing would make it easier for us to interact in the hearing world. Cochlear implants have been very popular for those group of people and I expect stem cells to follow.

Exactly. Life is all about choices. You aren't interested in hearing at all and that's your choice. I am interested in stem cells for many good reasons which ive mentioned in my blog and in other posts.

Stem cells will be able to improve or even cure most diseases/ailments/disabilities. I am very excited for stem cells in general as this means a very long, healthy life for most of us. Having my hearing improved is just one of many things stem cells can do for me, my family and friends.

If you define a breakthru as stem cells being able to restore hearing to 25db, I predict this will take 15 years. Stem cells today can give a 20db improvement. When I get stem cells a few years from now, I should get around a 30db improvement. Ill be moderately-severely HOH. Ill be getting additional stem cell treatments as stem cell technology improves.

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faire_jour

He never had AIDS, he was HIV positive. There is a huge difference. Plus, he is still positive.