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#31 (permalink) |
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Each day is a gift.
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I would never be happy hearing at only 50db aided, id be missing out on more than 75% of the environmental sounds.
How do you figure that? When I had 60-70 dB aided hearing, I was able to hear alot of environmental sounds. By the way, if you are able to differentiate between the word "snake" and "snakes" with a profound loss, you are doing considerably better than I was when I had a moderately-severe loss. At that time, I couldn't tell the difference between singular words and plurals because they sounded the same. Even now that I have CIs, it depends on who is talking (i.e. male vs. female voice) whether or not I can make this differentiation.
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Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 | Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 | Activated: 3/1/06) Deafblind/Postlingual |
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#32 (permalink) |
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Each day is a gift.
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I am not against CI, but if you check my blog and if my math is correct, I have too much hearing to benefit from today's CI technology.
If you can understand 80% of speech in a noisy environment, then yes, you do have too much hearing to benefit from a CI.
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Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 | Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 | Activated: 3/1/06) Deafblind/Postlingual |
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#37 (permalink) |
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Each day is a gift.
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His unaided audiogram doesn't matter. If he understands 80% of speech in a noisy environment with hearing aids, he is not a CI candidate.
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Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 | Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 | Activated: 3/1/06) Deafblind/Postlingual |
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#38 (permalink) |
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Registered User
Join Date: Apr 2008
Posts: 2,698
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I understand. But on his blog he is talking about how people with his same hearing loss should not be getting CI's. I just wanted to say that another person with his exactly loss, which is clearly a profound loss, who does not hear 80% of speech in noise (which let's face it, I doubt any of them could), could be a candidate.
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#39 (permalink) | |
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Each day is a gift.
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Quote:
for clarifying. ![]() I don't want to read deafdude's blog because I'm afraid that it will upset me.
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Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 | Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 | Activated: 3/1/06) Deafblind/Postlingual |
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#40 (permalink) | |
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Cyborg Queen
Join Date: Sep 2007
Location: Las Vegas!
Posts: 880
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Quote:
I grew up in a TC environment...however, during that time, CI's were non-existent. It wasn't until I reached HS that there was very few CI users. Now, there's a lot. I visited that school a little while ago, and I met some of the students...one had CI, the other had HA. They never signed. I thought that really ticked me off because I remember we used to sign all the time. However, as for "speech" issues...you're pretty much right on the money. Out of 10 students in my class, only 3 students could speak very well, 4 can speak okay, but not that great. The last 3 do not take speech classes as their parents don't want them to or the child was more profoundly deaf. (keep in mind that all of this was PRE-CI hype, PRE-digital HA hype).
__________________
Missing my beloved cat, Blackjack, who died from battling with FIP. April 2008 - Feb. 5th, 2009. LEFT: Implanted: 1/10/08 Activated: 2/1/08 Freedom RIGHT: Implanted: 5/15/08 Activated: 6/13/08 Freedom http://cyborgqueen.blogspot.com
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#41 (permalink) | |||||
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Getting stem cells ~2011!
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Id rather at least hear things, even if I don't always understand them. What if there's a dog barking a block away or a siren? I would never hear it without enough gain. Same for walking into a store and hearing music, something id miss out if I turn the volume down on my HAs. Quote:
I had to be no more than 3 feet away from dad and he had to hiss out the "S" sound louder than normal, but at least I could still hear it so I know the hissing sound an "S" makes is no more than 2000Hz. Both you and my dad have a moderate high frequency loss, yet you both can hear the "S" as well. Quote:
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Please point out the errors in my math on the blog. I will read your comments and respond to those. Any mistakes would be due to my sources being wrong, I only repeat what information I find. Ok for example if someone is aided to 20db with HAs, what would a CI person need to be aided to in order to have equal speech comphrension? I had added 5db for CIs, meaning CI is 5db better than HAs due to better quality sound and less distortion from what ive been told and confirmed as true. ![]() Quote:
Then I respect your choice. I am very frank and blunt in my blog and some people might get offended but I have the right to freedom of speech in my blog. I do point out numerous times in my blog that im not against CI, only that people should be realistic, forget all the CI hype and try proper HAs and I bet they will be surprised what HAs are capable of for anyone with measurable residual hearing that can be amplified. If they still insist on CI, fine that is their choice, I just want them to be fully informed and understand the risks. |
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#42 (permalink) |
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Each day is a gift.
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Both you and my dad have a moderate high frequency loss, yet you both can hear the "S" as well.
My hearing loss in the high frequencies isn't considered moderate. It's normal to NR with my left CI and mild to moderately-severe with my right CI: Left CI 1000 Hz - 20 dB 2000 Hz - 20 dB 4000 Hz - 60 dB 8000 Hz - NR Right CI 1000 Hz - 30 dB 2000 Hz - 30 dB 4000 Hz - 60 dB 8000 Hz - 70 dB
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Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 | Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 | Activated: 3/1/06) Deafblind/Postlingual Last edited by Hear Again; 04-05-2009 at 10:20 AM. |
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#43 (permalink) |
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Each day is a gift.
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Many CI centers still require a 90db to 110db+ HL but now people are just seeking a 2nd, 3rd, 4th opinion and shopping at different centers till they find one that has lax requirements. My dad says it's so they can do more CIs and earn more money.
As I've said before, CI centers/hospitals lose a significant amount of money on every CI surgery they perform. They don't implant everyone just to make more money. For example, my CI center is the largest in the Midwest yet they only implant 7 people/year.
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Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 | Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 | Activated: 3/1/06) Deafblind/Postlingual |
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#44 (permalink) |
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Each day is a gift.
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I had to be no more than 3 feet away from dad and he had to hiss out the "S" sound louder than normal, but at least I could still hear it so I know the hissing sound an "S" makes is no more than 2000Hz.
Actually, the letter "s" is considered to be a sound that is between 4000 and 8000 Hz.
__________________
Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 | Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 | Activated: 3/1/06) Deafblind/Postlingual |
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#45 (permalink) |
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Registered User
Join Date: Apr 2008
Posts: 2,698
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The reason the FDA guidelines have changed is because research has shown that people with better and better residual hearing are doing better with CI's than with hearing aids. That is why the standards have changed. As the technology improves, the guidelines have changed because more people can get better results.
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#46 (permalink) |
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Just me....Lissa
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I do agree with some of deaf dude's post and his blog, i think people should explore every option and try out the best hearings aids before jumping ahead for the CI option as some people would do better with their HA than their CI's. Faire Jour, some of your posts are certainly untrue
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Left Ear Nucleus Freedom Implanted-October 25th 2000 Activation-November 28th 2000 |
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#47 (permalink) | |
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Registered User
Join Date: Apr 2008
Posts: 2,698
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Quote:
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#51 (permalink) |
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Each day is a gift.
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For one, you said deafdude would qualify for a CI based on his unaided audiogram yet you failed to mention that speech discrimination is based on aided scores.
Second, you said children and adults are approved for CIs under FDA guidelines even though it is up to each CI center to determine who they wish to implant.
__________________
Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 | Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 | Activated: 3/1/06) Deafblind/Postlingual |
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#52 (permalink) | |
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Registered User
Join Date: Apr 2008
Posts: 2,698
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#53 (permalink) |
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Deaf Activist!
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How would we know what "clear" sounds are like?
I used to have a bit more hearing. I know that when I did things sounded clearer. What I hear sounds normal to me since birth, I always heard that way. Even the speech I hear sounds normal to me and any speech I don't understand sounds like the person isn't pronouncing the words correctly. I never had to relay on anyone for environmental sounds, but I did have a note taker in school. I rely on my intepreter for all sound related information. The teachers talked fast and not clear so id miss some of what theyd say. CI technology back then was only for those who had no residual hearing left. I need to have note-takers and interpreters with me in every class. Id rather at least hear things, even if I don't always understand them. What if there's a dog barking a block away or a siren? I would never hear it without enough gain. Same for walking into a store and hearing music, something id miss out if I turn the volume down on my HAs. I would not. If I am outside and there is a dog barking, a siren, traffice...it all sounds the same. It is all just a jumbled mess of sound. It is pure noise and I don't understand it. Even when people tell me I have a hard time identifying it the next time I hear it. I find it confusing and annoying. Do you wear your hearing aids at every waking moment? I don't and maybe that is one place where we are different. I don't rely on sound for anything. I don't need it for communication, or to understand my environment. I never put my hearing aids on today!
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Queer, Deaf, radical disability theorist, feminist, activist, advocate, and linguist. Fear me! Jenny~B ![]() http://journysofadeafgirl.blogspot.com/ |
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#54 (permalink) | |
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Each day is a gift.
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Quote:
__________________
Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 | Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 | Activated: 3/1/06) Deafblind/Postlingual |
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#55 (permalink) | |
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Cyborg Queen
Join Date: Sep 2007
Location: Las Vegas!
Posts: 880
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Quote:
__________________
Missing my beloved cat, Blackjack, who died from battling with FIP. April 2008 - Feb. 5th, 2009. LEFT: Implanted: 1/10/08 Activated: 2/1/08 Freedom RIGHT: Implanted: 5/15/08 Activated: 6/13/08 Freedom http://cyborgqueen.blogspot.com
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#56 (permalink) | |
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Registered User
Join Date: Jun 2008
Location: Great Britain
Posts: 1,276
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Quote:
Daredevel had given me good advices through email. I just need some people willing to help but there is noone, none of my "friends" are deaf aware, There is two but she's in Falklands and he's in Peru, hope the falklands girl comes home soon. I would love to do this with my parents in Austria but they are techo phobe! They refused to set up Skype in case of high costs in phone bill!! I keep telling them it's free but they refused point blank! |
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#57 (permalink) |
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Just me....Lissa
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Me and Deafdude had a long talk outside of AllDeaf.com and he was explaining his theories and had evidence to back up when he has been saying. some of them are quite reasonable and some of them I am not sure about, I think Fair Joure also need to make sure she is 100 percent sure about things before she says them because I have noticed in her post she has told some untruths and misinformation
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Left Ear Nucleus Freedom Implanted-October 25th 2000 Activation-November 28th 2000 |
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#58 (permalink) | |
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Cyborg Queen
Join Date: Sep 2007
Location: Las Vegas!
Posts: 880
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Quote:
That's her point. It's the same for me too. If someone told me that I'm wrong or saying untruths, I want you to prove it, and so I don't go around telling the same "untruth" again. Make sense? We are all here to learn. We have repeatedly asked DeafDude to GIVE us the research, tell us the documentations that proves his point...he still hasn't done that. That's why some of us are skeptical. If he proves it to us, then we will go , "Ohh! Okay!..." etc. If there's no proof, then I don't care. The one thing I hate is when someone focus on ONE little story that a CI didn't really help them or they didn't get much benefit from them. There's HUNDRED THOUSANDS of CI users. At LEAST one will have issues with the CI. It doesn't mean the CI is BETTER than HA. It goes on individual case to case basis. Somewhere, someone mentioned that each of us perceive the world differently from one another. I see this color as eggshell white. She sees this color as off-white. I hear a dog bark this way. She hears the dog bark slightly different. We have to use what we have and what we know.
__________________
Missing my beloved cat, Blackjack, who died from battling with FIP. April 2008 - Feb. 5th, 2009. LEFT: Implanted: 1/10/08 Activated: 2/1/08 Freedom RIGHT: Implanted: 5/15/08 Activated: 6/13/08 Freedom http://cyborgqueen.blogspot.com
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