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Old 11-24-2008, 02:31 PM   #31 (permalink)
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I DID have mild rop as a baby

i dont anymore

it went before i was year old

I just have a lazy eye and if i cover my left eye i cannot read writing from my right unless its huge
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Old 11-24-2008, 02:35 PM   #32 (permalink)
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Off topic

at night time, i find it hard to see where im going in the dark etc. It must be hard for blind/deafblind people

and also in the dark if i turned my head to the side i can see faces and things but if my head is straight like normal i cannot see faces etc. its weird
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Old 11-24-2008, 04:23 PM   #33 (permalink)
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Off topic

at night time, i find it hard to see where im going in the dark etc. It must be hard for blind/deafblind people

and also in the dark if i turned my head to the side i can see faces and things but if my head is straight like normal i cannot see faces etc. its weird
deafteen,

what must be hard for blind and deafblind people?
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Old 11-24-2008, 04:28 PM   #34 (permalink)
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i was going to say it must be harder for blind/deafblind people at night or when it is dark, but i guess you get used to it. sorry if this sounds offensive but i dont mean to, its just hard to describe
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Old 11-24-2008, 04:40 PM   #35 (permalink)
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i was going to say it must be harder for blind/deafblind people at night or when it is dark, but i guess you get used to it. sorry if this sounds offensive but i dont mean to, its just hard to describe
oh, okay. i wasn't sure what you meant, so i wanted to ask for clarification. and no, i'm not offended because it's true. not all blind or deafblind people are totally blind. in fact, only 3% of the blind population is totally blind and even fewer than that are totally deafblind.
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Old 11-24-2008, 05:00 PM   #36 (permalink)
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I have just learned something new! Didnt know that only 3 per cent people are totally blind.

off topic


my sis' boyfriend has a rare eye condition. It is rare for this condition to go totally blind in one eye but his condition is rarer he will eventually go totally blind in both eyes. He has been in medical journals in the Uk because of it.

I have no idea what this condition is.
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Old 11-24-2008, 05:00 PM   #37 (permalink)
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I have just learned something new! Didnt know that only 3 per cent people are totally blind.

off topic


my sis' boyfriend has a rare eye condition. It is rare for this condition to go totally blind in one eye but his condition is rarer he will eventually go totally blind in both eyes. He has been in medical journals in the Uk because of it.

I have no idea what this condition is.
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Old 11-24-2008, 05:05 PM   #38 (permalink)
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Quote:
Originally Posted by Hear Again View Post
deafteen,

off-topic...

since you have mild rop, do you have any noticeable visual impairment? i was born congenitally totally blind due to a severe case of rop.


I am familiar with ROP, but I have a question for you Hear Again... It was my understanding that ROP happened after birth due to an exposure of excessive oxygen levels. Can ROP occur before or during birth? If so, how?

(ok, so that was two questions... )
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Old 11-24-2008, 05:06 PM   #39 (permalink)
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Oceanbreeze

this is an interesting question
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Old 11-24-2008, 05:06 PM   #40 (permalink)
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Oceanbreeze

this is an interesting question
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Old 11-24-2008, 05:09 PM   #41 (permalink)
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Several complex factors may be responsible for the development of ROP. The eye starts to develop at about 16 weeks of pregnancy, when the blood vessels of the retina begin to form at the optic nerve in the back of the eye. The blood vessels grow gradually toward the edges of the developing retina, supplying oxygen and nutrients. During the last 12 weeks of a pregnancy, the eye develops rapidly. When a baby is born full-term, the retinal blood vessel growth is mostly complete (The retina usually finishes growing a few weeks to a month after birth). But if a baby is born prematurely, before these blood vessels have reached the edges of the retina, normal vessel growth may stop. The edges of the retina—the periphery—may not get enough oxygen and nutrients.

Scientists believe that the periphery of the retina then sends out signals to other areas of the retina for nourishment. As a result, new abnormal vessels begin to grow. These new blood vessels are fragile and weak and can bleed, leading to retinal scarring. When these scars shrink, they pull on the retina, causing it to detach from the back
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Old 11-24-2008, 05:16 PM   #42 (permalink)
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Hear again, how premature was you born?
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Old 11-25-2008, 08:21 AM   #43 (permalink)
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Hear again, how premature was you born?
i was born 4 months premature and spent 3 and a half months in the neonatal icu.
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Old 11-25-2008, 08:23 AM   #44 (permalink)
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this is exactly what happened to me (i.e. complete retinal detachment). i had vitrectomy and cataract surgeries on both eyes, but they didn't reverse my total blindness.

http://www.stlukeseye.com/Surgical/Vitrectomy.asp

http://www.stlukeseye.com/Conditions...Detachment.asp
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Old 11-25-2008, 08:46 AM   #45 (permalink)
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when i was 3 years old, i also had plastic surgery due to the respirator mask pressing against my forehead causing it to collapse inward. the surgery was successful and nowadays you can hardly tell that i have a scar.
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Old 11-25-2008, 09:12 AM   #46 (permalink)
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I am familiar with ROP, but I have a question for you Hear Again... It was my understanding that ROP happened after birth due to an exposure of excessive oxygen levels. Can ROP occur before or during birth? If so, how?

(ok, so that was two questions... )
ocean,

the answer to both of your questions is yes.

rop occurs due to high levels of oxygen exposure. it also occurs as a result of scar tissue being attached to the retina and vitreous as well as abnormal development of blood vessels in the retina.

http://www.nei.nih.gov/health/rop/
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Last edited by Hear Again; 11-25-2008 at 09:44 AM. Reason: grammar
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Old 11-25-2008, 12:26 PM   #47 (permalink)
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Originally Posted by hardofhearing92 View Post
I'm new here, thought i'd make a little poll, haha.

1. What hearing aids do you wear? Starkey BTE (2 of them).
2. How good are they? I think they're pretty good.
3. Do they help you hear everything you want? There are some problems, but that's normal.
4. Are they uncomfortable? Thay are comfortable. I just had new earmolds put in last week, as the prior ones were slightly squeeling when at their loudest.
5. What degree hearing loss do you have? Severe. I had an audiogram today and it was significantly better than the test done last year (I think that's when I had it done).

Thanks! You're welcome!
Anytime you want to know more, just let me know!
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Old 11-28-2008, 08:36 AM   #48 (permalink)
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In answer to your questions:

1. Siemens Reflex DSPs
2. Much better than my previous hearing aids
3. Not everything, but I can now listen to music using direct audio input and they work well with my Smartlink radio aid, again using DAI.
4. They're fine, except for the problem mentioned below
5. Severe, Left ear: 80 - 105 db, right ear 70 - 95 db


Hi everyone, this is my first post. In July I got new hearing aids, Siemens Reflex DSPs. I also wear glasses and I've noticed that my glasses are causing a dent in my left hearing aid. Has anyone else had this problem? I'm a bit concerned that it's going to wear a hole in my hearing aid!
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Old 11-28-2008, 08:39 AM   #49 (permalink)
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djchur,

welcome to ad!

in regards to wearing glasses and hearing aids, you might want to switch to wire frames. i wear sunglasses (to protect my eyes from overhanging obstacles) that have wire frames and they don't interfere with my ci processors at all.
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Old 11-28-2008, 08:55 AM   #50 (permalink)
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Hi,

Thanks for your advice, I'm due some new glasses so I'll try wire frames this time. I've never had this problem with any of my previous hearing aids.
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Old 11-28-2008, 09:02 AM   #51 (permalink)
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Hi,

Thanks for your advice, I'm due some new glasses so I'll try wire frames this time. I've never had this problem with any of my previous hearing aids.
you're welcome!

let us know how the wire frames work out for you.
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Old 11-28-2008, 09:38 AM   #52 (permalink)
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I read that the Phonak Naida is supposed to take the high frequencies not heard and take it over to the frequencies you hear (low frequencies) in order to hear them. I realize some of you like JennyB has used them, has it helped you hear the high frequencies a bit?
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Old 11-28-2008, 05:30 PM   #53 (permalink)
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I read that the Phonak Naida is supposed to take the high frequencies not heard and take it over to the frequencies you hear (low frequencies) in order to hear them. I realize some of you like JennyB has used them, has it helped you hear the high frequencies a bit?
The do give me a little more high frequency info. I can hear some sirens and stuff that I can't with out the frequency transposition. I don't get speech though.
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Old 11-29-2008, 09:11 AM   #54 (permalink)
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I read that the Phonak Naida is supposed to take the high frequencies not heard and take it over to the frequencies you hear (low frequencies) in order to hear them. I realize some of you like JennyB has used them, has it helped you hear the high frequencies a bit?
While I still had some speech recognition, yes the Naidas helped a bit with high frequencies. It was at the expense of some very "helium" sounding voices. Didn't take too long to get used to that. Now I have no speech appreciation and like JennyB, mostly use them for environmental awareness.
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Old 11-29-2008, 10:37 AM   #55 (permalink)
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Thank you JennyB and DeafDoc1 for the clarification. I read that some BTE like the Naida can also be for people with less severe losses, so it sems to helps them more than people with severe-to-profound when it comes to hearing high frequency speeches.
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Old 12-01-2008, 12:32 PM   #56 (permalink)
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1. what hearing aids do you wear? my first set were the Starkey destiny 200s BTE...now within two months i had to upgrade to the Starkey Destiny Extra Power 1200s BTE.
2. How good are they? Pretty good, I wish they were louder though sometimes and I feel almost like I have to work harder with them...of course that could be because my hearing is going down, who knows. I am told that my understanding and my speech has improved from other people...so I guess they're doing their job!
3. Do they help you hear everything you want? Not exactly, but much better than before!
4. Are they uncomfortable? Yeah...the BTE part is really heavy and has been rubbing against my ear...having issues with the molds too (this is my first time wearing aids though (i started in october) so that could be why also.
5. What degree hearing loss do you have? summer it was a mild loss...then progressed to moderate by august and now it's severe. yet supposedly it's not supposed to go down anymore. lol.
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Old 12-01-2008, 12:35 PM   #57 (permalink)
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Anytime you want to know more, just let me know!
which starkey do you have? and what type of ear molds did they start you off with?
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Old 12-01-2008, 01:06 PM   #58 (permalink)
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My hearing aid doesnt seem to help me much but my audiologist havent really said anything . The last 2 years when iv been to have my hearing aid and hearing tests they havent really discussed my results and i havent got any results sent home. Hopefully when i move to my local hospital in Feb ill be able to know more(I'm currently seen in a children's hearing centre as I'm currently still in college, i should be transferred to the Adult Services at my hospital after February )
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Old 12-02-2008, 06:05 PM   #59 (permalink)
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1. what hearing aids do you wear?
Oction Sumos DX

2. How good are they? Very good, I like them very much.

3. Do they help you hear everything you want? Pretty much everything. I do rely on lipreading though, I can't talk on the telephone, because I can't see the other person's lips.

4. Are they uncomfortable? yes they are very comfortable.

5. What degree hearing loss do you have? I have severe hearing loss in both ears. I don't hear anything without my aids.
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Old 12-03-2008, 05:18 PM   #60 (permalink)
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Quote:
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which starkey do you have? and what type of ear molds did they start you off with?
Here's a link to it, though I have more thingys on it than pictured: Starkey - Hearing Aid Devices - Destiny Series

The earmold is cut so that the upper part of the ear canal is not there, but there is a loop that goes up. Does that make sense? Sorry about the delay in response!

The color of the aids is brown, which matches the color of my hair.
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