My future CI plan - Page 3

samanthasmom · 11-04-2008, 12:01 AM

Good Luck and I can't wait to hear more. Keep us posted!

overthepond · 11-04-2008, 03:18 AM

(mod's edit: original quote is removed)

It's OUR choice to have them done. We knew and took the risk to have them. I was implanted 3 months ago and must say i am glad to have them after 30 years of profound deafness, It had made my life alot better because it had given me chance to communicate better in the hearing environment. I still have deaf friends who is non implantee, they didn't support me having it done but after 3 months they realised it's helping me and we are back chatting again, it probably goes same for everyone who was/is implanted.
If i were you i would keep your opinions to yourself or create a thread of your own instead of going round the posts saying silly things like "you are off my list" It's pure childish. I don't care if i am not on your "list" as i don't deal with people who is so negative about other people's opinions. Besides You haven't been around long time, why bring it up! This forum was ambiencable until you came along!

This is Pinky's thread...... Bog off troll.

Hear Again · 11-04-2008, 03:52 AM

Quote:

Originally Posted by Oceanbreeze

Medicaid might also pay for the CI as well. She should check her insurances and see what exactly it covers. I don't know about FL, but I know that Texas Medicaid/Medicare covers the surgery and mappings. Same with New York. Other states Medicaid/Medicare probably also has similiar coverage for the surgery and mappings.

FYI: Coverage for the needed therapy afterward might be a bit more dicey, so should check that as well.

Yes, that's true OB.

In fact, Medicaid fully covered the cost for both of my CIs.

As for AVT, my CI audi told me (at least here in Wisconsin) that Medicaid will cover that cost as well. After my first CI was activated, I was scheduled to have AVT, but since I was progressing well with my CI, it was no longer necessary.

Instead, I met with an AVT audi who gave me tips and techniques for listening practice.

Hear Again · 11-04-2008, 03:57 AM

Quote:

Originally Posted by ~♥~Pinky~♥~

I am at medicare website now. That what you mean

Medicare has 4 primary components:

Medicare Part A — Hospital
Medicare Part B — Medical Insurance
Medicare Part C — Medicare Advantage

I got other website. It say more than 90 percent.

BionicEar.com - Harmony Cochlear Implant by Advanced Bionics
Medicare Part D — Prescription Drug Benefits

The percentage Medicare pays for may vary from state to state. Here in Wisconsin, Medicare covers 80% towards the total cost of CI surgery and mappings.

Hear Again · 11-04-2008, 04:05 AM

Quote:

Originally Posted by ~♥~Pinky~♥~

Yes, I will. Thank you for Tip and advice. Can I ask you? Why I have to wait for my name on lists? is that why because of customer's evaluation and have a surgery on the schedules? I just wonder.

Yes, the waiting list at CI centers vary from one center to another. Some CI centers are busier than others.

For example, my CI center is one of the largest in the Midwest.

However, they only perform 7 CI surgeries per year. A smaller CI center may implant more people, so if you don't want to be on a waiting list, you might want to look at a different CI center.

Waiting 2-3 months isn't too bad. After I submitted my audiogram and CI application, I had to wait about a month for my evaluation to take place.

Pinky · 11-04-2008, 09:03 AM

Quote:

Originally Posted by overthepond

It's OUR choice to have them done. We knew and took the risk to have them. I was implanted 3 months ago and must say i am glad to have them after 30 years of profound deafness, It had made my life alot better because it had given me chance to communicate better in the hearing environment. I still have deaf friends who is non implantee, they didn't support me having it done but after 3 months they realised it's helping me and we are back chatting again, it probably goes same for everyone who was/is implanted.
If i were you i would keep your opinions to yourself or create a thread of your own instead of going round the posts saying silly things like "you are off my list" It's pure childish. I don't care if i am not on your "list" as i don't deal with people who is so negative about other people's opinions. Besides You haven't been around long time, why bring it up! This forum was ambiencable until you came along!

This is Pinky's thread...... Bog off troll.

Thank you! I already report to MOD.

AlleyCat · 11-04-2008, 12:41 PM

I'm sorry I just saw this for the first time. Good luck with your plans, Pinky, and keep us posted on your first CI appointment. Mine is November 20th so if you have any questions about the initial CI appointment I can answer them after that.

Lavender · 11-12-2008, 12:32 AM

Warning: Ci is not for Teen-Adult Prelingual Profound Deaf who were born deaf or never wear technically devices (hearing aids) or minimum (less than a few year).

Pinky · 11-12-2008, 12:37 AM

Quote:

Originally Posted by Lavender

Warning: Ci is not for Teen-Adult Prelingual Profound Deaf who were born deaf or never wear technically devices (hearing aids) or minimum (less than a few year).

Huh?

I don't care about CI warning.

overthepond · 11-12-2008, 02:52 PM

Quote:

Originally Posted by Lavender

Warning: Ci is not for Teen-Adult Prelingual Profound Deaf who were born deaf or never wear technically devices (hearing aids) or minimum (less than a few year).

Eh! Born Profound/totally deaf, CI at 30 and doing very well..... so it can happen if people work hard with Rehab.

faire_jour · 11-12-2008, 06:17 PM

Quote:

Originally Posted by overthepond

Eh! Born Profound/totally deaf, CI at 30 and doing very well..... so it can happen if people work hard with Rehab.

Did you use aids? Do you speak and lipread?

overthepond · 11-12-2008, 06:34 PM

I did have one aid, didn't do much help than standing next to jumbo jet to get the sounds! Had intensive speech therapy from 2 to 16.

faire_jour · 11-12-2008, 07:27 PM

Quote:

Originally Posted by overthepond

I did have one aid, didn't do much help than standing next to jumbo jet to get the sounds! Had intensive speech therapy from 2 to 16.

But just having an aid for a long time and having therapy makes you a much better canidate for a CI than someone who had neither. I think that is all the PP was trying to say. It's tough to walk that line between being hopeful and having unrealistic expectations.

Hear Again · 11-12-2008, 07:51 PM

At the very least, prelingually profoundly Deaf people who never wore hearing aids could still benefit from a CI by being able to hear environmental sounds. They may never be able to understand speech or talk on the phone, but to many prelinguals who have CIs, they are more than satisfied with having the ability to hear environmental sounds.

If a postlingually deaf person has the right to get a CI, so does someone who is prelingually Deaf (provided they have realistic expectations).

JMO.

faire_jour · 11-12-2008, 07:55 PM

Quote:

Originally Posted by Hear Again

At the very least, prelingually profoundly Deaf people who never wore hearing aids could still benefit from a CI by being able to hear environmental sounds. They may never be able to understand speech or talk on the phone, but to many prelinguals who have CIs, they are more than satisfied with having the ability to hear environmental sounds.

If a postlingually deaf person has the right to get a CI, so does someone who is prelingually Deaf (provided they have realistic expecations).

I completely agree

I was just hoping to clairify what Lavendar was saying.

Hear Again · 11-12-2008, 07:56 PM

Quote:

Originally Posted by faire_jour

I completely agree

I was just hoping to clairify what Lavendar was saying.

Oh, okay. No problem faire_jour.

Lavender · 11-12-2008, 09:03 PM

Quote:

Originally Posted by ~♥~Pinky~♥~

Huh?

I don't care about CI warning.

Just want to make sure if u do understand that's all I care about.

Lavender · 11-12-2008, 09:04 PM

Quote:

Originally Posted by overthepond

Eh! Born Profound/totally deaf, CI at 30 and doing very well..... so it can happen if people work hard with Rehab.

Wow, that's odd. I'm surprised it works for u.

Pinky · 11-18-2008, 09:39 AM

Quote:

Originally Posted by Lavender

Just want to make sure if u do understand that's all I care about.

Yeah. I has been wear hearing aids since I was 2. I will able to get CI.

Pinky · 02-16-2009, 08:57 AM

Hear Again, I read your post in other thread about your experience with CI. Nobody talk negative about your decide to get CI. I did tell to deaf lady about my plan. She talked negative. I changed the subject. I don't feel like to discuss with her about CI. Her husband said, "If you receive CI and will cause blinds" I told him "That's not true! It's BS! CI is good for usher syndrome and blinds to hear." I did rebuttal at him. He gulped.

I am still waiting on ENT to call me for hearing test.

Pinky · 03-20-2009, 10:31 AM

I got a called from ENT for CI appointment on April 14th. Yayayaya!!!!! What I will do at first step??? Please help me! I want to learn from your experience at first day at CI appointment. Please give me a tip.

darkage · 03-20-2009, 11:03 AM

Have you research pro and con?
You know how much time to training what is sound of words?
Any risk in sport with CI? Still can't use scuba.
That's why I still enjoy snow ski, lacrosse, snorkel and scuba.

I know 3 people got CI. I won't say good news or bad news.

Wish you good luck.

Daredevel7 · 03-20-2009, 11:09 AM

Quote:

Originally Posted by darkage

Have you research pro and con?
You know how much time to training what is sound of words?
Any risk in sport with CI? Still can't use scuba.

I know 3 people got CI. I won't say good news or bad news.

Wish you good luck.

Actually that is incorrect. I am an advanced scuba diver and this was one of my concerns. Cochlear Co. did testing up to 99 feet (which is WAY more than divers usually go) but my surgeon wants me to be on the safe side and go no deeper than 66 feet (3 atm), which is perfectly fine by me!

darkage · 03-20-2009, 11:30 AM

Daredevel.... Thank you for information. I know one of other my friend (has CI) gave up his hobby as scuba because can't go deep than 15 feet. Yes, we are very sad for one of our best friend. That's why we learned his experience (before and after). I prefer not discuss about this subject.

Daredevel7 · 03-20-2009, 11:34 AM

Quote:

Originally Posted by darkage

Daredevel.... Thank you for information. I know one of other my friend (has CI) gave up his hobby as scuba because can't go deep than 15 feet. Yes, we are very sad for one of our best friend. I prefer not discuss about this subject.

Alright, that's cool. That sucks about your friend, though. Just making sure that people know that scuba diving is still possible with the CI.

overthepond · 03-20-2009, 01:48 PM

Quote:

Originally Posted by darkage

Have you research pro and con?
You know how much time to training what is sound of words?
Any risk in sport with CI? Still can't use scuba.
That's why I still enjoy snow ski, lacrosse, snorkel and scuba.

I know 3 people got CI. I won't say good news or bad news.

Wish you good luck.

It hasn't stopped me from skiing, Scuba dive, snorkelling!!! I even ride horses, sail boats.

Like daredevel7 said it only goes to certian depth. I don't go that deep anyway i go at 25 feet thats all.

overthepond · 03-20-2009, 01:50 PM

Quote:

Originally Posted by ~♥~Pinky~♥~

I got a called from ENT for CI appointment on April 14th. Yayayaya!!!!! What I will do at first step??? Please help me! I want to learn from your experience at first day at CI appointment. Please give me a tip.

Hey pinks, thats fantastic!!! phew... Umm.. Keep your expecations low, no high hopes. Good luck

Hear Again · 03-20-2009, 02:14 PM

That's great, Pinky! I'm so happy for you! Anytime you have questions about CIs, feel free to send me a PM.

Pinky · 03-20-2009, 10:17 PM

HA, Thank you. I will ask you the questions at PM or email.

Overthepond, I will ask you the question on MSN IM

Darkrage, I don't really play in any sports. It's not my things to do. But I like to do jogging and swimming for work out that all. I am interesting into music and arts.

etalton · 03-20-2009, 10:26 PM

To CI or not to CI is a personal choice, not right for all. If that is road you have chosen, than those that don't agree should just accept that fact and move on. Good luck with your plan Pinky. I hope it all works out for you. As others have said, when you go for you eval, make sure they know that you are not expecting too much. If you plan for the worst, but hope for the best, you can't go wrong...

11-04-2008, 03:18 AM	#62 (permalink)
overthepond Registered User Join Date: Jun 2008 Location: Great Britain Posts: 1,270	(mod's edit: original quote is removed) It's OUR choice to have them done. We knew and took the risk to have them. I was implanted 3 months ago and must say i am glad to have them after 30 years of profound deafness, It had made my life alot better because it had given me chance to communicate better in the hearing environment. I still have deaf friends who is non implantee, they didn't support me having it done but after 3 months they realised it's helping me and we are back chatting again, it probably goes same for everyone who was/is implanted. If i were you i would keep your opinions to yourself or create a thread of your own instead of going round the posts saying silly things like "you are off my list" It's pure childish. I don't care if i am not on your "list" as i don't deal with people who is so negative about other people's opinions. Besides You haven't been around long time, why bring it up! This forum was ambiencable until you came along! This is Pinky's thread...... Bog off troll. Last edited by ~SG~; 11-05-2008 at 02:43 AM. Reason: Removed the quote.

11-12-2008, 12:32 AM	#68 (permalink)
Lavender Summer Fun Join Date: Apr 2005 Location: WackoPlanet Posts: 1,166	Warning: Ci is not for Teen-Adult Prelingual Profound Deaf who were born deaf or never wear technically devices (hearing aids) or minimum (less than a few year). __________________

11-12-2008, 07:51 PM	#74 (permalink)
Hear Again Each day is a gift. Join Date: Jan 2005 Location: Wisconsin Posts: 20,067 Blog Entries: 6	At the very least, prelingually profoundly Deaf people who never wore hearing aids could still benefit from a CI by being able to hear environmental sounds. They may never be able to understand speech or talk on the phone, but to many prelinguals who have CIs, they are more than satisfied with having the ability to hear environmental sounds. If a postlingually deaf person has the right to get a CI, so does someone who is prelingually Deaf (provided they have realistic expectations). JMO. __________________ Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 \| Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 \| Activated: 3/1/06) Deafblind/Postlingual

02-16-2009, 08:57 AM	#80 (permalink)
Pinky I'm proud to have CI!!!! Join Date: Apr 2008 Posts: 5,414	Hear Again, I read your post in other thread about your experience with CI. Nobody talk negative about your decide to get CI. I did tell to deaf lady about my plan. She talked negative. I changed the subject. I don't feel like to discuss with her about CI. Her husband said, "If you receive CI and will cause blinds" I told him "That's not true! It's BS! CI is good for usher syndrome and blinds to hear." I did rebuttal at him. He gulped. I am still waiting on ENT to call me for hearing test. __________________ I'm going to be mommy!!! My baby's gender is unknown yet. LEFT: Implanted: 6/12/09 Activated: 7/7/09 Freedom

03-20-2009, 10:31 AM	#81 (permalink)
Pinky I'm proud to have CI!!!! Join Date: Apr 2008 Posts: 5,414	Finally! It's good news! I got a called from ENT for CI appointment on April 14th. Yayayaya!!!!! What I will do at first step??? Please help me! I want to learn from your experience at first day at CI appointment. Please give me a tip. __________________ I'm going to be mommy!!! My baby's gender is unknown yet. LEFT: Implanted: 6/12/09 Activated: 7/7/09 Freedom

11-04-2008, 12:01 AM	#61 (permalink)
samanthasmom Registered User Join Date: Aug 2008 Location: NC Posts: 181	Good Luck and I can't wait to hear more. Keep us posted!

Today
Deafness	Sponsored Links __________________ This advertising will not be shown in this way to registered members. Register your free account today and become a member on AllDeaf.com

11-04-2008, 12:41 PM	#67 (permalink)
AlleyCat Chicken in a Cat Suit Join Date: Jun 2005 Posts: 2,736	I'm sorry I just saw this for the first time. Good luck with your plans, Pinky, and keep us posted on your first CI appointment. Mine is November 20th so if you have any questions about the initial CI appointment I can answer them after that.

11-12-2008, 06:34 PM	#72 (permalink)
overthepond Registered User Join Date: Jun 2008 Location: Great Britain Posts: 1,270	I did have one aid, didn't do much help than standing next to jumbo jet to get the sounds! Had intensive speech therapy from 2 to 16.

03-20-2009, 11:03 AM	#82 (permalink)
darkage Registered User Join Date: Apr 2008 Posts: 1,252	Have you research pro and con? You know how much time to training what is sound of words? Any risk in sport with CI? Still can't use scuba. That's why I still enjoy snow ski, lacrosse, snorkel and scuba. I know 3 people got CI. I won't say good news or bad news. Wish you good luck.

03-20-2009, 11:30 AM	#84 (permalink)
darkage Registered User Join Date: Apr 2008 Posts: 1,252	Daredevel.... Thank you for information. I know one of other my friend (has CI) gave up his hobby as scuba because can't go deep than 15 feet. Yes, we are very sad for one of our best friend. That's why we learned his experience (before and after). I prefer not discuss about this subject.

03-20-2009, 02:14 PM	#88 (permalink)
Hear Again Each day is a gift. Join Date: Jan 2005 Location: Wisconsin Posts: 20,067 Blog Entries: 6	That's great, Pinky! I'm so happy for you! Anytime you have questions about CIs, feel free to send me a PM. __________________ Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 \| Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 \| Activated: 3/1/06) Deafblind/Postlingual

03-20-2009, 10:17 PM	#89 (permalink)
Pinky I'm proud to have CI!!!! Join Date: Apr 2008 Posts: 5,414	HA, Thank you. I will ask you the questions at PM or email. Overthepond, I will ask you the question on MSN IM Darkrage, I don't really play in any sports. It's not my things to do. But I like to do jogging and swimming for work out that all. I am interesting into music and arts. __________________ I'm going to be mommy!!! My baby's gender is unknown yet. LEFT: Implanted: 6/12/09 Activated: 7/7/09 Freedom

03-20-2009, 10:26 PM	#90 (permalink)
etalton Registered User Join Date: Jul 2008 Location: Eastern North Carolina Posts: 769	To CI or not to CI is a personal choice, not right for all. If that is road you have chosen, than those that don't agree should just accept that fact and move on. Good luck with your plan Pinky. I hope it all works out for you. As others have said, when you go for you eval, make sure they know that you are not expecting too much. If you plan for the worst, but hope for the best, you can't go wrong... __________________ E.T. Left Ear Implanted 11-07-08 (Nucleus Freedom) Activation 12-18-08 http://et-mybionicjourney.blogspot.com/

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