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__________________
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#32 (permalink) |
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Premium Member
![]() Join Date: Mar 2004
Posts: 4,827
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Audiologist is wrong for what she did!! She is not making any decision for the little girl who is NOT her kid!! Its up to the mother. If the mother wasnt sure about CI then respect her and be patience till maybe she changes her mind..
I feel bad for the mother.. |
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#33 (permalink) | |
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Registered User
Join Date: Nov 2006
Location: Manitoulin Island on Lake Huron in Canada
Posts: 7,009
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Quote:
Indeed, there is something wrong with this picture. It is suppose to be decision between the doctor and the patient. Beside the doctor need the consent from the mother to go ahead with the CI surgery like signing on the form to agree upon. The audiologist is doing the very wrong to go ahead and make plan to have the child get CI without the consent of the mother. If the audiologist sign the form pretending to be the mother of the child which is way far out of this world and she might as well be in the mental institution to have her head check on why she would do a thing like that. Beside it is against the medical law to go ahead without the knowledge of the child's parent. The mother have a right to think and wait for the right time and to get over her shock of finding out about her child's deafness. It is her decision, not the audiologist. |
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#34 (permalink) | |
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Banned
Join Date: Jun 2006
Posts: 60,296
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Of course she is highly praised by the field. She is nothing more than a salesperson, and she is probably topping the charts with tactics like these. Sounds like there might be some financial incentive offered for referrals by her friend the doctor. In which case, he is acting not just unethically, but illegally. This action is totally unethical. It has absolutely nothing to do with trasitioning. It is making a decision for a client, that is unacceptable. She needs to be reported to the licensing board, and the doctor that is collaborating with her on this little scheme needs to be reported to the state medical board. In fact, get me their names, and I'll freakin' report them both myself!
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#35 (permalink) | |
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Registered User
Join Date: Dec 2005
Location: Australia
Posts: 2,605
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I hope you can make notes from our own experiences when you go to meet her. i.e. dates should only be arranged by the surgeon, when candidacy has been established by surgeon, when consent forms signed and risks read and understood. I think in my case, it took about 6 weeks from the time I signed the consent form before they contacted me with a date in a further 6 weeks. So plenty of time to think about things! Good luck with your meeting and let us know how it goes.
__________________
Left ear implanted 9th June 2006 Activated 29th June 2006 Right ear implanted 31st August 2007 Activated 18th September Both Nucleus Freedom Cochlear implant myths |
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#37 (permalink) |
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Registered User
Join Date: Nov 2007
Location: USA
Posts: 5,171
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I'm not a liar. Saying the story is "too far fetched" implies that the story is untrue, thus drawing the conclusion that the OP (which in this case would be me) is lying.
To tell you the truth, I wish it was an untrue story. |
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#38 (permalink) | |
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Premium Member
![]() Join Date: Sep 2006
Posts: 14,512
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__________________
Left ear implanted with Med-El on April 24 2007. Activated on May 9th. Upgraded to Opus 2 9/10/2010 Think Pink. FREE JILLIO! |
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#39 (permalink) |
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V.I.P. Member
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I hope this Audie will learn her lesson once you've showed up supporting this poor mother.
Makes me sick to hear stories of hearie pushing those sort of technology on kids when the parents feel unsure, and to top on that with no ASL comment.
__________________
"Walking with a friend in the dark is better than walking alone in the light." - Helen Keller |
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#40 (permalink) |
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Registered User
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[QUOTE=deafbajagal;1042130]And this deaf girl has a lot of other medical problems, not just deafness. She's undergone several medical treatments that includes a head shunt.
Uh..do we implant children with head shunts?[/QUOTE] Good question! Unfortunately, I can't answer you, but my instinct tells me no, because hydrocephalus (fluid on the brain, which the shunt is alleviating), can cause an increased risk for meningitis. I developed hydrocephalus at just a few days old and was shunted at 3 weeks of age. I also contracted bacterial meningitis when I was 8 mos old. I recovered with my hearing intact, but it is NOT something you wanna mess with! I'm absolutely appalled that the audi would arbitrarily schedule the CI evaluation against the parents wishes and without first consulting a neurosurgeon !
__________________
"There comes a time in your life, when you walk away from all the drama and people who create it. You surround yourself with people who make you laugh. Forget the bad, and focus on the good. Love the people who treat you right, pray for the ones who don't. Life is too short to be anything but happy. Falling down is a part of life, getting back up is living." Last edited by Oceanbreeze; 07-23-2008 at 08:43 AM. |
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#41 (permalink) | |
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Registered User
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Especially since healthcare in our country is SO damn for profit......except for the military and Medicaid, everything else is for profit. They prolly reached most of the "obviously need it" canidates a few years ago, so now they are fudging on canidacy requirements etc, so that the CI companies can make more money. |
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#42 (permalink) |
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Sussi *7.7.86 - 18.6.09*
![]() Join Date: Jan 2004
Location: Germany
Posts: 31,038
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*shake my head sigh* this is an old news...
It's not first time, I learn that some audiologists & doctors are an ignorants... I received the stories like that before from real life situation and Forums. |
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#43 (permalink) | |
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Registered User
Join Date: Jan 2006
Location: Florida
Posts: 2,271
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#44 (permalink) |
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Lets ride horses!
![]() Join Date: Aug 2006
Location: Spaceship
Posts: 11,170
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wow Jeez..
__________________
![]() ![]() ![]() My journal! http://poochie21.blogspot.com/ ***Enjoy life today, Yesterday has past and Tomorrow may never come.*** |
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#45 (permalink) |
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Registered User
Join Date: Jun 2006
Location: In the Batcave
Posts: 9,528
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i suspect they would have a very different idea of what ethical means, its like 'the child needs it soon for the langauage (speech) acquisition', and all rubbish, but the same old story remains, as all the 'real' deaf people knows all too well, hearing people dont consider language is as important as learning to speak and hear. Indeed, all the restructuring associated with how to apply cochlear implants have brought back a very strong medical backings for audism, which leads to the second wave of oralilsm, (first died a slowle death from 1970s when Sign language was first proven as a language in the 1960's read about Stokoe)
SO back to the present, regarded to Bajagals highlighting of this outright obvious unethical action took place, it was quite unbelieviable given to the lengths of preparation for this procedure of this scale of complexity, not only that the scale of committment required to actually reap (if any) real benefit of using CI. To me, i had a strong exposure to oralism - i didn't like it much but i was too busy to appease everybody in my childhood and right through to even as an adult, looking back ,it was damn cruel. Moreso it is quite hard to believe that within my life time, there was body aids, bte, radio aids, and countless of failure (mine wasnt as big failure as some but i do have had alot sweep under the carpet i can tell you that, also that appearances are only voice-deep) but to the point, its just hard to believe hearing people never ever listen to us nor the parents (or to the parents). When is this kind iof ignorance is going to stop? or be halted for an alternative considerations? i thought they are doing that Now?!, Nope. Everyone involved should to be given light in how a more humane (yes i said this word - humane!) approach is yet to be fully considered and committed?? its very sad. you go girl bajagal, look after them and i bid you all best wishes. Dreadful rash action if really a pressured to try out hearing and speech as the only solution, well damn it compromise, use hearing aids for starters, and darn it again, using sign language is so far more forgiving for the wee child's need of communication. damn it damn it it just so im lost for words
__________________
"Problems cannot be solved at the same level of awareness that created them." Albert Einstein |
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#46 (permalink) | |
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♥"Concrete Angel"♥
![]() Join Date: Nov 2003
Posts: 19,089
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Ah I got it now. Reddie.
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#48 (permalink) |
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Banned
Join Date: Jun 2006
Posts: 60,296
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Unfortuantely, it is not untrue. And to discount such an occurrance based on the fact that one simply has difficulty believing that anyone could be so unethical is to allow the behavior to continue. I'm glad that you and the mother are meeting with this audi. Do what you can to educate the poor, ignorant woman!
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#49 (permalink) | |
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Registered User
Join Date: Jul 2007
Location: Colorado
Posts: 455
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#52 (permalink) |
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Registered User
Join Date: Jun 2006
Location: In the Batcave
Posts: 9,528
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Yeah she doesnt lie. go search and look at her other posts, its all consisent.
also adding to my previous post up above, is that, often CI receivers tend not to get the whole deal is weird like ti doesnt matter if the child gets the full package of speech training and dedication or not, I mean whan t i say not, like often CIers just get the surgery but the commitment cease after this, for I suspect it has a lot to do with teachers being bewildered with just how difficult is to implement actual oralism, I DONT CARE HOW "ADVANCED" their new DO_DAND gizmo equipment they have and use, it doesnt alway translate from theory to practice as well as they'd like to believe (euqipment i mean is the speech training devices they might use today - hell i dont know what they look like, but i have a hunch it isnt much different from the past except its likely to be digital than analog all with the 'idea' to with the CI processors.... anyway..... some one could tell me if im wrong? or is this subject to opinions? but my stance remains that they insist implants because like the 'team' likes to be paid well, even they say its 'free' to the implantees (at least in NZ it is), but I still dont buy this as I feel its just a clever ploy to maximise the assilimation,. It's all part of the self-serving professionals intentions to ensure they have a nice job going with a nice income to satisfy themselves they don't really care how hard is it going to be for d/Deaf individuals, after all we all play the sick role, we all learn it quick, and play that role well, and we all know if we conform to the role well we'd get a better help and more assistence to make it easier for us but it doesnt always go this way, you get useless teachers, certain incompatiabilty problems, tireness from actual oralist training on top of ordinary schooling. Someone else said earlier in this thread they many CI children get to received the operation then failures unfolds as the support is all muddled and cease away..... mainly what they (who ever posted the reply in here) is likely to be pointing out that its all boils down to profit with the common mindset through out 'deaf industry in deaf education" that follows the lines like; "you received the implant?, good, NEXT!". They forget, and forget, even if they really really did 'well' they forget the drain and torturious effort a deaf child endures...its no surprise the deaf community objects to it. althought i have to admit yes it's getting accepted, but i still dont buy it - i mean like Of Course the Implant teams/hospitals/educators are working towards this acceptance they have long planned this transistion to be smooth as possible as moving from hearing aids to cochlear implants on all the youngest as possible, Hearing aids are now seem to tend to be 'market solution' for those are late deafen, or not wishing to phase out from the BTE mode of aided-hearing, or just those prefer external aids- that is without surgery. There is a couple of deaf adults I do know locally, which claims to be 'Deaf' but they aren't really, just a political namesake for pandering their professional status (as cousellors) they have recently received implants and they are very oral, more so than me, (while i have a more rebelious attitude I dislike authority). I can see they choose to have it as they have placed their BELIEF into the value of hearing more, which it is partly true implants 'makes you hear more, even though the sounds is different etc' after all they want to be more Oral. I disapprove the fact that while they tell everybody else in the Deaf community that they are Deaf, yet they dont mix with deaf, and have a slight stand-offish body language and attitudes. All the while even thought they do ' help d/Deaf to understand relationships and communication better I mean interaction to get on with people and being assertive sort of way not so much the language aspect. That is their choice, they are adults making their own decisions -Fine, but i myself dissapprove of them claiming to be Deaf where this is far from the truth. Sorry that was off-topic im talking as I have thought darn it it happens anyway, Back to the thread, little children dont have this opinions, experience, to know what they want, only if parents go by their hunches first. A full range of options should have been laid on the table, this has been said frequently by many ADers in here. so Im sayig nothing new but yeah we're fighting a losing battle. Technology always wins, and the owners of technology (i dont mean the wearers, i meant the makers and sellers).
__________________
"Problems cannot be solved at the same level of awareness that created them." Albert Einstein |
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#53 (permalink) |
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Prayers for my dad.
![]() Join Date: Nov 2003
Location: Ohio
Posts: 22,819
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I cannot believe that the audiologist went ahead and scheduled the surgery, what the heck was she thinking?! Don't they exam the external, middle, and inner ear for signs of infection, or vaccines to prevent meningitis before the surgery? She is putting this child in a dangerous situation. If I were the mother of that little girl, I would had report her.
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#54 (permalink) | |
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Registered User
Join Date: Apr 2008
Posts: 5,898
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My cousin has 2 CI. He did put vaccine before surgery. He did well. |
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#56 (permalink) | |
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Let It Snow!!!!
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Of course, u would defend anyone in the CI industry. They are your Gods and of course, they dont do any wrong in your eyes. It is funny since that the OP has always gave u support in the other threads but u are quick to degrade her thread and practically accuse her of a liar.
__________________
"Wine improves with age. The older I get, the better I like it." --- Anonymous |
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#57 (permalink) | |
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Banned
Join Date: Jun 2006
Posts: 60,296
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Quote:
You're so big on a parent's rights to implant. A parent also has the right to take any amount of time they choose before making a decision. An audiologist does not have the right to make the decision for the parent. |
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#58 (permalink) | |
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Registered User
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That's alarming! I'm NOT anti CI, but I have a shunt. I know what's involved. Giving that a meningitis risk already exists with implantation, I would proceed VERY cautiously in implanting this child!
__________________
"There comes a time in your life, when you walk away from all the drama and people who create it. You surround yourself with people who make you laugh. Forget the bad, and focus on the good. Love the people who treat you right, pray for the ones who don't. Life is too short to be anything but happy. Falling down is a part of life, getting back up is living." |
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#59 (permalink) | |
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Let It Snow!!!!
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Quote:
__________________
"Wine improves with age. The older I get, the better I like it." --- Anonymous |
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