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#1 (permalink) |
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Loki : God of Mischief
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Bilateral Implants
Heyyy, I'm Back, I think lol, actually I had been here for awhile, mostly lurking around reading posts lol. Anyway I got to thinking about bilateral implants.
Those who are new or haven't read my original posts, I first came here in 2005? Can't remember what year, but I came here asking questions about ci, and got some great informations. I had been implanted since I was 19 and I am very happy with it, and I am now 21, but I am thinking of getting another implant. So I am wondering if anybody here had any successful stories or not so successful stories to share about bilateral implants, I would like to hear about them. I know all about the risks and pros and cons about getting an implant itself since I already went through that once, but I just would like to know if its worth it to try to get a second one or not. Thanks |
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#2 (permalink) |
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Deaf Mama!
Join Date: Feb 2007
Location: Somewhere in the US.
Posts: 398
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Hi.
I've recently became a bilateral CI'er. I was implanted with my 1st CI in May '07. Activated in June '07. I loved it. I love having a CI and my experience as a CI'er has been awesome so I decided to go thru the whole journey again and get my 2nd one which I had just gotten earlier this month. Surgery was May 8th and activation was yesterday and already I see a huge difference in being a bilateral CI'er now. HUGE difference. I'm amazed!! I can now hear from all around, and while I understood speech just fine with one CI, I can understand it much better with both CI's. In just one day alone, I noticed that I'm not asking my 5 yr old daughter to repeat herself much at all. [She is difficult to understand, even the rest of my family, who are all hearing has trouble understanding her so it's not just me and no, she doesn't have any speech issues, she's starting to talk much better as she improves her mispronoucations.] There's a few other stuff I've noticed too. I am soo anxious for June 4th to arrive so I can wear both CI's 24/7. My audi wants me to wear the new CI alone as much I can until she sees me and does the mapping for both CI's to work together. Anyways, as you know, it's a personal choice. Everyone is different. But for me? So far, I'm loving being a bilateral CI'er and it's only been day 2 of being activated! Do come back and let us know what you've decided to do.
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-DeafMama78 Implanted [right ear]: May 17, 2007 w/ Freedom! Activated: June 21, 2007 & lovin' it! Implanted [left ear]: May 8th, 2008 w/ Freedom! Activation: May 28th, 2008 Offically a bilateral CI'er! |
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#3 (permalink) |
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So NOT a Princess!
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Hi, darkangel.........Have you experimented with a powerful hearing aid in your unimplanted ear? It might be worth it to do so. The bilateral implant difference isn't drastic. It basicly boils down to better sound localization and improved hearing in noise. Some people can get that with a bimodal (CI plus HA) approach. If the bilateral difference was drastic, I totally would tell you to go for it. If you can't get ANY benifit from aids (not even a power aid or a digital aid) I so would get implanted. But, I also think that it's SO worth it to experiment too!
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#4 (permalink) | |
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I'm back :)
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#5 (permalink) |
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Loki : God of Mischief
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Yes I had tried hearing aid in my other year less than an year ago, but its crap, for one thing the audi had trouble trying to find the right aid for me as most even powerful aids wouldn't work very well. And even when the audi got one that pretty much up there to try to fit with what I can hear or what I cant hear, he still had a bit of trouble trying to adjust it to suit my ear. Then with the hearing aid my hearing is very muffled and not as clear not very loud for me, very quiet and hard for me to understand speech with hearing aids alone.
As I said to my mom, wow I cant believe how much a difference between CI and hearing aids, cuz after my implantation in my left ear, I kinda forgot what it sounded like with hearing aids, then i can see the differences, and hearing aids don't really work very well for me. I am severe to profoundly deaf in both ears, and obviously its a bit worse in my right ear because the dr chose my left ear as the better ear to try the surgery on. as deafmama said, i understand what you mean about tryingto understand young children talking, I grew up with tons of trouble understanding young children talking, but with 1 implant its a bit better, not 100 percent but i understand speech more with one implant, and i am hoping the second would be even better. |
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#6 (permalink) |
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Cyborg Queen
Join Date: Sep 2007
Location: Las Vegas!
Posts: 584
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Hey!
Glad you're exploring the option of becoming bilateral CI'er. I got my second surgery 5 months after my first. At first, I thought I would just get 1, and wait for technology to get better and get the second one...but it turns out that I absolutely love my CI so much that I wanted to get my other ear implanted. I could care less about improvement of technology...I can always get upgradeable processors! I have not been activated yet, but reading blogs of many single CI'ers and quite a few of them have two. They have talked about how much better it was with two than with one. I have not seen any negatives about having two. ONLY listen to those who have experienced bilaterals...ONLY they know what it's like. It's not *just* for localization, or whatever. So, if you feel that you're benefiting a LOT from your CI, imagine what it's like with two. If you're getting good benefits, but feeling average about it, or not hearing as much as you want - you may want to consider trying to adjust your mapping until you're satisfied. I can't speak for Deafmama or others...but if you have the second one done, it would be like "starting over" with your right, because of so many years using your left. Ya know what I mean? Wish you best of luck!!
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LEFT: Implanted: 1/10/08 with Freedom Implant Activated: 2/1/08 Freedom RIGHT: Implanted: 5/15/08 with Freedom Implant Activated: 6/13/08 Freedom http://cyborgqueen.blogspot.com
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#7 (permalink) | |
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So NOT a Princess!
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But it does sound like she's explored that option. DarkAngel....I SO would go for it!!!!! |
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#10 (permalink) | |
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I'm back :)
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Good luck, girl!
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#11 (permalink) | |
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Up to a loud future !
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Just found this new research....(today's....)
Not in your age-group, but then again.... it's always great to read this kind of stuff.. Actually, 2 bilateral CI's sounds like a lot.... 1 bilateral would do... :-) Quote:
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. The limits of my language mean the limits of my world. . . . Ludwig Wittgenstein (1889 - 1951) ![]() Information about . . . . . . . . . My daughter . . . . . . . . . How the ear works . . . . . . . . . Nonsense/ Myths about CI, here,or here. |
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#12 (permalink) | ||
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Up to a loud future !
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Quote:
How about Quote:
Amazing....
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. The limits of my language mean the limits of my world. . . . Ludwig Wittgenstein (1889 - 1951) ![]() Information about . . . . . . . . . My daughter . . . . . . . . . How the ear works . . . . . . . . . Nonsense/ Myths about CI, here,or here. |
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#13 (permalink) |
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Lil Italian/Jamaican Chic
Join Date: May 2006
Location: Ottawa, ON
Posts: 831
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where in canada do u live darkangel?
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![]() My Blog http://myhohlife.blogspot.com/Phonak Una Never bend your head. Hold it high. Look the world straight in the eye. Helen Keller Alicia |
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#14 (permalink) | |
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I'm back :)
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#15 (permalink) | |
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Up to a loud future !
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I'll take the word of a bi-lateral CI-user before I would listen to someone who never experienced it, let alone never experienced CI.
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. The limits of my language mean the limits of my world. . . . Ludwig Wittgenstein (1889 - 1951) ![]() Information about . . . . . . . . . My daughter . . . . . . . . . How the ear works . . . . . . . . . Nonsense/ Myths about CI, here,or here. |
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#16 (permalink) |
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Registered User
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I do have bilateral implants. My implants were done simultaneous. I do spend time with one implant at a time for auditory therapy. I can tell you it makes a huge differences in me. It is more than just locatation of sound. It provides clarity and completeness of sound. With one implant, either one, the sound is more robotic and has an echo. When I put both on it loses that and sounds more "normal."
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Right and Left Implanted July 19, 2007 Activated August 9, 2007 Both Advanced Bionics Harmony |
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#17 (permalink) |
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Retired from All Deaf!
Join Date: Dec 2005
Location: Australia
Posts: 2,606
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Another sequential bilateral user who has noticed a significant difference. I really wasn't expecting it but compared to the "powerful" hearing aid that I previously had in my last implanted ear, the new CI really leaves it for dead. The improved result may not show itself in booth sentence testing conditions but really comes into its own in outside, every day life conditions.
I second Cloggy that it's also reassuring to know that if one CI stops functioning that I have the other one. Oh and I also experimented with other powerful hearing aids as part of the process of getting approval. This is pretty much standard for anyone who has some residual hearing.
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Left ear implanted 9th June 2006 Activated 29th June 2006 Right ear implanted 31st August 2007 Activated 18th September Both Nucleus Freedom Cochlear implant myths |
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#18 (permalink) | |
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I'm back :)
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I also would listen to other deafies, too, but if I was considering the CI and my mind was pretty much made up, I would NOT want someone going ..."On the other hand...blah blah blah". In that sense, that other person is just wasting their energy. |
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#19 (permalink) | |
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Registered User
Join Date: May 2008
Posts: 598
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It is harder to notice location without stereo hearing, as you only hear in one side, so unless you can really recognize 'Doppler effect', it is hard to tell if something is behind, to the side, or simply just sounding 'odd'... just like I lack depth perception by being nearly totally blind in one eye, depth requires stereo vision. But I do agree, if you can try something else, all the better, because it is still a surgery, with risks, but since you already have one I am sure you already know all about it. So it is ultimately your choice, advice is good, but only you can decide, in the end. |
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#20 (permalink) |
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Loki : God of Mischief
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I emailed my audi, she said...
With respect to bilaterals, right now they are being done in children and primary through research. We have such a long waiting list for the adults that we simply cannot justify giving a patient two devices when so many people are waiting for one. so... i guess that means no. |
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#21 (permalink) | |
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Registered User
Join Date: May 2008
Posts: 598
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Maybe in the future it will be more available. |
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#22 (permalink) |
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Registered User
Join Date: Jan 2005
Location: Wisconsin
Posts: 2,134
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I'm also a bilateral implantee. I received my first CI in 2004 and my second in 2006. Prior to receiving my second CI, I used a HA in my nonimplanted ear. It worked extremely well in the beginning, but as time went on (6 months post activation), I noticed a significant decrease in my ability to hear with the HA. Before deciding to go bilateral my HA audi made every possible change to my HA -- all to no avail. I tried using a digital and analog HA, but neither brought the volume or clarity that my CI did. It wasn't until my CI surgeon recommended a second CI (9 month post op) that I finally made up my mind that this was the decision I wanted to make. Like previous posters, I've noticed a significant improvement in my ability to understand speech overall, hear in noise and localize sound (imperative for me being totally blind). With both CIs, I've also noticed that speech and music have a more natural sound quality. Long story short, I couldn't be happier with the choice I've made and if I had to do it all over again, I would in a heartbeat! My only regret is not having done it sooner.
Edit: I must have been writing this at the same time you sent a post regarding your audi's e-mail response. Too bad. (I mean that sincerely.) Perhaps you could come to the U.S. to have a second CI?
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Hear Again Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 Deafblind/Postlingual Last edited by Hear Again; 05-30-2008 at 08:36 PM. |
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#23 (permalink) |
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So NOT a Princess!
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Oceanbreeze, and Cloggy please don't jump down my throat. Yes, bilateral CI can be really good. I'm NOT anti-bilateral CI. However, if you ask ANY reputable audi, they will say that EVERYONE responds differently to various and sundry hearing technology. People might respond JUST AS WELL to bimodal (CI and HA combo) as they would with bilateral CI. Not everyone with a profound loss, has a flat "deep" profound loss.
And yes, I don't have a CI............BUT, I also know that audilogy fitting can be very hit or miss. It's worth it to experiment. |
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#24 (permalink) | |
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I'm back :)
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