Cochlear Implant is death sentence to your health! - Page 2

sr171soars · 05-13-2008, 08:26 PM

Err...There is one in every crowd. Pure FUD all around.

Let me see, I have had my CI for over three years and going strong. In fact, I'm the healthiest one in the family...rarely ever sick and when so, nothing to do with CI either.

Ignorance is bliss...NOT!

lilylover72 · 05-14-2008, 03:16 PM

Doctors dont always tell a truth.

jillio · 05-14-2008, 03:27 PM

Quote:

Originally Posted by lilylover72

Doctors dont always tell a truth.

Excellent point. More often they omit information they should be providing, which is dishonesty by ommission. They have also been known to say things like "now, now. You just let me worry about that. I'm the doctor and you're the patient." How patronizing!

Maria · 05-14-2008, 03:38 PM

Quote:

Originally Posted by lilylover72

Doctors dont always tell a truth.

Exactly! It's the same with the company who invented/created Cochlear Implants. They don't always tell the truth, either.

Maybe, we should pay attention and research the FDA and see what they found out about CI ?

Just like that man said in video - he was talking about someone who was suing for over million of dollars.

I will research on that matters myself.

Brian · 05-14-2008, 03:48 PM

Quote:

Originally Posted by Maria

Exactly! It's the same with the company who invented/created Cochlear Implants. They don't always tell the truth, either.

Maybe, we should pay attention and research the FDA and see what they found out about CI ?

Just like that man said in video - he was talking about someone who was suing for over million of dollars.

I will research on that matters myself.

Maria, I don't believe it is necessary to pay attention and do some research. We have advocates like NAD doing that. If it is very urgent, they will do something about it and let the deaf community know about it.

Cloggy · 05-14-2008, 04:23 PM

Quote:

Originally Posted by lilylover72

Doctors dont always tell a truth.

Not my experience.
However, If only Deaf culture would provide correct information...
.
.
.

Quote:

Originally Posted by Maria

[color="DarkRed"]Exactly! It's the same with the company who invented/created Cochlear Implants. They don't always tell the truth, either.

Like for example...???

Cloggy · 05-14-2008, 04:25 PM

Quote:

Originally Posted by jillio

Excellent point. More often they omit information they should be providing, which is dishonesty by ommission.
They have also been known to say things like "now, now. You just let me worry about that. I'm the doctor and you're the patient." How patronizing!

Such rubbish...

A bit like "now, now. You just let me worry about that. I'm deaf and you're hearing.... I know best". Patronizing indeed..

jenni-m · 05-14-2008, 07:52 PM

Would someone mind providing a text transcript, if possible?
Or even a summary or paraphrase. I am curious what this is about.

vallee · 05-14-2008, 07:58 PM

Quote:

Originally Posted by lilylover72

Doctors dont always tell a truth.

My doctor was great. He answered so many questions and helped so much. I spent a year e-mailing him with questions. He answered them all and directed me to places to find answers. I hope he is the norm. If I had two more ears, he could do them too.

Cloggy · 05-14-2008, 09:14 PM

Quote:

Originally Posted by vallee

My doctor was great. He answered so many questions and helped so much. I spent a year e-mailing him with questions. He answered them all and directed me to places to find answers. I hope he is the norm. If I had two more ears, he could do them too.

Quad-lateral.... interesting..

.
would that be hearing left, right, up down..???

jillio · 05-14-2008, 09:47 PM

Quote:

Originally Posted by Cloggy

Such rubbish...

A bit like "now, now. You just let me worry about that. I'm deaf and you're hearing.... I know best". Patronizing indeed..

Hardly the same at all. Butit doesn't surprise me that you would fail to notice the difference.

Liebling:-))) · 05-15-2008, 01:10 AM

Quote:

Originally Posted by lilylover72

Doctors dont always tell a truth.

Exactly!!!!!!!!!!!!!!

He influenced HOH person to get CI. After CI surgery, she can´t understand the difference sounds between original HOH and CI anymore... It took her 6 or more years to train to hear the sound... She told me herself at Spa resort where I was stayed for 5 weeks at 2 years ago. We were recommended to get CI unless we lost our hearing to zero, not HOH...

We met a hearing mother and deaf toddler at spa resort where my hubby attended for 4 weeks last weekends. Surprisely, she told us that the Experts recommended her to attend spa resort to collect experience on cons/pros between HA and CI, not just listen only doctors...

We feed her decision with cons and pros... She accept both sides between Experts and deaf culture before she is able to make her decision either she wear her son HA first or CI straight way? Most of us told her our opinion and explain her why... We will respect if she decide for CI on her toddler which we personally disagree to this.

One guy, we also met at my hubby´s spa resort, too. We made nice converstion last Saturday. He lost his HOH to zero and took it very badly. The doctors convinced him that CI is the best method to help him to hear again... but the Experts told him to not do that yet and recommend him to go Spa resort to make his own decision, not listen anyone. The Expert at Spa resort convinced him that it would be negative on him either after CI surgery if he thought negative a lot... There´re a form of grieving for lost his hearing... then CI surgery is no good... First of all, he MUST cope his grieving first and think positive then able to make decision either he consider to have CI or not. He was already 6 weeks in Spa resort before my hubby attended there. I asked him what he thought about CI. He said that he finally accept what he is and still doubt about CI... He heard about special techology about HA and would try it... If it doesn´t work on him then he will consider CI. Wish him best of good luck.

Liebling:-))) · 05-15-2008, 01:13 AM

[quote]

Quote:

Originally Posted by Cloggy

Not my experience.

It´s good for you.

Quote:

However, If only Deaf culture would provide correct information...

.

Why can´t you accept their experience when you have good experience which they doesn´t? It doesn´t mean that they mislead the information when they have their own experience or collect people´s experience.

SouthFella · 05-15-2008, 10:43 AM

Quote:

Originally Posted by neecy

Highlander is immoral? Or Immortal? Or both? *grin*

...

SouthFella · 05-15-2008, 10:47 AM

Quote:

Originally Posted by Brian

Maria, I don't believe it is necessary to pay attention and do some research. We have advocates like NAD doing that. If it is very urgent, they will do something about it and let the deaf community know about it.

NAD is very anti CI ..Read their postion paper a few years ago over it . Of course, they changed their position when they started losing money and members.. HOW CONVEINET of them !!!

Shheesshhhh

SouthFella · 05-15-2008, 10:50 AM

Quote:

Originally Posted by Maria

Exactly! It's the same with the company who invented/created Cochlear Implants. They don't always tell the truth, either. I will research on that matters myself.

That's why it is not easy for companies to just throw medical devices at us in the good ole USofA.. Have to pass the FDA inspection first..

Thank GOODNESS!!!

So, Maria , you will probably just be rehashing with other's have already done years and years ago...

jenni-m · 05-15-2008, 11:01 AM

Ok.

I got my friend to summarize the video for me.
All I can say is, I have had a number of surgeries. All surgeries have risk. All could have complications, or potentially kill you, even 'minor' ones.

I have a fair amount of titanium and screws in me. I don't see CI as much different, especially since even anesthesia is risky for me (I have to be closely monitored while under). Probably the only reason I even got CI is because of blindness.

So yes, it could probably kill a person, on some chance. If they feel the risk is not worth it, then they don't do it.

lilylover72 · 05-15-2008, 11:08 AM

Quote:

Originally Posted by vallee

My doctor was great. He answered so many questions and helped so much. I spent a year e-mailing him with questions. He answered them all and directed me to places to find answers. I hope he is the norm. If I had two more ears, he could do them too.

Well you are lucky. but many people are not lucky!

lilylover72 · 05-15-2008, 11:10 AM

Quote:

Originally Posted by Cloggy

Not my experience.
However, If only Deaf culture would provide correct information

Its good for you. Please respect our deaf culture.

lilylover72 · 05-15-2008, 11:11 AM

Quote:

Originally Posted by Liebling:-)))

Exactly!!!!!!!!!!!!!!

He influenced HOH person to get CI. After CI surgery, she can´t understand the difference sounds between original HOH and CI anymore... It took her 6 or more years to train to hear the sound... She told me herself at Spa resort where I was stayed for 5 weeks at 2 years ago. We were recommended to get CI unless we lost our hearing to zero, not HOH...

We met a hearing mother and deaf toddler at spa resort where my hubby attended for 4 weeks last weekends. Surprisely, she told us that the Experts recommended her to attend spa resort to collect experience on cons/pros between HA and CI, not just listen only doctors...

We feed her decision with cons and pros... She accept both sides between Experts and deaf culture before she is able to make her decision either she wear her son HA first or CI straight way? Most of us told her our opinion and explain her why... We will respect if she decide for CI on her toddler which we personally disagree to this.

One guy, we also met at my hubby´s spa resort, too. We made nice converstion last Saturday. He lost his HOH to zero and took it very badly. The doctors convinced him that CI is the best method to help him to hear again... but the Experts told him to not do that yet and recommend him to go Spa resort to make his own decision, not listen anyone. The Expert at Spa resort convinced him that it would be negative on him either after CI surgery if he thought negative a lot... There´re a form of grieving for lost his hearing... then CI surgery is no good... First of all, he MUST cope his grieving first and think positive then able to make decision either he consider to have CI or not. He was already 6 weeks in Spa resort before my hubby attended there. I asked him what he thought about CI. He said that he finally accept what he is and still doubt about CI... He heard about special techology about HA and would try it... If it doesn´t work on him then he will consider CI. Wish him best of good luck.

I bet that it is hard to decide. It is risk to try.

Cloggy · 05-15-2008, 12:18 PM

Quote:

Originally Posted by Liebling:-)))

.......
Why can´t you accept their experience when you have good experience which they doesn´t? It doesn´t mean that they mislead the information when they have their own experience or collect people´s experience.

I'm sure there are bad experiences with doctors... and friends and other people....
But I'm thinking in "information" like "It's the same as a HA", "Drilling into the skull/brain", "Major surgery", "High risks", "Parents in denial", "Parents not loving their child", "Doctors are always pushing for CI", "They just want to get the money", "CI will kill you" etc...
You know..., the general anti-CI nonsense generated by people that that don't have CI and really do not have a clue, or people that they would just try CI and thought they would be able to hear, without doing any work themselves....

Cloggy · 05-15-2008, 12:23 PM

Quote:

Originally Posted by lilylover72

Its good for you. Please respect our deaf culture.

No disrespect intended.... btw... have you read the title of this topic.??

jillio · 05-15-2008, 01:42 PM

Quote:

Originally Posted by SouthFella

NAD is very anti CI ..Read their postion paper a few years ago over it . Of course, they changed their position when they started losing money and members.. HOW CONVEINET of them !!!

Shheesshhhh

NAD is decidedly not anti-CI. They are pro-individual choice, fully informed consent, and ethical behavior in the medical

05-13-2008, 08:26 PM	#31 (permalink)
sr171soars Cyborg since March '05 Join Date: Jul 2005 Location: Raleigh, NC Posts: 2,377	Err...There is one in every crowd. Pure FUD all around. Let me see, I have had my CI for over three years and going strong. In fact, I'm the healthiest one in the family...rarely ever sick and when so, nothing to do with CI either. Ignorance is bliss...NOT! __________________ But trailing clouds of glory till He comes... Foolishness is not a virtue

Today
Deafness	Sponsored Links __________________ This advertising will not be shown in this way to registered members. Register your free account today and become a member on AllDeaf.com

05-14-2008, 03:16 PM	#32 (permalink)
lilylover72 I love purple! Join Date: Mar 2006 Location: USA Posts: 2,778	Doctors dont always tell a truth.

05-14-2008, 07:52 PM	#38 (permalink)
jenni-m Registered User Join Date: May 2008 Posts: 598	Would someone mind providing a text transcript, if possible? Or even a summary or paraphrase. I am curious what this is about.

05-15-2008, 11:01 AM	#47 (permalink)
jenni-m Registered User Join Date: May 2008 Posts: 598	Ok. I got my friend to summarize the video for me. All I can say is, I have had a number of surgeries. All surgeries have risk. All could have complications, or potentially kill you, even 'minor' ones. I have a fair amount of titanium and screws in me. I don't see CI as much different, especially since even anesthesia is risky for me (I have to be closely monitored while under). Probably the only reason I even got CI is because of blindness. So yes, it could probably kill a person, on some chance. If they feel the risk is not worth it, then they don't do it.