Implanted but anti-CI? - Page 2

Pinky678 · 05-07-2008, 10:55 PM

Same here.

Quote:

Originally Posted by VamPyroX

I don't have CI, but I do have a lot of friends who have and had CI.

Some of them got CI, but stopped wearing them for the following reasons...

- overwhelming (born deaf, never experienced sounds)
- fragile (rough athlete; football, wrestling, mud tug, dodgeball, etc)
- harassment (by anti-CI deafies)
- lazy (replace battery, putting it on, putting it away, caring for it)
- quick taste (covered by insurance; nothing to lose)

jillio · 05-07-2008, 11:01 PM

Quote:

Originally Posted by R2D2

That's fine. I was speaking in the context of non use of the CI and I personally suspect that CI users won't be any different to hearing aid users coming later in life to deaf culture who have continued to wear them in large numbers. Especially since a growing number of people who are active within the deaf culture are themselves getting CIs.

Can't disagree with that.

Pinky678 · 05-07-2008, 11:04 PM

(sighing) I am not anti-CI! Why you guys are argue over CI for children?? I do understand that you want children to learn sign language early. Some children want to have CI for reason. But I do not support for parents don't use sign language to communicate with CI children. I can't believe that Vlog show up of children do not use sign language just use a lipreading and writing. Her parents don't use sign languages. What's wrong with children's doctors for not tell parents about sign languages??

I wish you read my thread answer my question. I need to know. Nobody comment it and just view. Just 2 person posts that all. I want more. Please check it out here http://www.alldeaf.com/sign-language...nguage-ci.html

Can you answer my question please?? Thank you!

I am so sad about my cousin isn't allow her son to learn sign languages.

If you guys are complain about hearing parents don't use the sign languages to communicate with ci children. They didn't hear from children doctor's mention about sign language. Why not make a laws for all doctor need to tell parents to learn sign language like a baby sign languages. They need to use a common senses!!! Baby sign languages isn't hard and hurt!

jillio · 05-07-2008, 11:08 PM

Quote:

Originally Posted by R2D2

That's true. But I think that with more people within deaf culture getting CIs this will be less of a factor. We were speaking more of a personal, political decision not to wear a CI. I knew a few people who made a political decision not to wear a hearing aid despite having grown up with them but most people seem to continue wearing them or resume after a break.

If Jillio is correct and CI wearers join the deaf culture in droves as young adults and continue to wear them, it would be interesting to see what kind of changes that might bring about in deaf culture itself in the future.

I think we have already begun to see some changes, don't you? Perhaps small and slow, but changes all the same.

Pinky678 · 05-07-2008, 11:20 PM

The CI user with ASL lady on Vlog. Did you see her on video?? She said will have a CI Education at Gallaudet University.

I know you're coming from in Australia. Are you using Aussie Sign language or American Sign Language? Yeah I am sure CI people will into deaf culture to encourage for everyone to get a CI. If Deaf Adult make a decide to get CI when they are very skill at ASL. I am very good on ASL too. I am still take a CI in future.

Quote:

Originally Posted by R2D2

That's true. But I think that with more people within deaf culture getting CIs this will be less of a factor. We were speaking more of a personal, political decision not to wear a CI. I knew a few people who made a political decision not to wear a hearing aid despite having grown up with them but most people seem to continue wearing them or resume after a break.

If Jillio is correct and CI wearers join the deaf culture in droves as young adults and continue to wear them, it would be interesting to see what kind of changes that might bring about in deaf culture itself in the future.

Pinky678 · 05-09-2008, 04:42 PM

No one answer my question.

Quote:

Originally Posted by Pinky678

(sighing) I am not anti-CI! Why you guys are argue over CI for children?? I do understand that you want children to learn sign language early. Some children want to have CI for reason. But I do not support for parents don't use sign language to communicate with CI children. I can't believe that Vlog show up of children do not use sign language just use a lipreading and writing. Her parents don't use sign languages. What's wrong with children's doctors for not tell parents about sign languages??

I wish you read my thread answer my question. I need to know. Nobody comment it and just view. Just 2 person posts that all. I want more. Please check it out here http://www.alldeaf.com/sign-language...nguage-ci.html

Can you answer my question please?? Thank you!

I am so sad about my cousin isn't allow her son to learn sign languages.

If you guys are complain about hearing parents don't use the sign languages to communicate with ci children. They didn't hear from children doctor's mention about sign language. Why not make a laws for all doctor need to tell parents to learn sign language like a baby sign languages. They need to use a common senses!!! Baby sign languages isn't hard and hurt!

SouthFella · 05-12-2008, 08:41 AM

I would never consider putting a CI implant on my kids and yes I have kids with a hearing loss. I am thankful my kids do very well with heariing aids in the mainsteam school system. And they are in college doing quite well with support services... I know a few people that quit wearing their CI, one had 2 internal implant failures, one is bitter with their parents for putting a CI in as a child... And yes, people should learn to use sign langauge with their children with a hearing loss. With or without a CI.. that child will NEVER EVER hear like a hearing person... And I have a CI myself just a few weeks ago. Now how can a small child tell an audiilogist what sound they are hearing ? too loud. too soft is about all they can say.. I was describing to my audie how the sound was in college words !!! Fortunely, I was in the CI research group back in the
80's. I waited as long as I could for technology to catch up before getting the implant myself. And I am very glad I waited and I am very glad I only had ONE ear implanted..My heariing aid ear can still hear sound fairly well and naturally... So, parent's of deaf children, learn sign langauge and don't live in denial. Your child have a hearing loss , deal with it ..The sonner the better for the both of you...

deafdyke · 05-12-2008, 07:49 PM

Quote:

Now how can a small child tell an audiilogist what sound they are hearing ? too loud. too soft is about all they can say..

South Fella,
GOOD POINT. That is EXACTLY why I think that ambigious cases should wait til they are a little older to be implanted. Yes, implant the kids who REALLY need it. But, again it is very difficult to tell how well a little kid hears.

shel90 · 05-12-2008, 07:53 PM

Quote:

Originally Posted by SouthFella

I would never consider putting a CI implant on my kids and yes I have kids with a hearing loss. I am thankful my kids do very well with heariing aids in the mainsteam school system. And they are in college doing quite well with support services... I know a few people that quit wearing their CI, one had 2 internal implant failures, one is bitter with their parents for putting a CI in as a child... And yes, people should learn to use sign langauge with their children with a hearing loss. With or without a CI.. that child will NEVER EVER hear like a hearing person... And I have a CI myself just a few weeks ago. Now how can a small child tell an audiilogist what sound they are hearing ? too loud. too soft is about all they can say.. I was describing to my audie how the sound was in college words !!! Fortunely, I was in the CI research group back in the
80's. I waited as long as I could for technology to catch up before getting the implant myself. And I am very glad I waited and I am very glad I only had ONE ear implanted..My heariing aid ear can still hear sound fairly well and naturally... So, parent's of deaf children, learn sign langauge and don't live in denial. Your child have a hearing loss , deal with it ..The sonner the better for the both of you...

We need more people like u advocating the use of sign with their kids whether they have implants or not. Yep, there are times I feel like telling some of the parents of our deaf students that they need to stop wishing for the day their kid will hear and talk like hearing children and to pls start learning sign language for their sakes! Parents who are in deep denial for too long hurt their children in the long run.

shel90 · 05-12-2008, 07:54 PM

Quote:

Originally Posted by Pinky678

No one answer my question.

I agree..it is sad that your cousin wont let her son learn sign language. Your cousin is in denial, obviously.

Pinky678 · 05-12-2008, 07:58 PM

Quote:

Originally Posted by shel90

I agree..it is sad that your cousin wont let her son learn sign language. Your cousin is in denial, obviously.

Yeah, I'm heartbroken. I can't do anything with them. They have a big problems. The child have no father. Of course, his mom is very denial!

Boult · 05-12-2008, 09:03 PM

Quote:

Originally Posted by SouthFella

Now how can a small child tell an audiilogist what sound they are hearing ? too loud. too soft is about all they can say..

they don't have to do that... If you have seen all the video of activations on youtube, you will get it.

What Audie can do is use NRT (Cochlear) or NRI (AB) or Impedance and Field Telemetry (Med-EL) to set mapping.

see "Setting a Map"
Fitting the Speech Processor--KidsWorld Deaf Net E-Doc--Gallaudet University's Laurent Clerc National Deaf Education Center

Cochlear Implants — Considerations in Programming for the Pediatric Population Jennifer Mertes, AuD., CCC-A, & Jill Chinnici, M.A., CCC-A, The Listening Center at Johns Hopkins February 2006 Audiology Online

although this can be done on adult, (I did get mine done to compare with my map that was set based on my feedbacks)

loml · 05-12-2008, 09:32 PM

Quote:

Originally Posted by R2D2

That's true. But I think that with more people within deaf culture getting CIs this will be less of a factor. We were speaking more of a personal, political decision not to wear a CI. I knew a few people who made a political decision not to wear a hearing aid despite having grown up with them but most people seem to continue wearing them or resume after a break.

R2D2 - Aren't peer pressure and personal political decisions the same thing?

jillio · 05-12-2008, 09:34 PM

Quote:

Originally Posted by loml

R2D2 - Aren't peer pressure and personal political decisions the same thing?

Uh.........no.

Oceanbreeze · 05-12-2008, 09:36 PM

Quote:

Originally Posted by loml

R2D2 - Aren't peer pressure and personal political decisions the same thing?

Where did you get that idea?

loml · 05-12-2008, 09:40 PM

Quote:

Originally Posted by Oceanbreeze

Where did you get that idea?

Oceanbreeze - The Deaf community is full of politics.

jillio · 05-12-2008, 09:42 PM

Quote:

Originally Posted by loml

Oceanbreeze - The Deaf community is full of politics.

Still doesn't explain how peer pressure and personal political decisions are the same thing.

deafdyke · 05-12-2008, 11:06 PM

Quote:

Yep, there are times I feel like telling some of the parents of our deaf students that they need to stop wishing for the day their kid will hear and talk like hearing children and to pls start learning sign language for their sakes! Parents who are in deep denial for too long hurt their children in the long run.

OMG YES. It does seem that a lot of the parents are still really grieving about their child's disabilty. Then again, this type of thing isn't exclusive to parents of dhh kids. I see parents of wheelchair/walker users wish that their kids could walk, I see parents of blind/low vision kids avoiding things like cane travel, Braille etc. I see kids with mild issues being taught that the only thing important is to function like a non disabled person.
Yes, I understand the grief..........heck it took me YEARS, like until I was a teenager, to come to terms with the fact that I'm hoh,/otherwise different. I understand...........but doing something "differently" isn't that big of a deal.

Oceanbreeze · 05-12-2008, 11:49 PM

Quote:

Originally Posted by deafdyke

OMG YES. It does seem that a lot of the parents are still really grieving about their child's disabilty. Then again, this type of thing isn't exclusive to parents of dhh kids. I see parents of wheelchair/walker users wish that their kids could walk, I see parents of blind/low vision kids avoiding things like cane travel, Braille etc. I see kids with mild issues being taught that the only thing important is to function like a non disabled person.
Yes, I understand the grief..........heck it took me YEARS, like until I was a teenager, to come to terms with the fact that I'm hoh,/otherwise different. I understand...........but doing something "differently" isn't that big of a deal.

Thats true. But, what also is true is that the "experts" put things in parents heads, too. "With this technology, this surgery, this brace, this whatever, your child will walk." So, the parent does whatever is suggested, and it often just screws the kid up.

I can still remember very clearly the day that I came home from school, threw my crutches down and told my Mother I was NOT going to walk anymore with them, and that was that! She wasn't quite ready to appease me, however, and it was another two years before I finally was listened to, and it was "OK" that I didn't use the braces and crutches anymore.

As for me, I knew I was different and I was OK with it. As I grew into a teenager, I became angry and had this atitude that I didn't care what others thought of me, and I didn't. I became a loner and talked myself into the idea that I didn't need anybody. I had sort of a false confidence. It became my protection against all the crap I had been put through. It was years before I actually learned to trust people.

R2D2 · 05-13-2008, 09:42 PM

Quote:

Originally Posted by loml

R2D2 - Aren't peer pressure and personal political decisions the same thing?

No way. Peer pressure is when someone is pressured to do something they don't really want to do in their heart of hearts but they do it because their wanting to be liked and accepted by the crowd is stronger.

A personal political decision is made out of ones conscience and beliefs and is motivated from within.

Oceanbreeze · 05-13-2008, 11:08 PM

Quote:

Originally Posted by R2D2

No way. Peer pressure is when someone is pressured to do something they don't really want to do in their heart of hearts but they do it because their wanting to be liked and accepted by the crowd is stronger.

A personal political decision is made out of ones conscience and beliefs and is motivated from within.

deafdyke · 05-13-2008, 11:22 PM

Quote:

o, the parent does whatever is suggested, and it often just screws the kid up.

Indeed.....so many times the emotional aspect of having a "different" child really isn't adressed.....

05-07-2008, 11:04 PM	#33 (permalink)
Pinky678 Mrs. Pffty! :p Join Date: Apr 2008 Location: Middle of nowhere in Great Lakes Posts: 1,181	(sighing) I am not anti-CI! Why you guys are argue over CI for children?? I do understand that you want children to learn sign language early. Some children want to have CI for reason. But I do not support for parents don't use sign language to communicate with CI children. I can't believe that Vlog show up of children do not use sign language just use a lipreading and writing. Her parents don't use sign languages. What's wrong with children's doctors for not tell parents about sign languages?? I wish you read my thread answer my question. I need to know. Nobody comment it and just view. Just 2 person posts that all. I want more. Please check it out here http://www.alldeaf.com/sign-language...nguage-ci.html Can you answer my question please?? Thank you! I am so sad about my cousin isn't allow her son to learn sign languages. If you guys are complain about hearing parents don't use the sign languages to communicate with ci children. They didn't hear from children doctor's mention about sign language. Why not make a laws for all doctor need to tell parents to learn sign language like a baby sign languages. They need to use a common senses!!! Baby sign languages isn't hard and hurt! __________________ "Your lips are moving but all I hear is blah, blah, blah!" "You can talk but I probably won't listen"

Today
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05-12-2008, 08:41 AM	#37 (permalink)
SouthFella Registered User Join Date: Jun 2004 Location: Colorado Posts: 67	I would never consider putting a CI implant on my kids and yes I have kids with a hearing loss. I am thankful my kids do very well with heariing aids in the mainsteam school system. And they are in college doing quite well with support services... I know a few people that quit wearing their CI, one had 2 internal implant failures, one is bitter with their parents for putting a CI in as a child... And yes, people should learn to use sign langauge with their children with a hearing loss. With or without a CI.. that child will NEVER EVER hear like a hearing person... And I have a CI myself just a few weeks ago. Now how can a small child tell an audiilogist what sound they are hearing ? too loud. too soft is about all they can say.. I was describing to my audie how the sound was in college words !!! Fortunely, I was in the CI research group back in the 80's. I waited as long as I could for technology to catch up before getting the implant myself. And I am very glad I waited and I am very glad I only had ONE ear implanted..My heariing aid ear can still hear sound fairly well and naturally... So, parent's of deaf children, learn sign langauge and don't live in denial. Your child have a hearing loss , deal with it ..The sonner the better for the both of you...