My time has come! - Page 2

Raykat · 04-07-2008, 09:04 PM

Quote:

Originally Posted by SuziMaria

Did you or anyone have the beeping sounds constanly? It's 95% of the time it sounds like beeping. I thought this might be the brain's nerves working. Its' just so LOUD that it's nearly impossible to hear whats going on around me.

I think the beeping may be actual sounds. I have stopped and listened for the beeping and when nothing is happening they stop, only to start up again whenever I do something or someone speaks.

R2D2 · 04-07-2008, 09:05 PM

Quote:

Originally Posted by SuziMaria

Did you or anyone have the beeping sounds constanly? It's 95% of the time it sounds like beeping. I thought this might be the brain's nerves working. Its' just so LOUD that it's nearly impossible to hear whats going on around me.

Yes I got that too and if you read Raykat's she is getting this. However, for me they turned into high pitched voices and then into more natural sounding voices. Sounds horrible doesn't it? LOL!

R2D2 · 04-07-2008, 09:06 PM

Quote:

Originally Posted by Raykat

I think the beeping may be actual sounds. I have stopped and listened for the beeping and when nothing is happening they stop, only to start up again whenever I do something or someone speaks.

Yes that is correct. The brain needs time to be able to interpret the sound more naturally and that will come as the maps improve.

Boult · 04-07-2008, 09:10 PM

Quote:

Originally Posted by R2D2

Yes I got that too and if you read Raykat's she is getting this. However, for me they turned into high pitched voices and then into more natural sounding voices. Sounds horrible doesn't it? LOL!

just wondering what speech strategy are you set to? CIS?
(Cochlear Implant Central - Speech Strategies)

R2D2 · 04-07-2008, 09:54 PM

Quote:

Originally Posted by Boult

just wondering what speech strategy are you set to? CIS?
(Cochlear Implant Central - Speech Strategies)

Well, I started with Hi Ace 2400 but then settled comfortably at Ace 900. With the second CI, I told the Audie to start me at 900 and like that. She thinks that those who were born hearing prefer faster program speeds but I've noticed on CI that there are an awful lot of post linguals who love 900.

I believe with AB it's the other way? People tend to prefer faster programs?

Boult · 04-07-2008, 10:18 PM

Quote:

Originally Posted by R2D2

Well, I started with Hi Ace 2400 but then settled comfortably at Ace 900. With the second CI, I told the Audie to start me at 900 and like that. She thinks that those who were born hearing prefer faster program speeds but I've noticed on CI that there are an awful lot of post linguals who love 900.

I believe with AB it's the other way? People tend to prefer faster programs?

whooops my post was meant for raykat sorry

R2D2 · 04-07-2008, 11:11 PM

Quote:

Originally Posted by Boult

whooops my post was meant for raykat sorry

LOL, no worries.

Raykat · 04-08-2008, 06:14 AM

Quote:

Originally Posted by Boult

whooops my post was meant for raykat sorry

Mmmmmm....technical questions send me scurrying for my folder to check latest mapping. Not sure how to read these things but here goes. So far I have 4 programs, soft, med and loud with a "party" program as I complanined about the sensory overload after a rowdy weekend! I see that under the column marked strategy the audie has put none, so maybe I am not far enough advanced yet to strategise????? I have nucleus freedom set on vol 7 and sens. 10, if thats any help.

Boult · 04-08-2008, 12:08 PM

Quote:

Originally Posted by Raykat

Mmmmmm....technical questions send me scurrying for my folder to check latest mapping. Not sure how to read these things but here goes. So far I have 4 programs, soft, med and loud with a "party" program as I complanined about the sensory overload after a rowdy weekend! I see that under the column marked strategy the audie has put none, so maybe I am not far enough advanced yet to strategise????? I have nucleus freedom set on vol 7 and sens. 10, if thats any help.

I see... okay.. considering you are using Freedom, Cochlear's website only said "SmartSound" Cochlear Americas: Nucleus Freedom with SmartSound

Oh I found this on Cochlear's
Cochlear Australia & NZ: Nucleus® Freedom™ Speech Coding Strategies

I am sure other will agree that beeping is like sequential firing often used in CIS strategy... It would be good to find out what you are on and try other strategy if allowed.

I am not a Cochlear but a AB user though

just wondering

Raykat · 04-08-2008, 03:34 PM

Quote:

Originally Posted by Boult

I see... okay.. considering you are using Freedom, Cochlear's website only said "SmartSound" Cochlear Americas: Nucleus Freedom with SmartSound

Oh I found this on Cochlear's
Cochlear Australia & NZ: Nucleus® Freedom™ Speech Coding Strategies

I am sure other will agree that beeping is like sequential firing often used in CIS strategy... It would be good to find out what you are on and try other strategy if allowed.

I am not a Cochlear but a AB user though

just wondering

Just had a look at the Cochlear Aust site as thats where my CI comes from. I think I will have to start asking more technical questions rather than just going with the flow. Will email a couple of people and see what comes up as you have me worried I may not be getting the best result.

Maybe we better move to my thread rather than hijack Suzie's one here.

R2D2 · 04-08-2008, 06:35 PM

Quote:

Originally Posted by Raykat

Just had a look at the Cochlear Aust site as thats where my CI comes from. I think I will have to start asking more technical questions rather than just going with the flow. Will email a couple of people and see what comes up as you have me worried I may not be getting the best result.

Maybe we better move to my thread rather than hijack Suzie's one here.

I would not worry too much about the strategies - it's likely that as you have the Freedom you'll either be on ACE or Hi Ace. The other speech strategies were used more with older models of CIs.

One bit of technical information I did find useful though was to find out the program speed (ie the refresh rate of the electrical impulses fired to your nerve). I discovered that those who have been born deaf (and actually many post linguals too) do better at slower speeds. I discovered that my audie had me on the highest program speed 2400. So I asked her if I could go down in speed. When I did that, I was very pleased with the difference it made and things sounded a lot more natural.

However, since you have just been activated ask your audie what your program speed is but leave it at that until maybe 12 weeks. Audies seem to take very different approaches. A friend of mine who is also prelingual, was started on a very low program speed and has gradually worked her way up.

SuziMaria · 04-08-2008, 07:00 PM

Im like RayKat, I have no idea where Im set up at. I was just going with the flow too, assuming the audie will take care of me and knows whats best. All this talk will aide me on next visit. NO you are not hijacking threads, Im glad for the discussion.

Boult - I am sure other will agree that beeping is like sequential firing often used in CIS strategy... It would be good to find out what you are on and try other strategy if allowed. This must be my very first thought about the beeping sounds that I hear all the time indicating the brain is dealing with the implant - accepting new equipment taking the place of the damaged middle ear. ? I told the audie that the sounds are awful and beeping or squeaking. I really dont know how to describe the sound.

R2D2 · 04-08-2008, 10:05 PM

Quote:

Originally Posted by SuziMaria

Boult - I am sure other will agree that beeping is like sequential firing often used in CIS strategy... It would be good to find out what you are on and try other strategy if allowed. This must be my very first thought about the beeping sounds that I hear all the time indicating the brain is dealing with the implant - accepting new equipment taking the place of the damaged middle ear. ? I told the audie that the sounds are awful and beeping or squeaking. I really dont know how to describe the sound.

Basically what you are hearing is very high pitched sound compared to what you are used to and that's why it comes out like a beep at this point in time. Hearing aids are not as good generally with picking up high frequencies so it can be quite a change for people used to hearing aids.

And yes, you ar right, the brain is dealing with the new way of hearing. Remember, CI sound is completely artificial but which tries to put together the range of sound frequencies, whereas HA sound is an amplification of your natural hearing, which at profound levels is badly damaged at particular frequencies.

SuziMaria · 04-11-2008, 02:50 PM

I had another mapping visit yesterday. The mechanical rustling settled down some. I had several oral tests and I got every one of them correct. I did fail the random everyday quotes when Audie covered her mouth. The quacking voices settled just a tad bit and voices still not clear. This morning at work - a woman co-worker called me and I didn't hear my name just a voice and I turned around because I saw someone near me and she said "she still can't hear!!" to other employees .. I almost died! How rude!

I was given more homework practice for similar oral testing that I did yesterday. It's about paying attention to words. I did ask about my speech strategies and Audie said I'm on ACE. I wonder how this will help me?

Thank you all for being a part of this journey with me!

Raykat · 04-13-2008, 05:39 PM

Quote:

Originally Posted by SuziMaria

I had another mapping visit yesterday. The mechanical rustling settled down some. I had several oral tests and I got every one of them correct. I did fail the random everyday quotes when Audie covered her mouth. The quacking voices settled just a tad bit and voices still not clear. This morning at work - a woman co-worker called me and I didn't hear my name just a voice and I turned around because I saw someone near me and she said "she still can't hear!!" to other employees .. I almost died! How rude!
I was given more homework practice for similar oral testing that I did yesterday. It's about paying attention to words. I did ask about my speech strategies and Audie said I'm on ACE. I wonder how this will help me?

Thank you all for being a part of this journey with me!

Yes this is whats getting to me too, everyone expects you to pus plugged in, switched on and suddenly have perfectly normal hearing. I feel like making a CD of the instructions to play for dumb idiots!!!!!......I am so sick of explaining over and over that "No I cant hear without lipreading yet, Yes I can hear voices and multiple other noises, No I can use the phone yet" then almost screaming "will you just leave me alone!!!!!"

vallee · 04-13-2008, 05:49 PM

Before I had surgery I wrote out a list of things for my work(school) to know. Number one was I did not have magic surgery, I still have to train myself to learn to hear again. I am thankful everyone was so understanding.

My audie is the best. She has never put me in a situation I am uncomfortable with. I did not get homework, but I did ask so many questions on training. She told me to do what I feel comfortable with.

SuziMaria · 04-14-2008, 08:51 PM

Yeah RayKat - Bummer! Today at work, this same woman was in the back room and the telephone was ringing about at least five times so I called out her name and told her "the phone is ringing!!!"

Vallee, your Audie gave you the best advise!

Anyone gathering anything from the website?
Cochlear Implant Self-Auditory Rehab tools
Any reccomendations?

Today I heard the first sentence since implant without lip-reading and not expecting. A co-worker asked me "What time do you get off work today?" and I was looking at my shoes but I heard it. Maybe because she has asked me this question in the past?
What is the audiologist's wording term to explain not expecting?

Raykat · 04-15-2008, 03:54 PM

Quote:

Originally Posted by SuziMaria

Yeah RayKat - Bummer! Today at work, this same woman was in the back room and the telephone was ringing about at least five times so I called out her name and told her "the phone is ringing!!!"

Vallee, your Audie gave you the best advise!

Anyone gathering anything from the website?
Cochlear Implant Self-Auditory Rehab tools
Any reccomendations?

Today I heard the first sentence since implant without lip-reading and not expecting. A co-worker asked me "What time do you get off work today?" and I was looking at my shoes but I heard it. Maybe because she has asked me this question in the past?
What is the audiologist's wording term to explain not expecting?

Have just looked at the Coclear site and very interested in trying the online rehab as I live alone so feel I am missing out on conversation. When I am out it is mostly with a crowd and no way can I pick up anythign but babble just yet with everyone yakking at same time.
Has anyone used this service yet and what thoughts on it????

deafskeptic · 04-15-2008, 04:01 PM

Quote:

Originally Posted by Raykat

Yes this is whats getting to me too, everyone expects you to pus plugged in, switched on and suddenly have perfectly normal hearing. I feel like making a CD of the instructions to play for dumb idiots!!!!!......I am so sick of explaining over and over that "No I cant hear without lipreading yet, Yes I can hear voices and multiple other noises, No I can use the phone yet" then almost screaming "will you just leave me alone!!!!!"

Ha, ha. One hearing guy expected me to instantly understand songs on the radio as soon as I got activated. I get uncomfortable when people tell my CI is a miracle.. it's like they expect me to hear normally.

SuziMaria · 04-17-2008, 06:45 AM

It happened again! Getting out of my car yesterday, my CI grabbed onto the inside of the car door frame at the top of the window!

Going for another mapping today. I hope this adjustment makes voices sound more clear and human. All sounds of things surrounded me are clear except voices and music. If I can just get better with this part of it, I"ll be fine.

jag · 04-17-2008, 09:31 AM

Quote:

Originally Posted by SuziMaria

It happened again! Getting out of my car yesterday, my CI grabbed onto the inside of the car door frame at the top of the window!

Going for another mapping today. I hope this adjustment makes voices sound more clear and human. All sounds of things surrounded me are clear except voices and music. If I can just get better with this part of it, I"ll be fine.

Processing speeds do seem to help one hear better. on my 2nd mapping I was given 3 maps with different processing speeds so I could listen with both and choose two that I felt were best. Next mapping I was given those 2 plus another if I really didn't like either of those. I went from 1200 to I think it's actually set at 500 now.

I guess I thought that that was the way the first few maps went for everyone...after reading responses here I guess I was wrong. Tho I do know on another list some found results much better after lowering processing speeds.

Good luck with your new mapping. Hope you find something that helps you hear even more.

Raykat · 04-17-2008, 10:25 PM

Quote:

04-08-2008, 07:00 PM	#42 (permalink)
SuziMaria Registered User Join Date: Feb 2007 Location: Florida, USA Posts: 345	Im like RayKat, I have no idea where Im set up at. I was just going with the flow too, assuming the audie will take care of me and knows whats best. All this talk will aide me on next visit. NO you are not hijacking threads, Im glad for the discussion. Boult - I am sure other will agree that beeping is like sequential firing often used in CIS strategy... It would be good to find out what you are on and try other strategy if allowed. This must be my very first thought about the beeping sounds that I hear all the time indicating the brain is dealing with the implant - accepting new equipment taking the place of the damaged middle ear. ? I told the audie that the sounds are awful and beeping or squeaking. I really dont know how to describe the sound. __________________ Implanted: 3/18/08 with Nucleus Freedom Implant Activated: 4/03/08

04-11-2008, 02:50 PM	#44 (permalink)
SuziMaria Registered User Join Date: Feb 2007 Location: Florida, USA Posts: 345	Another mapping visit .... I had another mapping visit yesterday. The mechanical rustling settled down some. I had several oral tests and I got every one of them correct. I did fail the random everyday quotes when Audie covered her mouth. The quacking voices settled just a tad bit and voices still not clear. This morning at work - a woman co-worker called me and I didn't hear my name just a voice and I turned around because I saw someone near me and she said "she still can't hear!!" to other employees .. I almost died! How rude! I was given more homework practice for similar oral testing that I did yesterday. It's about paying attention to words. I did ask about my speech strategies and Audie said I'm on ACE. I wonder how this will help me? Thank you all for being a part of this journey with me! __________________ Implanted: 3/18/08 with Nucleus Freedom Implant Activated: 4/03/08

04-13-2008, 05:49 PM	#46 (permalink)
vallee Registered User Join Date: Aug 2007 Location: Tennessee Posts: 894	Before I had surgery I wrote out a list of things for my work(school) to know. Number one was I did not have magic surgery, I still have to train myself to learn to hear again. I am thankful everyone was so understanding. My audie is the best. She has never put me in a situation I am uncomfortable with. I did not get homework, but I did ask so many questions on training. She told me to do what I feel comfortable with. __________________ Right and Left Implanted July 19, 2007 Activated August 9, 2007 Both Advanced Bionics Harmony http://talesfromacigal.blogspot.com/

04-14-2008, 08:51 PM	#47 (permalink)
SuziMaria Registered User Join Date: Feb 2007 Location: Florida, USA Posts: 345	Yeah RayKat - Bummer! Today at work, this same woman was in the back room and the telephone was ringing about at least five times so I called out her name and told her "the phone is ringing!!!" Vallee, your Audie gave you the best advise! Anyone gathering anything from the website? Cochlear Implant Self-Auditory Rehab tools Any reccomendations? Today I heard the first sentence since implant without lip-reading and not expecting. A co-worker asked me "What time do you get off work today?" and I was looking at my shoes but I heard it. Maybe because she has asked me this question in the past? What is the audiologist's wording term to explain not expecting? __________________ Implanted: 3/18/08 with Nucleus Freedom Implant Activated: 4/03/08 Last edited by SuziMaria; 04-14-2008 at 08:54 PM. Reason: forgot something

04-17-2008, 06:45 AM	#50 (permalink)
SuziMaria Registered User Join Date: Feb 2007 Location: Florida, USA Posts: 345	It happened again! Getting out of my car yesterday, my CI grabbed onto the inside of the car door frame at the top of the window! Going for another mapping today. I hope this adjustment makes voices sound more clear and human. All sounds of things surrounded me are clear except voices and music. If I can just get better with this part of it, I"ll be fine. __________________ Implanted: 3/18/08 with Nucleus Freedom Implant Activated: 4/03/08

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