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Old 09-20-2007, 10:33 AM   #31 (permalink)
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Contradica, you forgot to change your signature "implanted some date and activation date is sept 17th" into activated sept 17th 2007 lol
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Old 09-21-2007, 01:32 AM   #32 (permalink)
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Originally Posted by contradica View Post
Hi R2D2!!
You are a genius!! Perfect description! You have described the funny tinkling soft beepy sound perfectly!!
LOL! Don't forget that right now, we have very basic, crude maps. The goal at this stage is to get used to sound and build up tolerance.

Quote:
Right now I am listening to Randall's ESL Cyber Listening Lab - For ESL/EFL Students website for some practice and every time a word is spoken I get the tinkling beepy sound. It is so weird. I am finding that when someone talks or even when I talk, it is very loud.
Yes, it's normal for things to sound loud, it basically shows that our brains have got used to hearing quieter sounds and actually the loudness is what is closer to "normal". So it's an adjustment process for sure.

Quote:
I'm going to ask my audi to increase the dynamic range next week, she has it set at 60, and see if that will remove the static.
Yes, but first of all you have to get used to the loudness first. Increasing the dynamic range (distance between comfort and threshold levels) when you aren't ready can potentially be damaging. As a matter of fact, I got a lecture from my audie on never to mix up my two speech processors, because if I do it could cause a reaction that would be hard to unravel. I can tell from the LED display which one is for the left ear and which one is for the right one but my audie also put a red sticker on the new implant to make double sure I don't mix them up. But you get the drift.

So the best thing I reckon you can do is to expose yourself to normal sounds to build up that tolerance so that you can move toward increasing the range. Read along with text to audio voices but I would suggest not listening to talk back radio or other audio without a script at this stage. It's too early days and you'll find it discouraging if you find you can't understand anything.

Quote:
Have you tried listening to talk radio yet at all?
No, it's too early. I did listen to a child's audio book yesterday "Yoyo goes to the farm" and followed it really well, but without the book, I'd be lost. However, I did also put on a classical music CD and listened to it with both CIs on and it really sounded lovely. I could really pick out different pitches and instruments. This is the best that music has ever sounded to me.

I'm going to a music gala concert tonight put on by the school where I work and I'm not sure how I'll go! I will sit maybe from the middle to the back, not at the front LOL! And if it gets a bit much I'll go outside for a breather.

I hope I haven't come across like a lecturing know it all!! I just learned from last time that baby steps is the way to go. You'll have days when you feel frustrated in the first few months, I kept a journal last time around and it's amazing how up and down my emotions went until one day I just really fell in love with my CI and didn't look back.

Not long til our second mapping!!
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Old 09-21-2007, 01:41 PM   #33 (permalink)
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Originally Posted by R2D2 View Post
LOL! Don't forget that right now, we have very basic, crude maps. The goal at this stage is to get used to sound and build up tolerance.
Now I am beginning to understand what the meaning of going soft is. I have three programs that I had to use for 2 days before going to the next one. I have maxed out the volume on all of them. The audi is going to ask me which one I like and I'm not quite sure how to do decide between the really soft one, or the one with all the tinkling when someone talks, or the one with the fast tinkling. Its a dilemma The loudness of when someone talks is not as jolting as it was before so that is progress.


Quote:
Yes, but first of all you have to get used to the loudness first. Increasing the dynamic range (distance between comfort and threshold levels) when you aren't ready can potentially be damaging. As a matter of fact, I got a lecture from my audie on never to mix up my two speech processors, because if I do it could cause a reaction that would be hard to unravel. I can tell from the LED display which one is for the left ear and which one is for the right one but my audie also put a red sticker on the new implant to make double sure I don't mix them up. But you get the drift.
That makes perfect sense. It would be like a shock that the nerve could not recover from, right?

Quote:
No, it's too early. I did listen to a child's audio book yesterday "Yoyo goes to the farm" and followed it really well, but without the book, I'd be lost. However, I did also put on a classical music CD and listened to it with both CIs on and it really sounded lovely. I could really pick out different pitches and instruments. This is the best that music has ever sounded to me.

I'm going to a music gala concert tonight put on by the school where I work and I'm not sure how I'll go! I will sit maybe from the middle to the back, not at the front LOL! And if it gets a bit much I'll go outside for a breather.
I am completely lost with books on tape. I've been listening to little things on the web to pass time at work. Earlier in the week, all voices sounded the same. Now I am able to tell when a man and a woman is talking. It is so cool It sounds like they are on a CB radio. I gotta ask you though since you said your part time job is in finance, does your adding machine tinkle too?

Quote:
I hope I haven't come across like a lecturing know it all!! I just learned from last time that baby steps is the way to go. You'll have days when you feel frustrated in the first few months, I kept a journal last time around and it's amazing how up and down my emotions went until one day I just really fell in love with my CI and didn't look back.

Not long til our second mapping!!
Not at all!! I need to hear all the explanations behind these little itty bitty baby steps Your expertise is greatly needed here. I'm a dodo bird when it comes to the whole schematics of mapping

I'm keeping a journal too! I have written down what I can hear and what I can't hear. I'm doing a pretty good job with not using my hearing aid. I haven't used it except for a few minutes.

So far I can hear:
Paper, plastic bags, paper bags, money, Motorcycle, blinker sounds, keyboard, mouse clicking, car alarm going off, heels, definite sound of when someone is talking and I can tell whether its a male or female, road noises, my cell phone, zippers, sounds off the TV, paper shredder, microwave going off, my dog barking

What I know I can't hear:
Helicopters and fire trucks LOL! I can't hear the phones ring at work.

All in all, it has been a productive week. I have heard things that I haven't heard out of this ear in 15 years.

What time is your mapping appointment? Mine is at 3:30 again!
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Old 09-24-2007, 12:11 AM   #34 (permalink)
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Hi Contradica,

I'm back from my map and a little bit of shopping too I must admit, since the weather has warmed up a fair bit and I needed some more work clothes.

I'm happy. We have increased the comfort and decreased the threshold levels a little bit both ways. The audie was happy too, she said that we've made good progress in one week.

By the way, over the weekend in my older CI ear, I started to feel flashes of pain everytime there was a high frequency sound. So I turned the volume down temporarily, knowing that I was going to see the audie in a day or two. Anyway when I told her my problem, we closed down one electrode and the problem is now solved. She said it doesn't really matter if you have to close electrodes because the others interplay to compensate for that lost pitch. I cannot notice any difference in the sound. We even bumped up the volume again above my original volume for good measure as my new ear seems to want to dominate.

My next appointment is in 3 weeks as audie is going on holidays. That suits me just fine.

How have you gone in the past few days? I looked at your list and you are hearing a great range of sounds for just one week! Have you managed to coordinate a helicopter to land over you again?? It's great that you are hearing stuff now that you haven't heard for so long. No wonder your brain is going "what the heck is going on??"
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Old 09-24-2007, 01:36 AM   #35 (permalink)
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Contradica, I forgot to ask... how is your tinnitus going?
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Old 09-24-2007, 01:47 AM   #36 (permalink)
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Just wanted to butt in and extend you best wishes on this journey, C.
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Old 09-24-2007, 11:35 AM   #37 (permalink)
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Shopping is always a well deserved treat R2D2 I have to admit though trying on clothes requires some finesse without knocking the magnet off.

How much higher is your comfort levels now with the new CI? Did the tinkling or dinky sounds resolve yet? That good that just one electrode was turned off to stop the pain. How have you been getting along in stereo?

Quote:
How have you gone in the past few days? I looked at your list and you are hearing a great range of sounds for just one week! Have you managed to coordinate a helicopter to land over you again?? It's great that you are hearing stuff now that you haven't heard for so long. No wonder your brain is going "what the heck is going on??"
I am doing pretty good I think. These baby steps suck Since you worn hearing aids, will this sound start to sound more like my hearing aid and not so robotic in time? I still can't make heads or tails or any speech. I had my mom cover her mouth and talk to me and I guess totally off.

"What book do you want me to read?" she said
"You want me to have a vasectomy?" I said.

I haven't been able to get a helicopter over me yet. I am leaving work in 2 hours to drive out to Philly for my mapping appointment. Maybe just maybe there will be another trauma helicopter landing but I rather have a news helicopter instead of trauma.

I have more in my blog which I will just copy and paste

Quote:
I heard the crunch of the asparagus! Who knew they were noisy little botanical vegetables?

This weekend was the first weekend that I was truly bionic. I cannot say I did much because I was trying to acclimate myself to this nonsense noise. When I least expected it I heard things. I discovered places like Costco and Kohl's are noisy. Restaurants with football games on are rowdy. I was a good 50 feet away when I heard this guy yell something footballish.

I went to Pathmark to pick up a few things and I was debating on what kind of frozen corn I should purchase, white or yellow. All of the sudden I heard a man talking which I felt like it was RIGHT next to me. I looked to my left and there was no one there of the male gender. I looked to my right and sure enough, there was a man, a nice looking one at that, talking to his son with the freezer door open about 25 feet away from me. Mind you, I didn’t make out a word he said, just the fact that I heard him was enough for Harmony to get a nice little pat on the magnet.

A similar occurrence happened again when I went to the Halloween store. I was talking to my sick as a dog friend who was helping me brainstorm on what godforsaken costume I should be for Halloween. After trying on six costumes and I was happy with not a one, we decided to roam around. Mind you changing through that many costumes tends to knock a magnet off. We are roaming around looking at all the different decorations, and this man comes around the corner and he is about ten feet away. I heard him as if he was standing right next to me. In all the excitement, I proclaimed to my friend that I heard him and she coughed back, “I can’t”, and she is hearing. I seem to be picking up men, well their voices at least.

At let me see, what else? Ah yes, the desert episode! My mother and I were each having a single serving each of fat free chocolate pudding. My mother was practically digging a hole to china at the bottom of the plastic cup trying to get every bit of it that I heard clear as a bell. It was almost normal.

When the faucet unleashes the fury of water down the drain, I can hear it. It has gotten much louder and pronounced since my activation.

I have started to listen to Harry Potter and the Sorcerers Stone. I can follow along as long as I have the book, otherwise I would be lost.
Now I have a daunting task of trying to figure out which program I like the best.

Program one seems very soft with the volume maxed out.

Program two I can have the volume up all the way but it comes with a lot of static.

Program three I can have the volume up all the way and the static is not so bad. The tinkling is noticeable on this one. Music sounds better on this one too.

I don't know which one to pick because they all sound SO similar except for little variations here and there.

I will post again when I get home from the mapping session. Wish me luck here!!
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Old 09-24-2007, 11:39 AM   #38 (permalink)
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Contradica, I forgot to ask... how is your tinnitus going?
I have tinnitus but it is not nearly as loud or noticeable as it was before. It has a different pitch then what I am use too. If have both the CI and the hearing aid on at the same time it disappears. Its weird, some sounds sound like they are coming out of my nonimplanted ear when I have my hearing aid turned off. Does that make sense?
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Old 09-24-2007, 02:44 PM   #39 (permalink)
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hey ya all. I got activated last friday and I'm happy to report that everything is doing pretty well. Abbie, I know exactly what you are talking about when you said everything sounds so different. When I first hear my audiologist speak, she sounded like she was speaking throught a thin pipe.
I think we have the same implant and same processor so maybe that's why the sound we hear are similar.

With my new CI everything sounds so "crispy". I can definitely hear more crispy sounds like typing, keys juggling, car blinkers, water. I can't really understand anything that people are saying and I am also having trouble hearing cars and heavy construction equipments and trains going by near my house. But smaller sounds like mouse clicks and breathing are very notiable. I heard for the first time that a dog panting last night. I can also hear my blackberry going off when i set it on vibrate and also hear the clicks of the weels when I use it.

I have my second mapping on Wednesday. Hopefully I'll be able to hear more with the new map..

Oh by the way. Abbie, do you have trouble with the t-mic keep falling off from your processor? I notice that the t-mic is really fragile as it keep disconnects from my processor.
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Old 09-24-2007, 03:51 PM   #40 (permalink)
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this is just a fun thread to read. too bad I have to wait a while before getting my CI, as I'm still needing insurance.
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Old 09-25-2007, 10:06 AM   #41 (permalink)
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hey ya all. I got activated last friday and I'm happy to report that everything is doing pretty well. Abbie, I know exactly what you are talking about when you said everything sounds so different. When I first hear my audiologist speak, she sounded like she was speaking throught a thin pipe.
I think we have the same implant and same processor so maybe that's why the sound we hear are similar.

With my new CI everything sounds so "crispy". I can definitely hear more crispy sounds like typing, keys juggling, car blinkers, water. I can't really understand anything that people are saying and I am also having trouble hearing cars and heavy construction equipments and trains going by near my house. But smaller sounds like mouse clicks and breathing are very notiable. I heard for the first time that a dog panting last night. I can also hear my blackberry going off when i set it on vibrate and also hear the clicks of the weels when I use it.

I have my second mapping on Wednesday. Hopefully I'll be able to hear more with the new map..

Oh by the way. Abbie, do you have trouble with the t-mic keep falling off from your processor? I notice that the t-mic is really fragile as it keep disconnects from my processor.
Just wait until your second mapping Kalboy, the static sound of cars and trucks going by will start to sound like cars and trucks. The first week was just robotic. My second mapping made things sound so much better, not perfect but I am picking up more things. I just played a guessing game of numbers online and I got 9 out of 10 right.

I don't have a problem with my T-mic falling off. When you put it on sideways there should be a slight snap sound and then you rotate up. It stays on pretty good. Also, there should be a little orange ring on your processor, where you slip the T-Mic on, it serves as a washer to prevent slipping. I wonder if you are missing it. If you are, then contact your Audi to say that you are missing it off your processor. Perhaps switch to your back up in the meantime.

Do you have any details of your mapping?
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Old 09-25-2007, 01:01 PM   #42 (permalink)
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Haha, Contradicta, about the asparagus. Now you will be able to pick out which is fresh amongst the wimpies. Lol...
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Old 09-25-2007, 02:06 PM   #43 (permalink)
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Just wait until your second mapping Kalboy, the static sound of cars and trucks going by will start to sound like cars and trucks. The first week was just robotic. My second mapping made things sound so much better, not perfect but I am picking up more things. I just played a guessing game of numbers online and I got 9 out of 10 right.

I don't have a problem with my T-mic falling off. When you put it on sideways there should be a slight snap sound and then you rotate up. It stays on pretty good. Also, there should be a little orange ring on your processor, where you slip the T-Mic on, it serves as a washer to prevent slipping. I wonder if you are missing it. If you are, then contact your Audi to say that you are missing it off your processor. Perhaps switch to your back up in the meantime.

Do you have any details of your mapping?
Thanks Abbie. I totally didn't realize I'm supposed to put the tmic on the side ways and then twist it into position. I don't have much detail about my mapping but my second appointment is tomorrow. I can't wait! =)
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Old 09-25-2007, 04:54 PM   #44 (permalink)
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Abbie great to hear the mapping made such a great improvement.
My t-mic simply, or any ear piece snaps in place straight up and down then give it a tug to be sure it is locked in. to remove, rotate to about 90 and should pop off. Did have a problem once, I tend to twist it when I put the processor on, to clear my ear and the twist it back once it is on, forgot to twist it back, and the t-mic did pop off.

If you hear it click, isn't that great?
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Old 09-25-2007, 06:05 PM   #45 (permalink)
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Second mapping :)

I have arrived with the juicy technical specifications of my second mapping! Jennifer my audi was impressed in the range that I was hearing. I took the advice of experienced cochlear implanter's and kept a written journal of what I can/cannot hear.

My volumes levels have increased from 157 to 282 across all electrodes. Right off the top of my head, this is a 55% increase in volume.

My base program is HiRes-P with Fidelity 120, IDR of 60 with extended lows and a gain in high frequency. My audio mix is 50/50 Mic/Aux.

My noise program is HiRes-P with Fidelity 120, IDR of 45 with an audio mix of 50/50 Mic/Aux.

My music program is HiRes-P with Fidelity 120, IDR of 80 with an audio mix of 30/70 Mic/Aux.

My battery life is impressive. I slap the magnet on around 7:30am and take it off around 10:30-11:00pm. The next day with the same battery, it last about 4:30pm. That is roughly 24 hours.

Lucky me, I am the first one that has reported this particular type of problem. Apparently when certain high frequency sounds occur, my processor cuts off for a few seconds. I noticed that when my work phone rings (ringer is set at high) it cuts my processor off. I put the volume of the ringer to low and it resolved the issue. I have to keep an ear out (literally) on what sounds causes it to cut out.

I had some pretty cool moments today. Try this one on for size. Today was a beautiful Tuesday afternoon at my sunny little cubicle. The sun was shining brightly with a gentle breeze blowing through the windows. All of the sudden, I heard a strange whirring sound. I focused for a couple second before I gave up and asked the boss what the sound was. Do you know what she said? A HELICOPTER!! I jumped up and practically turned upside down trying to find the helicopter. If I had Spiderman tricks up my sleeve, I would have been. Just a week ago, I had one fifty feet right on top of me and I could not hear it. I must have been grinning like a mule eating briars the rest of the day.

Shortly after that, I heard an alarm bell of some sort. One of my coworkers said that it was the fire alarm. I accepted that answer for about 30 seconds. Then it sounded like it was a fire department siren. I proceeded to drill the poor child by asking her if it was a fire truck or the fire department siren.

“Fire department.” She says.

Now last week, I could not even hear a fire truck with sirens on right in front of me. Damn Skippy, I’m on a roll!

Shortly after that (they comes in three’s) I was gathering my things to high tail it out of work when I heard this, beep, beep, beep. I recognized it straight away. It was a truck going in reverse, so I heard the back up beeping.

That was my afternoon! I am so happy that I was twitting my thumbs at a greyhound speed. Now there is a little matter of this morning moments. I heard this loud static rumbling sound. I turned to look outside and I did not see anything. Shortly afterwards, a garbage truck came up to empty the dumpster. Ta-dah!

I was doing some practice with numbers online this morning. This particular practice is a multiple choice of numbers. You play the sound file and then pick your choice. I had to play the sound several times to make sure. I got 9 out of 10 correct!

On the way to work this morning, I noticed that music was coming in a little better. Nowhere near perfect but I noticed that some parts of the song are coming in clearer. On top of that, I can hear the radio at work. I can distinguish whether it is a commercial with a male or female DJ or a song.

Voices are starting to sound different to me, as if their real voice is starting to poke through,. There is your proof that my neurons are firing all over the place trying to make sense of this organized chaos that is being sent to them.

I am so happy I can do the cabbage patch dance.
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Old 09-25-2007, 06:13 PM   #46 (permalink)
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Thanks Abbie. I totally didn't realize I'm supposed to put the tmic on the side ways and then twist it into position. I don't have much detail about my mapping but my second appointment is tomorrow. I can't wait! =)
I discovered the trick when I changed from my direct connect and I noticed it didn't have a tight lock on it. So I put it on sideways and then rotated it up and it seemed to do the trick! I'm glad that problem is solved! I'm going to be on pins and needles waiting for your update. This second mapping was a dire improvement. I was but now i'm

I'm having way too much fun with these smilies here.
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Old 09-25-2007, 06:14 PM   #47 (permalink)
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Haha, Contradicta, about the asparagus. Now you will be able to pick out which is fresh amongst the wimpies. Lol...
Tousi, like my grandmother always said, quality not quantity
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Old 09-26-2007, 01:35 AM   #48 (permalink)
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What a great report Contradica! I could sort of tell that you were sort of before the new map (you just sounded so "uhm this is interesting!") but having been there I was sure that it would get better for you. You'll find that with every change it just sounds better and more natural. So glad you heard the helicopter again and even better that it was a bit further away.

I hope they can resolve the problem with the processor cutting off when there are high frequency sounds. Is the audie going to research it?

I tried listening to another childrens' audio book last night with just the new CI switched on. I had used the same CD with the first implant. I found that I could hear the talking pretty well so I decided to close the book and follow it by myself without the words. I was able to get most of the words of all three stories. Now, I'm pretty familiar with the stories so that must have helped.

I'm getting about 2.5 - 3 days battery life from each processor (3 batteries changed in one session). I really notice now how frequently I'm changing the batteries with two processors! I bulk buy mine with a friend who also has 2 CIs.

I've just called the insurance broker to arrange for damage, theft and loss coverage for the extra speech processor.

Sorry too much detail! LOL!
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Old 09-26-2007, 01:36 AM   #49 (permalink)
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Originally Posted by kalboy View Post
Thanks Abbie. I totally didn't realize I'm supposed to put the tmic on the side ways and then twist it into position. I don't have much detail about my mapping but my second appointment is tomorrow. I can't wait! =)
Good luck!
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Left ear implanted 9th June 2006 Activated 29th June 2006
Right ear implanted 31st August 2007 Activated 18th September Both Nucleus Freedom


Cochlear implant myths
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Old 09-26-2007, 03:39 AM   #50 (permalink)
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Contradicta,

A bit late, baut congrats on your hookup.
SOme journey you are making!

Enjoy!
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Old 09-26-2007, 06:05 PM   #51 (permalink)
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I'm back from my second mapping. With a difference! I am now hearing sooo much better. On my way back to my office I stopped by at taco bell to get my lunch. I can hear clearly everything the counter girl was asking me. It was 10 times better than my hearing aids. I can't wait for my next mapping session (a month from now).
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Old 09-26-2007, 09:06 PM   #52 (permalink)