CI on 6 year old.

beetarehoh

beetarehoh

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I just talked to this man yesterday who is in the 60's adopted a forgien child that is profoundly deaf. He mentioned when his adopted son had CI surgery at age 4 it didnt go well, infection grew so had to remove CI to cure the infection. Doctor use the same CI equipment to the left side of the child's head. That went well. Then when the infection cured on the right side, doctor replanted the new CI back in, infection grew back again so removed again. Now the child is age 6 and his whole right side of face is paralized. That means there was a nerve damage caused by the surgery. It came to my mind: The boy have to deal with the paralized face for the rest of his life. His father said "Well at least he still have hands and feet." With a big smile on his face, acting like there is no problems. He said "In June when my adopted son's infection go away he will go back and still have the surgery on the head so he can have TWO CIs.

At first I wanted to punch his face, but no it is HIS son not mine. :rl:

Oh and He works as an intermittent at a state deaf school.

This is VERY devastating for me. I CANT even imagine how much pain this child is going through and will face in the future.


beetarehoh
 
Nope that is not good. I have one friend who got infected by CI, and had removed the CI from her ear, and she told me that her doctor told her she can't get another CI because it will make worse.

Yes I want to punch his face for sure if I were you.
 
what is wrong with this dr. to keep doing this? makes you wonder when $60,000 is in play per surgery!
 
rick48 said:
Sorry, but I do not believe your story.
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That is totally up to you. I am truthfully telling everybody this IS happening. I knew the father for two years, he does not sign and he wears hearing aides himself.

And plus if I were to lie then I'd LOOK stupid!!! I cherish my reputation.

beetarehoh
 
DeafMonkey said:
Did he put adopted son CI again again again again ? sound isnt good idea :(
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It happend twice. Will be the third time this June. He will go to OSHU this time because the first time he went to Kiaser Permenente.

beetarehoh
 
rick48 said:
Sorry, but I do not believe your story.
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Why?????? Hey, I have seen it happen..like I explained ..I know of a boy whose CI wiring inside was crossed which required him to get emergency surgery and yet, the parents re-implanted him with a more current CI. How do u justify that?
 
beetarehoh said:
It happend twice. Will be the third time this June. He will go to OSHU this time because the first time he went to Kiaser Permenente.

beetarehoh
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Oh twice ??? will be 3rd time? that is no good .. poor little boy 6 yrs old I bet he will frustard (sp) about it remove it then put it back then remove it then put it back I am sure he will not very happy with it :(
 
DeafMonkey said:
Oh twice ??? will be 3rd time? that is no good .. poor little boy 6 yrs old I bet he will frustard (sp) about it remove it then put it back then remove it then put it back I am sure he will not very happy with it :(
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Yeah and with paralized face too.

beetarehoh
 
rick48 said:
Sorry, but I do not believe your story.
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Why?

beetarehoh has no reason to make up her/his story. I was not surprised after read beetarehoh´s post. It´s the same experience, I withnessed few of many CI children here in Germany. I shared many posts about CI issues what I withnessed and experience from collect CI users and the parents of CI children in the past.

I am total surprised as I visited websites about CI issues... All what I saw is JUST full positive about CI issues. I will never beleive that there´re 100% postive and 0 negative about CI issues because I have seen negative a lot. It´s sad that the doctors put negatives behind and give postive about CI issues to brainwash the parents. It´s sad that the parents are on doctor´s side against CI users or the people who experienced CI users and the parents of CI children.

I find good that the parents are open minded and look both sides between doctors and CI users before they make their decision.

Yes I have seen the children who get re-implant with CI.
 
shel90 said:
Why?????? Hey, I have seen it happen..like I explained ..I know of a boy whose CI wiring inside was crossed which required him to get emergency surgery and yet, the parents re-implanted him with a more current CI. How do u justify that?
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Hmmm, let's see. Implant on right side causes infection, so they take it out and then use it on the left side. Infection heals, put new implant in, infection comes back, take implant out, infection heals, put implant back in. That is a lot different from your story of a child who had to have an implant removed due to failure and then was re-implanted with a newer version.

Justify? Justify what? I am neither so presumptuous or all-knowing to think that I possess all the facts and knowledge that other parents possess in making their decisions. I do not sit and pass judgment on what other parents do for their children. I may or may not agree with their decisions, but it is not my place to pass judgment on them. As a parent who has faced the re-implantation issue, I can understand some of the emotions and issues they faced. You have not.

So no, I will pass on justifying or condemning the actions of others, there's enough people on this board who relish in doing that.

BTW my daughter was re-implanted also with a more current version of the ci.

P.S. I remember those who rushed to defend the validity of the "ci causing the death of children by electrocution" story were remarkably silent when it was exposed as a cruel hoax.
 
If anyone out there has been re-implanted or has had a child or spouse re-implanted, did they use the same implant on the other ear or put it back into the same ear?

I have never heard of such a thing happening but would like to know if it does.
Thanks,
Rick
 
Damn, I feel so sorry for this little boy having to go through all of the pain and suffering.... :( and this is the second time that this little boy has been implanted and going for the third one this June? that is soo awful, and soo cruel...What kind of parents will put a child through all of this?....I suppose they willing to do anything just to make their deaf child hear again, *sigh* those kind of parents shouldn't bother having any deaf children at all period..
 
Angel said:
Damn, I feel so sorry for this little boy having to go through all of the pain and suffering.... :( and this is the second time that this little boy has been implanted and going for the third one this June? that is soo awful, and soo cruel...What kind of parents will put a child through all of this?....I suppose they willing to do anything just to make their deaf child hear again, *sigh* those kind of parents shouldn't bother having any deaf children at all period..
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Right, and the sad part is I see him everyday at work.

beetarehoh
 
rick48 said:
Hmmm, let's see. Implant on right side causes infection, so they take it out and then use it on the left side. Infection heals, put new implant in, infection comes back, take implant out, infection heals, put implant back in. That is a lot different from your story of a child who had to have an implant removed due to failure and then was re-implanted with a newer version.

Justify? Justify what? I am neither so presumptuous or all-knowing to think that I possess all the facts and knowledge that other parents possess in making their decisions. I do not sit and pass judgment on what other parents do for their children. I may or may not agree with their decisions, but it is not my place to pass judgment on them. As a parent who has faced the re-implantation issue, I can understand some of the emotions and issues they faced. You have not.

So no, I will pass on justifying or condemning the actions of others, there's enough people on this board who relish in doing that.

BTW my daughter was re-implanted also with a more current version of the ci.

P.S. I remember those who rushed to defend the validity of the "ci causing the death of children by electrocution" story were remarkably silent when it was exposed as a cruel hoax.
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Rick48

You are right mine is a different story than shel80 and I would not have put in the post if it didnt happen. And I make sure I GOT this clarification from the father because I repeatly asked him about the reimplants. I will let you know in June of what happens to the boy. Oh right you dont believe me, I will post in the future in new thread of the boy with resurgery in June.
 
beetarehoh said:
Rick48

You are right mine is a different story than shel80 and I would not have put in the post if it didnt happen. And I make sure I GOT this clarification from the father because I repeatly asked him about the reimplants. I will let you know in June of what happens to the boy. Oh right you dont believe me, I will post in the future in new thread of the boy with resurgery in June.
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Fair enough and I will check it out as well (not your story obviously) and if I am wrong, I will let you know.
 
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