A deaf girl aged 7 dies by cochlear implant. - Page 8

lovezebras · 12-12-2011, 09:59 AM

Quote:

Originally Posted by Bon

Are you sure about this? How do you know? I asked a Dr. and he told me the chances were LESS.

anytime you've contracted something your chances of contracting "it" again are higher...not lower

i'm in nursing btw

CSign · 12-12-2011, 11:15 AM

Quote:

Originally Posted by AliciaM

anytime you've contracted something your chances of contracting "it" again are higher...not lower

i'm in nursing btw

With the exception of Chicken Pox?

Babyblue · 12-12-2011, 11:31 AM

Quote:

Medical conditions that increase the risk of meningitis include:

Poor overall health. People who are in poor health or have other medical conditions may be more likely to get meningitis because their bodies' natural defenses may be weak. For example, children who have sickle cell disease or cancer are at higher risk than other children.
Having a birth defect of the skull, a head injury, or brain surgery.
Having treatment with a kidney dialysis machine.
Having other infections, such as upper respiratory infections, mumps, tuberculosis (TB), syphilis, Lyme disease, and illnesses caused by herpes viruses.
Having a cochlear implant for severe hearing loss. Studies indicate that children with cochlear implants have an increased risk for bacterial meningitis.5, 6
Being born to a mother infected with an organism that causes meningitis. Viruses such as the enteroviruses and herpes viruses, and some bacteria can be passed from an infected mother to a baby during birth.
Having had meningitis in the past. Some people who have had meningitis are more likely than others to get it again. These include people with birth defects or injuries to their skull and face, impaired immune systems, or unexpected reactions to some medicines.

Meningitis-What Increases Your Risk

overthepond · 12-12-2011, 12:30 PM

I have higher chances of getting meningits again. I had it twice in the space of a few weeks. It happened before (approx 2/3 years before) I had the CI op, the CI Doc advised us to have the vacc and will refuse to operate anyone who aren't Vacc againist meningits.

**sallylou** · 12-12-2011, 12:43 PM

Chicken pox (varicella) stays dominant in the body. You can get shingles later, which is very painful. Shingles consists of painful skin lesions and malaise. If the shingles occurs your head, it's called Ramsey Hunt Syndrome, which causes hearing loss.

Frisky Feline · 12-12-2011, 01:13 PM

my hub just got vaccainned a while ago again since he had a ci about 6 yrs ago. I forget what kind of vaccaine was it. I didnt know that ci users need to get vaccaines from time to time.

Babyblue · 12-12-2011, 01:27 PM

The vaccine only works on Viral meningitis, It does not protect you from the bacterial meningitis like some people get from open skull surgery.

cdmeggers · 12-12-2011, 01:28 PM

my CI center recommends getting the pneumovax before CI surgery.

**deafskeptic** · 12-12-2011, 02:42 PM

Quote:

Originally Posted by LTHFAdvocate

There is a fairly common genetic disorder called Pendred's Syndrome which features a combination thyroid issues and sensorineural hearing loss. Boystown lists it in the top five sources of profound SNHL. Have you been checked for that? I don't think it is the thyroid that *causes* the HL, just that the two are associated. Course I'm not the doctor at our clinic . . .

Sheri

Quote:

Originally Posted by deafskeptic

I have. I don't have Pendred's Syndrome. There is a history of thyroid disease in my family and it seems to affect mostly the females in my family.

Everyone else with thyroid disease in my family are hearing. My mother and my big sister had to take thyroid meds for a t while. My niece Laura and I have to take thyroid for the rest of our lives. My vestibular system isn't affected at all. I seem to be much better at balancing myself than the average hearing person.

jillio · 12-12-2011, 05:04 PM

Quote:

Originally Posted by CSign

With the exception of Chicken Pox?

No, actually it is the chicken pox virus that causes shingles. You can have had chicken pox, get exposed to the herpes simplex virus again, and end up with shingles.

jillio · 12-12-2011, 05:06 PM

Quote:

Originally Posted by sallylou

Chicken pox (varicella) stays dominant in the body. You can get shingles later, which is very painful. Shingles consists of painful skin lesions and malaise. If the shingles occurs your head, it's called Ramsey Hunt Syndrome, which causes hearing loss.

Oops! Should have read this before I replied.

I have had both chicken pox and shingles.

jillio · 12-12-2011, 05:07 PM

Quote:

Originally Posted by cdmeggers

my CI center recommends getting the pneumovax before CI surgery.

That is wise, as menigitis can occur from other viral or bacterial infections.

dogmom · 12-12-2011, 05:16 PM

oh! so sad about the little girl!

I know someone - an older person - who has shingles recently and she was in much pain. I didn't know much about it before.

I was exposed to chicken pox specifically many years ago - where my friend and I had a sleep-over and we slept in same bed. Both about 9 or so - she woke up with chicken pox and I was sent home. Her little sister later got it. My mom called the doc. about it in relation to me but I don't know what was said. But I never - so far as I know - ended up with it. I don't remember being sick and I had a lotta of ear and cold infections as a kid.

**sallylou** · 12-12-2011, 05:44 PM

I think that you can reduce your chances of shingles if you get the vaccine. Does anyone know? It's older people who are most at risk for shingles.

**Bottesini** · 12-12-2011, 07:12 PM

Quote:

Originally Posted by sallylou

I think that you can reduce your chances of shingles if you get the vaccine. Does anyone know? It's older people who are most at risk for shingles.

My daughter just told me that it does not. She had found that out when she had her daughter vaccinated, as she thought that would be the case also.

ravenwinter0223 · 12-12-2011, 10:54 PM

I am a Cochlear Implant candiate since 2005, I have read some of these stories, somehow these stories are true since I have meet many different deaf people in different state. First of all I like the cochlear implants but the other hand nope, I have a lot of disadvantage in my future sake. First of all you are not allow to have any MRI flat period due to high voltage, which of course when you have your MRI your implant will totally be destroy, second your brain will be attach to the metal devices inside the machine ( which that is a scary thought) 3rd a 7 year old boy who had a CI has an heart attack and they use the fib and shocked him and it went up to his brain totally fried his brain out. Pronounce dead. The paramedic were baffled and so was the team of the er deptment as well. I am seriously thinking of removing mine in the future cause of your health will go down by the time you are in prime time 50's as you will be
ask to take mri for your medical issue then what ( need to be diagnosis cancer ) or other serious medical issue. I do not believe in forcing an baby or a child to have an CI
its a very dangerous position to be in . It doesn't matter what age of this child you should consider to wait until they reach by the time they are 12 years old let them make their own decision whether to have a CI or not. No hearing parent should force an child to get one. I agree with the other deaf members as well

cdmeggers · 12-12-2011, 11:54 PM

........ one can get an MRI even with an implant, they just need to have the magnet removed from the internal device and the MRI telsa has to be 1.5, no higher. the electrode is only inside the inner ear (cochlea), it doesn't even touch the brain, the internal implant does not touch the brain at all. .......

Sunshine · 12-13-2011, 12:58 AM

Quote:

Originally Posted by sallylou

I think that you can reduce your chances of shingles if you get the vaccine. Does anyone know? It's older people who are most at risk for shingles.

Oh I want know too! Three times this year I have shingles. If I never get again, that oky me!!!!!

Journey · 12-13-2011, 01:13 AM

Yes there is a shingles vaccine but only for people over 60. My sister has had shingles and looked into it. She had them on her eye, oh I felt so badly for her! I wouldn't wish that on anyone!

**Dixie** · 12-13-2011, 11:23 PM

I have always been told that if you had the chicken pox as a child that you will have shingles as an adult.

But really, I think it's random as to who has shingles and who doesn't. Kind of like, who will get severe migraines, and who doesn't. I don't think anyone can say absolutely for sure who will get the shingles.

As for the OP, the meningitis was the cause of death, not the CI itself. I agree that the doctor should have informed them to ensure that she is vaccinated, but it's also a parents responsibility to ask questions and doing thorough research on major decisions such as this.

**Dixie** · 12-13-2011, 11:24 PM

Oops, double post.

drphil · 12-15-2011, 07:02 PM

I can remember the uproar re possibility of getting meningitis before my Implant operation in July 07. Got vaccinated forthwith-no problem.

**Kalista** · 12-16-2011, 06:21 AM

Quote:

Originally Posted by ravenwinter0223

I am a Cochlear Implant candiate since 2005, I have read some of these stories, somehow these stories are true since I have meet many different deaf people in different state. First of all I like the cochlear implants but the other hand nope, I have a lot of disadvantage in my future sake. First of all you are not allow to have any MRI flat period due to high voltage, which of course when you have your MRI your implant will totally be destroy, second your brain will be attach to the metal devices inside the machine ( which that is a scary thought) 3rd a 7 year old boy who had a CI has an heart attack and they use the fib and shocked him and it went up to his brain totally fried his brain out. Pronounce dead. The paramedic were baffled and so was the team of the er deptment as well. I am seriously thinking of removing mine in the future cause of your health will go down by the time you are in prime time 50's as you will be
ask to take mri for your medical issue then what ( need to be diagnosis cancer ) or other serious medical issue. I do not believe in forcing an baby or a child to have an CI
its a very dangerous position to be in . It doesn't matter what age of this child you should consider to wait until they reach by the time they are 12 years old let them make their own decision whether to have a CI or not. No hearing parent should force an child to get one. I agree with the other deaf members as well

Thank You for your experience share with us !! I wish FDA would listen your concern to update in the database for other the parents s view other side instead of listen to the professional medication.

12-12-2011, 12:43 PM	#215 (permalink)
sallylou Potterhead and Janeite Join Date: Jun 2009 Location: My own private Idaho Posts: 6,653	Chicken pox (varicella) stays dominant in the body. You can get shingles later, which is very painful. Shingles consists of painful skin lesions and malaise. If the shingles occurs your head, it's called Ramsey Hunt Syndrome, which causes hearing loss. __________________

12-12-2011, 01:28 PM	#218 (permalink)
cdmeggers Registered User Join Date: May 2005 Location: Wyoming Posts: 2,212	my CI center recommends getting the pneumovax before CI surgery. __________________ My Ear Blog Advanced Bionics BEA Volunteer Mentor

12-12-2011, 05:44 PM	#224 (permalink)
sallylou Potterhead and Janeite Join Date: Jun 2009 Location: My own private Idaho Posts: 6,653	I think that you can reduce your chances of shingles if you get the vaccine. Does anyone know? It's older people who are most at risk for shingles. __________________

12-12-2011, 11:54 PM	#227 (permalink)
cdmeggers Registered User Join Date: May 2005 Location: Wyoming Posts: 2,212	........ one can get an MRI even with an implant, they just need to have the magnet removed from the internal device and the MRI telsa has to be 1.5, no higher. the electrode is only inside the inner ear (cochlea), it doesn't even touch the brain, the internal implant does not touch the brain at all. ....... deafskeptic likes this. __________________ My Ear Blog Advanced Bionics BEA Volunteer Mentor

12-13-2011, 11:23 PM	#230 (permalink)
Dixie May I be found in Him Join Date: Mar 2006 Location: Arkansas Posts: 13,266	I have always been told that if you had the chicken pox as a child that you will have shingles as an adult. But really, I think it's random as to who has shingles and who doesn't. Kind of like, who will get severe migraines, and who doesn't. I don't think anyone can say absolutely for sure who will get the shingles. As for the OP, the meningitis was the cause of death, not the CI itself. I agree that the doctor should have informed them to ensure that she is vaccinated, but it's also a parents responsibility to ask questions and doing thorough research on major decisions such as this. CSign likes this. __________________ Oh, you will. It is all a dream and since matter cannot be created nor destroyed, the dreams must be real in all their myriad forms. -Beowulf This Delicate Thing God Has Made *The world is measured in peasants; smaller than a unicorn but, bigger than a tidbit!*

Today
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12-12-2011, 12:30 PM	#214 (permalink)
overthepond Registered User Join Date: Jun 2008 Location: Great Britain Posts: 2,023	I have higher chances of getting meningits again. I had it twice in the space of a few weeks. It happened before (approx 2/3 years before) I had the CI op, the CI Doc advised us to have the vacc and will refuse to operate anyone who aren't Vacc againist meningits.

12-12-2011, 01:13 PM	#216 (permalink)
Frisky Feline Registered User Join Date: Jun 2003 Posts: 20,239	my hub just got vaccainned a while ago again since he had a ci about 6 yrs ago. I forget what kind of vaccaine was it. I didnt know that ci users need to get vaccaines from time to time.

12-12-2011, 01:27 PM	#217 (permalink)
Babyblue Registered User Join Date: Dec 2007 Location: Florida Posts: 12,001	The vaccine only works on Viral meningitis, It does not protect you from the bacterial meningitis like some people get from open skull surgery.

12-12-2011, 05:16 PM	#223 (permalink)
dogmom Registered User Join Date: Feb 2009 Posts: 5,475	oh! so sad about the little girl! I know someone - an older person - who has shingles recently and she was in much pain. I didn't know much about it before. I was exposed to chicken pox specifically many years ago - where my friend and I had a sleep-over and we slept in same bed. Both about 9 or so - she woke up with chicken pox and I was sent home. Her little sister later got it. My mom called the doc. about it in relation to me but I don't know what was said. But I never - so far as I know - ended up with it. I don't remember being sick and I had a lotta of ear and cold infections as a kid.

12-12-2011, 10:54 PM	#226 (permalink)
ravenwinter0223 Registered User Join Date: Dec 2011 Location: Iron Mountain, Michigan Posts: 1	I am a Cochlear Implant candiate since 2005, I have read some of these stories, somehow these stories are true since I have meet many different deaf people in different state. First of all I like the cochlear implants but the other hand nope, I have a lot of disadvantage in my future sake. First of all you are not allow to have any MRI flat period due to high voltage, which of course when you have your MRI your implant will totally be destroy, second your brain will be attach to the metal devices inside the machine ( which that is a scary thought) 3rd a 7 year old boy who had a CI has an heart attack and they use the fib and shocked him and it went up to his brain totally fried his brain out. Pronounce dead. The paramedic were baffled and so was the team of the er deptment as well. I am seriously thinking of removing mine in the future cause of your health will go down by the time you are in prime time 50's as you will be ask to take mri for your medical issue then what ( need to be diagnosis cancer ) or other serious medical issue. I do not believe in forcing an baby or a child to have an CI its a very dangerous position to be in . It doesn't matter what age of this child you should consider to wait until they reach by the time they are 12 years old let them make their own decision whether to have a CI or not. No hearing parent should force an child to get one. I agree with the other deaf members as well

12-13-2011, 01:13 AM	#229 (permalink)
Journey Registered User Join Date: Sep 2011 Location: Canada Posts: 980	Yes there is a shingles vaccine but only for people over 60. My sister has had shingles and looked into it. She had them on her eye, oh I felt so badly for her! I wouldn't wish that on anyone!

12-13-2011, 11:24 PM	#231 (permalink)
Dixie May I be found in Him Join Date: Mar 2006 Location: Arkansas Posts: 13,266	Oops, double post. __________________ Oh, you will. It is all a dream and since matter cannot be created nor destroyed, the dreams must be real in all their myriad forms. -Beowulf This Delicate Thing God Has Made *The world is measured in peasants; smaller than a unicorn but, bigger than a tidbit!*

12-15-2011, 07:02 PM	#232 (permalink)
drphil Registered User Join Date: Jul 2010 Location: Toronto Ontario Posts: 4,117	I can remember the uproar re possibility of getting meningitis before my Implant operation in July 07. Got vaccinated forthwith-no problem. __________________ Get Real:Implanted Sunnybrook/Toronto -Advanced Bionics-Harmony activated Aug/07

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