2 Year CI Anniversary :)

Hear Again

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Today is the 2 year anniversary of my first CI activation. I can't believe how quickly time flies. The past 2 years have been nothing short of amazing.

Earlier this morning I looked back at my CI journal and here is what I wrote:

"1/18/05

Typing on computer keyboard (sounds like popcorn popping)
Tigger's collar rattling
Doorbell (sounds off-tune)
Microwave beeping
Talking clock calculator (faintly understand speech)

Voices and sounds are high pitched; metallic

1/19/05

Switched to program 2

Traffic (can identify direction of travel according to pitch; notice that
cars sound different -- some engines are higher in pitch while others are
lower)
Sound of tires in the snow
Birds singing
Snowblower
Footsteps in snow
Two women conversing nearby
Air escaping from soda bottle
Music: can hear high pitches, drum beats (sounds tinny),
inflection/intonation; could recognize two songs on a CD by drum beat and
voice rhythm; can hear differences instruments in jazz and classical music
although I can't identify what they are; can hear music in another room;
cannot hear low frequencies
Can hear intonation/inflection in some voices
Can hear difference in sound volume (i.e. TV sounds louder as you walk
toward it and softer as you walk away)

No change in voice and sound quality (still high pitched and metallic)

1/20/05

Program 2 sounds weaker today; changed batteries (11:30 a.m.) but no sound
difference

Rustling of plastic and paper bags; water running (both sounds are
uncomfortably high pitched)
Jingling of keys
Computer modem

Voices and sounds are distant and weaker; changed batteries - no effect
Initial metallic quality to voices is gone; voices still sound high pitched
but more like a whine

1/21/05

Voices fade in and out from loud to soft and soft to loud - not sure if this
is due to problem with 3G, volume difference in voices or weak map

This evening I hear a continual loud humming that alternates between very
loud and moderate volume. Sometimes it varies in volume according to the
loudness of voices and sounds around me. Other times it alternates between
loud and soft when there is no background noise or voice present. (very
bothersome - stopped wearing processor for the rest of the evening because
of nausea and headache)

Cannot recognize any new sounds today because of fading and humming.

1/22/05

Traffic outside window
Could hear difference between letter "p," "m" and "i" on the radio
Computer keyboard sounds like I remember with hearing aids

I found the source of the humming. I thought it might be the traffic or
refrigerator but after getting ready to take a short nap, I found that the
humming did not subside or change after removing the 3G. I've also noticed
that I feel nauseous and get a headache after wearing the processor for
more than a couple hours.

3G shut off completely this evening. Was told on CI forum that 3G emits
warning beeps before shutting off. Could not hear beeps; changed batteries.

1/23/05

Switched 3G from original Whisper setting to Microphone

Two dogs barking across the street
Snow underneath my feet sounds more a like a squeak instead of tapping
Traffic now sounds closer to what I remember with hearing aids
Door knock on TV program

Sounds are more comfortable; voices no longer fade in and out as much as
they did yesterday; could wear processor all day without any nausea or
headache

Some voices are easier to hear on TV and radio than others; Softer voices I
couldn't hear well or at all made me think something was wrong with the 3G.

1/24/05

Melody chime clock
Laugh track on TV program (sounds like static)

Sound quality of today's map is *much* better; can hear a wider variety of
frequencies - I think I may have had the previous map set too soft/low as
sounds now seem fuller and louder but not uncomfortable

After today's map I notice a better balance of sound between CI and HA; with
last mapping, HA seemed to overpower CI; now CI sounds balanced with HA
making it much easier for me to concentrate/interpret sound from the CI

1/25/05

Can hear the sound of my cane tapping on cement and sliding against
carpeting

At yesterday's mapping Linda took out some of the lower tones; am now
finding that traffic is more difficult to hear; would like them added at
next mapping

3G completely shut off; changed batteries (6:20 p.m.)

1/26/05

Still on program 1

Can more easily hear changes in pitch with voices
Whiny characteristic in voices is slowly going away; can tell difference in
pitch but don't know yet if this is due to inflection or male versus female
speaker

1/27/05

Switched to program 2

After listening to an auditory practice website repetitively for an hour, I
could understand a few words! One speaker sounded much like I remember with hearing aids

Notice that some voices sound deeper than others; do not know if this is
because of pitch, male vs. female speaker or both

3G completely shut off (10:35 p.m.); changed batteries"

(end of journal excerpts)

To think that the metallic blur of sounds I first heard on my activation day have turned into such wonderful clarity. Music sounds better than it ever has before and the voices of my family and friends sound just as beautiful as they did before I lost my hearing.

I've dedicated my CI journey to my late dear mother who passed away from terminal cancer on December 16, 2004 -- six days before my CI surgery. I wish with all of my heart that she could be here in person to celebrate this day, but I know she is smiling from above celebrating the fact that her daughter has rejoined the hearing world -- a dream of hers ever since I lost my hearing. Her dream has come true -- and so has mine. :)
 
That's wonderful! Although it must have been very sad to have your mum pass away 6 days before surgery. I bet you wish that she was here today to share in your good experiences with the CI.

Am I right in thinking that you are writing a book about your experiences??
 
That's wonderful! Although it must have been very sad to have your mum pass away 6 days before surgery. I bet you wish that she was here today to share in your good experiences with the CI.

Am I right in thinking that you are writing a book about your experiences??

R2D2,

Yes, I do. In fact, last night I cried myself to sleep knowing she wouldn't be here to celebrate today with me.

It was very difficult to lose my mother so close to my surgery date -- especially since this is something she wanted just as much as I did. Even when she was in extreme pain due to her cancer, she always asked questions about the CI and told me how wonderful it would be once I was able to hear again. :)

When I thought about giving away my extensive music collection after I lost my hearing, she begged me not to knowing how much I loved music. She also promised that one day there would be a medical treatment available that would restore my hearing. Thanks to her plea, I'm now able to continue enjoying the music I've been collecting since age 5. (Aside from that, I didn't have the heart to give away my music.)

I wish she could have been around long enough to witness my CI activation. Sometimes I feel a hint of sadness when I experience a CI moment and realize that I can't share my excitement with her.

I'm currently writing a book (for publication) about my experiences with deafblindness and the CI. Several family and friends have encouraged me to do this, so I thought, "Why not?" Once it's finished, I'm thinking about making it available online for all to read.
 
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Your mum sounded a wonderful and loving woman Hear Again - it must take something to focus on someone else when you are in extreme pain yourself. She left you a gift of hope and not giving up on the prospect of hearing again.

Looking forward to reading your book! You'll have to keep us updated about when it's published as I would love to have a copy. I can be your first Australian reader :)
 
That's good that you didn't give away your music collections. Did you try the headphone route to hear your music after the loss?

I did that when my HA died and had to wait for appointment for new one so I already have Headphone for night listening in bed w/o HA so I don't have to thump thump the room eh.
 
That's good that you didn't give away your music collections. Did you try the headphone route to hear your music after the loss?

I did that when my HA died and had to wait for appointment for new one so I already have Headphone for night listening in bed w/o HA so I don't have to thump thump the room eh.

LOL!

After I lost my hearing I used to listen to music using direct audio input through my HAs. Headphones never seemed loud enough even when I turned the volume of my stereo all the way up.

It wasn't until 1997 that listening to music was no longer an enjoyable experience for me. At that time, I lost the speech discrimination I had in my right ear. (My left ear has had no discrimination since 1995.)

The distortion I heard in both ears with HAs resulted in my being able to hear drum beats and some male vocals depending on how loud they were. The distortion was so bothersome that I finally stopped listening to music altogether in 1997. I *hated* the way music sounded. :( Every time I listened to music, all it did was remind me of what I could no longer hear.

Even when my brain tried to fill in the gaps, I still couldn't hear enough of the music clearly to enjoy it.

I really tried to appreciate what little I could still hear, but it was difficult -- especially when I continued to experience a downward spiral in my hearing.

Each change in my hearing took away more of my music making it almost unrecognizeable to me.

It wasn't until I received my first CI that the world of music began to open up for me again. I'm now happy to say that music sounds better than it ever has before!
 
That's great..

I just replaced my Sharp SA-150 Stereo Receiver with Yamaha HTR-5930 few days ago.. It's my second receiver!

and I have a turntable, a Audio Technica AT-PL50 coming in tomorrow to replace my 30 yrs old turntable which was a Panasonic SL-H305 (not my picture but yeah I bought them in 85) instead of replacing parts like belt and needles whatever.. but definitely had to replace since my new receiver does not have phono input so it requires that I have a turntable with built-in preamp.

Of course I kept my speaker that I bought back in 89 a Sansui S-517(first three pictures in first post but those pictures are not mine since I can't find a site that show my speakers but that's what I have)

I also acquired a Bose Acoustimass 7 speakers from my brother's friend for helping set up his computer. (speakers are in black instead of white)

So tomorrow I will be enjoying my vinyl records again eh. :D

I also had Sharp Stereo Cassette Deck RT-1157 which I pretty much put it out of commission since it was used when I bought it in 83. I will shop around for a good Cassette Deck since I have plenty of cassettes that are not on vinyls
 
Congratulations Hear Again! :kiss: That is so awsome. Thank you for sharing some of your experiences with your CI. You have surely dealt with a lot of adversity and are a great person.
 
That's great..

I just replaced my Sharp SA-150 Stereo Receiver with Yamaha HTR-5930 few days ago.. It's my second receiver!

and I have a turntable, a Audio Technica AT-PL50 coming in tomorrow to replace my 30 yrs old turntable which was a Panasonic SL-H305 (not my picture but yeah I bought them in 85) instead of replacing parts like belt and needles whatever.. but definitely had to replace since my new receiver does not have phono input so it requires that I have a turntable with built-in preamp.

Of course I kept my speaker that I bought back in 89 a Sansui S-517(first three pictures in first post but those pictures are not mine since I can't find a site that show my speakers but that's what I have)

I also acquired a Bose Acoustimass 7 speakers from my brother's friend for helping set up his computer. (speakers are in black instead of white)

So tomorrow I will be enjoying my vinyl records again eh. :D

I also had Sharp Stereo Cassette Deck RT-1157 which I pretty much put it out of commission since it was used when I bought it in 83. I will shop around for a good Cassette Deck since I have plenty of cassettes that are not on vinyls

Wow, Boult! It sounds like you have some awesome audio equipment!

My stereo system pales in comparison to yours. I have a Fisher receiver from 1981, a Fisher double cassette deck from 1982, a Sony CDP-101 CD player from 1983 and Realistic Mach Two floor speakers from 1986. I wish I could afford better equipment, but I can't -- at least not now. :( Besides, alot of the audio components I've looked at aren't completely accessible to me due to their visual display and multiple "jog dial" functions. I also have over 20 boomboxes from the 70's and 80's as well as a variety of shortwave radios including a GE Superadio I, Superadio II and Superadio III. My latest find is a shortwave radio made by Kaito -- the WRX-911.

At the moment, I don't have a turntable although I plan to buy one at some point. I really should purchase one since I have over 100 LPs and 45s -- and nothing to play them on. :)

I hope you enjoy listening to your records again! If truth be told, I've always preferred the sound of LPs to CDs and cassettes. I know people have differing opinions about which sounds better, but for me, LPs seem to have a "warmer" sound compared to CDs and cassettes.

By the way, how do the Bose Acoutimass speakers sound? I've seen various TV commercials for the Bose Wave Radio and have always been curious as to how it sounds. I've heard that Bose has an excellent reputation when it comes to sound quality. Unfortunately, all of their equipment is out of my reach financially.

I mentioned this in another thread, but I have an extensive music collection (500+ CDs, 300+ cassettes, 100+ LPs and 100+ 45s. No 8-tracks. :)). I've been collecting music since I was 5 years old and many of the album titles I have are long out of print.
 
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Congratulations Hear Again! :kiss: That is so awsome. Thank you for sharing some of your experiences with your CI. You have surely dealt with a lot of adversity and are a great person.

Awww, thanks Doug! I appreciate the compliment! :hug:
 
Congrats Hear Again :hug: and I hope you could have world of colors some day in the near future ,as well :)
 
Congrats Hear Again :hug: and I hope you could have world of colors some day in the near future ,as well :)

Thanks, Highlands! :hug: It would be wonderful if I could see someday. :)

I've been following the development of retinal implants for awhile now (since my blindness was caused by a retinal disease called retinopathy of prematurity).

If I receive retinal implants someday, I guess you could call me a true "bionic woman." :)
 
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