First appointment - Page 6

LuciaDisturbed · 09-10-2006, 11:08 PM

Well my CT Scan is tomorrow, so wish me good luck!!! I am anxious!

I went to a body piercing shop today and got my metal jewelry replaced with arcylic jewelry so I wouldn't have to worry about the holes closing up. The lady at the shop was so nice and gave me a barbell and a curved barbell for $10 and she replaced them for me, as I could not unscrew my metal jewelry balls to get them out, the guy that did my tongue screwed the ball on very tight! As soon as I get home from the CT Scan I will be putting my metal jewelry back in as I do not like the arcylic ones very much, they are just temporary!

Will let y'all know how it went!

LuciaDisturbed · 09-11-2006, 01:56 PM

I am back from the clinic. I guess things went fine, but will know tomorrow when I have the evaluation and meet with the doc.

Oceanbreeze · 09-11-2006, 02:34 PM

Quote:

Originally Posted by LuciaDisturbed

I am back from the clinic. I guess things went fine, but will know tomorrow when I have the evaluation and meet with the doc.

Awesome, Lucia! Good luck!!!

Keep us posted.

R2D2 · 09-11-2006, 04:59 PM

Quote:

Originally Posted by LuciaDisturbed

I am back from the clinic. I guess things went fine, but will know tomorrow when I have the evaluation and meet with the doc.

Yay! Hope tomorrow goes smoothly too...

09-11-2006, 10:46 PM

Quote:

Originally Posted by LuciaDisturbed

I have my first appointment on Sept 5th to see about getting CIs. What should I expect, and are there questions that I should be asking?

Damn, I'm anxious!

No anti-CI bullshit, please.

Damn, I'm anxious! WY TELL ME

09-11-2006, 10:49 PM

Quote:

Originally Posted by LuciaDisturbed

I have my first appointment on Sept 5th to see about getting CIs. What should I expect, and are there questions that I should be asking?

Damn, I'm anxious!

No anti-CI bullshit, please.

I WANT KNEW YOU HAVE PROBLEM SINNER SHIT LOL SHE SAID THAT I'm not just crazy, I'm very disturbed...

LuciaDisturbed · 09-11-2006, 10:51 PM

Quote:

Originally Posted by go roll#17

I WANT KNEW YOU HAVE PROBLEM SINNER SHIT LOL SHE SAID THAT I'm not just crazy, I'm very disturbed...

Uh...that was supposed to be a joke....chill, man!

SpiceHD · 09-11-2006, 11:01 PM

Quote:

Originally Posted by go roll#17

I WANT KNEW YOU HAVE PROBLEM SINNER SHIT LOL SHE SAID THAT I'm not just crazy, I'm very disturbed...

uhh this thread is abt Cochlear implant not abt lucia... leave her alone! *getting ready to report to mod*

LuciaDisturbed · 09-12-2006, 12:37 PM

I'm getting ready to leave the house and go to my evaluation and doc appts...PLEASE keep y'all fingers crossed for me...think good thoughts...etc.

Damn, I'm nervous!

Will let y'all know how it went when I get home!

greema · 09-12-2006, 07:00 PM

Quote:

Originally Posted by 2kids1hoh

I don't want to take anything away from Lucia's thread, so I will just say this for now. Thanks for your concern... but my daughter already attends a school for the deaf. She has been wearing hearing aids for 3 months with little to no benefit. We have done our research, and whatever decision we decide on we feel will be the best for our daughter.

Sorry to hear you had a bad experience, but like R2D2 said things are different now. Attitudes are changing towards CI's.

Thanks

(by the way, your little girl is a real cutie!)

greema · 09-12-2006, 07:02 PM

Quote:

Originally Posted by LuciaDisturbed

I'm getting ready to leave the house and go to my evaluation and doc appts...PLEASE keep y'all fingers crossed for me...think good thoughts...etc.

Damn, I'm nervous!

Will let y'all know how it went when I get home!

Yes, my fingers, my toes, my arms, my legs and just about everything is crossed for you!

LuciaDisturbed · 09-12-2006, 07:18 PM

Ok y'all -

I am back from the clinic.

It looks like it will be a go, pending the CT scan...doc still hasnt gotten the results yet. They said they will start the paperwork and stuff for surgery while getting approval from Medicare and Medicaid at the same time.

I should get my surgery date sometime this week. They told me that I have the option of getting my CI activated day after surgery if I want, or waiting a few days. They say they normally do it the day after surgery.

I got an awesome interpreter this time, and communication were so much better this time around. I was able to ask a bunch of questions, and there was no negativity around. My audiologist is AWESOME, she knows sign language and is very friendly. She answered many of my questions as well as my doctor.

My audiologist gave me some awesome information on Nucleus Freedom and AB stuff.

I will go back to see her to tell her which CI company I decide I want to go with.

I also got my vaccinations as well. I didn't even feel it!

My doc, it looks like, will be doing my surgery, he's done about 300 CI surgeries.

So...I'm so excited!

Now, I'm crossing my fingers for the CT Scan results...

greema · 09-12-2006, 07:28 PM

(in just one word) AWESOME!!!!

LuciaDisturbed · 09-12-2006, 07:41 PM

Quote:

Originally Posted by greema

(in just one word) AWESOME!!!!

YEAH!!! I'm too excited...

Oceanbreeze · 09-12-2006, 08:24 PM

Quote:

Originally Posted by greema

(in just one word) AWESOME!!!!

It is AWESOME!! I'm excited for her, too!!!!!

sr171soars · 09-12-2006, 08:28 PM

Quote:

Originally Posted by greema

(in just one word) AWESOME!!!!

Amen to that...

R2D2 · 09-12-2006, 08:31 PM

Whoooa! I can see that you are off!

Hope all the remaining tests show normal results and that you can proceed as planned. I'm really thrilled that we are getting a solid group of us here with a wide range of experiences.

Victorias mom · 09-13-2006, 08:50 PM

Quote:

Originally Posted by greema

(by the way, your little girl is a real cutie!)

Thanks Greema!!!

Lucia - I am very happy things are going so well for you.

LuciaDisturbed · 09-13-2006, 08:53 PM

Quote:

Originally Posted by 2kids1hoh

Thanks Greema!!!

Lucia - I am very happy things are going so well for you.

Thanks! And your kid is SO cute in your avatar!!!

Victorias mom · 09-13-2006, 09:01 PM

Quote:

Originally Posted by LuciaDisturbed

Thanks! And your kid is SO cute in your avatar!!!

Thanks!

Today was her first appointment at the cochlear implant center. I only met with 2 audioligists so far. They basically just talked to us about the implant and what it does, which we already knew. We talked a little about the surgery, and they did a hearing test. Since Victoria is still so little it's hard to test her. From the tests they did today, it seems she only responded to sound at 80dbs and higher with her hearing aids on. I figured that would be the case since I never see her respond to voices. So now we have 2 more appointments scheduled for mid October. They want to test her hearing some more with hearing aids and without. I assume after that I can meet the surgeon and make the appointment for the cat scan. Do you know if they sedate children for cat scans? She will be about 8 or 9 months old when they do it.

Thanks

LuciaDisturbed · 09-13-2006, 09:20 PM

Quote:

Originally Posted by 2kids1hoh

Thanks!

Today was her first appointment at the cochlear implant center. I only met with 2 audioligists so far. They basically just talked to us about the implant and what it does, which we already knew. We talked a little about the surgery, and they did a hearing test. Since Victoria is still so little it's hard to test her. From the tests they did today, it seems she only responded to sound at 80dbs and higher with her hearing aids on. I figured that would be the case since I never see her respond to voices. So now we have 2 more appointments scheduled for mid October. They want to test her hearing some more with hearing aids and without. I assume after that I can meet the surgeon and make the appointment for the cat scan. Do you know if they sedate children for cat scans? She will be about 8 or 9 months old when they do it.

Thanks

I think they do sedate small children for ct scans since they have to stay VERY still for the scan. But it probably will be something not very heavy, probably will just use enough to take the ct scan which would be for about 15 minutes or so and then she will wake up afterwards. Others, correct me if I'm wrong.

Victorias mom · 09-13-2006, 09:27 PM

Ok, thanks. I didn't even know how long they were, I never had one. What you said makes sense, they will probably just give her something light.

SpiceHD · 09-13-2006, 09:28 PM

yep u r correct lucia... at age 9 i was very hyper kid and they had to sedate me and i woke up in middle of cat scan lol or was it mri? i cant remember but they did made me go sleep cuz i cant stay still for more than 5 min. it depends on each person actually. if i was to get new cochlear implant now they probably will have to sedate me anyway cuz i cant stay still even now.

so im sure they will give 2kids1hoh daughter something but most likely medication not sedate since shes way too young to handle that kind of stuff. well thats just what i have heard so it may be different for your daughter i have no idea really.(2kids1hoh not lucia lol)

R2D2 · 09-13-2006, 11:44 PM

Quote:

Originally Posted by 2kids1hoh

Thanks!

Today was her first appointment at the cochlear implant center. I only met with 2 audioligists so far. They basically just talked to us about the implant and what it does, which we already knew. We talked a little about the surgery, and they did a hearing test. Since Victoria is still so little it's hard to test her. From the tests they did today, it seems she only responded to sound at 80dbs and higher with her hearing aids on. I figured that would be the case since I never see her respond to voices. So now we have 2 more appointments scheduled for mid October. They want to test her hearing some more with hearing aids and without. I assume after that I can meet the surgeon and make the appointment for the cat scan. Do you know if they sedate children for cat scans? She will be about 8 or 9 months old when they do it.

Thanks

Thanks for giving us an idea of the process. It goes to show that they don't just slap on implants but do try and see if hearing aids will benefit the child first. Was Victoria's loss picked up via a newborn screening test?

09-10-2006, 11:08 PM	#151 (permalink)
LuciaDisturbed Amateur Psychiatrist Join Date: May 2006 Location: San Antonio, Texas Posts: 4,791	Well my CT Scan is tomorrow, so wish me good luck!!! I am anxious! I went to a body piercing shop today and got my metal jewelry replaced with arcylic jewelry so I wouldn't have to worry about the holes closing up. The lady at the shop was so nice and gave me a barbell and a curved barbell for $10 and she replaced them for me, as I could not unscrew my metal jewelry balls to get them out, the guy that did my tongue screwed the ball on very tight! As soon as I get home from the CT Scan I will be putting my metal jewelry back in as I do not like the arcylic ones very much, they are just temporary! Will let y'all know how it went! __________________ We will assimilate you. Resistance is futile. We will add your distinctiveness to our Collective. Implanted left ear 10/11/06, activated 10/16/06 - Nucleus Freedom DeviantArt

09-11-2006, 01:56 PM	#152 (permalink)
LuciaDisturbed Amateur Psychiatrist Join Date: May 2006 Location: San Antonio, Texas Posts: 4,791	I am back from the clinic. I guess things went fine, but will know tomorrow when I have the evaluation and meet with the doc. __________________ We will assimilate you. Resistance is futile. We will add your distinctiveness to our Collective. Implanted left ear 10/11/06, activated 10/16/06 - Nucleus Freedom DeviantArt

09-12-2006, 12:37 PM	#159 (permalink)
LuciaDisturbed Amateur Psychiatrist Join Date: May 2006 Location: San Antonio, Texas Posts: 4,791	I'm getting ready to leave the house and go to my evaluation and doc appts...PLEASE keep y'all fingers crossed for me...think good thoughts...etc. Damn, I'm nervous! Will let y'all know how it went when I get home! __________________ We will assimilate you. Resistance is futile. We will add your distinctiveness to our Collective. Implanted left ear 10/11/06, activated 10/16/06 - Nucleus Freedom DeviantArt

09-12-2006, 07:18 PM	#162 (permalink)
LuciaDisturbed Amateur Psychiatrist Join Date: May 2006 Location: San Antonio, Texas Posts: 4,791	Ok y'all - I am back from the clinic. It looks like it will be a go, pending the CT scan...doc still hasnt gotten the results yet. They said they will start the paperwork and stuff for surgery while getting approval from Medicare and Medicaid at the same time. I should get my surgery date sometime this week. They told me that I have the option of getting my CI activated day after surgery if I want, or waiting a few days. They say they normally do it the day after surgery. I got an awesome interpreter this time, and communication were so much better this time around. I was able to ask a bunch of questions, and there was no negativity around. My audiologist is AWESOME, she knows sign language and is very friendly. She answered many of my questions as well as my doctor. My audiologist gave me some awesome information on Nucleus Freedom and AB stuff. I will go back to see her to tell her which CI company I decide I want to go with. I also got my vaccinations as well. I didn't even feel it! My doc, it looks like, will be doing my surgery, he's done about 300 CI surgeries. So...I'm so excited! Now, I'm crossing my fingers for the CT Scan results... __________________ We will assimilate you. Resistance is futile. We will add your distinctiveness to our Collective. Implanted left ear 10/11/06, activated 10/16/06 - Nucleus Freedom DeviantArt

09-12-2006, 07:28 PM	#163 (permalink)
greema greema Join Date: May 2006 Posts: 605	(in just one word) AWESOME!!!! __________________ The highest result of education is tolerance. -- Helen Keller

Today
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09-12-2006, 08:31 PM	#167 (permalink)
R2D2 Registered User Join Date: Dec 2005 Location: Australia Posts: 2,606	Whoooa! I can see that you are off! Hope all the remaining tests show normal results and that you can proceed as planned. I'm really thrilled that we are getting a solid group of us here with a wide range of experiences. __________________ Left ear implanted 9th June 2006 Activated 29th June 2006 Right ear implanted 31st August 2007 Activated 18th September Both Nucleus Freedom Cochlear implant myths

09-13-2006, 09:27 PM	#172 (permalink)
Victorias mom formerly 2kids1hoh Join Date: Apr 2006 Posts: 206	Ok, thanks. I didn't even know how long they were, I never had one. What you said makes sense, they will probably just give her something light.

09-13-2006, 09:28 PM	#173 (permalink)
SpiceHD caffeinolic Join Date: Oct 2004 Location: annapolis, md Posts: 1,414	yep u r correct lucia... at age 9 i was very hyper kid and they had to sedate me and i woke up in middle of cat scan lol or was it mri? i cant remember but they did made me go sleep cuz i cant stay still for more than 5 min. it depends on each person actually. if i was to get new cochlear implant now they probably will have to sedate me anyway cuz i cant stay still even now. so im sure they will give 2kids1hoh daughter something but most likely medication not sedate since shes way too young to handle that kind of stuff. well thats just what i have heard so it may be different for your daughter i have no idea really.(2kids1hoh not lucia lol) __________________ SOMEONE STOLE MY SIG!!! Reward for returning it! I miss taylor Last edited by SpiceHD; 09-13-2006 at 09:31 PM. Reason: adding one more thing