Son's CI surgery

Fragmenter · 08-02-2006, 05:34 PM

Hello, I've been enjoying an internet-free life for a week now. It's restored energy into me; y'all should try it!

Our son's cochlear implant surgery last Friday was a success without complications. He had a minor reaction to the anesthesia wearing off after the surgery. He was cooperative with the nurses all night and all morning. We're pleased with how everything has worked out so far.

I had concerns about his sense of balance in the first couple of days at home but the last few days it has improved. My wife talked with the doctor over the phone about it and he said not to worry too much about it and just to keep an eye on it. Sometimes I can be a neurotic worry fart

His activation date is sometimes in early September (we don't have it written it in stone) so we have plenty of time on our hands until then. All in all, our son is still the same kid we knew before the surgery!

Last but not least, much thanks to your thoughts and prayers! I will let you all know what's new with the kid whenever it happens.

08-02-2006, 05:50 PM

Quote:

Originally Posted by Fragmenter

Hello, I've been enjoying an internet-free life for a week now. It's restored energy into me; y'all should try it!

Our son's cochlear implant surgery last Friday was a success without complications. He had a minor reaction to the anesthesia wearing off after the surgery. He was cooperative with the nurses all night and all morning. We're pleased with how everything has worked out so far.

I had concerns about his sense of balance in the first couple of days at home but the last few days it has improved. My wife talked with the doctor over the phone about it and he said not to worry too much about it and just to keep an eye on it. Sometimes I can be a neurotic worry fart

His activation date is sometimes in early September (we don't have it written it in stone) so we have plenty of time on our hands until then. All in all, our son is still the same kid we knew before the surgery!

Last but not least, much thanks to your thoughts and prayers! I will let you all know what's new with the kid whenever it happens.

That is all good to hear my friend. I wish you and your family all the best and I hope that all goes well with the activation..

SxyPorkie · 08-02-2006, 06:04 PM

Quote:

Originally Posted by Fragmenter

Hello, I've been enjoying an internet-free life for a week now. It's restored energy into me; y'all should try it!

Our son's cochlear implant surgery last Friday was a success without complications. He had a minor reaction to the anesthesia wearing off after the surgery. He was cooperative with the nurses all night and all morning. We're pleased with how everything has worked out so far.

I had concerns about his sense of balance in the first couple of days at home but the last few days it has improved. My wife talked with the doctor over the phone about it and he said not to worry too much about it and just to keep an eye on it. Sometimes I can be a neurotic worry fart

His activation date is sometimes in early September (we don't have it written it in stone) so we have plenty of time on our hands until then. All in all, our son is still the same kid we knew before the surgery!

Last but not least, much thanks to your thoughts and prayers! I will let you all know what's new with the kid whenever it happens.

I am glad that your son came out well.....
SxyPorkie

sr171soars · 08-02-2006, 06:10 PM

Fragmenter,

Great news! Glad to hear things are going well!

LuciaDisturbed · 08-02-2006, 06:16 PM

I'm glad to hear that things are going well for you and your son!

R2D2 · 08-02-2006, 06:31 PM

Glad everything went well without any significant complications. Also it's very normal to feel off balance for a while. I felt a bit off balance right until activation when it suddenly disappeared. I could still do my normal stuff but just had to be careful with anything requiring fast head movements or fine balance.

Fragmenter · 08-02-2006, 07:30 PM

Quote:

Originally Posted by R2D2

Also it's very normal to feel off balance for a while. I felt a bit off balance right until activation when it suddenly disappeared. I could still do my normal stuff but just had to be careful with anything requiring fast head movements or fine balance.

Thank you, again, everybody!

Artoo Detoo, if I read you correctly, you no longer have balance issues?

The wife and I are planning on re-entering our kids in gymnastics... we think it could at least help our son's muscle memory. I also am looking into H.I.T. (high intensity training) to see if they can train our son in the agility department. Really, I'm secrectly plotting my son's world domination

netrox · 08-02-2006, 08:16 PM

I had a few vertigo attacks (not sure if it's CI-related or not since it happened a YEAR after the CI surgery - never had vertigo prior to CI) and it sucked. I also lost some balance.

But now I don't have any vesibular problems.

Boult · 08-02-2006, 09:39 PM

Fragmenter,

Glad to hear that things are going well so far. Activiation day is exiciting day and somewhat emotional too..

ayala920 · 08-02-2006, 10:53 PM

Congratulations... Is that the right word? Seems like a strange thing to be congratulating, but I suppose it fits.

I hope you son enjoys his new, sound-filled world come activation time.

R2D2 · 08-02-2006, 11:18 PM

Quote:

Originally Posted by Fragmenter

Thank you, again, everybody!

Artoo Detoo, if I read you correctly, you no longer have balance issues?

The wife and I are planning on re-entering our kids in gymnastics... we think it could at least help our son's muscle memory. I also am looking into H.I.T. (high intensity training) to see if they can train our son in the agility department. Really, I'm secrectly plotting my son's world domination

Yep, I no longer have balance issues - they cleared up as soon as I was activated and I've had no problems since then. I do yoga in my spare time and some of the exercises involve balancing and I have issue with doing them.

Hmm maybe I should enroll my daughter in gymnastics. She is not the most agile child but she more than makes up for that in intelligence fortunately

MsGiglz · 08-02-2006, 11:43 PM

PTL!!! glad that your son success the surgery!! I bet its BIG relief.. next step.... exciting moment to active the CI device.. just still keep on praying that it works.. I am sure, it will !

Also, I just want applaud you and your wife for such bravery and patiences with those anti-CIers... keep on walking and keep seeking the bright side!

give your son my

.....

Lillys dad · 08-03-2006, 01:26 AM

First off, congratulations on the outcome of the surgery. The five hours my daughter was in surgery was the longest five hours of my life.
The activation is a truly incredible moment that you will remember for the rest of your life. The first time you child hears you voice, and you can tell they hear it, it is a very emotional time. The first thing out of my mouth when she could hear my voice was "I love you". I realize that she does not need to hear me say it, for her to know it. But, That was the first time I knew she could hear it. It was a very powerful moment. If you can remember, bring a camera and take lots of pictures. Or even bring a video camera.

Cherish the moments.

neecy · 08-03-2006, 02:49 AM

Glad it went so well! I too, experienced mild vertigo/dizzy spells for the first couple weeks, then they went away and never returned.

Can't wait to hear about his activation!!!

**Liebling:-)))** · 08-03-2006, 04:52 AM

That's wonderful new to hear that things goes well without complication for you all.

Keep it update

Cloggy · 08-03-2006, 12:22 PM

Hi Fragmenter,

Good to "hear" you again here. And I had the internet free time as well. Like you say.. worth it....

Glad to hear your son is OK. Funny that even though that's what everyone expected, we're still happy for the outcome. A bit like expecting a baby....

Anyway.. I bet the next goal is the first activation...

Freaky Cat · 08-03-2006, 01:46 PM

Glad to hear everything went smooth without any hitch..

hope he will recover from this and now looking forward to activiation next month which would be very special time.. I cant wait to hear how it goes ..

jag · 08-03-2006, 02:33 PM

Glad he's doing so well. I'm sure he's excited waiting for the activation.

Hope you have everything set up with the school ST and stuff. (I really hate dealing with Sped stuff, sigh) Can't wait to hear more about his journey into sound.

So when is you evaluation?

Victorias mom · 08-04-2006, 09:08 PM

Quote:

Originally Posted by Lillys dad

First off, congratulations on the outcome of the surgery. The five hours my daughter was in surgery was the longest five hours of my life.
The activation is a truly incredible moment that you will remember for the rest of your life. The first time you child hears you voice, and you can tell they hear it, it is a very emotional time. The first thing out of my mouth when she could hear my voice was "I love you". I realize that she does not need to hear me say it, for her to know it. But, That was the first time I knew she could hear it. It was a very powerful moment. If you can remember, bring a camera and take lots of pictures. Or even bring a video camera.

Cherish the moments.

I am getting emotional just thinking about what you are saying!! I can't wait for the day my daughter can hear me tell her I love her!

Fragmenter - I am so happy your son is doing good. The summer always goes fast, so activation day will be here before you know it.

Fragmenter · 08-04-2006, 10:40 PM

I enjoyed everybody's input and congratulations. The wife and I feel blessed that you all know about our son and what he is going through.

I'll go ahead and update yall on the kid's sense of balance. I finally found his loss of balance a positive thing because I thought it'd help and force his body to compenstate and develop a strong connection between the body and the mind. Well, I thought too early because I had a hard time telling if his balance was still off after coming home from work.

So I forced him to stand on one leg then I busted him. He knew I was worried about his balancing so he tried to hide it from me. Damn, I want to cry but he's so wise for his age. Kids... they make you discover who you really are. For those who haven't become parents -- just wait til you get one of your own

Anyway, his sense of balance is coming back but I can't tell if its his determination or just his body getting used to the change

Maybe it's his determination because when my mother in law came to pick the kids up, he was so excited that he ran straight out of the door and jumped down two steps... all concrete... and landed on all four limbs and ran to her truck.

I wanted to chide him for doing that but then I realized that I would have laughed if he did that before getting his cochlear implant. I have to remind myself to not handle him with white gloves. I don't want him to change at all. I want him to be himself on his own terms.

I think I'm gonna get more white hairs from now on but we'll be fine. We will stick to our word and let him determine his destiny.

webexplorer · 08-04-2006, 10:59 PM

Quote:

Originally Posted by Fragmenter

So I forced him to stand on one leg then I busted him. He knew I was worried about his balancing so he tried to hide it from me. Damn, I want to cry but he's so wise for his age.

That is strangest thing I ever read - "forced him....and busted him" I think that you crossed the line. It is all about your attitude problem especially in the front of your child which is terrible thing to do.

Fragmenter · 08-05-2006, 12:07 AM

Quote:

Originally Posted by webexplorer

That is strangest thing I ever read - "forced him....and busted him" I think that you crossed the line. It is all about your attitude problem especially in the front of your child which is terrible thing to do.

Then you've exposed yourself for taking my account out of context.

Please explore yourself instead of the world wide web before making further comments, fool.

*edit* To make matters simple, I caught him red-handed. Clear as mud for ya, bub?

R2D2 · 08-05-2006, 12:23 AM

Sorry I misunderstood the previous posts and have deleted it! Sorry.

deafdyke · 08-05-2006, 01:32 AM

Excellent point Lillysdad! Be positive about the CI....make it into something cool and fun....Don't demonize deafness, but at the same time.......
Frag, I can't remmy if he's in an oral school? Most oral sucesses are the result of the really really gifted teachers there. Just remember, the CI is a wildcard for which everything is possible, but nothing is promised.

webexplorer · 08-05-2006, 07:47 AM

Quote:

Originally Posted by Fragmenter

Then you've exposed yourself for taking my account out of context.

Please explore yourself instead of the world wide web before making further comments, fool.

*edit* To make matters simple, I caught him red-handed. Clear as mud for ya, bub?

I wasn't sure if you were kidding us about that, but I was thinking of other posts - not yours. It is important that his ears are healing and adjust to "accept" the CI in his body for a couple of weeks. Activitation? - are you talking about to make him to go to a gym after the surgery right away?

You said that you are getting gray hairs. Gee, then you got them already. You are not alone... Perhaps, dye hairs that might help to cover your gray hair secretly. I have to feed my sister's horses, and cannot believe how much work for me to clean up their manures. I cleaned it up in the stable, and there was another fresh manure that I just cleaned up. Oh, brother!

greema · 08-05-2006, 08:13 AM

Quote:

Originally Posted by webexplorer

That is strangest thing I ever read - "forced him....and busted him" I think that you crossed the line. It is all about your attitude problem especially in the front of your child which is terrible thing to do.

There is a misunderstanding here I am sure. Fragmenter probably meant that he made his son stand on one leg to test his balance and in "busting" him Frag caught his son red-handed in trying to cover up his imbalance. We had VPd previously and Frag mentioned that his son knew his dad was very concerned over his balance issues after surgery so he'd been compensating his balance so his dad (Frag) won't worry so much.

So beets, everyone! (one of my kids' deaf friends used to say "beets" when he meant to say "peace" -- my hearing daughter told me of this mispronounction and I have used "beets" ever since -- guess it's a private joke_

SxyPorkie · 08-05-2006, 08:48 AM

Quote:

Originally Posted by Fragmenter

I enjoyed everybody's input and congratulations. The wife and I feel blessed that you all know about our son and what he is going through.

I'll go ahead and update yall on the kid's sense of balance. I finally found his loss of balance a positive thing because I thought it'd help and force his body to compenstate and develop a strong connection between the body and the mind. Well, I thought too early because I had a hard time telling if his balance was still off after coming home from work.

So I forced him to stand on one leg then I busted him. He knew I was worried about his balancing so he tried to hide it from me. Damn, I want to cry but he's so wise for his age. Kids... they make you discover who you really are. For those who haven't become parents -- just wait til you get one of your own

Anyway, his sense of balance is coming back but I can't tell if its his determination or just his body getting used to the change

Maybe it's his determination because when my mother in law came to pick the kids up, he was so excited that he ran straight out of the door and jumped down two steps... all concrete... and landed on all four limbs and ran to her truck.

I wanted to chide him for doing that but then I realized that I would have laughed if he did that before getting his cochlear implant. I have to remind myself to not handle him with white gloves. I don't want him to change at all. I want him to be himself on his own terms.

I think I'm gonna get more white hairs from now on but we'll be fine. We will stick to our word and let him determine his destiny.

Most deafies without CI have poor balance... Your son will be fine... dont worry.....
SxyPorkie

webexplorer · 08-05-2006, 09:14 AM

Quote:

Originally Posted by SxyPorkie

Most deafies without CI have poor balance... Your son will be fine... dont worry.....
SxyPorkie

webexplorer · 08-05-2006, 09:21 AM

Quote:

Originally Posted by greema

There is a misunderstanding here I am sure. Fragmenter probably meant that he made his son stand on one leg to test his balance and in "busting" him Frag caught his son red-handed in trying to cover up his imbalance. We had VPd previously and Frag mentioned that his son knew his dad was very concerned over his balance issues after surgery so he'd been compensating his balance so his dad (Frag) won't worry so much.

So beets, everyone! (one of my kids' deaf friends used to say "beets" when he meant to say "peace" -- my hearing daughter told me of this mispronounction and I have used "beets" ever since -- guess it's a private joke_

O.K.

About the beets, gee that we have to be careful what to say a word that make a person thinks. Perhaps, you said pee ...oops ...only kidding.

So, far nothing happen to me yet... Who knows. I think most deafies understand the vowel sounds (a, e, i, o, u) except few consonant sounds.

SxyPorkie · 08-05-2006, 09:28 AM

Quote:

Originally Posted by webexplorer

Poor sense of Balances are very COMMON in deafies... I would not worry about Fragmenter s son s balance... HE WILL BE FINE.... once he gets hang of it and re-learn to balance himself...
SxyPorkie

08-02-2006, 05:34 PM	#1 (permalink)
Fragmenter Registered User Join Date: Apr 2006 Location: Lexington, KY Posts: 823	Son's CI surgery Hello, I've been enjoying an internet-free life for a week now. It's restored energy into me; y'all should try it! Our son's cochlear implant surgery last Friday was a success without complications. He had a minor reaction to the anesthesia wearing off after the surgery. He was cooperative with the nurses all night and all morning. We're pleased with how everything has worked out so far. I had concerns about his sense of balance in the first couple of days at home but the last few days it has improved. My wife talked with the doctor over the phone about it and he said not to worry too much about it and just to keep an eye on it. Sometimes I can be a neurotic worry fart His activation date is sometimes in early September (we don't have it written it in stone) so we have plenty of time on our hands until then. All in all, our son is still the same kid we knew before the surgery! Last but not least, much thanks to your thoughts and prayers! I will let you all know what's new with the kid whenever it happens. __________________ Please don't feed the Trolls. They are for your viewing entertainment only. Thank you.

08-02-2006, 06:10 PM	#4 (permalink)
sr171soars Registered User Join Date: Jul 2005 Location: Raleigh, NC Posts: 2,700	Fragmenter, Great news! Glad to hear things are going well! __________________ But trailing clouds of glory till He comes... Foolishness is not a virtue

08-02-2006, 06:16 PM	#5 (permalink)
LuciaDisturbed Registered User Join Date: May 2006 Location: San Antonio, Texas Posts: 7,733	I'm glad to hear that things are going well for you and your son! __________________ "Those who cannot remember the past are condemned to repeat it." - Philosopher George Santayana. Implanted left ear 10/11/06, activated 10/16/06 - Nucleus Freedom My own CI experience, my views on CI and ASL and Deaf Culture and Society DeviantArt

08-02-2006, 06:31 PM	#6 (permalink)
R2D2 Registered User Join Date: Dec 2005 Location: Australia Posts: 2,605	Glad everything went well without any significant complications. Also it's very normal to feel off balance for a while. I felt a bit off balance right until activation when it suddenly disappeared. I could still do my normal stuff but just had to be careful with anything requiring fast head movements or fine balance. __________________ Left ear implanted 9th June 2006 Activated 29th June 2006 Right ear implanted 31st August 2007 Activated 18th September Both Nucleus Freedom Cochlear implant myths

08-02-2006, 10:53 PM	#10 (permalink)
ayala920 Registered User Join Date: Sep 2004 Location: Somewhere Posts: 444	Congratulations... Is that the right word? Seems like a strange thing to be congratulating, but I suppose it fits. I hope you son enjoys his new, sound-filled world come activation time. __________________ ~Ayala~ "Most English-speaking people...will admit that cellar door is 'beautiful', especially if dissociated from its sense (and from its spelling). More beautiful than, say, sky, and far more beautiful than beautiful. Well then, in Welsh for me cellar doors are extraordinarily frequent, and moving to the higher dimension, the words in which there is pleasure in the contemplation of the association of form and sense are abundant."

Today
Deafness	Sponsored Links __________________ This advertising will not be shown in this way to registered members. Register your free account today and become a member on AllDeaf.com

08-02-2006, 08:16 PM	#8 (permalink)
netrox Registered User Join Date: Mar 2003 Posts: 4,780	I had a few vertigo attacks (not sure if it's CI-related or not since it happened a YEAR after the CI surgery - never had vertigo prior to CI) and it sucked. I also lost some balance. But now I don't have any vesibular problems.

08-02-2006, 11:43 PM	#12 (permalink)
MsGiglz Registered User Join Date: Apr 2003 Location: WVa Posts: 4,255	PTL!!! glad that your son success the surgery!! I bet its BIG relief.. next step.... exciting moment to active the CI device.. just still keep on praying that it works.. I am sure, it will ! Also, I just want applaud you and your wife for such bravery and patiences with those anti-CIers... keep on walking and keep seeking the bright side! give your son my ..... __________________

08-03-2006, 01:26 AM	#13 (permalink)
Lillys dad Registered User Join Date: Apr 2006 Location: St. Louis MO. Posts: 863	First off, congratulations on the outcome of the surgery. The five hours my daughter was in surgery was the longest five hours of my life. The activation is a truly incredible moment that you will remember for the rest of your life. The first time you child hears you voice, and you can tell they hear it, it is a very emotional time. The first thing out of my mouth when she could hear my voice was "I love you". I realize that she does not need to hear me say it, for her to know it. But, That was the first time I knew she could hear it. It was a very powerful moment. If you can remember, bring a camera and take lots of pictures. Or even bring a video camera. Cherish the moments.

08-03-2006, 02:49 AM	#14 (permalink)
neecy Registered User Join Date: Mar 2006 Location: Beautiful British Columbia Posts: 1,409	Glad it went so well! I too, experienced mild vertigo/dizzy spells for the first couple weeks, then they went away and never returned. Can't wait to hear about his activation!!! __________________ Friends are angels that lift us to our feet when our wings have trouble remembering how to fly.

08-03-2006, 04:52 AM	#15 (permalink)
Liebling:-))) Sussi 7.7.86 - 18.6.09 Join Date: Jan 2004 Location: Germany Posts: 31,038	That's wonderful new to hear that things goes well without complication for you all. Keep it update __________________

08-03-2006, 12:22 PM	#16 (permalink)
Cloggy Registered User Join Date: Feb 2005 Location: Norway Posts: 4,706	Hi Fragmenter, Good to "hear" you again here. And I had the internet free time as well. Like you say.. worth it.... Glad to hear your son is OK. Funny that even though that's what everyone expected, we're still happy for the outcome. A bit like expecting a baby.... Anyway.. I bet the next goal is the first activation... __________________ . The limits of my language mean the limits of my world. . . . Ludwig Wittgenstein (1889 - 1951) Information about . . . . . . . . . Lotte Sofie . . . . . . . . . How the ear works . . . . . . . . . Parents info . . . . . . . . . Nonsense/ Myths about CI here or here.

08-03-2006, 01:46 PM	#17 (permalink)
Freaky Cat Registered User Join Date: Apr 2003 Location: Central ArKaNsAs Posts: 10,221	Glad to hear everything went smooth without any hitch.. hope he will recover from this and now looking forward to activiation next month which would be very special time.. I cant wait to hear how it goes .. __________________ When you miss me just look up to the night sky and remember, I'm like a star; sometimes you can't see me, but I'm always there! Freaky Cat's Blog

08-03-2006, 02:33 PM	#18 (permalink)
jag Registered User Join Date: Apr 2006 Posts: 793	Glad he's doing so well. I'm sure he's excited waiting for the activation. Hope you have everything set up with the school ST and stuff. (I really hate dealing with Sped stuff, sigh) Can't wait to hear more about his journey into sound. So when is you evaluation?

08-04-2006, 10:40 PM	#20 (permalink)
Fragmenter Registered User Join Date: Apr 2006 Location: Lexington, KY Posts: 823	balance update I enjoyed everybody's input and congratulations. The wife and I feel blessed that you all know about our son and what he is going through. I'll go ahead and update yall on the kid's sense of balance. I finally found his loss of balance a positive thing because I thought it'd help and force his body to compenstate and develop a strong connection between the body and the mind. Well, I thought too early because I had a hard time telling if his balance was still off after coming home from work. So I forced him to stand on one leg then I busted him. He knew I was worried about his balancing so he tried to hide it from me. Damn, I want to cry but he's so wise for his age. Kids... they make you discover who you really are. For those who haven't become parents -- just wait til you get one of your own Anyway, his sense of balance is coming back but I can't tell if its his determination or just his body getting used to the change Maybe it's his determination because when my mother in law came to pick the kids up, he was so excited that he ran straight out of the door and jumped down two steps... all concrete... and landed on all four limbs and ran to her truck. I wanted to chide him for doing that but then I realized that I would have laughed if he did that before getting his cochlear implant. I have to remind myself to not handle him with white gloves. I don't want him to change at all. I want him to be himself on his own terms. I think I'm gonna get more white hairs from now on but we'll be fine. We will stick to our word and let him determine his destiny. __________________ Please don't feed the Trolls. They are for your viewing entertainment only. Thank you.

08-05-2006, 12:23 AM	#23 (permalink)
R2D2 Registered User Join Date: Dec 2005 Location: Australia Posts: 2,605	Sorry I misunderstood the previous posts and have deleted it! Sorry. __________________ Left ear implanted 9th June 2006 Activated 29th June 2006 Right ear implanted 31st August 2007 Activated 18th September Both Nucleus Freedom Cochlear implant myths

08-05-2006, 01:32 AM	#24 (permalink)
deafdyke Registered User Join Date: Mar 2003 Location: Trebekistan Posts: 13,087	Excellent point Lillysdad! Be positive about the CI....make it into something cool and fun....Don't demonize deafness, but at the same time....... Frag, I can't remmy if he's in an oral school? Most oral sucesses are the result of the really really gifted teachers there. Just remember, the CI is a wildcard for which everything is possible, but nothing is promised.

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