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Unread 06-08-2006, 05:55 PM   #121 (permalink)
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Unread 06-08-2006, 07:03 PM   #122 (permalink)
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AWESOME!! Wishing you all the best of luck!
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Unread 06-08-2006, 08:23 PM   #123 (permalink)
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Looking forward to your next post, R2D2!
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Unread 06-08-2006, 09:09 PM   #124 (permalink)
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Best of luck, R2D2!!!
can't wait for your next posting Borgette

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Unread 06-09-2006, 07:52 AM   #125 (permalink)
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Wowser, R2D2! Cannot wait to read your nest post!

And I loved the comment about the Bluetooth and the possibility of leaving it somewhere and listening in on conversations! Hmmmm...

Also, the term "borgette" hit home cos I'm a "guyette" at work! (the only female on the team)
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Unread 06-09-2006, 09:32 AM   #126 (permalink)
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Quote:
Originally Posted by Cloggy

R2D2
Cloggy, I absolutely love this waving, thumbs-up smiley. Where did you find it?

And R2D2, best of luck to you.. anxiously waiting to hear from you again so we know how it went! Take care

Britt, fellow borgette
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Unread 06-10-2006, 01:54 AM   #127 (permalink)
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Thanks for all of your good wishes everyone - it went well! I posted a more detailed account of my experience in Sarah's thread asking for surgery experiences.
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Unread 06-10-2006, 07:45 AM   #128 (permalink)
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Oh there you are! Welcome back! (and I'll check out your story on Sarah's thread)
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Unread 06-10-2006, 09:01 AM   #129 (permalink)
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Thanks, R2D2! When I read about the post-op experiences, I feel more comfortable knowing how I should feel after my turn.
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Unread 06-19-2006, 05:36 AM   #130 (permalink)
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Just wanted wish Stacieleigh all the best with her hook up on Weds! You'll let us know all the details won't you? Now you do know that it's not going to sound the best for a while don't you? My audie has told me that it will sound terrible to begin with, but that it will improve as the brain adjusts to the new medium of sound.

I won't be too far behind you - Thursday next week!
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Unread 06-19-2006, 12:21 PM   #131 (permalink)
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I'm sure she is well prepared for the "BOOMING WORLD".

Stacieleigh, just remember your own voice will be too loud! I had to whisper at first. I had tears not because of joy but because it was far louder than I could imagine. It was hilarious to me that my audi thought I was teary because I could "gasp" hear. Heck, I expected to be able to hear and I wasn't surprised at all. It was the voices, the air vent, the computer, the car's engine...the whole gamut. Overwhelming is the operative word of the day for anybody's hookup.

I will say just hang in there as it gets better over time.
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Unread 06-19-2006, 06:20 PM   #132 (permalink)
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Quote:
Originally Posted by sr171soars
I'm sure she is well prepared for the "BOOMING WORLD".

Stacieleigh, just remember your own voice will be too loud! I had to whisper at first. I had tears not because of joy but because it was far louder than I could imagine. It was hilarious to me that my audi thought I was teary because I could "gasp" hear. Heck, I expected to be able to hear and I wasn't surprised at all. It was the voices, the air vent, the computer, the car's engine...the whole gamut. Overwhelming is the operative word of the day for anybody's hookup.

I will say just hang in there as it gets better over time.
So what do you recommend? Keeping activities low key for the days following hook up?

about the tears of "joy" in your eyes. Sometimes hearing people have very romantic thoughts about what it is like for a deaf person to be able to hear again and often don't realise that it involves a lot of adjustment and hard work - albeit worth it!
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Unread 06-19-2006, 06:36 PM   #133 (permalink)
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Originally Posted by R2D2
So what do you recommend? Keeping activities low key for the days following hook up?

about the tears of "joy" in your eyes. Sometimes hearing people have very romantic thoughts about what it is like for a deaf person to be able to hear again and often don't realise that it involves a lot of adjustment and hard work - albeit worth it!
No. There is nothing you can do that really mitigates the "noisy" world. Obviously, avoid really loud things but the rest is just normal and you just have to get used to it. Give you an example, where I used to work (building wise) there was a door that led to a refrigerator that we used for our food. It slams in a certain way and it irritated the heck out of me at first as I was hearing more nuiances than with my HA. Another was trucks and cars. They are really LOUD to say the least. Thought my brain was getting squished by the sounds.

Actually, my audi is quite used to the "tears of joy" syndrome and mistakenly thought that is what I was doing. She actually said to me that it was "alright" to cry and I croaked and said that wasn't why but because how blinkin' loud it was. But you are correct, most people probably react that way. I never wavered in my thinking that I would hear and therefore didn't have a "romantic" view about it...
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Unread 06-19-2006, 08:41 PM   #134 (permalink)
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Originally Posted by sr171soars
No. There is nothing you can do that really mitigates the "noisy" world. Obviously, avoid really loud things but the rest is just normal and you just have to get used to it. Give you an example, where I used to work (building wise) there was a door that led to a refrigerator that we used for our food. It slams in a certain way and it irritated the heck out of me at first as I was hearing more nuiances than with my HA. Another was trucks and cars. They are really LOUD to say the least. Thought my brain was getting squished by the sounds.
Cool, thanks for the honesty. Everyone seems to say that the first few weeks are quite a difficult adjustment but which has a pay off in the long term.
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Unread 06-19-2006, 09:42 PM   #135 (permalink)
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i am excited for you!! my son has ci and i am amazed on what it does for him.... the best decision we made for him
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Unread 06-20-2006, 02:06 AM   #136 (permalink)
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Originally Posted by samantha kennel
i am excited for you!! my son has ci and i am amazed on what it does for him.... the best decision we made for him
Couldn't agree with you more!. Our daughter is surprising us every day.
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Unread 06-20-2006, 11:59 AM   #137 (permalink)
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Originally Posted by R2D2
Just wanted wish Stacieleigh all the best with her hook up on Weds! You'll let us know all the details won't you? Now you do know that it's not going to sound the best for a while don't you? My audie has told me that it will sound terrible to begin with, but that it will improve as the brain adjusts to the new medium of sound.

I won't be too far behind you - Thursday next week!
Thanks! I'm already nervous as to how everything will sound tomorrow, my audi talked with me about what to expect and how things will not sound the same and robot quality speech at first. It does bother me a little about not sounding the same, but I am so excited to have the opportunity to understand speech to join my friends in convo and jokes without "what we talking about?" and "what's so funny? I want to know!" lol
There's so much stuff I want to listen to and I can't wait.
Good luck next week on yours!
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Unread 06-20-2006, 12:19 PM   #138 (permalink)
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Quote:
Originally Posted by sr171soars
I'm sure she is well prepared for the "BOOMING WORLD".

Stacieleigh, just remember your own voice will be too loud! I had to whisper at first. I had tears not because of joy but because it was far louder than I could imagine. It was hilarious to me that my audi thought I was teary because I could "gasp" hear. Heck, I expected to be able to hear and I wasn't surprised at all. It was the voices, the air vent, the computer, the car's engine...the whole gamut. Overwhelming is the operative word of the day for anybody's hookup.

I will say just hang in there as it gets better over time.
I'm trying my best to imagine being overwhelmed at all the sounds, I can't lol
I've been trying to imagine every possible ways to what it may sound like and no clue at all. I'll find out tomorrow!
So far I like my audie, he's seems so straightforward, how I like 'em. I'm sure he won't go "gasp" lol, but i know my hun's mom will lol.
I'll post the updates when I can, depends on how busy I'll be asking everyone "what's that?"
Thanks everyone for support!
Stacie
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Unread 06-20-2006, 12:38 PM   #139 (permalink)
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Quote:
Originally Posted by sr171soars
No. There is nothing you can do that really mitigates the "noisy" world. Obviously, avoid really loud things but the rest is just normal and you just have to get used to it. Give you an example, where I used to work (building wise) there was a door that led to a refrigerator that we used for our food. It slams in a certain way and it irritated the heck out of me at first as I was hearing more nuiances than with my HA. Another was trucks and cars. They are really LOUD to say the least. Thought my brain was getting squished by the sounds.

Actually, my audi is quite used to the "tears of joy" syndrome and mistakenly thought that is what I was doing. She actually said to me that it was "alright" to cry and I croaked and said that wasn't why but because how blinkin' loud it was. But you are correct, most people probably react that way. I never wavered in my thinking that I would hear and therefore didn't have a "romantic" view about it...
Oh I totally agree.. the first couple days are TOTALLY overwhelming! I had the same reaction, for the same reason. Bloody loud! In fact, when we got back to the hotel later that evening, I took the CI off, laid down on the bed, and wallowed in depression for a couple hours until it was time for us to go to the restaurant to eat. I knew I'd have to put the CI back on and dreaded doing it. Not that I didn't like it, just that I didn't know how to handle all the noise. Also was becoming moody and annoyed with my hubby and in-laws, because every five seconds they would ask delightedly "DID YOU HEAR THAT??" Well, which one out of the GAZILLION sounds are you referring to? I wanted to say I finally had to plead with them to PLEASE stop asking that question, and let me "discover" things on my own.

You also might be surprised to find out that on your first few days, you won't be able to hear things that you know are supposed to make sounds. For me, the first couple of days I was unable to hear footsteps, car horns, doorbells.

So, CI newbies, don't be surprised to feel like you're on an emotional roller coaster for the first couple of days-- but the truth is, it will get better and keep on getting better from there!
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Unread 06-20-2006, 04:23 PM   #140 (permalink)
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Originally Posted by Superfroggy
Oh I totally agree.. the first couple days are TOTALLY overwhelming! I had the same reaction, for the same reason. Bloody loud! In fact, when we got back to the hotel later that evening, I took the CI off, laid down on the bed, and wallowed in depression for a couple hours until it was time for us to go to the restaurant to eat. I knew I'd have to put the CI back on and dreaded doing it. Not that I didn't like it, just that I didn't know how to handle all the noise. Also was becoming moody and annoyed with my hubby and in-laws, because every five seconds they would ask delightedly "DID YOU HEAR THAT??" Well, which one out of the GAZILLION sounds are you referring to? I wanted to say I finally had to plead with them to PLEASE stop asking that question, and let me "discover" things on my own.

You also might be surprised to find out that on your first few days, you won't be able to hear things that you know are supposed to make sounds. For me, the first couple of days I was unable to hear footsteps, car horns, doorbells.

So, CI newbies, don't be surprised to feel like you're on an emotional roller coaster for the first couple of days-- but the truth is, it will get better and keep on getting better from there!
That's a great, down to earth summary of the first few days! I've been very busy telling all my friends and family that it will take me some time to get used to the sounds and that it will probably sound terrible at first. So fortunately they do understand and are not expecting you to instantly hear from the word "go".

I'm also going to meet up with a friend who is also an implantee this week and she is going to tell me all about her experience of switch on last year. she said in the first 2 weeks she was so depressed and thought she had made a mistake but now she could never go back to hearing aids. She is so happy with what she hears compared to what she had before CI. She has been very insistent on us meeting up and talking it through because she remembered how hard it was for her.
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Unread 06-20-2006, 04:36 PM   #141 (permalink)
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AllDeaf,
I agree it takes some time for your brain to learn the sounds. It took me two weeks to a month to get adapted at first. It was a rough experience for me in the beginning. But I was impressed that I was able to learn and memorize the sounds so fast. I thought this will take a year. Really it varies with different individuals and their CI's.

Then this past month May 19th,2006 I had my 3rd surgery on my right side and then two weeks later I was switched on. The next day I was on program 4 instead of one. I thought that was fast. I can hear and memorize in couple of days.

If I were you, I would wear it everyday and take it off for a half day three times a week. Then the next week would be twice a week, week after next week would be once a week until you are comfortable.

It was hard at first, headaches, spinning around (dizzy). I could not drive or work for a whole month. My parents, friends and boyfriend had to drive me to work until I was able to drive, that was my first CI on my left side in 2003. Then the second implant on my right side in 2004, I was ready to go to work the next day after surgery. Both of my structures are completely different.

Any surgeries can take time to recover and cochlear implants is waking up your brain for the first time can take time. Just be patient and keep it low until you are comfortable.

Hope this helps? I am praying for you.
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Unread 06-20-2006, 05:55 PM   #142 (permalink)
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Thanks for sharing your experience Mre4339 - you are a real veteran with 3 surgeries! And that is good advice about having a break 3 times a week to begin with - I will remember that if I happen to feel a bit overwhelmed.

It sounds like your progress has been faster every time you've done it too. I hope that you get to speed with the Freedom and get to a level of sharpness that you are happy with. Hopefully skillful mapping will do the trick for you.
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Unread 06-20-2006, 07:42 PM   #143 (permalink)
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Quote:
Originally Posted by R2D2
Just wanted wish Stacieleigh all the best with her hook up on Weds! You'll let us know all the details won't you? Now you do know that it's not going to sound the best for a while don't you? My audie has told me that it will sound terrible to begin with, but that it will improve as the brain adjusts to the new medium of sound.

I won't be too far behind you - Thursday next week!
Oh my! It is tomorrow for Stacieleigh!
and R2D2 next Thursday!

Thank you for sharing your experience with us -- this will help me know what to expect for my grandson and my son...
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Unread 06-20-2006, 07:48 PM   #144 (permalink)
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AllDeaf,
I agree it takes some time for your brain to learn the sounds. It took me two weeks to a month to get adapted at first. It was a rough experience for me in the beginning. But I was impressed that I was able to learn and memorize the sounds so fast. I thought this will take a year. Really it varies with different individuals and their CI's.

Then this past month May 19th,2006 I had my 3rd surgery on my right side and then two weeks later I was switched on. The next day I was on program 4 instead of one. I thought that was fast. I can hear and memorize in couple of days.

If I were you, I would wear it everyday and take it off for a half day three times a week. Then the next week would be twice a week, week after next week would be once a week until you are comfortable.

It was hard at first, headaches, spinning around (dizzy). I could not drive or work for a whole month. My parents, friends and boyfriend had to drive me to work until I was able to drive, that was my first CI on my left side in 2003. Then the second implant on my right side in 2004, I was ready to go to work the next day after surgery. Both of my structures are completely different.

Any surgeries can take time to recover and cochlear implants is waking up your brain for the first time can take time. Just be patient and keep it low until you are comfortable.

Hope this helps? I am praying for you.
Thanks for sharing your story, Mre4339! I'm very interested in hearing everyones' experience with their CI surgeries and progresses afterwards. From what I have read so far in here is everyone is different but they all have the same goal.
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Unread 06-20-2006, 10:50 PM   #145 (permalink)
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Oh my! It is tomorrow for Stacieleigh!
and R2D2 next Thursday!

Thank you for sharing your experience with us -- this will help me know what to expect for my grandson and my son...
Thanks for being so supportive Greema! Will write a detailed account - as I am sure Stacieleigh will.
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Unread 06-20-2006, 11:09 PM   #146 (permalink)
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Thanks for being so supportive Greema! Will write a detailed account - as I am sure Stacieleigh will.
I'll do my best! Can't fall asleep, too nervous!
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Unread 06-21-2006, 11:30 PM   #147 (permalink)
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First day update

Hey all

It's really strange! lol, i expected strange noises, but this is weird lol.
To me it sounds like a constant motorcycle idling and when noises happen, it sounds like that motorcycle is reving up! I can't understand anything at all yet, but I know in time I will and looking forward to that.

I go back to my second mapping in August, is that typical or pretty long of a wait?

I'm hoping by tomorrow, I will understand a little better, if not, I'll keep working at it

I actually took it off for a little bit to watch a little tv and I actually was missing wearing my CI, so I put it back on after only having it off 10 mins lol.

I do have to whisper, if I don't, that motorcycle rev noise go all crazy, lol.

All in all, it's really cool to even hear something, even weird something, in that ear. Pretty happy and yeah, overwhelmed.

I'll update again!

Stacie
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Unread 06-21-2006, 11:51 PM   #148 (permalink)
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Hey all

It's really strange! lol, i expected strange noises, but this is weird lol.
To me it sounds like a constant motorcycle idling and when noises happen, it sounds like that motorcycle is reving up! I can't understand anything at all yet, but I know in time I will and looking forward to that.

I go back to my second mapping in August, is that typical or pretty long of a wait?

I'm hoping by tomorrow, I will understand a little better, if not, I'll keep working at it

I actually took it off for a little bit to watch a little tv and I actually was missing wearing my CI, so I put it back on after only having it off 10 mins lol.

I do have to whisper, if I don't, that motorcycle rev noise go all crazy, lol.

All in all, it's really cool to even hear something, even weird something, in that ear. Pretty happy and yeah, overwhelmed.

I'll update again!

Stacie
Glad to know everything went well for you. If i remember correctly, i think we had to wait about 6 weeks for my daughters second mapping, so it seems about right. You can always schedule a sooner appointment if anything is bothering you. It takes time to get used to it. I had to take my daughter back sooner because i noticed her eye twitch everytime we spoke to her. They just had to change the mapping a little because the sounds were a little "too loud" for her. Everyone is different but in time they will find a map that works well for you. Good Luck!
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Unread 06-22-2006, 12:22 AM   #149 (permalink)
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Glad you are back Stacie and it sounds a pretty normal start from the many of the experiences I have read. Only the lucky ones hear voices right away. Hopefully the revving will progress to more distinct sounds for you soon. I think the motorbike probably sounds better than the beeping, clanging and static that some people have upon activation! Does it sound like a Harley Davidson or a Yamaha?

My second mapping will be a week after the activation but I think that every centre varies considerably. As Kayla says if you are feeling bothered by what you are hearing you can always go back for what they call an "emergency map".

I'm going crazy now waiting for activation! I'm going to have to go to the library and get out some books to keep me busy. Maybe a long Russian novel like War and Peace??
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Unread 06-22-2006, 01:22 AM   #150 (permalink)
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cong. i remember that day i had it activiacted. and the sounds are very weird.. like the airplane engine is reving allday long the first day.. very annoying.. and wow.. just a little more than a year ago.. time flies.

i remember i had my 2nd mapping 2 days after my first day hook-up guess it varies in each centre.

there's so much to learn and many more..
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