EVIDENCE of being deaf with Hearing Aid device - Page 10

ayala920 · 05-08-2006, 09:22 PM

Quote:

Originally Posted by vp

THEY wanted to find out how it is to hear. Is that bad? To want to experience hearing? What would you say to an adolescent who wants to hear? Don't get a CI because sound is not important?

I'm actually surprised at the number of people I know who have privately confided in me that they would like implants. I'm talking about people who consider themselves Deaf, without a doubt; people who attend Gallaudet or RIT, use ASL, associate themselves mostly with other d/Deaf people. It's actually pretty surprising.

Sweetmind · 05-08-2006, 10:27 PM

My apologies for giving you the wrong one earlier, Here is the right one

VP Thats for you. Thats what I m trying to point that out.

http://www.alldeaf.com/showthread.php?t=27296 why does it have to be locked after all people here to swear or namecalling.. So is that fair for him to be punished while other ppl dont respect others like they did it to me?

Thanks!

Sweetmind · 05-09-2006, 12:38 AM

I find this is very interesting that they removed the url that I just gave u the right one.. NOw it s proven that they are hiding the fact of what audist attitude people did to trippla who admitted that he wants to remove his CI device. He got bashed for it over swearing words while they are no better than Trippla.. I find this is the most dishonest happens in here.

That is a very good example of audist attitude people who loves to stop d/Deaf children and teenagers or Deaf young adult 's true feelings to express.

** Shaking my head **
Sweetmind

**Liebling:-)))** · 05-09-2006, 01:04 AM

I found out by coincidence and thought to myself that I would like to share this link with you all here.

Cochlear Implants - Reimplantation and Extrusion

Quote:

Sometimes the Implant Has to Be Removed

It fortunately does not happen that often, but it does happen. Sometimes a newly implanted cochlear implant must be surgically removed. The implantee may get a new implant, or no new implant at all, depending on the reasons for the removal. One mother wrote to About and described what had happened to her child:

[Child] had to have cochlear removed because the incision would never heal properly. The implant itself was a success and [child] was able to hear. [Child and sibling] both had the CI done. After 2 weeks [sibling] had healed perfectly and [child] had yet to heal completely. When the troubled area would finally heal [child] would have problems in another spot. They tried plastic surgery twice, attempting to close the wound. Both times were unsuccessful and the doctors could not figure out why it wouldn't heal. Finally, when the wound became so bad that about 1/3 of the CI was actually exposed the only option we had was to have it removed. In the 13 months that [child] had the implant she had only been able to use it about 5 months. I do not regret having the surgery done because the pros outweighed the cons by far. Unfortunately it didn't work as we had hoped.

Why Reimplant a Cochlear Implant?

There are several reasons that a cochlear implant may have to be removed. Among them:

The skin flap can become infected.
The body can reject the implant (as happened with the child above)
The implant receiver can extrude.
The electrode array can get damaged or the electrodes were not put in right. Or the electrode array can migrate out of place.
The implant simply does not work right.

How Frequent Is Reimplantation?

According to CochlearImplant.org (a website about insurance and cochlear implants), "approximately two percent of all cochlear implant devices experience device failure" and have to be removed (explanted). All device failures must be reported to the Food and Drug Administration (FDA).

The FDA has a searchable online database, MAUDE, that lists cochlear implant device failures. A quick search on event type Malfunction turned up these results for reports submitted from 2001-2002 (by Dec. 31, 2002): Cochlear Nucleus 22: 249 records. Cochlear Nucleus 24: 227 records. Med-El Combi 40: 16 records. Advanced Bionics Clarion: 215 records.

Additional examples:

In a study of 10 implantees in Sweden, one had to have the implant removed due to infection.
In another study in Australia (Explantation and re-implantation in children and adults: the Melbourne experience, a presentation made at the 1999 Conference on Implantable Auditory Prostheses), it was noted that "4 percent of total surgeries [were] performed due to device failure."
In web searching, I came across several examples of adults and children whose implants had to be removed because of infection or device failure. Most were able to do well with new implants.

Additional Resources

The issues of reimplantation and extrusion have been addressed in a variety of published resources:

A book, J. Thomas Roland Jr., "Complications of Cochlear Implant Surgery".
An article, Cochlear reimplantation: surgical techniques and functional results, in Laryngoscope, vol 111, pp 1608-1613.
An article, " Outcome analysis of cochlear implant reimplantation in children, " in Laryngoscope, vol 111, pp. 26-32.
There is also a discussion list on problems with cochlear implants, ProblemCI.

Have you experienced extrusion or needed reimplantation? Was reimplantation successful? Submit your story for addition to this article and read others' submissions below.

"My son recently was reimplanted after the implant was found to be failing. We found out his implant was failing inthe anniverary month of him being implanted 3 years. He was able to progress even though his implant was failing. He was reimplanted and the difference is night and day. Within three weeks he has regained anything he lost when he wasn't hooked up and even gaining. The surgery was actually easier on him than the first time. He is so excited about having his implant back, functional."

----

"I'm a congenitally deaf woman who received a cochlear implant six years ago. Although my CI was functioning fine, the receiver had extruded and migrated so that it was pressing uncomfortably against my earlobe. Two months ago, I had surgery to reposition this CI. Unfortunately, the electrode array slipped out of the cochlea into the middle ear during surgery. Also, it is quite possible that the device also failed. When I first turned on my speech processor after the incision had healed, I received painful electrical shocks instead of hearing sounds. I'm scheduled for another surgery to replace my CI with the latest CI model.

<DIV>I sure hope that this new CI will be successful because I would be really upset about going through the agony of another surgery and facing the disappointment of yet another CI failure."</DIV><DIV></DIV><DIV>---</DIV><DIV>"My friend informed me that she cannot have her CI removed because it is 10 years old and too dangerous of a medical operation</DIV><DIV></DIV

DIV>(to have an implant removed). Does this mean she must live with the older CI technology? What about young adults whose parents made the decision to this technology implanted, were the parties informed that removing an implant 10 years later would be dangerous and not recommended by the medical profession? How many thousands of children are trapped living with older generation technology in thier heads that is extremely dangerous to remove due to nerve growth around the implant? My friend was very saddened when she learned that at her present age, her doctor's were strongly against replacing her older CI with a newer CI due to the high probability of threat to her health and well being. She is trapped with a hole in the side of her head and aging technology. This says nothing about the psychological scares she must live with. Where is the medical research on the long term negative impacts of this technology? Children and parents must have informed choice...the good, the bad and the ugly facts... "</DIV><DIV></DIV><DIV>---</DIV><DIV></DIV><DIV>"I have a 7 yr old boy who progressively lost hearing until deafened at age 4 years. He was implanted with Nucleus 24 via surgical "C-cut" on scalp. Shortly after surgery, incision became infected. Antiobitics appeared to clear it up. Had trouble with chronic scalp swelling over internal device for one year. The device became exposed. Had surgery to try to repair. Swelling problem continued. Culture revealed methicillan resistant staph aureous (MRSA) infection which is usually contracted in hospitals. CI was explanted.</DIV><DIV></DIV><DIV>A month later another CI was implanted on opposite side of head. Then after another year, the original side of head was reimplanted. There have been no problems with the last 2 implants. My strong advise to anyone with a CI or ear infection is to INSIST on a pre-antibiotic regimen culture. Had I known this, I could have saved alot of hearing time for my boy. At present date, he has worn the 2nd implant for 1 1/2 years and the 3rd (bilatteral) implant for 5 months. He was still pretty much pre-lingual at the time of the 2nd implantation. It seemed as if he had to start over almost from scratch with receptive/expressive speech. Progress started showing up after 1 year of the second implant."</DIV

http://deafness.about.com/cs/cochlea...plantation.htm

Sweetmind · 05-09-2006, 01:29 AM

Whoopppeeee dooo Many of you dont have any respect for me and my topic post that I dont really want to make a big scene about CI into my topic post that is not related to CI if you mind.. TOOO PUSHING and BUNCH of lies all along that I can see .. Anyway Many thanks for your true colors.

Audism people are intending to take over Deaf s outpoken and my showing is the evidence that we all cannot hear everything with those devices.. All you care for orally speaking to be perfect for hearing s sake whlle you dont have any respect for those Deaf children s Education needs. No remorse feelings for those Deaf children with or without HA or CI devices.

Thats deaf oralisms are so blind and take granted by those evil CI Corporation. All they do care is $$$$$$ and dont care about you deafies.

for hearing people s sake and make them more easier than Deaf chlidren to make it harder from audist attitude people Wow, what a very selfish and very unthoughtful!

It s real screwing up there are so many Teachers do not learn ASL while they couldnt understand them from the beginning.. YEECCHH! I cannot believe you allowed this happens to destory our d/Deaf children s Education needs that comes first.

Somebody who is hearing and laughed at you while they crueled at me all along.. Is that something??

Now I can see why you dont want Deaf people tell the truth because it has happens from the past year that is still exist in today's . Thank you!

Many thanks!

Sweetmind

R2D2 · 05-09-2006, 01:33 AM

Quote:

Originally Posted by Sweetmind

I find this is very interesting that they removed the url that I just gave u the right one.. NOw it s proven that they are hiding the fact of what audist attitude people did to trippla who admitted that he wants to remove his CI device. He got bashed for it over swearing words while they are no better than Trippla.. I find this is the most dishonest happens in here.

That is a very good example of audist attitude people who loves to stop d/Deaf children and teenagers or Deaf young adult 's true feelings to express.

** Shaking my head **
Sweetmind

Sweetmind, I find your post a little worrying. I don't think the Alldeaf admin are part of an audist plot to get at Trippla and anyone who doesn't want a CI.

Also Trippla is considering a newer implant as one of his options, I think you must have missed that thread here. . We don't mind what he does either way. It's his choice.

gnulinuxman · 05-09-2006, 01:35 AM

Quote:

Originally Posted by Sweetmind

Whoopppeeee dooo Many of you dont have any respect for me and my topic post that I dont really want to make a big scene about CI into my topic post that is not related to CI if you mind.. TOOO PUSHING and BUNCH of lies all along that I can see .. Anyway Many thanks for your true colors.

Audism people are intending to take over Deaf s outpoken and show the evidence that we all cannot hear everything with those devices.. All you care for orally speaking to be perfect for hearing s sake whlle you dont have any respect for those Deaf children s Education needs. No remorse feelings for those Deaf children with or without HA or CI devices.

Thats deaf oralism are so blind and take granted by those evil CI Corporation. All they do care is $$$$$$ and dont care about you deafies.

for hearing people s sake and make them easier than Deaf chlidren.. Wow, what a very selfish and very unthoughtful!

Now you can see why you dont want Deaf people tell the truth. Thank you! sighs!

Though we'll probably get flamed for this, I agree with her. It is all about money and corporate greed.

Sweetmind · 05-09-2006, 01:48 AM

You can see trippla is very confused from the start after all you audism people bashed him /her up before he/she have his chance.. You all did not give him/her a chance.

He/She is young deaf male/female and need to learn how to deal with audism people s reaction. Give him/her a break! I dont need to look at other url after all it was locked but doesnt have to be removed if you mind.

Thank you!

Sweetmind

R2D2 · 05-09-2006, 01:57 AM

Quote:

Originally Posted by Sweetmind

You can see trippla is very confused from the start after all you audism people bashed him /her up before he/she have his chance.. You all did not give him/her a chance.

He/She is young deaf male/female and need to learn how to deal with audism people s reaction. Give him/her a break! I dont need to look at other url after all it was locked but doesnt have to be removed if you mind.

Thank you!

Sweetmind

Right.....okay.

**Liebling:-)))** · 05-09-2006, 02:41 AM

Okkkaaayyy! I thought this link, I provided would interesting you all because of Trippla. I thought this link would help Trippla because he consider to remove CI becasue he's unhappy to wear CI...

Is this link, I provided is wrong or what?

Sweetmind · 05-09-2006, 04:04 AM

Dont worry!!! Liebling:-))) You are in the wrong place and time. Thats all to it! I m sure you have read it through those pages.

I am glad u pointed that out that shows that those d/Deaf children stuck their CI device into their heads forever after it failed them that I dont agree to have those necessary surgery for hearing people s sake.

Blame Blame Deaf children and Deaf Schools for being a failure because those kids are having their own deafness. It s actually fact that audism people make their big failure for Deaf children's Education from the start. It s very very poor reason for having CI after all it s no diffrence between HA and CI devices. It is so pointless and no difference.

I just dont understand why they lied to many deafies that we are speaking very well with our deaf voices? And we are blamed for it.. ?????? Thats what we are punished for their mistakes as usual. They think they know it all about us and our deafness.. Scoffs!

Education comes first and Have Deaf children 's true language back to thier life that works for them.

Thank you!

Sweetmind

R2D2 · 05-09-2006, 04:45 AM

Quote:

Originally Posted by Liebling:-)))

Okkkaaayyy! I thought this link, I provided would interesting you all because of Trippla. I thought this link would help Trippla because he consider to remove CI becasue he's unhappy to wear CI...

Is this link, I provided is wrong or what?

Hi Liebling,

To be honest I wasn't sure why you posted the link intially but now that you put it in the context of Trippla I didn't think that he had a problem with the device itself, he said that the CI was too loud for him and that he prefered his hearing aid. Correct me if I am wrong about this.

In the thread where he was asking about the newer version of CI, he was told he wouldn't have to have it reimplanted either. Apparently all that's needed is some kind of upgrade - no surgery.

I thought your link was interesting in other regards because the rates cited for device failure was quite low at 2-4%. This means that 96-98% of devices do not fail. This is an encouraging rate.

Thank you for posting it.

Fragmenter · 05-09-2006, 06:42 AM

Quote:

Originally Posted by gnulinuxman

I am against selfish parents who implant their deaf children or force them to speak orally only because they don't want to learn to sign. I'm not saying ALL parents are that way. I am not saying that even most are that way. I am saying that MANY parents implant their children and/or force oral communication for selfish reasons. The MOTIVE is what I am talking about.

Tell me, do you even know why I want my son to receive a cochlear implant?

If not, I suggest you read my posts in "Parents' Opinion On Hearing Aids & CI" and I reckon that is how ALL parents feel about their deaf children. Not some. Not most. Just ALL.

Of course we will force oral communication. It is called "training", young man! Why go through all that trouble and skimp on the training process? That is asinine. Hearing families might not care about our culture and want their deaf child to be raised in a hearing world. Why? Read post #222 in "EVIDENCE of being deaf with Hearing Aid device".

In the end, it is up to their parents on the child's direction. My wife and I are still going to raise our children in the deaf world while they train and learn how to communicate with hearing people at schools and with their family relatives.

Cloggy · 05-09-2006, 07:07 AM

Quote:

Originally Posted by gnulinuxman

Perhaps I can help explain to hearing people, and perhaps late-deafened people, what born-deaf people like Sweetmind feel about implanting children.

I was born without mind-reading senses. I am happy living without them. But what if people were born who could read minds? What if I was forced to read minds and not allowed to communicate manually or orally? What if they came out with a brain implant that helped people read minds somewhat but didn't work fully and then started harassing people who couldn't read minds?

That's how I feel when I'm in these kinds of arguments. I would still prefer using my eyes and ears to communicate because those are my senses that work. That's why born-deaf people generally prefer visual communication--it is their strongest sense.

Please consider this point.

I like this example better than the "let's make a hearing child deaf in order to integrate her with her deaf parents" example.

It's a good example. The only problem is the "but didn't work fully" which as an example in itself is fine, but with the technology NOWADAYS it does work.

So, it's fine if you decide NOT to take it as long as it is not based on OLD information.

People here that are defending CI are not telling anyone to take it. They are explaining the current status, technology so that people that are interested get the correct, current information.

This way a choice can be made on good information. Not OLD and INCORRECT information

Cloggy · 05-09-2006, 07:20 AM

Quote:

Originally Posted by Sweetmind

You can see trippla is very confused from the start after all you audism people bashed him /her up before he/she have his chance.. You all did not give him/her a chance.

He/She is young deaf male/female and need to learn how to deal with audism people s reaction. Give him/her a break! I dont need to look at other url after all it was locked but doesnt have to be removed if you mind.

Thank you!

Sweetmind

I think he had no contact with Audist people nor with hearing people. They were not the ones that confused him - as you said.

And about links missing. I thing you are getting paranoid. But then, being at Matthew Moore's DeafNotes for so long, you get used to topics just disappearing. I believe a week ago a topic was just removed..
So much for Matthew Moores "open-minded" view.

Cloggy · 05-09-2006, 07:22 AM

Quote:

Originally Posted by Fragmenter

Tell me, do you even know why I want my son to receive a cochlear implant?

If not, I suggest you read my posts in "Parents' Opinion On Hearing Aids & CI" and I reckon that is how ALL parents feel about their deaf children. Not some. Not most. Just ALL.

Of course we will force oral communication. It is called "training", young man! Why go through all that trouble and skimp on the training process? That is asinine. Hearing families might not care about our culture and want their deaf child to be raised in a hearing world. Why? Read post #222 in "EVIDENCE of being deaf with Hearing Aid device".

In the end, it is up to their parents on the child's direction. My wife and I are still going to raise our children in the deaf world while they train and learn how to communicate with hearing people at schools and with their family relatives.

I'm sure he wasn't talking about you or any other parent that actually thought about the decision etc.
He was talking about all the other 99% of the parents.

**Liebling:-)))** · 05-09-2006, 11:21 AM

[QUOTE]

Quote:

Originally Posted by Audiofuzzy

I wanted to point out that I don't think it is neccessary for the deaf person to speak,

It look like that you prefer hearies´s side to deafies´s side or what?

I take BOTH sides, no matter what. It´s them who experience it, not us.

Boult · 05-09-2006, 11:30 AM

[QUOTE=Liebling:-)))]

Quote:

It look like that you prefer hearies´s side to deafies´s side or what?

I take BOTH sides, no matter what. It´s them who experience it, not us.

you are truncating out the remaining sentence and it seems that you have taken it out of context. she was trying to point it out in regard to her previous replies to gnulinux man.

Boult · 05-09-2006, 11:38 AM

Quote:

Originally Posted by Cloggy

I think he had no contact with Audist people nor with hearing people. They were not the ones that confused him - as you said.

And about links missing. I thing you are getting paranoid. But then, being at Matthew Moore's DeafNotes for so long, you get used to topics just disappearing. I believe a week ago a topic was just removed..
So much for Matthew Moores "open-minded" view.

It would be good idea to ask TrippLA directly to see if he (I found out he is actually a male), indeed, requested to have his topic removed since he did ask for his topic to be locked because he changed mind. And maybe that others were pointing to his locked topic and say "Look!" which TrippLA get tired of. And we know that we can have our own topic deleted at request if it deem necessary.

**Liebling:-)))** · 05-09-2006, 11:40 AM

[QUOTE=Boult]

Quote:

Originally Posted by Liebling:-)))

you are truncating out the remaining sentence and it seems that you have taken it out of context. she was trying to point it out in regard to her previous replies to gnulinux man.

It´s understandable if she took gnulinuxman´s post as quote to explain... but she made her post in general way without refer anyone here.

EVIDENCE of being deaf with Hearing Aid device

Fo'Shizzle · 05-09-2006, 11:52 AM

Boult · 05-09-2006, 11:56 AM

Quote:

Originally Posted by ayala920

I'm actually surprised at the number of people I know who have privately confided in me that they would like implants. I'm talking about people who consider themselves Deaf, without a doubt; people who attend Gallaudet or RIT, use ASL, associate themselves mostly with other d/Deaf people. It's actually pretty surprising.

That's very interesting to hear that!

Fragmenter · 05-09-2006, 12:06 PM

Deep inside every Deaf people's shell, they do want to know what it is like to hear. It happens to the best of them

There is NOTHING wrong with wanting to know how it is like to hear anything.

Boult · 05-09-2006, 12:09 PM

Quote:

Originally Posted by Fragmenter

Deep inside every Deaf people's shell, they do want to know what it is like to hear. It happens to the best of them

There is NOTHING wrong with wanting to know how it is like to hear anything.

Indeed...

OT: what FPS do you play? since I notice your avatar. considering my age, I love FPS game and been playing FPS since DOOM came out.

Audiofuzzy · 05-09-2006, 12:56 PM

Quote:

I thought you would use common sense and type the word in full instead of abbreviated.

I got tired of repeating myself. Gnulinuxman anyway knows what I meant because this is third time when I suggested it.

Quote:

You can see trippla is very confused from the start after all you audism people bashed him /her up before he/she have his chance.. You all did not give him/her a chance.

This is unfortunately one of these huge misunderstandings over differences in English among us.
TrippLa started his thread with how he hates when his hat pushes his HA down and how he hates it. Giving an impression he is going to remove it because of that.
Not everybody, after all, have read his other posts about his personal reasons for wanting to remove his CI.
I am sorry to say that but I couldn't care less if he removed it or implanted two more- it's his life, his choice. From my point then I only wanted to explain my stand in that thread. I was merely explaining time after time why I thought what I thought, that is all.

And besides, to me, it looks like first of all TrippLA was influenced by anti CI attittude. I can't find this thread anymore but he wrote things like "I have to be strong for deaf" etc.
And that is influence too, for other extreme side.

Quote:

It look like that you prefer hearies´s side to deafies´s side or what?

Not necessary means not necessary. It means it is not compulsory.
It means they can be taught if they want to, but forcibly teaching deafs to speak is not needed.
Better is to teach to write in hearing English, IMO. Then for example when TTY and CC is on, you can fully comprehend.

Fuzzy

neecy · 05-09-2006, 02:11 PM

I wanted to make an observation - audiofuzzy said,

Quote:

Originally Posted by audiofuzzy

I wanted to point out that I don't think it is neccessary for the deaf person to speak,

You are right of course, its not a requirement that deaf people speak.Its not even contingent on their ability to learn or converse with other methods (sign, paper&pen, etc)

HOWEVER

The hearing community even today, (go figure!) even with all the deaf individuals who have hearing aids or CI's , acts surprised when they meet somebody who is both deaf and fluent in English. At LEAST once a month (and usually more often than that) I encounter hearing people who are amazed that *gasp* I'm deaf but I CAN SPEAK!!!

There are so many people who assume deaf means mute or at the very least a limited linguistic capacity, and I know deaf individuals who INTENTIONALLY perpetuate this "myth" by their own actions! I knew many students at RIT/NTID who had clear consise speech, but for their own reasons would *refuse* to talk to hearing people. Whereas they could goto a restaurant and easily order from a menu by speaking to the waitress,they'd insist to write it down instead.

So is it any wonder that faced with this kind of confusion (deaf people who can't speak, deaf people who can speak, deaf people who can but WON'T speak) the hearing community doesn't know whether to scratch their watches or wind their butts when they are faced with the deaf community! They get so many mixed messages, that the confusion leads them to deduce they do NOT want their childrent to be part of the deaf community.

Sweetmind · 05-09-2006, 02:37 PM

Other thing is that you do not follow ADA that is the violation of our Deaf rights to have our true languages and Deaf Education that is the importance for all of us deafies as equal rights.

NO more degrade or blame blame Deaf chlidren for their own many mistakes to be a Deaf failure in our Education by audism people.

NO more discrimination or prejudice against Deaf children 's needs. We can learn how to speak in the speech classes.. So therefore you ll need oral speaking interpreter that we do not deserve to have an interpreter all day long that is not bonding between teacher and student. We are tired of having an interpreter 's control and power over us as third party{ies}.. So it s time for interpreter to do it for hearing people who is so helpless and ignorant. And have them pay for it after all you think we should pay for the interpreter s expenses. How **258*!!!

If you dont agree with me then LEARN ASL that I strongly believe you can do it in the bottom of my heart.

We are not ignorant or dont know nothing. Deaf people can do it except hear and Hearing cant cant cant except can hear everything.

Thank you!

Sweetmind

Audiofuzzy · 05-09-2006, 03:10 PM

Quote:

NO more discrimination or prejudice against Deaf children 's needs. We can learn how to speak in the speech classes.. So therefore you ll need oral speaking interpreter that we do not deserve to have an interpreter all day long that is not bonding between teacher and student. We are tired of having an interpreter 's control and power over us as third party{ies}..

So, you admit it is BETTER for th deaf to know anything besides ASL and visual ways of communication? It is actually GOOD to be able to speak, and- gasp- perhaps ever hear a bit?

I didn't say learning to speak is un-necessary or not beneficial, I just said it doesn't have to be mandatory- free will, if you please.

Fuzzy

**Cheri** · 05-09-2006, 04:44 PM

Quote:

Originally Posted by Fragmenter

Deep inside every Deaf people's shell, they do want to know what it is like to hear. It happens to the best of them

There is NOTHING wrong with wanting to know how it is like to hear anything.

Yes true, but Cochlear implant are not 100 percent cure anyway, there are some who had their shared of experience with cochlear implant received no benefits from that device itself, while others have. I'm sure every one would like to have an opportunity to know what's it is like to hear. But, Cochlear implant isn't the only answer. If you know what I mean.

05-09-2006, 05:37 PM

Quote:

Originally Posted by Cloggy

Bear, hon,

Negative feedback. I agree. It's allways more trustworthy to get the negative with the positive.
Recently, my father-in-law was in the hospital, several time close to death. The doctors told us straight how it was. Also when it was bad. The result was that when it went well, we knew it went well. Not just a nice talk, but we knew we got the real information.

So, I agree, negative views should be given as well.
She was operated upon; we took a chance on that no matter how small that chance is.
She wears a device in her head that may need replacement in the future, as in 15 to 20 years.
She wears a device on the outside of her head that is visible when not covered by hair.
She needs to go to "mappings" in order to adjust the system which means a lot of traveling.

Did she have any discomfort after the first day?? No, cannot give you a negative feedback on that.
Has she ever had any bad experiences with sound?? Yes, about 2 times. Nothing in the last 1-1/2 years.
Can she speak like her age?? No, she is lacking about 2 years.
Does she like wearing the device?? Yes, she asks for them when she comes out of her room.
Does she hate being deaf?? No, when she wakes up she can play in her room for hours, deaf. She wants to hear when other people are around.
Do people stare: Sure, out of curiosity. SOme nice conversations came from it.
Did she stop signing?? Not at first, but she uses fewer signs to us. Uses her voice whenever she can.

You know, it's difficult finding negative things with CI.
I must have missed some. Feel free to ask questions about her. On her, I'm the expert... straight after my wife!

Good Luck, Bear

And again, ask about some experiences that could be negative. Will be glad to answer them.

By the way.... what's this about taking away a sense with children so they can be part of the Deaf community?

Good posting there Cloggy, glad to see you got the idea that I am trying to put out there. I do wanna hear the positive sides, but not ALL the time ya know? Because then, when that happens, I truly think the message gets lost.

What I meant by that was, people are like well I wanted to give my child a chance to hear. Which is fine, I respect that. I may not agree with implantation of a child, but I respect that it wasn't my decision to make.

But, at the same time my point was what if a deaf mother, said make my child deaf, so my child can grow up knowing what it is like to be deaf.

Sure it will never happen because who wants that?

My concern is, are some of these parents doing it for their own selfish reasons?

Cloggy, I am in no way saying that anyone here has done that. But, you and I both know that this has more than likely happened.

I am saying I worry that some of these parents out there say oh, I did it to help my child to be able to hear and experience sound. But, deep down inside they know their true motive was not to have to deal with a deaf child.

Some parents are great, but sadly, there are some that aren't.

I do realize they say the younger they are implanted the better their chances are. But, trying to think of a way to say this without offending anyone. Because it is a concern of mine with a CHILD of mine.

If I had a deaf child and decided for implant and that child died on the operating table due to unknown circumstances before operating. Such as allergic reaction to the anethesia, maybe heart failure. I realize the chances are slim to almost none, but there still is that chance. That alone would scare me away from doing so.

I must say you are definitely braver than me. Because the only way I would put my child on an operating table is for a lifesaving procedure. They wanted to put tubes in my son's ears and I told them hell no! I know for a fact there is medications out there to try FIRST! The doctor then refused to work with us and told me he would no longer be my son's doctor. I said fine, no problem and went to another specialist who agreed surgery is a last resort for that condition and put him on medications which cleared it up right away.

I fear putting my child on the operating table unless it is absolutely necessary.

SO, like I said you are braver than me.

Whereas, with the CI itself I am very very undereducated. I know very little about them. But I do wonder is it possible for it to develop rust in there? Is it possible for it to corrode like a battery at all? Cause I would think if it is metal it would eventually corrode? You may argue about pacemakers and steel pins and that which may be true. Mind you, these are just questions I am asking. Not saying any of this WOULD happen. From what I can see the implant is implanting right on the skull itself is that true? If not what if it gets dislodged? Could that cause a fatal injury or a non fatal injury at all?

This device looks relatively small is there a chance for the body to absorb that device eventually? Is there a possibility of rejection? Basically I want to know what you faced when deciding.

Being positive is good. But telling the full story of the decision, heartaches, possible failures, possible good outcomes, what can or cant be expected would be a better way of getting your point across that Ci's are in fact NOT EVIL to the many that think they are.

I dont believe they are EVIL, I just believe for myself and my opinion there are too many risks involved to implant a child of my own. I know I cant decide for other parents, but if I could, I would strongly suggest that they look at the possibilities and deep within themselves before deciding.

Bear

05-09-2006, 02:41 AM	#280 (permalink)
Liebling:-))) Sussi 7.7.86 - 18.6.09 Join Date: Jan 2004 Location: Germany Posts: 31,038	Okkkaaayyy! I thought this link, I provided would interesting you all because of Trippla. I thought this link would help Trippla because he consider to remove CI becasue he's unhappy to wear CI... Is this link, I provided is wrong or what? __________________

05-09-2006, 11:52 AM	#291 (permalink)
Fo'Shizzle Registered User Join Date: Apr 2006 Location: Why you want to know! Posts: 2,124	__________________

05-09-2006, 12:06 PM	#293 (permalink)
Fragmenter Registered User Join Date: Apr 2006 Location: Lexington, KY Posts: 823	Deep inside every Deaf people's shell, they do want to know what it is like to hear. It happens to the best of them There is NOTHING wrong with wanting to know how it is like to hear anything. __________________ Please don't feed the Trolls. They are for your viewing entertainment only. Thank you.

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05-08-2006, 10:27 PM	#272 (permalink)
Sweetmind Registered User Join Date: Mar 2006 Posts: 788	My apologies for giving you the wrong one earlier, Here is the right one VP Thats for you. Thats what I m trying to point that out. http://www.alldeaf.com/showthread.php?t=27296 why does it have to be locked after all people here to swear or namecalling.. So is that fair for him to be punished while other ppl dont respect others like they did it to me? Thanks!

05-09-2006, 12:38 AM	#273 (permalink)
Sweetmind Registered User Join Date: Mar 2006 Posts: 788	I find this is very interesting that they removed the url that I just gave u the right one.. NOw it s proven that they are hiding the fact of what audist attitude people did to trippla who admitted that he wants to remove his CI device. He got bashed for it over swearing words while they are no better than Trippla.. I find this is the most dishonest happens in here. That is a very good example of audist attitude people who loves to stop d/Deaf children and teenagers or Deaf young adult 's true feelings to express. Shaking my head Sweetmind

05-09-2006, 01:29 AM	#275 (permalink)
Sweetmind Registered User Join Date: Mar 2006 Posts: 788	Whoopppeeee dooo Many of you dont have any respect for me and my topic post that I dont really want to make a big scene about CI into my topic post that is not related to CI if you mind.. TOOO PUSHING and BUNCH of lies all along that I can see .. Anyway Many thanks for your true colors. Audism people are intending to take over Deaf s outpoken and my showing is the evidence that we all cannot hear everything with those devices.. All you care for orally speaking to be perfect for hearing s sake whlle you dont have any respect for those Deaf children s Education needs. No remorse feelings for those Deaf children with or without HA or CI devices. Thats deaf oralisms are so blind and take granted by those evil CI Corporation. All they do care is $$$$$$ and dont care about you deafies. for hearing people s sake and make them more easier than Deaf chlidren to make it harder from audist attitude people Wow, what a very selfish and very unthoughtful! It s real screwing up there are so many Teachers do not learn ASL while they couldnt understand them from the beginning.. YEECCHH! I cannot believe you allowed this happens to destory our d/Deaf children s Education needs that comes first. Somebody who is hearing and laughed at you while they crueled at me all along.. Is that something?? Now I can see why you dont want Deaf people tell the truth because it has happens from the past year that is still exist in today's . Thank you! Many thanks! Sweetmind

05-09-2006, 01:48 AM	#278 (permalink)
Sweetmind Registered User Join Date: Mar 2006 Posts: 788	You can see trippla is very confused from the start after all you audism people bashed him /her up before he/she have his chance.. You all did not give him/her a chance. He/She is young deaf male/female and need to learn how to deal with audism people s reaction. Give him/her a break! I dont need to look at other url after all it was locked but doesnt have to be removed if you mind. Thank you! Sweetmind

05-09-2006, 04:04 AM	#281 (permalink)
Sweetmind Registered User Join Date: Mar 2006 Posts: 788	Dont worry!!! Liebling:-))) You are in the wrong place and time. Thats all to it! I m sure you have read it through those pages. I am glad u pointed that out that shows that those d/Deaf children stuck their CI device into their heads forever after it failed them that I dont agree to have those necessary surgery for hearing people s sake. Blame Blame Deaf children and Deaf Schools for being a failure because those kids are having their own deafness. It s actually fact that audism people make their big failure for Deaf children's Education from the start. It s very very poor reason for having CI after all it s no diffrence between HA and CI devices. It is so pointless and no difference. I just dont understand why they lied to many deafies that we are speaking very well with our deaf voices? And we are blamed for it.. ?????? Thats what we are punished for their mistakes as usual. They think they know it all about us and our deafness.. Scoffs! Education comes first and Have Deaf children 's true language back to thier life that works for them. Thank you! Sweetmind

05-09-2006, 02:37 PM	#297 (permalink)
Sweetmind Registered User Join Date: Mar 2006 Posts: 788	Other thing is that you do not follow ADA that is the violation of our Deaf rights to have our true languages and Deaf Education that is the importance for all of us deafies as equal rights. NO more degrade or blame blame Deaf chlidren for their own many mistakes to be a Deaf failure in our Education by audism people. NO more discrimination or prejudice against Deaf children 's needs. We can learn how to speak in the speech classes.. So therefore you ll need oral speaking interpreter that we do not deserve to have an interpreter all day long that is not bonding between teacher and student. We are tired of having an interpreter 's control and power over us as third party{ies}.. So it s time for interpreter to do it for hearing people who is so helpless and ignorant. And have them pay for it after all you think we should pay for the interpreter s expenses. How *258!!! If you dont agree with me then LEARN ASL that I strongly believe you can do it in the bottom of my heart. We are not ignorant or dont know nothing. Deaf people can do it except hear and Hearing cant cant cant except can hear everything. Thank you! Sweetmind