Allergies? Fluid in your Ear? - Page 4

AJWSmith · 07-19-2011, 09:42 AM

Quote:

Originally Posted by ladysolitary85

off to the neurologist office I go, wish me luck!

Wishing you luck...

Frisky Feline · 07-19-2011, 09:49 AM

good luck, girl!

ladysolitary85 · 07-19-2011, 03:54 PM

Ok Update... and the results are in...

YOU ARE NOT THE FATHER!

Sorry after the day I've had I had to make a light of the situation.

Well, the neurologist doesn't know why I'm having hearing loss on my left. so I wait to see a ENT, the damages tissues I have in my brain could be from a infection (kindergarten, had a fever of 104.4 for a week straight, then gradually lost complete hearing in my right ear) when I was a kid or it could be recent, no clue. MS isnt likely but not ruled out. Now I'm being tested for lupus and will know by the 28th. Freakin 15 viles of my blood later...

Oh so irritated, anyone wanna have a margarita with me? lol

Frisky Feline · 07-19-2011, 03:55 PM

strawberry DQ? Hope they will be able to find out what went wrong with your hearing loss. keep faith.

ladysolitary85 · 07-20-2011, 02:53 AM

I'm curious with the results. I may even get closure to how I lost my hearing in my right when I was young. The neurologist did say history could be repeating itself, they aren't sure at this moment. All I want is answers. Even if I did go completely deaf, I'm ok with that (just a lot more for me to work on, and a bit of a change) but I just want to know if thats what's going on.

One thing that irritated me today (slightly off topic) but there were a couple of things in asl I was thinking about getting for a tattoo. Just an idea and I asked for my mom's opinion. She straight out said "No! Don't do it its stupid! you should get something meaningful tattooed"

So I texted back "its part of deaf culture mom" and she hasn't text me back all day since....

I honestly, think that my mom is still in denial with the fact that my hearing is getting worse and worse and the reality of it is hitting at her, who knows.

But it still hurts when your family wont even be there for you. She wouldn't even go to my neurologist appointment and I doubt she'll go to the other ones.

My fiance on the other hand, has been trying his hardest to be understanding about all this. Hes angry with my mom for not being there for me. This is a whole new chapter for him and hes accepting and encouraging me and him to practice asl and hes finally learn to accept my deafness (not that he didn't before, he'd often think I was ignoring him though, now he sees what I go through). He thought the tattoo idea was nice (although still up in the air lol) We have been through our ups and downs but he is there for me.

Hollykins1 · 07-20-2011, 09:36 AM

Well at least it sounds like incomplete news is not totally bad news.

What I feel bad for, is that you spent so much time being scared of the results and the possibility of something like MS.

I have a frozen margarita in my freezer. I'll toast you tonight when I have it. Hang in there.

**Bottesini** · 07-20-2011, 10:33 AM

At least you are learning a lot about your health. I hate having so much blood drawn too. At least only a little over a week until they say if it's lupus.

ladysolitary85 · 07-20-2011, 03:30 PM

Yea thats the one thing I am thankful for, is I maybe getting some closure with how I lost my hearing in the first place.

MS isn't exactly ruled out but the neurologist didn't suspect it highly enough to have me go through a spinal tap to confirm (thank freakin god!)

Hollykins1 · 07-20-2011, 07:43 PM

Spinal taps - yuk! I was afraid I was going to have to have one. During my last major Meniere's attack, I went to the hospital. (big mistake). After treating me like I'm not really sick - they finally decided to do a cat scan. Because I had the VNS surgery, which is basically brain surgery - they THOUGHT they saw a brain infection. They then decided "you need to see a doctor RIGHT away". Duh...I was in a hospital ER??!!!

Turns out they read the Cat scan wrong. Thankfully when I saw my doctor in Orlando the next day, he knew they'd read the cat scan wrong, and I didn't have to have a spinal tap. The thought of that freaked me out.

I am still sending all the good vibes I can hoping all goes well for you, and it isn't anything big or scary.

ladysolitary85 · 07-23-2011, 12:28 AM

And as if 15 huge vile samples wasn't enough, I got a phone call today from the medical office saying they needed more lab tests done. Now their checking my thyroid (I guess they forgot to check that while they did the other samples) and my doctor wants to see me on the 29th.

I thought I already had an appointment with him on the 28th, so I'm going to call Monday just to get some clarification of when I'm supposed to meet him.

ladysolitary85 · 07-25-2011, 06:51 PM

So today I met with another audiologist.
This is my current hearing test results. Blue is my Left ear (severe hearing loss) and orange is right (profound hearing loss) :

This audiologist wasn't familar with Starkey, only recommended Phonatak (sorry if I misspelled ) and said my RIC needed a ear mold. So he gave me this copy to bring to the Starkey audiologist and gave me pointers to places that can help should I run into trouble.

Starkey audiologist can make me a custom mold, for freaking $200.... and this one actually goes into the ear canal. (I seriously, seriously hate money right now)

Thursday and Friday are the doctor appointments... I should be getting closure soon.

dereksbicycles · 07-25-2011, 11:52 PM

I am profoundly deaf and don't care for tattoo. Don't go out of way to get tattoo just because it is part of Deaf Culture or you feel like you need to belong.

By the way, I always wonder how a high fever can cause hearing loss. I ask as I know some people who have lost hearing from high fever.

ladysolitary85 · 07-26-2011, 01:51 AM

Quote:

Originally Posted by dereksbicycles

I am profoundly deaf and don't care for tattoo. Don't go out of way to get tattoo just because it is part of Deaf Culture or you feel like you need to belong.

By the way, I always wonder how a high fever can cause hearing loss. I ask as I know some people who have lost hearing from high fever.

Not at all the reason why I'd want a tattoo to begin with

. I have a few tattoos (but not many and all have meaning behind them and just personal meanings, not just because of that awesome new band or anything like that crap.) it wouldn't be for anyone else but myself. Just wanted to be clear on that lol. I realize not everyone has a taste for tattoos.

Funny you ask about the fever part, apparently I had a fever for a week straight but didn't lose my hearing til awhile later from that I suppose. Could be from a infection of some sort. The doctors now are trying to figure out if I have lupus, so who knows. Everything happens for a reason.

ladysolitary85 · 07-27-2011, 09:31 PM

In 13 hours.... I will have my answers folks.... think I'm going to have a nice bottle of wine, have a relaxing night and attempt to sleep as early as possible. I will keep you all updated.

Hollykins1 · 07-27-2011, 09:46 PM

Please do - we'll be thinking of you and wishing you well!

ladysolitary85 · 07-27-2011, 10:03 PM

thanks Holly and everyone for encouraging me the whole way

ladysolitary85 · 07-27-2011, 11:05 PM

you too Bott

**Bottesini** · 07-27-2011, 11:11 PM

Quote:

Originally Posted by ladysolitary85

you too Bott

You are welcome.

**KarissaMann05** · 07-27-2011, 11:39 PM

Quote:

Originally Posted by ladysolitary85

Ok guys so its allergy season for me again and the ringing in my ear is constant, my hearing in my good ear sounds like its blocked by something. (kinda between traveling up and down mountains with popping sounds and as if you got water in your ears).... This has been going on for a month now, I've tried allergy meds and nothing is helping. I'm losing my freakin mind, I have no health insurance... someone help me out here.

Also, I went to my audiologist to look at my ear and he said from what he sees I may either have a big ear drum or fluid in my ear from allergies, hes not a doctor for that so he can't help me...

If I'm babbling I'm sorry I'm just fustrated, what do I do guys?

Yes, it did happen to me when I was so little. It was pretty often until it stopped when I was five or something.

EDIT: Oh and, the ringing in my ears don't happen until I was 13 or so. It still does... I wish they just go away, sometimes. Ah, well...

**KristinaB** · 07-28-2011, 12:37 PM

I hope all goes well for you. I am still praying for you.

ladysolitary85 · 07-28-2011, 09:43 PM

So now I have to wait for the neurologist to schedule an appointment with me to find out the results on my blood work.... omfg I want answers already!!!! Nothing new to really report,I'm STILL waiting to see a ENT. My doctor just said "oh, I remember you.... yes and what did your neurologist say? oh hmm... well there's not much I can really do for you today, if you do decide to get on disability I can fill out the forms for you and the audiologist will need to as well.... but I don't know how the blood work the neurologist requested went."

Seriously?? I wake up and show up at 8 am to hear a "hi how are things?" talk? grrr!!

Sometimes, I think doctors drag things out to get more pay.

JabberJay · 07-29-2011, 07:32 AM

Frustrating, hold in there it can't be that much longer.

I'm hoping it all goes well.

Frisky Feline · 07-29-2011, 09:04 AM

hope you ll hear from them real soon!

Hollykins1 · 07-29-2011, 09:10 AM

Oh LadySolitary, I can so relate to the crap you are going through with doctors....

When "we" didn't know what was wrong with me it drove me nuts. Sometimes, even after a bad episode it'd be like, "oh, we'll see you in a month". Or other times, we need to see you as soon as possible - and it'd be exactly like what you got: "what did the other doctor say?" Grrrr.

We want answers as soon as possible because it's our life and our health. That waiting feels longer regardless of the actual time. And the not knowing.

Just know we all are here for you! Can't give you answers, but we can give support.

AJWSmith · 07-29-2011, 04:02 PM

Did the Doctor go Quack? He sounds like a quack doctor to me...

There's another word that sorta rhymes with "quack" as well beginning with c...

ladysolitary85 · 07-29-2011, 05:57 PM

Went to my starkey audiologist and my freakin $200 custom ear mold came in, never seen ear molds like this though! its hard plastic and has a built in speaker. It almost sounds exactly like it did when I first got starkey, so at least I know there is some progress in a investment. My ear feels a little sore but I'm giving it a little time since the guy shaved a bit down to ease some comfort.

Yea my doctor is strange lol

DeafTim · 07-29-2011, 06:02 PM

Ok, Im confused. What is custom ear-mold with speaker? In ear hearing aid? I tried one time and I hated hard plastic ear-mold.

ladysolitary85 · 07-29-2011, 06:19 PM

Ok I attached a pic of what it looks like.

This is Starkey's RIC (Reciver in Canal with the ear mold itself being a custom made (to fit your ear only) and the mold itself also has a speaker.

DeafTim · 07-29-2011, 06:29 PM

Cool,very pricey custom mold.

I hope you like it.

ladysolitary85 · 07-29-2011, 06:40 PM

Yea its pricey but its because of the speaker inside the mold. At least its helping me a bit more.... as I sink deeper into debt lol

07-19-2011, 03:54 PM	#93 (permalink)
ladysolitary85 Registered User Join Date: Nov 2010 Location: CA Posts: 1,511	Ok Update... and the results are in... YOU ARE NOT THE FATHER! Sorry after the day I've had I had to make a light of the situation. Well, the neurologist doesn't know why I'm having hearing loss on my left. so I wait to see a ENT, the damages tissues I have in my brain could be from a infection (kindergarten, had a fever of 104.4 for a week straight, then gradually lost complete hearing in my right ear) when I was a kid or it could be recent, no clue. MS isnt likely but not ruled out. Now I'm being tested for lupus and will know by the 28th. Freakin 15 viles of my blood later... Oh so irritated, anyone wanna have a margarita with me? lol Last edited by ladysolitary85; 07-20-2011 at 02:34 AM.

07-19-2011, 03:55 PM	#94 (permalink)
Frisky Feline Registered User Join Date: Jun 2003 Posts: 20,215	strawberry DQ? Hope they will be able to find out what went wrong with your hearing loss. keep faith. ladysolitary85 likes this.

07-20-2011, 09:36 AM	#96 (permalink)
Hollykins1 Registered User Join Date: Apr 2010 Location: Tavares, FL Posts: 277	Well at least it sounds like incomplete news is not totally bad news. What I feel bad for, is that you spent so much time being scared of the results and the possibility of something like MS. I have a frozen margarita in my freezer. I'll toast you tonight when I have it. Hang in there. ladysolitary85 likes this. __________________ DX: Meniere's Disease 6/10 HOH and learning ASL VNS: 11/2/10

07-20-2011, 10:33 AM	#97 (permalink)
Bottesini Joe's Friend Join Date: Mar 2008 Location: With Owl Sock Posts: 37,517 Blog Entries: 1	At least you are learning a lot about your health. I hate having so much blood drawn too. At least only a little over a week until they say if it's lupus. ladysolitary85 likes this. __________________

07-20-2011, 07:43 PM	#99 (permalink)
Hollykins1 Registered User Join Date: Apr 2010 Location: Tavares, FL Posts: 277	Spinal taps - yuk! I was afraid I was going to have to have one. During my last major Meniere's attack, I went to the hospital. (big mistake). After treating me like I'm not really sick - they finally decided to do a cat scan. Because I had the VNS surgery, which is basically brain surgery - they THOUGHT they saw a brain infection. They then decided "you need to see a doctor RIGHT away". Duh...I was in a hospital ER??!!! Turns out they read the Cat scan wrong. Thankfully when I saw my doctor in Orlando the next day, he knew they'd read the cat scan wrong, and I didn't have to have a spinal tap. The thought of that freaked me out. I am still sending all the good vibes I can hoping all goes well for you, and it isn't anything big or scary. ladysolitary85 likes this. __________________ DX: Meniere's Disease 6/10 HOH and learning ASL VNS: 11/2/10

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07-19-2011, 09:49 AM	#92 (permalink)
Frisky Feline Registered User Join Date: Jun 2003 Posts: 20,215	good luck, girl!

07-20-2011, 02:53 AM	#95 (permalink)
ladysolitary85 Registered User Join Date: Nov 2010 Location: CA Posts: 1,511	I'm curious with the results. I may even get closure to how I lost my hearing in my right when I was young. The neurologist did say history could be repeating itself, they aren't sure at this moment. All I want is answers. Even if I did go completely deaf, I'm ok with that (just a lot more for me to work on, and a bit of a change) but I just want to know if thats what's going on. One thing that irritated me today (slightly off topic) but there were a couple of things in asl I was thinking about getting for a tattoo. Just an idea and I asked for my mom's opinion. She straight out said "No! Don't do it its stupid! you should get something meaningful tattooed" So I texted back "its part of deaf culture mom" and she hasn't text me back all day since.... I honestly, think that my mom is still in denial with the fact that my hearing is getting worse and worse and the reality of it is hitting at her, who knows. But it still hurts when your family wont even be there for you. She wouldn't even go to my neurologist appointment and I doubt she'll go to the other ones. My fiance on the other hand, has been trying his hardest to be understanding about all this. Hes angry with my mom for not being there for me. This is a whole new chapter for him and hes accepting and encouraging me and him to practice asl and hes finally learn to accept my deafness (not that he didn't before, he'd often think I was ignoring him though, now he sees what I go through). He thought the tattoo idea was nice (although still up in the air lol) We have been through our ups and downs but he is there for me.

07-20-2011, 03:30 PM	#98 (permalink)
ladysolitary85 Registered User Join Date: Nov 2010 Location: CA Posts: 1,511	Yea thats the one thing I am thankful for, is I maybe getting some closure with how I lost my hearing in the first place. MS isn't exactly ruled out but the neurologist didn't suspect it highly enough to have me go through a spinal tap to confirm (thank freakin god!)

07-23-2011, 12:28 AM	#100 (permalink)
ladysolitary85 Registered User Join Date: Nov 2010 Location: CA Posts: 1,511	And as if 15 huge vile samples wasn't enough, I got a phone call today from the medical office saying they needed more lab tests done. Now their checking my thyroid (I guess they forgot to check that while they did the other samples) and my doctor wants to see me on the 29th. I thought I already had an appointment with him on the 28th, so I'm going to call Monday just to get some clarification of when I'm supposed to meet him.

07-25-2011, 11:52 PM	#102 (permalink)
dereksbicycles Registered User Join Date: Apr 2011 Location: 60202 Posts: 3,787	I am profoundly deaf and don't care for tattoo. Don't go out of way to get tattoo just because it is part of Deaf Culture or you feel like you need to belong. By the way, I always wonder how a high fever can cause hearing loss. I ask as I know some people who have lost hearing from high fever.

07-27-2011, 09:31 PM	#104 (permalink)
ladysolitary85 Registered User Join Date: Nov 2010 Location: CA Posts: 1,511	In 13 hours.... I will have my answers folks.... think I'm going to have a nice bottle of wine, have a relaxing night and attempt to sleep as early as possible. I will keep you all updated. __________________ Severe loss in left Profound loss in right

07-27-2011, 09:46 PM	#105 (permalink)
Hollykins1 Registered User Join Date: Apr 2010 Location: Tavares, FL Posts: 277	Please do - we'll be thinking of you and wishing you well! ladysolitary85 likes this. __________________ DX: Meniere's Disease 6/10 HOH and learning ASL VNS: 11/2/10

07-27-2011, 10:03 PM	#106 (permalink)
ladysolitary85 Registered User Join Date: Nov 2010 Location: CA Posts: 1,511	thanks Holly and everyone for encouraging me the whole way Bottesini likes this. __________________ Severe loss in left Profound loss in right

07-27-2011, 11:05 PM	#107 (permalink)
ladysolitary85 Registered User Join Date: Nov 2010 Location: CA Posts: 1,511	you too Bott __________________ Severe loss in left Profound loss in right

07-28-2011, 12:37 PM	#110 (permalink)
KristinaB New SDIT Deacon Join Date: Mar 2008 Location: Land of the backstroke Posts: 13,768	I hope all goes well for you. I am still praying for you.

07-28-2011, 09:43 PM	#111 (permalink)
ladysolitary85 Registered User Join Date: Nov 2010 Location: CA Posts: 1,511	So now I have to wait for the neurologist to schedule an appointment with me to find out the results on my blood work.... omfg I want answers already!!!! Nothing new to really report,I'm STILL waiting to see a ENT. My doctor just said "oh, I remember you.... yes and what did your neurologist say? oh hmm... well there's not much I can really do for you today, if you do decide to get on disability I can fill out the forms for you and the audiologist will need to as well.... but I don't know how the blood work the neurologist requested went." Seriously?? I wake up and show up at 8 am to hear a "hi how are things?" talk? grrr!! Sometimes, I think doctors drag things out to get more pay. __________________ Severe loss in left Profound loss in right

07-29-2011, 07:32 AM	#112 (permalink)
JabberJay Registered User Join Date: May 2011 Location: Alberta,Canada Posts: 386	Frustrating, hold in there it can't be that much longer. I'm hoping it all goes well.

07-29-2011, 09:04 AM	#113 (permalink)
Frisky Feline Registered User Join Date: Jun 2003 Posts: 20,215	hope you ll hear from them real soon!

07-29-2011, 09:10 AM	#114 (permalink)
Hollykins1 Registered User Join Date: Apr 2010 Location: Tavares, FL Posts: 277	Oh LadySolitary, I can so relate to the crap you are going through with doctors.... When "we" didn't know what was wrong with me it drove me nuts. Sometimes, even after a bad episode it'd be like, "oh, we'll see you in a month". Or other times, we need to see you as soon as possible - and it'd be exactly like what you got: "what did the other doctor say?" Grrrr. We want answers as soon as possible because it's our life and our health. That waiting feels longer regardless of the actual time. And the not knowing. Just know we all are here for you! Can't give you answers, but we can give support. ladysolitary85 likes this. __________________ DX: Meniere's Disease 6/10 HOH and learning ASL VNS: 11/2/10

07-29-2011, 04:02 PM	#115 (permalink)
AJWSmith Registered User Join Date: Apr 2011 Location: live? I'm the walking dead! Posts: 684	Did the Doctor go Quack? He sounds like a quack doctor to me... There's another word that sorta rhymes with "quack" as well beginning with c... KristinaB and ladysolitary85 like this. __________________ Born deaf. Profound hearing loss in both ears (90-105dB). Wears Oticon Spirit Zest C SP (Chili) You can also find me on twitter as @AJWSmith and on Google+ as AJW Smith

07-29-2011, 05:57 PM	#116 (permalink)
ladysolitary85 Registered User Join Date: Nov 2010 Location: CA Posts: 1,511	Went to my starkey audiologist and my freakin $200 custom ear mold came in, never seen ear molds like this though! its hard plastic and has a built in speaker. It almost sounds exactly like it did when I first got starkey, so at least I know there is some progress in a investment. My ear feels a little sore but I'm giving it a little time since the guy shaved a bit down to ease some comfort. Yea my doctor is strange lol __________________ Severe loss in left Profound loss in right

07-29-2011, 06:02 PM	#117 (permalink)
DeafTim Registered User Join Date: Jun 2011 Location: Utica,OH Posts: 2,327	Ok, Im confused. What is custom ear-mold with speaker? In ear hearing aid? I tried one time and I hated hard plastic ear-mold. __________________ It might be,it could be...It is! A homerun! HOLY COW!! Harry Caray Mitt: I have 5 point plan President Obama: Mitt doesnt have 5 point plan, He has one point plan! (ZINGER) Mitt Romney is a scam!!

07-29-2011, 06:29 PM	#119 (permalink)
DeafTim Registered User Join Date: Jun 2011 Location: Utica,OH Posts: 2,327	Cool,very pricey custom mold. I hope you like it. __________________ It might be,it could be...It is! A homerun! HOLY COW!! Harry Caray Mitt: I have 5 point plan President Obama: Mitt doesnt have 5 point plan, He has one point plan! (ZINGER) Mitt Romney is a scam!!

07-29-2011, 06:40 PM	#120 (permalink)
ladysolitary85 Registered User Join Date: Nov 2010 Location: CA Posts: 1,511	Yea its pricey but its because of the speaker inside the mold. At least its helping me a bit more.... as I sink deeper into debt lol __________________ Severe loss in left Profound loss in right

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