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#1 (permalink) |
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Registered User
Join Date: Jun 2012
Location: Dearborn Heights, MI
Posts: 16
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Can we switch HoH son's communication mode now?
Hi! I'm new so I'll start with a quick introduction. I am Stephanie. My son, Reed, is almost 12 and was born HoH (profound loss in his right ear, no loss in his left). I recently graduated from an interpreter training program and working on my certification now.
When Reed was born we knew nothing about ASL, hearing loss, Deaf culture, or anything else. We listened to the doctors because we believed they were the experts. Unfortunately, we were never given any information at all about anything but oralism. He speaks well, and listens reasonably well if conditions are good, but still struggles, especially in school now that he is getting older. He is interested in learning ASL and becoming a part of Deaf culture, which we are encouraging. Unfortunately, simply knowing a lot of ASL does not make me qualified to teach him and really, what 12 year old wants to learn stuff from their mom? After visiting earlier in the spring, he had decided he wants to attend Michigan School for the Deaf. For a variety of reasons, my husband and I strongly agree. I think this would be an excellent environment for him. Unfortunately, the school district is still pushing oralism on us because he doesn't currently know ASL so they say they are basing the decision on his current communication mode.Does anyone have experience with changing from oral/aural as the primary mode of communication to ASL at a later age? Specifically, does anyone know of any resources I can refer to to strengthen our position with the district? We have a meeting next week and the director of special ed has already mentioned her plan to place him in a self-contained special-ed classroom (not HI classroom). Thank you for your input.
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#2 (permalink) |
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Registered User
Join Date: Jun 2012
Location: Dearborn Heights, MI
Posts: 16
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Changing communication preference and placement
I posted a long post yesterday about this, but it doesn't appear to have showed up anywhere. So, I'm trying again.
First an introduction since I'm new: I'm Stephanie. My son Reed is 11.5 and was born with a profound sensorineural loss in his right ear. I also recently graduated from an interpreter training program. We live in a suburb of Detroit. Unfortunately for Reed, we are the victims of some bad professional advice. When he was born and discovered to have a hearing loss, his doctor dismissed it as not a big deal. He said kids with single sided deafness do fine with very little intervention. At that time, we knew nothing of ASL, Deaf culture, or hearing loss and took the audiologist at his word as an “expert”. We were never offered any information on signing, socializing him with other d/hoh kids, or anything else. He did well in school (mainstreamed with an FM system) until around 4th grade. From then until now (6th grade), he has been on a downward slide of frustration and slipping grades. He has no friends, although the kids at his school are very nice to him. He just isn’t able to socialize and connect with them. Knowing what I know now, I started to introduce him to ASL and Deaf culture and he loved it. He read my Deaf culture and history textbook cover to cover in a matter of days. He wants to learn more ASL, but I just don’t have the teaching genes, lol. I haven’t been able to find him an age-appropriate class or local Deaf mentor yet. We visited the Michigan School for the Deaf back in March and his eyes lit up. He was more engaged during our 2 hour visit than he has been all year combined in his mainstream school. He wants to go there. That is huge, since he has basically hated school for a couple years now. Unfortunately, our local district (he has been in a charter school until now) is resistant. Their “hearing consultant” is a lot like his original audiologist and has dismissed his problems in school as not being related to his hearing. They are stonewalling us because his current communication method is listening and speaking. I have been searching for months for anything that could strongly support our right as his parents to change his communication mode to ASL. All the research I’ve found so far is based on kids who have had ASL as their primary communication all along. Does anyone have any personal experience or strong supporting information we can take to our meeting next week to get him the placement he needs and avoid taking the district to court through due process (which I’m definitely willing to do, but would rather avoid if possible)? |
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#3 (permalink) |
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Registered User
Join Date: Dec 2010
Location: Best Coast, USA
Posts: 3,192
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Not that this has any bearing on his unique educational needs, but I'm curious if you actively sign with and around him?
Is he not meeting standards? Is he making progress and meeting (age appropriate?) IEP goals? |
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#4 (permalink) | |
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Aparecium Deletrius Legil
![]() Join Date: Apr 2007
Location: The Soprano State
Posts: 60,501
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#5 (permalink) |
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Registered User
Join Date: Apr 2012
Posts: 24
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I cannot help with the school district issues but I can say that you are doing the right thing. I was born hearing and contracted meningitis when I was 9 months old. My right ear became completely deaf and my left ear had a moderate/mild loss. I managed to make it through school successfully on full oralism, however the past few years, my hearing has been getting progressively worse and shortly after my 30th birthday, I lost the ability to hear a subset of people at all no matter how much amplification there is. I'm having to start learning ASL now at the age of 30 so that I can continue to have a comfortable form of communication with family and friends (though my family is not learning ASL
).I also like the fact that you are letting it be his choice since he is the one that is having to suffer through trying to understand his teachers and school lessons. I would definitely start teaching him ASL ASAP so that the school district's main argument can no longer be used. I also love the concept of the Bilingual Bicultural schools for the hard of hearing and children with cochlear implants. I wish these had been around in Alabama when I was a kid. Good luck with the school district. |
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#6 (permalink) |
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Registered User
Join Date: Dec 2010
Location: Best Coast, USA
Posts: 3,192
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http://www.alldeaf.com/sign-language...ml#post2072250
Maybe the mods can merge these two threads... Get him a comprehensive evaluation/assessment for him at the school for the deaf... |
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#7 (permalink) |
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Registered User
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I am assuming that the school you are wanting to send him to has both oral and ASL tracks? I would say start him there in an oral setting if needed, Insist he have at least 1 ASL class per day and if he will be staying in dorms, make sure he is in an ASL dorm. Also the kids pick up ASL from their peers during extra curricular activities, dorm life etc. Just try and get him as intergrated as possible. Is he wanting to learn ASL himself? Also u should sign any time he is around...
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#8 (permalink) | |
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Registered User
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Reed and Owensmommy, this is awesome, that you're interested in switching modes! It's actually not that unusal for bilateral dhh kids to start struggling around adolescence. Again, as you have noticed kids can do OK one on one or in Good Listening Conditions BUT, the world is NOT a soundbooth. Even HOH kids should have the right to function well in all sorts of listening conditions. We deserve a full toolbox!
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You could say that you want your son to be prepared just in case he has a progressive loss. You could also say you want to give him a full toolbox...that his speech abilty is as developed as its gonna get. You can also mention that middle and high school can be really really tough in the mainstream. You could also say that you want him to become bilingal in Sign |
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#10 (permalink) |
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Joe's Friend
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Hello there, and welcome. Firstly, I would like to encourage you to know you needn't formally teach your son ASL. You simply need to start signing anytime you are communicating with him or in his presence. He will pick it up readily without formal lessons. Secondly, contact the school for the deaf and get them to assist with an assessment. They will be your best resource to evaluate him and assist you in getting what accomodations they may deem necessary for your son's best opportunities to function in the educational setting.
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#11 (permalink) | |||
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Registered User
Join Date: Jun 2012
Location: Dearborn Heights, MI
Posts: 16
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Quote:
He is struggling. Although he still tests well, he is isolated and frustrated at school. He uses an FM system, and the school is relying heavily on that. He still misses out on all the indirect learning that the hearing kids are getting (when another student asks a question in class, he hears the teacher's answer but not the question) and pretty much ALL socialization (which we all know is very important in middle school). Right now his only hearing accomodations are an FM system and preferential seating. It just isn't working for him, but the school is blaming him and saying his educational problems are lack of effort. Quote:
As mentioned above, I do sign with him as much as I can. He is picking it up slowly, but without more fluent language models and peers it is a struggle for him. Quote:
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#13 (permalink) | |
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Joe's Friend
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Two threads on this topic. As I want to make sure my input is seen, I will post it in this thread also.Quote:
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#15 (permalink) | |
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Registered User
Join Date: Dec 2007
Location: Florida
Posts: 11,999
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Wirelessly posted
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#16 (permalink) | |
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Registered User
Join Date: Dec 2010
Location: Best Coast, USA
Posts: 3,192
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We are curious though about the answers to some of the questions posed... Having that information would make it easier for us to give you some additional (potentially) useful information...
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#17 (permalink) | |
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Registered User
Join Date: Dec 2010
Location: Best Coast, USA
Posts: 3,192
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#18 (permalink) | |
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Registered User
Join Date: Feb 2005
Location: Norway
Posts: 4,706
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Welcome to AllDeaf..
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Hope you can make it happen.. |
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#19 (permalink) | |
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Registered User
Join Date: Jun 2008
Location: In the good ole USA !
Posts: 2,551
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Second- my background - I went to public school all my life in hearing school as ONLY deaf person there with no terps. Knew ZERO signs. when I went to college- I went to NTID and got the biggest cultural shock you can imagine. I was an outcast for a short time as I was struggling to understand signing. Long story short - The only thing that kept me there was a girl I fell in love with made me learn ASL at a extremely fast pace and then I started to fit in. Looking back now -- I think I would've done better academically if I knew ASL in grade school and graduated with better grades, I wouldve had a different social group in college for sure if I went in knowing signs and done better. third -- don't beat yourself up about "receiving bad advice". After all we all learn as we go and we know whats best for our children. what really matters is that you are noticing things and you are willing to make changes as long your child wants to do so too. No matter what good/bad choices we make- our children will always turn out just fine one way or another. |
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#20 (permalink) | ||
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Registered User
Join Date: Jun 2012
Location: Dearborn Heights, MI
Posts: 16
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#21 (permalink) |
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Registered User
Join Date: Jun 2012
Location: Dearborn Heights, MI
Posts: 16
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BTW, MSD has been nothing but supportive of our efforts to get his placement there. The problem is that right now his Aspergers is listed as his primary disability on his IEP. Up till now it hasn't mattered what order they were listed, but under Michigan sp. ed rules they can't do anything until his hearing is listed first and he is referred by our local district. I am planning to push for evaluations by them during our meeting next week but they are unable to help me based on my direct request. It HAS to come from the district.
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#22 (permalink) | ||
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Registered User
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I'm super excited you reconize that he's struggling and that middle and high schools can be hell!!!!! We need more parents like you! Quote:
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#23 (permalink) | |
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Registered User
Join Date: Nov 2006
Location: Manitoulin Island on Lake Huron in Canada
Posts: 7,009
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#24 (permalink) | |
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Registered User
Join Date: Jun 2012
Location: Dearborn Heights, MI
Posts: 16
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In addition to a HUGE binder full of research, I've also written up a brief statement of our reasons for wanting to change his communication mode and what we're seeking from the district. Please let me know if you see any holes in my statement. Thank you all for your input!
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#26 (permalink) |
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Registered User
Join Date: Jun 2012
Location: Dearborn Heights, MI
Posts: 16
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It's possible (or, likely, lol) my understanding of the concept is faulty. I understood inferential learning to be concepts learned indirectly or "inferred" from things overheard that are not directed at the hearer. Perhaps I should rephrase?
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#27 (permalink) | |
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Registered User
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In addition i am VERY impressed with your statement. You may want to put something that the self contained sped classroom is NOT going to meet his needs. I think that will be the ticket. |
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#28 (permalink) | |
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Registered User
Join Date: Dec 2010
Location: Best Coast, USA
Posts: 3,192
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Quote:
![]() Does he have vision issues? Is he not meeting grade standards, or his goals layed out in his IEP? |
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#29 (permalink) |
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Forum Disorders M.D.,Ph.D
![]() Join Date: Nov 2006
Location: 127.0.0.1
Posts: 6,161
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Inferential / inference 'learning' seems to be a terminology attributed to asperger's children
![]() you can see it here: Google Search: aspergers "inferential" learning |
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#30 (permalink) | |
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Registered User
Join Date: Dec 2010
Location: Best Coast, USA
Posts: 3,192
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Quote:
You learn something new everyday.
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