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Unread 03-21-2005, 02:20 AM   #1 (permalink)
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Baby at center of life support case dies

HOUSTON, Texas (AP) -- A critically ill 5-month-old was taken off life support and died Tuesday, a day after a judge cleared the way for doctors to halt care they believed to be futile. The infant's mother had fought to keep him alive.

Sun Hudson had been diagnosed with a fatal genetic disorder called thanatophoric dysplasia, a condition characterized by a tiny chest and lungs too small to support life. He had been on a ventilator since birth.

Wanda Hudson unsuccessfully fought to continue her son's medical care. She believed he needed time to grow and could eventually be weaned off the ventilator.

"I wanted life for my son," Hudson said Tuesday. "The hospital gave up on him too soon."

Texas law allows hospitals to end life support in cases such as this but requires that families be given 10 days to find another facility to care for the patient. No hospital was found to take the baby.

The ethics committee at Texas Children's Hospital reviewed Sun's case before recommending that life support be stopped. Hospital officials also recommended the case be taken to court and offered to pay Hudson's attorney fees.

"Texas Children's Hospital is deeply saddened to report that Sun Hudson has died," the hospital said in a statement issued Tuesday.

Source: http://www.cnn.com/2005/US/03/15/lifesupport.baby.ap/
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Unread 03-27-2005, 03:52 PM   #2 (permalink)
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It is always sad when such a case happens. I feel that parents are being denied their rights of making decisions for their own kids. Look at what's happening to Teri Schavio - her parents trying to save her but judges are siding with the husband.
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Unread 03-27-2005, 04:18 PM   #3 (permalink)
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Quote:
"Texas law allows hospitals to end life support in cases such as this but requires that families be given 10 days to find another facility to care for the patient. No hospital was found to take the baby."
Ohh.....and, from what I heard, the law mentioned above was signed in 1999...signed by then Governor George W. Bush.

Quote:
Bush Criticized for End-of-Life Laws
Friday, March 25, 2005
By Jane Roh

NEW YORK — While Americans were riveted by dramatic events unfolding in Pinellas Park, Fla., a five-month-old Houston baby took his last breath after a hospital let him die despite his mother's objections.

Sun Hudson (search) was born Sept. 25 with thanatophoric dysplasia (search), an incurable and fatal form of dwarfism. Doctors said his tiny lungs would never fully grow and that he would never breathe on his own.

Hudson's mother, Wanda, put up a fight when doctors advised removing Sun from a respirator. She said she did not believe in sickness or death.

But on March 15, a Texas law signed by then-Gov. George W. Bush (search) in 1999 allowed the hospital to go ahead and take Sun off the respirator in defiance of Wanda Hudson's wishes [...]
Link from FoxNews

Yeah. Comes full circle.
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Unread 03-27-2005, 04:42 PM   #4 (permalink)
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Yes, I already about it last week. It's so tragic. And yes, George W. Bush, then Governer of Texas, did indeed signed the bill that would allow the hospital to withdraw food and water (or turn off life machine) and let the sick patients die despite protests from the families.

Talk about hypocrisy!
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Unread 03-27-2005, 06:09 PM   #5 (permalink)
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Now theres a case Hillary clinton should bring up about George W Bush should be impeached!
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Unread 03-27-2005, 06:28 PM   #6 (permalink)
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I feel two ways about this. As a woman with significent medical problems who has done more then the experts have predicted, I think that sometimes doctors DO give up on kids with disabilties too easily. (Oh no...we shouldn't let a kid grow up to be DISABLED!!! It's a fate worse then death!) However, it does seem like some parents aren't exactly in touch with reality. Does anyone know the stats on thanophrpic dysplasia? Is there ANY survival rate?
I do know that some "fatal" genetic disorders do have some surival rates (although they are very low) It's tough.....
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Unread 03-28-2005, 03:20 AM   #7 (permalink)
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Quote:
Originally Posted by ravensteve1961
Now theres a case Hillary clinton should bring up about George W Bush should be impeached!
*gasps* You, a democratic supporter? Wow!

Seriously, I hate it when these issues are brought up. There are times when nothing can be done, but people don't see it that way... and keep trying. As a result, they hurt themselves more.
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Unread 03-28-2005, 06:26 AM   #8 (permalink)
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Originally Posted by VamPyroX
Seriously, I hate it when these issues are brought up. There are times when nothing can be done, but people don't see it that way... and keep trying. As a result, they hurt themselves more.
Do you think that all the states will follow the same thing after what happened to Schviao case ? Just like what happened to Sun, a 5 months old baby in Texas, for example ?

I hope that all the states don't follow. Just have to wait and see what happens down the road............
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Unread 03-28-2005, 02:46 PM   #9 (permalink)
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Im Not a democratic supporter i just dont think bush is doing his job well enough. Like the war on iraq for example. I thought the object of the misson is to capture saddam and bring him back to the US and stand trial for attempting to assassinate George H Bush. Like George H Bush brought general norreaga back to the US and stand trial for drug trafficing.Today hes in prison. But Nooo our men are continuing to die over in iraq. Thats why i want george bush impeached because oil prices are way over the roof and this is our vietnam in iraq.
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Unread 03-28-2005, 07:53 PM   #10 (permalink)
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Quote:
Originally Posted by R3na3Blyth3
It is always sad when such a case happens. I feel that parents are being denied their rights of making decisions for their own kids. Look at what's happening to Teri Schavio - her parents trying to save her but judges are siding with the husband.

Yes, It is sad indeed. Looks like barley anyone have rights anymore.
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Unread 03-30-2005, 04:49 AM   #11 (permalink)
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Oh my dear! I was mad when I read your post here.

They kill baby because of thanatophoric dysplasia? It's not brain damaged. I see nothing wrong thanatophoric dysplaisa patient to stay alive because they can talk, read, walk, of course use tiny bicycle, etc. Why kill???? Oh my God! Yes, I know they won't stay live long.. It could be up to between 30 and 40 years old.

The doctor has no right to against baby's mother's wish.

My son befriend a boy who has thanatophoric dysplasia from other neighhood. He's such lovely boy and have very good talent and normal person. He play football very good and run real fast. I can't image how a boy's mother react when I show those link to her... Oh no!!!!
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Unread 03-30-2005, 10:58 AM   #12 (permalink)
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*sigh* uh-not again!! Why people goes crazy about unplug the machine... Let them alive and have chance near the future would be great better use techoglies improve. Why can't they quit thinking about "right to die" Baby didn't made their decision.. what more.. Respect mother's wishes want her baby stay alive... Doctor want baby die.. simlair alike Michael's type. What hell sumth'n fishy goes carried too far!
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Unread 03-30-2005, 02:37 PM   #13 (permalink)
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Quote:
Originally Posted by ravensteve1961
Im Not a democratic supporter i just dont think bush is doing his job well enough. Like the war on iraq for example. I thought the object of the misson is to capture saddam and bring him back to the US and stand trial for attempting to assassinate George H Bush. Like George H Bush brought general norreaga back to the US and stand trial for drug trafficing.Today hes in prison. But Nooo our men are continuing to die over in iraq. Thats why i want george bush impeached because oil prices are way over the roof and this is our vietnam in iraq.
Therefore, you are a democratic supporter.
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Unread 03-30-2005, 05:31 PM   #14 (permalink)
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Therefore, you are a democratic supporter.
Actually, he's not. He appears to pick and choose who he wants to support based on whether they do something that ticks him off or not. Therefore, he is neither a Republican or Democrat.

This would actually make him
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Unread 03-30-2005, 05:35 PM   #15 (permalink)
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Oceanbreeze & Vampy, maybe he is a *gasp* liberal-conservative?

Edit: or... libertarian?
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Unread 03-30-2005, 06:27 PM   #16 (permalink)
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How can i be a liberal conservitive? Listen if ronald reagan was our president during 9-11 he certainly wouldnt order and invasion on the arab countries. He would done this..

Mr President, I have to inform you that al queda attacked new york city just 20 minutes ago. What are your orders sir?
Just call the penatgon and launch 3 ICBMs over the middle east,,I dont care how you do it just blow em off the face of the earth.
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Unread 03-31-2005, 11:07 AM   #17 (permalink)
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hes giving him an award or something in that picture not an infomation... quit with the picture shit reven.
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Unread 03-31-2005, 11:31 AM   #18 (permalink)
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No,,that man is advisor to president reagan.
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Unread 03-31-2005, 11:35 AM   #19 (permalink)
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Ah well, you are making a point anyway. But dont use Reagan against 9/11.
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Unread 01-15-2006, 12:39 AM   #20 (permalink)
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I had a sister with Thanatophoric Dwarfism/Dysplasia. It is cruel to keep these children alive. They are in constant pain and they have no hope of ever having a life that does not include insurmountable pain. There are a few cases where children have lived more than about 2 hours after birth, but as I said with great amounts of pain and they can never have a normal or even comfortable life. It is impossible for a child's lungs to develop as their rib cage is fused. When we breathe, the cartilage between our lungs allows our rib cage to expand. These children have no cartilage and their rib cage cannot expand as a result. Because of this, even if the lungs did develop some, it would be impossible for the child to be off of life support. They also are missing 4 main bones in their bodies. The Femur and Humorus are not existant in most children with Thanatophoric Dwarfism/Dysplasia.

The comment by someone about knowing a child with Thanatophoric Dwarfism/Dysplasia was obviously made my someone who is confused. It is impossible for a child with this condition to walk, live apart from life support, play football, run, or even appear normal as the person stated.

I am all for protecting the parent's rights to choose for their children, but when a parent prolongs terrible pain for a child who has no hope of ever living without life support, will be brain dead, and will die within a few weeks even on life support I have to agree with the doctors and the hospital and do the huminitarian thing and end the child's suffering. Terry Shivo was not aware of her suffering because she was brain dead. These children can feel until their brain eventually does die and it is torture to put them through that.

Feel free to keep posting about politics, but that is so far from the issue in this article. When this disease is involved there really are not a lot of options.
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Unread 01-15-2006, 01:04 PM   #21 (permalink)
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Quote:
Originally Posted by robier
I had a sister with Thanatophoric Dwarfism/Dysplasia. It is cruel to keep these children alive. They are in constant pain and they have no hope of ever having a life that does not include insurmountable pain. There are a few cases where children have lived more than about 2 hours after birth, but as I said with great amounts of pain and they can never have a normal or even comfortable life. It is impossible for a child's lungs to develop as their rib cage is fused. When we breathe, the cartilage between our lungs allows our rib cage to expand. These children have no cartilage and their rib cage cannot expand as a result. Because of this, even if the lungs did develop some, it would be impossible for the child to be off of life support. They also are missing 4 main bones in their bodies. The Femur and Humorus are not existant in most children with Thanatophoric Dwarfism/Dysplasia.

The comment by someone about knowing a child with Thanatophoric Dwarfism/Dysplasia was obviously made my someone who is confused. It is impossible for a child with this condition to walk, live apart from life support, play football, run, or even appear normal as the person stated.

I am all for protecting the parent's rights to choose for their children, but when a parent prolongs terrible pain for a child who has no hope of ever living without life support, will be brain dead, and will die within a few weeks even on life support I have to agree with the doctors and the hospital and do the huminitarian thing and end the child's suffering. Terry Shivo was not aware of her suffering because she was brain dead. These children can feel until their brain eventually does die and it is torture to put them through that.

Feel free to keep posting about politics, but that is so far from the issue in this article. When this disease is involved there really are not a lot of options.
I am sorry you lost your sister to this terrible disease. I agree with u she should not have suffer longer. Thank you for educate us about this condition. I never heard of this before.
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Unread 01-15-2006, 02:04 PM   #22 (permalink)
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I couldn't help noticing even the very name of this disease means that it's lethal. "Thanatos" is the classical Greek word for "death" and the rest of the word looks like a modification into an adjective. The very name is "lethal dwarfism".
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Unread 01-15-2006, 03:16 PM   #23 (permalink)
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I agree with you. Parents should learn to accept the facts.

If my kid suffered like that, I would pull the plug on him instead of keeping him hooked up to the machine while suffering.
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Unread 01-16-2006, 11:53 PM   #24 (permalink)
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I have to say I am surprize that the child was no allready brain dead putting a baby on life support is not a samll task the child was most likly on bypass and in an infent in has more then a 50% chance of causeing a brain bleed, resperators also casue problems for small children. I have seen this form of Dwarfism and now child desrves to be put thro the suffering of that for even a few minuets If i was pregnet and found out that this wouldbe the fate for my child i would have an abortion to save him/her that pain becaue the child would not be able to live and should be allowed to continue peacefully on to it's next life. this woman obviously nead to seek some pyhcologicl help she does not belive in sickness or death?? what about mercy killings? save the child some pain meny froms Dwarfism are un treetable I know not all but if a child can never be off a resperator and never be out of constant pain you have to let them go. the hospitle did not give up on this child thay did the damedest to let him have a better death.
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Unread 01-17-2006, 01:05 AM   #25 (permalink)
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I see that some people are missing the point, since when does the government has the right to control our lives? Who is the one that gave birth? the mother, that is the only person that has a choice on her own child's fate when the child is on life support not the government not the state of Texas not the judge or anyone all that matter.

When we have children on our own, we should make that choice and we should have that right. It makes me ill to my stomach that other parties get in your personal life and take something from you, a human being and put that human being to death! It doesn't matter how you look at it, Since when we are allowing to kill people?
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Unread 01-17-2006, 01:30 AM   #26 (permalink)
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Just watching a DVD about JohnQ, it is heartwretching decision, because his only child - a son with a bad heart and need heart transplant, but he is jobless, and the professor surgeon Doctor recommend him to take his son home to die peacefully, He asked Dr what would he do if he has same illness as his son, he said "open-heart transplant surgeon no question". He want to operation his son but the cunning surgeon trying to talk him out of it because he is poor and not well-covered with full health insurance etc.

Money $$$$ is the issue!!
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Unread 01-17-2006, 02:18 AM   #27 (permalink)
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Quote:
Quote:
Originally Posted by robier
I had a sister with Thanatophoric Dwarfism/Dysplasia.
First of all I'm very sorry to hear about your sister.

Quote:
It is cruel to keep these children alive. They are in constant pain and they have no hope of ever having a life that does not include insurmountable pain. There are a few cases where children have lived more than about 2 hours after birth, but as I said with great amounts of pain and they can never have a normal or even comfortable life. It is impossible for a child's lungs to develop as their rib cage is fused. When we breathe, the cartilage between our lungs allows our rib cage to expand. These children have no cartilage and their rib cage cannot expand as a result. Because of this, even if the lungs did develop some, it would be impossible for the child to be off of life support. They also are missing 4 main bones in their bodies. The Femur and Humorus are not existant in most children with Thanatophoric Dwarfism/Dysplasia.
we have 13 years old Dwarfism boy named Roman who live 3 minutes away from my house like what I said in my previous post. Of course I saw him EVERYDAY because my boys are befriend with him. He's very happy child and popular with everyone. He has a good talent. He goes same classroom as Danny.

Quote:
The comment by someone about knowing a child with Thanatophoric Dwarfism/Dysplasia was obviously made my someone who is confused. It is impossible for a child with this condition to walk, live apart from life support, play football, run, or even appear normal as the person stated.

I am all for protecting the parent's rights to choose for their children, but when a parent prolongs terrible pain for a child who has no hope of ever living without life support, will be brain dead, and will die within a few weeks even on life support I have to agree with the doctors and the hospital and do the huminitarian thing and end the child's suffering. Terry Shivo was not aware of her suffering because she was brain dead. These children can feel until their brain eventually does die and it is torture to put them through that.

Feel free to keep posting about politics, but that is so far from the issue in this article. When this disease is involved there really are not a lot of options.
Not true, Dwarfisms CAN do with sports... they run real fast... they can ride the bikes... they can talk, laugh and play... good with computer games... They can do everything like normal people but... but... but... I was total surprised after learned from Danny during meal conversation that Roman have to quit to play scooer this year due small body organ (heart) after many years play scooer since he was 6 years old... small field for children scooer is okay but large field is not okay for young dwarfisms (young adult). Roman doing well but big scooer is too much for his small heart... I only tell you what I know in REAL LIFE... Roman and his family live in same village where we live - we saw him EVERYDAY... My children went same school as Roman...
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Unread 01-17-2006, 11:52 AM   #28 (permalink)
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Liebling, there are different forms of dwarfism that don't cause the same problems as this particular form we're discussing, which is lethal.
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