My Answers to your Questionarre
1. How old are you?
19
2. Was your disability accidental or since birth?
Since birth
3. In what ways has it changed your life?
Well since I don't know what my life will be like if I am hearing or otherwise, I could't be able to identify the changes made in my life.
Here I am just giving you a hard time.
4. What has been the most difficult adjustment?
Hm. i think it was more for my parents who have been adjusted this with difficulties. My mother is an immigrant so she felt more devasted about this but she, at the same time, was more aggressive to get me the best education etcetera and learned the ASL soon as possible to child-rear me better.
5. How has it affected your physical image of yourself?
I couldn't see how it does affect my body image... I mean... I know I am sexy, pretty, and awesome. (Ach, better take ahold of my naraccistic self!) Also I do know some people see me as a "hearing" person [i dont know what the hell does a Deaf person look like anyway! I always feel those people who said that I look hearing are narrow-minded. I feel offended when they think I am hearing-- that they are reinforcing the steretype that a Deaf person look "different" from the hearing people when there is NO visual difference!]
6. How has it affected you psychologically?
My deafness, as a psychological tactic, has made me feeling more unqiue-- the ability to stand out more... I have overcame my shyness by accepting that people will stare at me no matter what-- so I decided to absorb it and be more outgoing and more aggressive in asking questions in classroom or whatnot. At least they won't think that I am Miss Goody-Two-Shoes-- they will just account it on my deafness... so in a way, it does give me courage and confidence knowing that I am deaf and different from everybody and a reason to be SO different, lol.
7. How has you(
r) disability affected your family and friends?
It does set some distance between me and my own family. BUt it could be the language-- the fact that my maternal family speak Finnish but they do know English.. but then it could be the location-- we are a continent apart. My brother who is hearing doesn't keep in touch with the maternal family as well. I do know that my paternal family rejected me because I am deaf-- with an exception of my late paternal grandfather who adored me. So it does set me more apart from my Finnish family-- the fact that I am an American, non-Finnish-speaking and DEAF.
8. Is there any necessary treatment or medication for you?
I do have a hearing aid (bte-- behind the ear) but I don't use it since elementary school. Nothing else.
9. To what extent do you consider your disability a handicap?
I never really see my deafness as a handicap. I do see myself as a foreign person living in English-speaking group-- I gesture, I write, I try to understand others by lip-reading et cetera. You may see it as a handicap, but i think it is the same for other people who are speaking ESL (english as second language)... they gesture when they don't know English words, et cetera. The only handicap I see is the fact that if I am handcuffed then I am not able to SPEAK... or that if I got in an accident then I couldn't wake up if an EMT tries to tell me to wake up but I couldn't hear her/him. That would be considered as my hindrance because of my deafness. I don't care about the usage of phone, the ability to hear music, et cetera. I NEVER feel I miss out on anything.
10. What is your reaction to children staring at you? Adults staring?
I don't mind children staring-- i always smile at them--hopefully to sublime the message that DEAF PEOPLE ARE NORMAL, etc. But adults always have those stares that are not kind and INNOCENT like children's. I never never never like the adults staring at me and will try to stare back at them and smile or cock my eyebrows to inform them that "YES I AM NORMAL, AND WHAT ARE YOU LOOKING AT, FUCKHEAD" or something nicer in the tone. I know I am pushing them away by doing it but I think it is SO inconsiderate of them to stare. They are taught manners such as: don't STARE at a person who is in a wheelchair-- it is the same thing with staring at a deaf person! If you want to stare, at least SMILE when you realized you have been caught by the deaf person. When I caught an adult giving me the "glare" and the person just kept his/her face blank and so... COLD. I would snap back but if the person just went "oh. sorry" and smile or whatever, I would appreciate it. Then I will realize that the person was just fascinated, not looking at me as a freak show.
11. What kind of discrimination have you encountered?
OH MY GOD. That Deaf cannot do anything. The MOST recent incident was an art classmate at my university caught me in a parking lot and (who never spoke to me until that moment) asked me, "Do you drive to here?" I was like "uh yeah?" She dropped her jaws, "YOU DRIVE a car?!" I was like "ummm yes?" she was like "Wow!" then contiuned her way. And the comments at school that people would ask, "did you ask anybody else to proofread your paper/ask for help with your paper?" I was like "well I proofread my own paper/helped myself" then they would go "WOW". This irriates me that just because I said English is not my first language or that I cannot hear doesn't mean I am stupid. Also there are a good number of professors who DO think I am little... slow. They will tell me before the class starts, "I will expalin about this, and that and those" then he will repeat the same thing before the class when it starts. Why making me so special? I just want to be treated as a normal college student. Let me sit in the back! Let me hide! I am trying to be patient beacuse i know they want to make sure that I do understand everything but ... I WILL ASK IF I DONT UNDERSTAND LIKE EVERYBODY ELSE WOULD! ARRRRRRRRRRRGH.
12. What do you think is the most helpful way for a temporarily able-bodied person to understand your disability and its psychological aspects?
Put them in our shoes and make them walking a mile. It is hard for people to understand Deaf people... Just don't treat them any different. You wouldn't want to be treated differently? "Do unto others as you would have them do to you."
13. What advice would you give to professionals so that they may be more helpful?
Take a class in Deaf culture/awareness... and a course that may specialize in how to deal with Deaf clients/students/whichever roles Deaf have assumed. Three hours workshop, whatever it takes just to ... warm them up to the Deaf patrons.
14. What positive lessons have you learned from your disability?
Everybody is a-okay-- some just become a-okay at much later in life. Just smile and educate others about "diversity". Educate them with my deafness by being around in public areas everyday among the people. Open their minds as I am living my life as a Deaf woman.
15. What role has a sense of humor played in your life?
I am a funny person. It is my way to meet new people. I do the same thing wiht the hearing people-- to ease them up and be more warm to me-- to talk with me or whatnot. You could say that my humor is my front to the real me. Deep inside, I am just one screwed-up woman (laughing) who make fun of myself all the times. But I do know that my friends and family love me because I can make lemonades out of lemons. Yeah. I definitely use my sense of humor to get along with people-- to get around and meet new people. Because I don't know what else to say except to make fun of myself-- so they can participate and poke at themselves as well then it turns into one big contest of "Who Got the Worst Bathroom Moment"!
[CONTINUED IN NEXT POST-- I have reached the limits of 10,000 characters]