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I know im way late on replying.. thank hun

they have used low and high and still noe he hasnt responded. hes had so many mappings. he has one coming up in 2wks after the holiday.

Isaiah was activated aug 16th he has had mappings every wk due to going from program 1 to 4 in a day or two. he isnt responding where they expect him to. its close to dec now and he still is not hearing or responding. his device was recalled. it is getting removed but he does suffer many other...

I think im sticking to asl only. his recalled device will be getting removed soon.

to who?

:D wish he would keep them in...he rips them off when he gets mad, he takes them off when we go in a car, he loves putting them in his mouth...:roll: lol we had them replaced 2x because of rust build up in the battery compartment

I lived in mass i contacted them and never got a call. A year and a half later they responded. we took the 20wk classes at home and did lots of the stuff but it wasnt working for our family. the hospital was centered on making us believe the cochlear would help and it hasnt. we tried getting him...

:) thank u. I liked when he had 2 aids. now i have to work with both cochlear and aid

we are connected with Unique. They write about the rare disorders. the kids are in the articles. i also use rarechromo.com

He has many disorders. 22q 9p and something else. it might be chrge we dont know yet. genetics is still testing. I hope asd will meet his needs. i love perkins i miss it so much. he is actually starting besby....i guess its like perkins but for CT.

i talk to myself i snore i am not as strong as i seem i am very depressed about my baby bn deaf only because i still dont know fluent sign i will get over it once i know fluent sign i miss my dead son even tho i dont talk about him i tend to block things out well i love cooking

i think i fixed it

thank u

thank u. isaiah has one phonak in baby blue. his cochlear is white nucleus5

he has been hooked up with asd..he has the birth to 3 with them but the lady keeps saying lots of their services have been cut. i asked her about classes for the family as well. i have never heard of asdc tho

yes he went to perkins in boston

thank u...i will be on here a lot. btw its page 8 and 9 just edited the post

I am new to the site. I have 4 children and 2 have hearing loss. my four yr old has hearing loss in one ear and my 1yr old is sesverly to profoundly deaf. I came to this site in order to get help and have other ppl to relate to. Our journey has been nothing close to easy. My 1yr old started with...

im new here too. i have 2 children with a hearing loss. my 4 yr old is hearing on one ear and deaf in the other, my 1yr old is severely/profoundly deaf.

with the CI the last time they mapped he was at 45. no response