I'm hard of speaking

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Protoman2050

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I'm hard of speaking. I finally got the cause of my dysphonia diagnosed when I was introduced to a retired ENT surgeon at my new church, who took an interest in my condition, and offered to do a laryngoscopy free of charge.

He found out my arytenoids were dislocated from the emergency intubation I had when I was born, and says I may also have a tracheal stricture from the tube.

So he recommended I see his colleague at the local hospital's voice clinic (which he founded) for a neck MRI and spirometry; he says surgery can fix it, though.

Communicating if there's any background noise or on the phone is incredibly frustrating, because it's painful to raise my voice, and my normal voice is quiet and low. Communicating with one of you is impossible, because I can't raise my voice nor do I know sign. Perhaps I should get an electrolarynx?

Yesterday I had to go to an important meeting with my uni tutor, and a deaf person was at the front office. She kept pointing to her ear to indicate that she was deaf and told me (through garbled speech that's even more slurred than my dysarthric speech) that I need to raise my voice. I pointed to my throat and told her I couldn't do that, and repeated what I wanted. Instead of finding someone else to assist me or finding me a pen and paper (I forgot my own), she got mad at me. If she wouldn't make an effort to accomodate me, why should I accomodate her? So I just waited until she gave up and went somewhere else, and I walked over to my tutor office and knocked on his door, and we had our meeting.

I hate having to repeat what I say to people, because it's painful and annoying, esp. when it's jokes or a complicated plan. I hate having to talk to people on the phone, because it makes my voice even worse than in RL.

Hopefully, this Monday my GP will write the referral to the laryngologist that ENT surgeon recommended, and I'll be on the road to recovery.

PS: I was effectively born this way, and I see it as a problem that needs urgent fixing (and it affects my breathing); I don't see myself as part of some subculture and like being this way. Why do you?
 
I am sorry to hear of the difficulties you've had with your voice. My question to you is one of curiosity. Why are you here? This appears to be your first post and I'm the nice one here so I'll just let you know before the others jump on you. You put a bad foot forward buddy....

now, with that said I'm also going to assume you are in the medical field or just know medical terms really well. I was a pre-med student many years ago but dropped out after my mother died to tend to my family among other things and the average person doesn't know or are not familiar with the terms you've used. You appear from your post to be of above average intelligence but are lacking in one area but what that is I'm sure the others will point out to you.

For one using the word garbled was rather insulting but that is besides the besides the point.

I do understand your fusteration in regards to being unable to communicate with the Deaf woman you came in contact with but it is not impossible to communicate with "one of us" as you put it. You can use the pen/paper route if you cannot use your voice. Not all of us use ASL so this lady may not even know ASL and that is another assumption that you've made about us.

As for Deaf culture why we have our culture and others don't as far as I'm concerned is the fact that we have our own language. Our own unique language with it's own unique syntax and structure although Deaf Culture is more than just the language. It's a why of life at least for me.

Maybe you didn't mean to come off as you did and I'm willing to keep an open mind and with that said, welcome to alldeaf................not.
 
Last edited:
Protoman2050 said:
I'm hard of speaking. I finally got the cause of my dysphonia diagnosed when I was introduced to a retired ENT surgeon at my new church, who took an interest in my condition, and offered to do a laryngoscopy free of charge.

He found out my arytenoids were dislocated from the emergency intubation I had when I was born, and says I may also have a tracheal stricture from the tube.

So he recommended I see his colleague at the local hospital's voice clinic (which he founded) for a neck MRI and spirometry; he says surgery can fix it, though.

Communicating if there's any background noise or on the phone is incredibly frustrating, because it's painful to raise my voice, and my normal voice is quiet and low. Communicating with one of you is impossible, because I can't raise my voice nor do I know sign. Perhaps I should get an electrolarynx?

Yesterday I had to go to an important meeting with my uni tutor, and a deaf person was at the front office. She kept pointing to her ear to indicate that she was deaf and told me (through garbled speech that's even more slurred than my dysarthric speech) that I need to raise my voice. I pointed to my throat and told her I couldn't do that, and repeated what I wanted. Instead of finding someone else to assist me or finding me a pen and paper (I forgot my own), she got mad at me. If she wouldn't make an effort to accomodate me, why should I accomodate her? So I just waited until she gave up and went somewhere else, and I walked over to my tutor office and knocked on his door, and we had our meeting.

I hate having to repeat what I say to people, because it's painful and annoying, esp. when it's jokes or a complicated plan. I hate having to talk to people on the phone, because it makes my voice even worse than in RL.

Hopefully, this Monday my GP will write the referral to the laryngologist that ENT surgeon recommended, and I'll be on the road to recovery.

PS: I was effectively born this way, and I see it as a problem that needs urgent fixing (and it affects my breathing); I don't see myself as part of some subculture and like being this way. Why do you?
Click to expand...

I don't see you as being part of a subculture either. I see you as a troll.

You have even made a huge mistake when describing your fictional problem.

I won't tell you what it is, so you can just keep wondering how embarrassed you should be. :lol:
 
I think that Protoman2050 should meet Nautilus88007.

Or perhaps they know each other already?

:hmm:
 
mobile_troll.jpg
 
Bottesini said:
I don't see you as being part of a subculture either. I see you as a troll.

You have even made a huge mistake when describing your fictional problem.

I won't tell you what it is, so you can just keep wondering how embarrassed you should be. :lol:
Click to expand...

I figured as much but didn't want to be a total ass.
hm, I won't be as "nice" next time.

:giggle:
 
What is with the trolls on this site? I have been coming here for years and it's never been this horrible. Or maybe it has and I've managed to bypass those threads somehow...:eek3:

like the picture of the troll btw...:giggle:
 
Protoman2050 said:
PS: I was effectively born this way, and I see it as a problem that needs urgent fixing (and it affects my breathing); I don't see myself as part of some subculture and like being this way. Why do you?
Click to expand...

It is a language thingy!

I have a question.... why didn't they fix your problem years ago??????
 
Jaspheth said:
I am sorry to hear of the difficulties you've had with your voice. My question to you is one of curiosity. Why are you here? This appears to be your first post and I'm the nice one here so I'll just let you know before the others jump on you. You put a bad foot forward buddy....

now, with that said I'm also going to assume you are in the medical field or just know medical terms really well. I was a pre-med student many years ago but dropped out after my mother died to tend to my family among other things and the average person doesn't know or are not familiar with the terms you've used. You appear from your post to be of above average intelligence but are lacking in one area but what that is I'm sure the others will point out to you.

For one using the word garbled was rather insulting but that is besides the besides the point.

I do understand your fusteration in regards to being unable to communicate with the Deaf woman you came in contact with but it is not impossible to communicate with "one of us" as you put it. You can use the pen/paper route if you cannot use your voice. Not all of us use ASL so this lady may not even know ASL and that is another assumption that you've made about us.

As for Deaf culture why we have our culture and others don't as far as I'm concerned is the fact that we have our own language. Our own unique language with it's own unique syntax and structure although Deaf Culture is more than just the language. It's a why of life at least for me.

Maybe you didn't mean to come off as you did and I'm willing to keep an open mind and with that said, welcome to alldeaf................not.
Click to expand...

Before you bring up an old thread, check the date. It is last year. :wave:
 
P.s I'm sorry you don't have any friends. Come off as anal and your life is problematic for lacking any personality to make up for your loss of voice. Something tells me once you get ur voice fixed it wont do much for u since you're already an ass for coming h:roll:ere.
 
Protoman2050 said:
I'm hard of speaking. I finally got the cause of my dysphonia diagnosed when I was introduced to a retired ENT surgeon at my new church, who took an interest in my condition, and offered to do a laryngoscopy free of charge.

He found out my arytenoids were dislocated from the emergency intubation I had when I was born, and says I may also have a tracheal stricture from the tube.

So he recommended I see his colleague at the local hospital's voice clinic (which he founded) for a neck MRI and spirometry; he says surgery can fix it, though.

Communicating if there's any background noise or on the phone is incredibly frustrating, because it's painful to raise my voice, and my normal voice is quiet and low. Communicating with one of you is impossible, because I can't raise my voice nor do I know sign. Perhaps I should get an electrolarynx?

Yesterday I had to go to an important meeting with my uni tutor, and a deaf person was at the front office. She kept pointing to her ear to indicate that she was deaf and told me (through garbled speech that's even more slurred than my dysarthric speech) that I need to raise my voice. I pointed to my throat and told her I couldn't do that, and repeated what I wanted. Instead of finding someone else to assist me or finding me a pen and paper (I forgot my own), she got mad at me. If she wouldn't make an effort to accomodate me, why should I accomodate her? So I just waited until she gave up and went somewhere else, and I walked over to my tutor office and knocked on his door, and we had our meeting.

I hate having to repeat what I say to people, because it's painful and annoying, esp. when it's jokes or a complicated plan. I hate having to talk to people on the phone, because it makes my voice even worse than in RL.

Hopefully, this Monday my GP will write the referral to the laryngologist that ENT surgeon recommended, and I'll be on the road to recovery.

PS: I was effectively born this way, and I see it as a problem that needs urgent fixing (and it affects my breathing); I don't see myself as part of some subculture and like being this way. Why do you?
Click to expand...

So, you can hear? Why are you posting on alldeaf?
 
I'd guess that maybe because speaking is so difficult, he may want to learn sign language? :dunno:
 
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