Ahhhhhhhhhh!

candybrowneyes

candybrowneyes

Active Member
Joined
Oct 5, 2008
Messages
1,357
Reaction score
4
OMgosh! My tinnitus is driving me insaneeeeeeeeee =(
 
Ouch!

Do you have it frequently??

It is a sign of more hearing loss.

It could also be from your ear drums not being used to your new hearing aids. (If you have gotten them already)
 
Babyblue said:
Ouch!

Do you have it frequently??

It is a sign of more hearing loss.

It could also be from your ear drums not being used to your new hearing aids. (If you have gotten them already)
Click to expand...

No I dont have them yet, I get them in about a week and a half. I have tinnitus all the time, sometimes worse than others, especially during a meneires attack,
 
candybrowneyes said:
No I dont have them yet, I get them in about a week and a half. I have tinnitus all the time, sometimes worse than others, especially during a meneires attack,
Click to expand...

I think if you look at etalton's posts, she says cochlear implant cures her tinnitus.:wave:
 
Bottesini said:
I think if you look at etalton's posts, she says cochlear implant cures her tinnitus.:wave:
Click to expand...

i hope so! i can tell a change in my tinnitus but its still there just not as loud.

cbe do you have headphones you can crank up and hear a little? would that help drown it out maybe?
 
ncff07 said:
i hope so! i can tell a change in my tinnitus but its still there just not as loud.

cbe do you have headphones you can crank up and hear a little? would that help drown it out maybe?
Click to expand...

I try to do that but my audi says its not good. I have to crank it up so loud to drown it out that he thinks it is damaging my ears more. My audi says I am not a candidate for CI yet but down the road... I just wish it would go away, days and nights like this its hard to try to think about sleeping =(
 
Bottesini said:
I think if you look at etalton's posts, she says cochlear implant cures her tinnitus.:wave:
Click to expand...

Yes, I was lucky. My implant is on the side that had the worst tinnitus. After the surgery, it vanished totally but came back before activation. Since activation, I have no tinnitus in that ear at all. I do have some in the other ear, but nothing really bothersome. Only once in a while I notice it, but it's soft, and only when I "turn off" for the night, or to take a shower and it never lasts long. It has been wonderful. Becoming deaf without having silence is a pain and stressful. Now, my silence is truly that, and I do enjoy that when I first get up in the morning and sleeping is so much easier.
Keep in mind that it doesn't work for everyone. For some, it actually creates tinnitus when the processor is turned off. But, for those of us with MM, it does seem to help.
 
Last edited:
candybrowneyes said:
I try to do that but my audi says its not good. I have to crank it up so loud to drown it out that he thinks it is damaging my ears more. My audi says I am not a candidate for CI yet but down the road... I just wish it would go away, days and nights like this its hard to try to think about sleeping =(
Click to expand...


I totally understand. I was told the same thing. Loud music will make it worst. especially when you turn it off.

I usually just get my noisy box fan. Turn it on. It seems to help somewhat.
Since it is just a low humming sound to counteract the ringing. Seems to take some of the edge off.
 
Have you tried anything? Listening to music or doing something physical like exercising or walking?
 
VamPyroX said:
Have you tried anything? Listening to music or doing something physical like exercising or walking?
Click to expand...

I have tried everything, I have even visited with the tinnitus team at the university hospitals. there isnt really much they can do and that is what sucks. ever since I was diagnosed with meneires I have changed everything. I exercised before but I am doing it more frequent now than ever before, I have changed my diet, everything. The vertigo seems worse when the tinnitus is bad also. Im laying here almost in tears. I turned on the fan, I have music on and I am still going nuts! all the while i feel like a crazy person cause noone else hears it but me =(
 
candybrowneyes said:
I have tried everything, I have even visited with the tinnitus team at the university hospitals. there isnt really much they can do and that is what sucks. ever since I was diagnosed with meneires I have changed everything. I exercised before but I am doing it more frequent now than ever before, I have changed my diet, everything. The vertigo seems worse when the tinnitus is bad also. Im laying here almost in tears. I turned on the fan, I have music on and I am still going nuts! all the while i feel like a crazy person cause noone else hears it but me =(
Click to expand...

Meneire's just plain sucks. No one really understands what you go through unless they travel down the same path. I have been lucky with vertigo and it rarely bothers me, but I know how it feels and when it hits it scares the crap out of me. Between the diet and the diuretics, I only have min-spins now with a touch of vertigo once or twice a month. I joined meneires.org and they are great for support on that side of things candybrowneyes. Diet, understanding, the whole thing. You might want to check it out. And no..you are not a crazy person.
 
candybrowneyes said:
I have tried everything, I have even visited with the tinnitus team at the university hospitals. there isnt really much they can do and that is what sucks. ever since I was diagnosed with meneires I have changed everything. I exercised before but I am doing it more frequent now than ever before, I have changed my diet, everything. The vertigo seems worse when the tinnitus is bad also. Im laying here almost in tears. I turned on the fan, I have music on and I am still going nuts! all the while i feel like a crazy person cause noone else hears it but me =(
Click to expand...



:hug:

You are not crazy...(I would hope not) :giggle:

Many of us experience what you do. It does drive one batty, at times.

The Music and Fan etc.. Does not always get rid of it completely. Just try not to focus so much on it. The music and fan usually just helps me to loss my focus on the tinnitus. White noises etc. are to distract the tinnitus.
To get me thinking and get lost in the other noises, to enable me to re channel my thoughts to something else.
 
etalton said:
I joined meneires.org and they are great for support on that side of things candybrowneyes. Diet, understanding, the whole thing. You might want to check it out. And no..you are not a crazy person.
Click to expand...

Thanks so much, I will definitely check it out <3
 
Babyblue said:
:hug:

You are not crazy...(I would hope not) :giggle:

Many of us experience what you do. It does drive one batty, at times.

The Music and Fan etc.. Does not always get rid of it completely. Just try not to focus so much on it. The music and fan usually just helps me to loss my focus on the tinnitus. White noises etc. are to distract the tinnitus.
To get me thinking and get lost in the other noises, to enable me to re channel my thoughts to something else.
Click to expand...

Batty is definitely a word to describe it! When I go to pick my new hearing aids up my audi wants another hearing test because the other day I was in there my tinnitus was soooo bad, they dont understand the beeps they use sound like what i hear ALL of the time! makin me go nuts! :eek3:
 
I'm sorry you're having to go through this misery, CBE....hang in there.
 
candybrowneyes said:
Batty is definitely a word to describe it! When I go to pick my new hearing aids up my audi wants another hearing test because the other day I was in there my tinnitus was soooo bad, they dont understand the beeps they use sound like what i hear ALL of the time! makin me go nuts! :eek3:
Click to expand...


That I totally understand!!

I have had an appointment with my Audi before when I had tinnitus

I have told my audi this... She told me to raise my hand even if I think I am hearing something. It was so bad that I had to reschedule my hearing test.


The tinnitus I was having at the time, was what prompt me to having a hearing test.

:hug: I really do not know what else to say... but to hang in there. :aw:
 
same here i notices the tinnitus first and it was really bad..still isn't the greatest but it doesn't drive me up the wall quite as often anymore lol...i got a hearing test and i had a mild loss now i have closer to a moderate/severe loss and im going for another audiogram on friday as well as getting my other ha back from being repaired:)
 
I had to check up the word tinnitus since everybody is talking about it. :D That really sounds bad and annoying.

Hope it will be better soon. In the meantime here's a :hug: for you

Jamie
 
I hope you find some peace. I know my tinnutis was so bad, I would just cry all night. One thing they told me years ago was to limit the amount of salt in my diet. I don't know if it helped. Now many years later, I don't cook with salt or use low sodium products.

I know your not a candiate, but CI surgery has decreased my tinnutis by around 90%. If I go without my CIs then I get the roaring, until I put them on.
 
AliciaM said:
same here i notices the tinnitus first and it was really bad..still isn't the greatest but it doesn't drive me up the wall quite as often anymore lol...i got a hearing test and i had a mild loss now i have closer to a moderate/severe loss and im going for another audiogram on friday as well as getting my other ha back from being repaired:)
Click to expand...

Glad yours is better and I put it on your thread also, hope your test goes well...
 
Back
Top