Why are you deaf if you know?

LuciaDisturbed said:
Wow. :shock: How many weeks or months early were you born?

I was born six weeks premature, but I weighed 6 pounds 7 oz. But my medical records said that I was cyanotic at birth. :shock:

I think all this was because my mother was only 16 when she had me.

I think that if I made it to full term (40 weeks) I would have been a somewhat big baby since my birth weight wasn't low.
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i was born 4 months premature and my birth mother was 19 when she had me.

what does it mean to be cyanotic at birth? i've never heard of that term before and am too lazy to do a google search. lol.
 
lucia,

one more thing...i spent the last 35 years not knowing the cause of my hearing loss. it wasn't until my first ci evaluation that I learned about what exactly happened. one of the head ci audis gave me an abr to test for auditory neuropathy given my premature birth history, severe respiratory distress syndrome, jaundice, high billirubin levels and high blood/oxygen exchange, but the results were negative.
 
I became deaf when I was in my mom's womb due to rubella measles. Yep, I was one of the rubella babies.
 
Hear Again said:
i was born 4 months premature and my birth mother was 19 when she had me.
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Wow. I'm glad you made it.

what does it mean to be cyanotic at birth? i've never heard of that term before and am too lazy to do a google search. lol.
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From Merriam-Webster Dictionary:

cyanotic

Main Entry:
cy·a·no·sis Listen to the pronunciation of cyanosis
Pronunciation:
\ˌsī-ə-ˈnō-səs\
Function:
noun
Etymology:
New Latin, from Greek kyanōsis dark blue color, from kyanos
Date:
1834

: a bluish or purplish discoloration (as of skin) due to deficient oxygenation of the blood
— cy·a·not·ic Listen to the pronunciation of cyanotic \-ˈnä-tik\ adjective
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Hear Again said:
lucia,

one more thing...i spent the last 35 years not knowing the cause of my hearing loss. it wasn't until my first ci evaluation that I learned about what exactly happened. one of the head ci audis gave me an abr to test for auditory neuropathy given my premature birth history, severe respiratory distress syndrome, jaundice, high billirubin levels and high blood/oxygen exchange, but the results were negative.
Click to expand...

Wow.
 
born hearing, then hearing falling down.. its been in generations from my mommy's side..
 
Born deaf - unknown cause because reason of my deaf sister and deaf cousin.
 
Born deaf due to cord wrapped around my neck during labor and complications being sick for 6 months after birth - Cause unknown.
 
Deafteen90 said:
Any of you born early?
Doctors think me being born early caused my deafness cos of medication that destroyed it.
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I was born 4 months premature and my CI surgeon said this is one of the many factors that caused my progressive hearing loss.
 
LuciaDisturbed said:
Wow. :shock: How many weeks or months early were you born?

I was born six weeks premature, but I weighed 6 pounds 7 oz. But my medical records said that I was cyanotic at birth. :shock:

I think all this was because my mother was only 16 when she had me.

I think that if I made it to full term (40 weeks) I would have been a somewhat big baby since my birth weight wasn't low.
Click to expand...

I was only 2lb 1oz just a bit bigger than the other poster

I had severe respiratory syndrome also, many blood transfusions was on a ventilator, had mild ROP, lots of infections, fits at a day old, blood poisioning, my lungs kept collapsing so needed lots of chest drains etc. but im now perfectly healthy and just deaf.

I was born at 28 weeks, my mum went into premature labour with me and my sisters. we were triplets but my sis Emily died at 5 months old.
 
Deafteen90 said:
I was only 2lb 1oz just a bit bigger than the other poster

I had severe respiratory syndrome also, many blood transfusions was on a ventilator, had mild ROP, lots of infections, fits at a day old, blood poisioning, my lungs kept collapsing so needed lots of chest drains etc. but im now perfectly healthy and just deaf.

I was born at 28 weeks, my mum went into premature labour with me and my sisters. we were triplets but my sis Emily died at 5 months old.
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Wow, you and I sound almost identical.

I weighed 2 pounds at birth, had severe respiratory distress, severe ROP (which caused my congenital total blindness), jaundice, high billiruben levels, repeated oxygen and blood transfusions, liver failure as well as multiple chest tube insertions among a slew of other complications.

Doctors did not know what my prognosis would be and felt my chances of survival were quite poor (I almost died 3 times). They also suspected that I could have profound mental disabilities, brain damage and/or CP (cerebral palsy) as well as heart problems as I grew older.

I did have a heart murmur as a child, but I have since outgrown it.

Now the only problems I have to date are unrelated to my premature birth history except for my progressive hearing loss and blindness.
 
Hear Again said:
Wow, you and I sound almost identical.

I weighed 2 pounds at birth, had severe respiratory distress, severe ROP (which caused my congenital total blindness), jaundice, high billiruben levels, repeated oxygen and blood transfusions, liver failure as well as multiple chest tube insertions among a slew of other complications.

Doctors did not know what my prognosis would be and felt my chances of survival were quite poor (I almost died 3 times). They also suspected that I could have profound mental disabilities, brain damage and/or CP (cerebral palsy) as well as heart problems as I grew older.

I did have a heart murmur as a child, but I have since outgrown it.

Now the only problems I have to date are unrelated to my premature birth history except for my progressive hearing loss and blindness.
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I was also jaundiced and was not expected to survive. Doctors warned my parents that we would have severe problems which we do not have. I was under care of a opthomalogist during my 1st year of life for my mild ROP but i was ok.

Yeah we sound similar.

I was slow at developing milestones but this is normal for a premature baby
 
Cause-unknown I'd love to know why I'm deaf but I don't know where to get the genetic test for connexin or other gene mutation.
I just want to know what's my odd are of having deaf/hoh child since my fiance Jason have history of deafness in his family and I don't but then again it could be recessive dormant gene going on forever and suddenly appeared and caused my deafness?
My mom pregnancy was normal healthy one and only "bad" thing was I born 2 weeks early no complication only heart murmur.
 
I was diagnosed as deaf at 9 months of age. My mum suspected something a lot time before that as i was different to my hearing sister and not responding to any noise and i also slept through everything. My old audiologist kept telling my parents that i was hearing and i was just being difficult and naughty. I went to a school for the deaf from aged 3-11 years where i totally loved it! Some of the staff there knew me since i was two years old as me and my mum used to go once a week for something
 
Deafteen90 said:
I was also jaundiced and was not expected to survive. Doctors warned my parents that we would have severe problems which we do not have. I was under care of a opthomalogist during my 1st year of life for my mild ROP but i was ok.

Yeah we sound similar.

I was slow at developing milestones but this is normal for a premature baby
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I also saw an opthalmologist since birth.

In terms of my development, I was slow to talk and walk (I didn't talk or walk until I was 3) and my language development was also slow making doctors think that I had a learning disability (it was later confirmed that I didn't). Doctors also blamed my total blindness since it was difficult for me to be mobile and explore my environment due to the fact that I couldn't see.

Because of my slow language development and inability to talk or walk until I was 3, my mother placed me in an early intervention program with a psychologist who worked with me on speech and language starting when I was 4 years old.

After that time, I was put into an early childhood program when I was 5 and held back a year.

My mother decided to hold me back so my slow speech and language development wouldn't have a negative impact on my ability to learn thereby making school more difficult for me in the future. In looking back, I think she made the right decision.
 
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