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Mary Ellen · 05-13-2008, 08:50 PM

My name is Mary Ellen and I am 33 years old. I was diagnosed with Clediocranial Dystosis when I was 2 years old. The lack of clavicles has been the least of my worries. I had supernumerary teeth and had braces for 10 years and had several surgeries on my mouth, including upper and lower jaw surgery. I have also had problems with most of my joints. Tendinitis, Bursitis, knee surgery and two hip surgeries. I am now having back pain from the lordosis of the spine. This fun never stops. My husband and I have also decided not to have children after we were told that I might pass on this abnormality. It is so good to know that I am not alone in my uniqueness. Sorry for the pain and I understand fully what you are going through.

05-13-2008, 08:50 PM	#7 (permalink)
Mary Ellen Mary Ellen Join Date: May 2008 Location: Readyville, TN Posts: 1	I understand My name is Mary Ellen and I am 33 years old. I was diagnosed with Clediocranial Dystosis when I was 2 years old. The lack of clavicles has been the least of my worries. I had supernumerary teeth and had braces for 10 years and had several surgeries on my mouth, including upper and lower jaw surgery. I have also had problems with most of my joints. Tendinitis, Bursitis, knee surgery and two hip surgeries. I am now having back pain from the lordosis of the spine. This fun never stops. My husband and I have also decided not to have children after we were told that I might pass on this abnormality. It is so good to know that I am not alone in my uniqueness. Sorry for the pain and I understand fully what you are going through.