Really? I has RP as Retina. I watched on tv news and read on newspaper about stem cell research will heal for RP and Retina to see. If you're blind. You would get a Bionic for your vision to see. I watched on tv "It's miracles" on ABC or CBS channel. It used to be show up but not on air now. The blind boy wore a thick lenses glasses. It was his born that way. His parents decide to get him a surgery for bionic to see. After surgery. He can see anything. It made me so cry and happy for him. The important is miracle to god will plan for you to get heal your vision. Trust in God. Can I offer you something? I'm taking a "Bausch & Lomb with Lutein! Ocuvite Nutrition for Eyes" Supplement. It will help delay the blind in future. Trust me! Go check it out at
Ocuvite If you want to get one. You better go to Walgreen or Walmart. It will be cheap.
It will not wait for 10 to 15 years later. It will happen if Democratic President win. You know Democratic is support for Stem Cell Research. I never lose my vision for long times since I was born. That's so strange!
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Originally Posted by Aleser
I am deafblind, but not from Usher syndrome. I cannot imagine a cure being thrown in your face- that has never been an option for me, it has never been a temptation.
But I urge you, as someone who has seen far too many blind/vi people chasing fixes and cures... stop. The cure may never come. The cure that works for others may be useless for you. You might end up waiting 10, 15, 20 years worth of trials for the 'right' answer for you to become available- and in the mean time, lose substantial amounts of your vision.
Please, try and accept the fact that your RP will very likely continue to get worse... and if you don't change your perspectives about life with RP, if you don't prepare.. it's you who will suffer. It gets more and more isolating as you continue to lose your vision while lacking appropriate compensating mechanisms.
Meet with others who have RP, especially those with very advanced RP. Meet with a low vision specialist to discuss future options. Consider, especially for now and eventual night travel, orientation and mobility.
Your cure may never come. But the ability to love your disability- that can be worked on, developed, earned the hard way. It is something you can depend on, if you simply try. Don't sit around waiting for a miracle.
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