Sorry guys. I have been so busy the past few months that I really haven't posted on here. My son is STILL in the hospital but has improved alot. He is 5 months old now. He is still at Johns Hopkins in Baltimore but he will soon be transferred to a rehab facility where they will train us on how to care for him. He got a tracheotomy and a feeding tube (G Tube) so we will bring him home with a ventilator.
He got so sick in the beginning of March that they put him on a machine called ECMO. It's basically a life-support machine. He was on that for 4 weeks and we thought we were going to lose him. I was out of my mind basically the whole month of March. I hadn't held him in 2 months and I got to finally hold him on Easter Sunday. It was great.
He looks better and better each time I see him. I setup a carepage for him which is sponsored by JHH. If you all would like to see pictures or read updates, I post them on his carepage. Here is the link to it:
Visit a CarePage: lukedowell
Thanks for all your prayers and support. I appreciate it a lot.