Quote:
Originally Posted by Crux
Hey all,
I'm a Southern Cali ninteen year old Chinese/Taiwanese male currently attending University of California, Irvine.
I was born profoundly deaf with Waardenbuurg Syndrome which is a genetic defect giving me deafness, blue eyes, and lots of white hair. I got a CI at four years old and raised oral.
I like boxing, sports, reading, movies, and good books.
Feel free to ask me any questions.
|
Welcome to AD - it's a nice site!
I have Waardenburg syndrome as well. I don't have the blue eyes but have a white streak in my hair and deafness. My father who was dark skinned didn't have deafness but had one blue eye and one brown eye! Both my siblings have lots of white hair but no or little deafness.
Do you find that many doctors have never heard of it? I'm often having to spell it out to them.
I just recently got a CI as an adult. Quite a few of us with CIs often post in the CI/hearing aid subforum.